INSOMNIACS place to talk in the wee hours

Chevyboy

https://www.facebook.com/video.php?v=1015244489388...

sas-schatzi

hi owlies on kindle , ugh

Happy anniversary Nettie,     sorry blondie about the gs being a horses pituty.

Chevy love the horses,     tang hope you feel better.      Yes Susan variable on the standing and laying, not sitting. Steroids mucking with thyroid level. Absorbing the steroids. Makes face feel like I have a blood pressure cuff around my neck. Hands and feet exploding. 

L&h&p' s sassy

M0mmyof3

Arthritis is starting to kick up. Might get some rain over the next two days off and on.

Chevyboy

Feel better Sassy!  Sorry you don't feel well!  xoxo

Rosevalley

Blondie- my heart goes out to you. I have been there with my brother years ago.. no more cash for anything or any reason. He hands me the bill and I will assist paying it, but no $. Burned one too many times. Your GD will need to learn the hard way and that's her choice since she is 18, a mom and making some poor choices. Give tough firm boundaries. She can't be in your home without you there and if she has a key call a locksmith and change them out. Your pain meds will go missing. I am so very sorry you did not need that with all that you have on your own plate. Extra hugs and prayers for you.

Hope everyone that is feeling poorly feels better. Hugs and fortitude to you all. 

Just got back from the cabin and I smell like woodsmoke... the fire went out last night and was it chilly in there this morning! Yikes. Trying to start a fire at 6am.. half asleep. All the woodsmoke makes my heart bang around and makes me cough, joints all creaky too. Still I Love the forest with it's 100 foot tall Doug Firs... Rained so hard this morning, that at first I couldn't figure out what all the racket was.. no hearing aides on and half asleep - pitiful. Back home in central heat ahhh.  Getting old sucks, I've become a weather weenie. 

Sleep well fellow Owlettes.

JWoo

xoxoxo to everyone!

has anyone tried this? http://www.brainhq.com/#challenges/chemobrain_1_challenge/intro

blondiex46

thanks guys did fb message her.

almost hump day

Alive4Five

blondiex46 ~ I'll never understand these kinds of things...  Anyway, thought you might need this..

Anonymous

Rose, I think there's a special place in heaven for angels like you! 

Tang, 10/24 is 18th anniversary of my first mx. 10/31 will be second anniversary of second mx. October is a difficult month for me. 

Guess where I'm off to tomorrow? Yup, Mom has been in the hospital since Sunday (nasty fall outside, hit her head pretty hard on the concrete, one small cut on Coumadin causes profuse bleeding). Dad not doing well with all of this (truth is, not sure about me). Can't seem to catch a break and waiting for my life to be dull and boring! 

Wren44

2ND, Great photo. Sorry about your Mom. Hitting her head is not good.

Blessings2011

2TA - L&H&Ps!!!!!!!!! 

Chevyboy

Morning gals! Alive, you are a KICK! I just told you I love all the
pictures you guys post on the fuzzy whatever thread, and here you are! So go
back and read it... Ha!

And 2222222nd posted that cute owl-kat, that I was trying to post! Ha,
ha!

Sorry about your Mom 2222222! Sheesh! Someday.... just someday, it will
be better.... hold onto that.....

Morning Wren and Blessings! Sass, are you still feeling bad? What is
going on with her Spookie? And Cammi, did you EVER get back from all the
partying you were doing?

Spookiesmom

IDK CHEVY, I'll try to call her this pm.  She's pretty quiet

camillegal

Good Moring Ladies--

I can not catch up, I used t be always caught up.

Blondie I'm sorry for all this stuff going on, I hope it resolves soon.

222 Hope u'r mom is better. What a mess That's why I'm ever bored cuz boring is a good thing.

Sas are u better?

Oh Chevy let's face it if we turn our brains off, there is no switch to turn it back on. We don't even have generators to help us.

I hope everyone's troubles are fewer and blessing more abundant.

Oh BTW I never got to my party sat. nite I had my D for 2 days. GRRRRRRR

susan3

morning all

Blondiex..many hugs your way

2nd..... Many hugs your way too.

