INSOMNIACS place to talk in the wee hours

camillegal

Susan I don't think anyone skips over anything cuz we all care altho I do read things I don't understand, but I don't skip it. My posts are the boring ones and I don't blame anyone for skipping mine, I never leave my hous LOL

Holeinone

Morning all....

PattyP.....I love your idea about a card shower...getting funny & supportive cards can lift ones heart. Sorry your numbers are up....

Chevy, you said that your grass car was from google, & we want to believe you...but is it possible you created a "pot growing vehicle"? First you posted that sleek car, then a fine photo of your recent hobby, growing a crop of ??? Was it White Russian ? I cannot remember the name of your contraband. We are on to you now. Lots of older ladies are doing it, growing for family & friends....

Susan, hugs to you, does it always mean it spread or could it be an infection..

Maddy, let us know how your folks are doing. That is tough...

Sas, new car smell....I do not know one car from another, but a new one does smell & look good. I drive a Nissan Rogue... It's perfect for me & works for DH & I on road trips with gear & golf clubs.

Phyliss...thinking of you..

FBlueBird, wish I had words to help...it is unfair.

Morning Cami, glad you are smelling fine...

tangandchris

This was on Sunday....Isabella and Me. I love this pic and wanted to share. Sorry it's so big!

tangandchris

 

I love the idea of the cards for FBB! patty, sorry about your counts and that you have to worry...how long of a wait is it?

I love the car story, sorry I can't remember your name my brain is fried!!

2nd-are you okay, saw some stuff about your parents.

everyone else-I'm so fried that I know I've missed alot

as far as my rads goes...I really lost it yesterday afternoon. I just let alot of my feelings come out and it was probably good. I didn't realize how scared I was about doing this! But, it wasn't so bad. The tech could see that I was a wreck and she talked me thru it all. they are zapping from 4-5 different directions and had to put this thing on me to make the machine think there was more of me there. I can't remember what they called it though. Bolus maybe?

I'm just terrified at this point that something will go wrong, because everything has already gone wrong. I know it is pointless to worry, but I can't help it.

love ya'll and I really would like to participate in the card thing for FBB. ((hugs))

PattyPeppermint

hey SAS. Do you have fbb address ?  If so what's the best way to do a shower ?  Don't know if she  would want everyone to have her address but others wouldn't mind.  What's your opinion oh great smart one ? 

camillegal

Oh what a pretty picture---good one.

And Tang I'm sorry this is so difficult for u I really thought it would be better, I wish I could help u with how worried u are, but worry is very difficult to deal with, I do know, it takes a long time to overcome worry if u can. But u't this far along now and it's a good thing, so if u can think of that in this way maybe it will help. U would not be giving rads yet if u weren't ready for them.

HaHa Chevy u got caught this time, Smarty Pants. Hole figured u out right away. She must be very familiar with this type of growth.

Enerva

ok I need to go back and find about the card thing, I missed it. 

So here is a picture of my ex bike lol I sold it. It was a Honda cbr250 2011 so not a big Harley lol I can't afford one of those Harley I wish I could.

Here is a picture of the one I want now lol

Well it's the 500cc sporttouring 

But the one I really wish I could get is this one lol

DUCATI LOL 

Anyway here are the bikes from the show I went.

Holeinone

On one of the other threads, they had everyone mail to one person & she mailed them in a pkg. I PM FBB & asked her if she would like & be comfortable with Getting cards from us. I enjoyed funny, witty cards when I was sick. 

Tang, beautiful photo. I did not take any photos bald. I think my DS might have one, right after he buzzed my hair. I always had a hat or beanie on. Your hair will start to grow, looks & feels like baby hair in the beginning. 

Today is my DD 28th birthday. I had my biopsy one year ago today. I got the results 24 hours later, even though I already knew....the radiologist had pretty much made it clear after the mammo. 

Smaarty

blessings, where are you? How's your head?

Jwoo, didn't forget the lamp, just have email the pic to myself.

Tang, you have a beautiful daughter. How old? Thought you said 4-5?  Now that the first one is done, hopefully not so scary from now on.

Off to swim class, then a retirement party from where I used to work. A little packing after that. 

Have a good day everyone or best that you can handle. Like the card idea.

Oh yeah, I want the flaming bike!

tangandchris

I like the flaming bike too!

I knew too Hole after the mammo and ultrasound-radiologist told me right then and there. Of course he said we have to biopsy, but it was all clear to me after he told me. Hard day for you? ((hugs))

I feel like a whiney baby.....I'll get my stuff together soon and keep on keeping on!

Enerva

Tang I wanted to tell you I used alovera on my skin as soon as I got home after each rad and it helped me a lot. I just bought a plant and I cut of a piece of on of her leaf 🍁 then take the crystal and put it on my Skin . Just wanted to mention in case you have a plant at home  

I will love to send FBB a card too  

Or a crochet hat if any of you lives near her and can pm me your address I can Send tobyou then you can bring to her from me? 

Sending u all hugs . Oh Ya the bike thing is now a dream lol I don't know When I will have $ to get another one but I enjoy just dreaming about it and I won't give my gear away ha ha ha 

Anonymous

I'm 15 pages behind!  I talked to sassafras yesterday and let her know the good news.  I may be eligible for a clinical trial at MD Anderson in Houston for bone mets.  I'm waiting for the appointment now.  Going nuts waiting for the appointment.  Oh wait...maybe I was already nuts.

Sorry I'm MIA.  I'm nuts and I suck.

P

susan3

Phgraham..hope u find out soon

Great bikes...but I'm afraid of them 

Tang..thanks for posting the pic..I love it .  I think you r doing great..loosing it it part of the process. Hugs to you

Blessings...are you staying on your feet ?

I missed card thing too. Would love to participate

Cami, haven't heard about your smells recently !! No showers lately

Opppps, back to work

Ta ta

camillegal

Phylotimeforgoodluck----I pray u get that app't soon.

OK I want the flames too. (bike)

Oh Susan I forgot to mention my shower, how could I, I washed with vanilla, but put on the fragrances of peaches--soothing and want to bite my own arm.

Holeinone

Phylisswhoiswaitingbutprobablyonlyalittlecrazy, great to see you post, the unofficial/official worry wort is always worrying, about everybody!!!!! I hope you get good news soon..

Tang, yes today, tomorrow are unsettled, nervous feeling. I'd better get over it cause all the anniversaries, the 1st surgery, 2nd surgery, chemo date.....yukky sucky.....it's all in the next few weeks. The good thing is I'm busy, most of the time. Still battle the fatigue and Arimidex SE but I know I am lucky. 

gardengumby

luv, maybe you already got your answer... I get pedicures - love em - usually I get one about every 4 to 6 weeks.  I probably should do it more often, but don't want to spend the money.

Nettie, my DX was also following a perfectly pk mammo the prior year.  Yet I had DCIS 7+ cm, 3 IDC - the largest was 13mm, and 2 positive axillary nodes.  They had to have missed it a number of times which is one of the reasons I am so opposed to backing off on mammos to one every 2 years

  

susan3

luvmygoats, forgot about pedicure question. I get them as long as white counts are up. Here is my philosophy , I am sure you asked me for lol......they took my foobs, so I will treat myself to pedicures and sometimes manicures so I can feel special now I only get them every 2 to 3 months...but that works for me. I can cut my own toe nails, but never think about it until the big toe hurts in my gym shoes.

Nettie1964

Sorry but I can't remember if I commented about the mani/pedis before, but this is how it happened for me...

I never stopped getting them, but I go to the same shop everytime, been using them for over 3 years now, I lost my hair at about week 3, so when I went in with no hair, they never asked anything, but when they seated me, they sat me with no one next to me on either side, usually they would seat me in an end chair that way they only left one chair vacant and I noticed they would get their "tools" directly from that little sanitizing box!  (maybe they always do this, but this is when I noticed)!   I went one time with my sister, actually she met me there, I got there a little earlier and was already seated and she came to sit by me and the salon worker ran over to her, touched her arm and said, "no, no...you sit over here"!!  That's when I realized that they understood!  But I spoke up and said, it's ok, she's with me and all was good!! 