I pray for peace to surround the both of you and give you strength for the day..hang in there

Hope everyone has a blessed day

Holeinone.....hope that zometa was ok for you. Haven't seen you post since the infusion.

camillegal

OK just to let u know I cleaned the litter box and my vacuum sweeper--so so far I've done something. Joey was going to do it, but I told him I would so he stands behind me ad rubs my back while I clean the cat chit up.

Oh I was so mad over the weekend I had 2 parties and stayed I the bathroom a lot thing every Dr. that said we don't know why u have this? Duh Doctors--Well my scans were good as far as cancer goes, so they were good, the rest is just SE's that are there for me to keep. So it's all good, I've bee lucky really, cuz cancer is totslly at bay (I forgot which one tho), but a SE is spelling and typing I figured thst out myself Chevy.

magdalene51

Good morning Owlettes! Well I had my last chemo day before yesterday, met with MO and he is now convinced that I have not had pneumonia, but he can't find anything to explain the shortness of breath. So he sent me to get a lung function study which I had yesterday afternoon. It pretty much wore me out, but with the chemo steroids and the albuterol in the breathing treatment they gave me toward the end I was too shaky to take a nap after. But I did sleep some last night. I think I am a little bit better, walking through the house doesn't leave me so winded. Maybe the MO will prescribe a nebulizer for me, it did seem to help a bit. Anyway, a pulmonologist is going to read the tests and send my doc a report by tomorrow I think.

Blondie, I am so sorry to hear about your family crap. It just doesn't seem to give you a break. I don't have any contact with my family other than the ones I live with and my SIL who is also a BC survivor. I have 4 sisters and a brother, my sisters can best be described as a train wreck waiting to happen, and if it doesn't, they will go looking for one. Some people just have to have drama in their lives. 

Cami, sorry your D screwed up your weekend plans, you always feel better when you get to party a bit, don't you?

Sassy, hope you are feeling better. Rose, your cabin sounds heavenly. I used to love roughing it, and used to be able to build a pretty decent fire. In the olden days.

Love you gals, hope your day is good.

tangandchris

Mags-hooray for last chemo!!! Hope they figure out your breathing issues.

2nd-so sorry what is going on with mom, how frightening and stressful. ((hugs))

cami-are you talking about big D?

yes, holeinone....are you okay? and sassy-what is going on with you?

hugs to everyone!

Chevyboy

Okay, I'm trying.....  But what is  "cancer is totsilly at bay?"  Is that good?    I don't know about that.... and you say SE's cause .... no wait.... you say spelling and typing are side-effects of  treatments?  Or something?  

It's okay little one.... I'll cover you.... What she is saying gals is that she has had the chits for those 2 days she was supposed to be out partying, and that is because of those damn SE's from her meds, or something, BUT those same SE's are causing her lapse of proper spelling and typing???  

Is she kidding me?     Okay, I'll work on this, read it a few more times, and get back with you...

And Mags!  WTH?  a Nebulizer only helped you a little bit?  Do you use Advair or something like that?   I was sicker from Bronchitis than Pneumonia, but maybe that is just me... And were you on Prednisone or anti-B's to help you get better?  We need to consult Sass on this one....  

I wish you to feel better, anyway!

Rosevalley

Magdalene51- It took me for forever to learn to build a fire and have the dang thing stay lit! I am much better at it when I am awake. We have a space heater but it won't do the whole place. Yes we are lucky to have a place in practically old growth on forest service land.. no building, all natural. It isn't insulated so it's a battle to keep it warm, even as tiny as it is only 560sq ft. Had a chipmunk zip up one of the trees and run across the railing and peek in the window- "howdy-do!"  They are so dang cute! Lots of seeds on the vine maples and they must be the equivalent of potato chips to chipmunks! Yummy! They contort themselves to get them. I love watching them.

It's been raining buckets for days... I expect the arc to float down and pick up passengers. Welcome to Oregon winters... they are W E T !!! My Mom lives in Sarasota and I have been thinking about visiting. Ditch the rain and visit a sunny spot. So for all you folks living in Florida. How's the weather??? Worth the misery of flying there?? I hate flying.. I do love my Mom.

Be well everyone. Hope the "D" dies down. I just about pooped myself inside out during chemo.. had to buy diaper cream to relieve the misery!! TMI !!! Ha ha.. It's not for babies anymore! ;-) Whew the crap we all put up with.

Pawprint

Good morning Owls,

Finally getting some cooler weather. Woke up at 6am to walk my dog and had to put a jacket on, for both me and the dog. 

2nd, so so sad about your mom and all that you are dealing with. Big hug goes out to you. I hope you find some peace soon. 

I haven't been posting much. My life has been too busy. Trying to find mini breaks during my day to relax a few minutes and take deep breaths or a short walk. 

I hope everyone has a good day today.

sas-schatzi

Morning Owlettes, Shatzi sat against all the computer cords. Everytime this happens it knocks out my internet. I finally fixed it. But one of the dohiggythingamabobs is broken, so now I don't have any land line phone. Have to wait for DBF to fix. it.

2ta praying, Blondie praying, Mags praying. Me begging.

Spookie I think you have my cell phone?

Yay Mags last chemo YAYAYAYAY hootie who, Now fix up those lungs and you'll be spiffy.

My story is one of those totally ridiculous can't be true stories. Lichen sclerousus(LS) of the entire bottom. Retrospectively, might have been there since before or just after DS born 30 years ago. No problem just one of those things noted on physical exam way back then. Biopsied last summer as an incidental finding on yearly head- to- toe dermatology exam. Derm bx'd it b/c she wasn't used to doing lady parts and thought it was cancer. It wasn't. It was LS. a < dime size thing that was just there, but no problem.

 With the thyroid removal and Rai-131. It took off like a race horse in the 5th week post RAI-131.  The LS treatment is clobeatsol --high power topical steroid and hydrocortisone suppositories. If I don't use them my lady parts can turn to the consistency of a brown paper bag(some have) and the anal sphcinter becomes incompetent i.e doesn't close right therefore I will leak stool. So, there is motivation to do the care. Besides it hurts really bad.

 Separate to this we have been trying to supress the TSH since removal without luck? TSH should be 1.0 or less. I changed  to porcine thyroid hormone(pig). Last test TSH  came back 30.5 and The T's are almost non-existant. Meaning I am so hypothyroid, it's awful. Again the TSH is supposed to be 1.0 to keep any left over cancer thyroid cells from growing. But my body was telling me this several weeks before the test was done. The S/S's were just like before RAI. The STTM book said don't be surprised if you feel worse before you feel better. LOL got way worse and thought this feels just like the Rai time.

Once the test came back, I call big wig doc in Tampa. His nurse gets on a rant about porcine thyroid. No help there. I get out everything and do the detective work. Did a time line as to when symptoms started and studied for many hours. Conclusion:The steroids were absorbed>> they mess with the Hypothalmic -Pituitary-Adrenal Axis(HPA) and the Hypothalamic-Pituitary- Thyroid(HPT) Axis. My PCP was relieved when I walked in with the answer. She was tired. I found the answer as to what to do while reading in the waiting room. Plain T3.

Regretfully, the info on the HPA &HPT info was in the drug info. Two docs GYN & PCP, and me, never considered the trouble that these steroids could cause the thyroid. AHHHH another friggen lesson, but no choice re:treatment, but it is nice to know what the problem is.

This could all settle down, if the thyroid ever gets regulated. But the steroids are interfering. I have hope, but it is being sorely(literally) tested.

Also, I've passed another stone. Now since this is the fourth, and these most recent two have been associated with severely hypothyroid states, AND the first two were during the onset of the goiter. There is some sort of connection with the thyroid, don't know mechanism, but at least it's known too. Likely calcitonin. First two occurred after taking Miacalcin. Those details left out.

 All this means is IF the thyroid gets regulated then maybe the stones will stop and the LS goes back to a quiet state. Please, keep me in your prayers.