Anyway, that's my story!!  And I never had any problems, even once when I was losing my big toenail, they put on a fake nail to protect it!

Enerva

humm me too I forgot to comment on the man/pedí I love to get them but I don't often due to not wanting to pay lol I remember my onco telling me not to get them saying it's dangerous but when ever I can afford I do it, the ladies do a better job than me and it feels so good to be pamper lol 

tangandchris

ohhhh, I want a pedi so bad! I was told no too.....and now I'm just waiting for what I don't know.

Not sure if this a good place to ask, but here goes. I've noticed period cramps the last 2 days. I haven't had one since my first chemo in FEB. Will I get another one?? I know that might stop when I start hormone meds, but I wonder if I'll get a period before that. This is a MO question, but I thought I'd see if anyone had this experience.

Holeinone

Tang, most of us are told old to know, hysterectomy for me 14 yrs ago. Jwoo, Patti or FBbird might be able to answer that...

I have never had a mani or pedi, I have large hands & feet, so I would be self conscious. 

Ok, this is a sad pathetic memory. The boy I had a crush on in High Scool, but I was very shy, the only thing he said to me was "Can you palm a basketball"?.....

camillegal

Tang I have read that the younger women experience cramps and even spotting but talk to u'r MO. I just telling u what I've heard.

Hole that's hysterical I have huge hands and feet and I don't let anyone see my feet they are so ugly, but my hands aren't that ugly just huge---you know when slipper sox re sized one size fits most--well I'm the other side of most. LOL

Enerva

Tang my period stopped at chemo #3 then it was gone 12 months came back for 6 months then gone again lol last month I had it very light so I am not sure any more. My FD said if it goes away for 12 months in a row then it won't ever come back. I know how you feel it's all so Wierd.

camillegal

Enerva don't u read my posts, LOL I have always said there are no rules with this lousy disease. I really think that finding a cure is almost impossible, but if u'r NED or in remission u have to be thankful.

Enerva

ha ha ha yaa you are totally right Cami lol 

I have to share with you my bold picture lol I only kept one I deleted all of them lol here is me bold 

Here is me today, new curls 

camillegal

U are a beauty either way, BTW u have a very nicely shaped head--I realized mine was horrendous. LOL

Enerva

ha ha ha nahhh I could not see my self always had a hat on lol 

I miss my long hair but it's growing slow slow but it's coming lol 

Spookiesmom

Enerva! So nice!!!! I wish my hair had come back so nicely!!  I have chemo curls on one side, the rest is stick straight. 

Enerva

thanks spookie some one told me that the curls may go away, I want to keep them lol but I have to admit that the longer it gets the more like it. I didn't like it short I looked as if I had a fight every night ha ha ha could scare anyone who will see me in the morning short curls are no manageable. 

sas-schatzi

I talked with FBB, she's delighted that you would like to send her cards. BUT my concern is we have a certain anoynimity that is different than other websites. I religiously do not share phone numbers or addresses. I know you know that, but my OCD makes/compells me to say such things. If you have even the slightest bit of OCD(obsessive complusive disorder) you will understand.

But I have worked the problem through to a really easy solution.  I think. I'll do a thread. You post your thoughts and pics and whatever on the thread. I will print it off and mail them. This is actually easier than buying a card and stamp. She will have an easier time keeping them together. I think it will be way more fun b/c we will be able to see what everyone else is doing. We can oh&ah&enjoy.

If you think in terms of traditional showers. It's a gathering. Everyone OH's &AH's&Enjoy's what each has brought to the gathering. Also, at traditional showers what someone brings people respond with teasing and laughing and silliness.

I can also invite the folks from the other threads she's on. 

Sure she could read them on line, but I'll ask her not too. She will be surprised and be able to sit and read with DH. Perhaps her family can take pics that can latter be posted back on the thread. We then can OH & Ah & Enjoy some more The circle of the gathering would then be complete

 Could be a new trend! Truly a virtual shower?