Then to consider all the errors of misdiagnoses, Tampa doc saying I didn't need the RAI-131. Just more to the friggen list of errors of almost 6 years. Some of those early errors I think inadvertently saved my life. So, hope in some small way in the future I can look back and say these problems lent to saving my life too. It's a situation that I can't wait for the future to get here to find out the outcome

Spending way too many hours a day contemplating my bottom.

OH DBF and I are on the verge of breaking up.

 

Smaarty

This is us!  

Hope for you that need it dealing with life's crap. Does it ever stop? Wishes for better days ahead.

My GS, 25, goes in today to get his leg cleaned up and toes nails clipped. They have to put him out to do it. Hope he doesn't wake up in too bad of pain. He's the one with CRPS. They also suppose to see about range of motion with his knee, ankle and toes. The ortho doc has said under no circumstances will he ampute his leg. We'll see. Most of his leg is frozen so he can only move it from the hip. Keeping my fingers crossed.

Spookiesmom

Well Sas, that explains why you've been so quiet.  No, don't have cell, landline only.  Too bad about Shatz and Donnie, maybe for the best?

Smaarty

gee sass, don't you ever get a break?  Crap!  I hope everything improves soon. No one wants a pita problem!

Everyone else, keep well.   I've got to get moving and finish taking things apart for the floor people tomorrow, so toots. I'll post a before and after pic when they're done.

Rosevalley

Sass- yikes.. that's a heap o troubles you listed. Sorry. Hope something gives and mends itself. Sorry about the relationship on the rocks too. sucks. hang in there. How's your weather?

Smarty good luck on the floor tomorrow! Send pictures.

Spookiesmom

Rose, come on down! The weather is great, except for a disturbance in the Gulf right now.  Supposed to rain on Miami by Sat.  I'm just up the coast from your mom, if you do come maybe we can do lunch.

tangandchris

Sass-wow, I won't even pretend to understand alot of what you said, but it sounds awful and I'm sorry. Sorry about dbf too, has this been a rocky relationship?

It's a slow day at work today...at least so far. I tried a new recipe in the crock-pot and I'm hoping It'l turn out well. I'm trying not to worry about things that could be better in my life and focus on the good that IS there. Such a hard thing to do for me, I'm such a glass is half empty gal.

A woman at church Sunday that was sitting in front of me stopped me as we were walking out. She had really short hair also and asked if I was part of the "short hair club" and I asked if it was the chemo club? She said yes She's older than me and asked me if I had a good support system around me. She gave me her phone number and asked me to call her if I needed to talk. She is actually part of the women's ministry at my church. Anyway, I DO have a point My point is that I want to reach out to her and I know God had a part in us crossing paths Sunday. I just have such a hard time getting close to people. Also I think maybe I'm worried about her being more "Godly" than I am. haha...I'm a mess.

actually I have no idea why I'm writing about this. Sometimes I just let thoughts stream out

Chevyboy

So Tang.... you are just like us!  Ha, ha!  It's hard sometimes to figure people out....  No-one is more Godly than anyone else.... but some people just don't pay attention to living like we are all HIS children.....  

Don't ever feel "less" than someone else....  Always feel like you are 2 steps ahead of everyone else, and that you are leading the way....   then everyone can follow you, and think you are their leader!    

So WTH is going on here Sass?  I kind of sort of don't understand all of what you said.... parts maybe, but not all of it, other than you are having all sorts of "stuff" going on, that you don't WANT going on.   So that means I am clueless as what to do.  

Smaarty!  I'm so sorry about what is going on with your Grand-son!    Let us know, okay?  

sas-schatzi

To all you lovely owlettes, thanks for the thoughts . DBF got a job last week. Started talking about moving out. Needed his space. Well now he has it. I had him pack sunday. We're not totally done, but time will tell. As many break-ups come down too. 1 money 2. lack of consideration. Those two change and I still love him, I'll consider.

Smarrty reminds me of some stories, I will have to try and find BBL