INSOMNIACS place to talk in the wee hours

Nettie1964

Thanks Chevy, but actually the reason I asked is this:

I was talking to a friend that also has BC, she was diagnosed about the time I was finishing chemo!  She was telling me that she had a friend who supposedly had "beat" it, didn't ask how many years, but she said she had mets to the spine and within less than a year she died!  I was thinking mets to the spine meant the back bone and I thought bone mets was certainly treatable!  Maybe she just didn't have the whole story, but she said her friend never kept anything from her!  And I wouldn't think that spine(bone) mets would "take" someone that fast!  That's what has me asking and kind of scared!

Chevyboy

Nettie, there are a lot of threads on here, that talk about mets, but honestly I wouldn't even look at them, until, and IF you were diagnosed with bone mets...

And I would call the Doctor, or your Oncologist, and ask if that is possible, and maybe ask for a test, like a CatScan or an MRI?  I would be afraid too, so I would want to know, and then when you get the all clear sign, then you won't worry any more...

I don't think bone mets "happens that fast" either.....  But I would want to find out if this were possible.... I also think it depends on how many positive nodes, and how aggressive YOUR cancer was. 

Tell your Docs why you are worried.... about your symptoms, and tell him that's why you just want to be tested to make sure.... I mean I would.... 

Okay now.... go enjoy your week-end!   Hi Teka! 

Spookiesmom

OMD THAT WAS FUNNY!!!!!!!

We don't have that problem, but that would go with WHY she got her name. Her bday is Halloween. And the poor thing was afraid to jump off the chair. 

camillegal

Nettie I believe if u get mets to the spine sometimes all of a sudden u mets has turned into u'r whole body organs and it can't be treated. Now if u'r worried about u'r back the chances are u have spinal and disc problems--that seems to happen a  lot with all of this--so many of us have disc proplems with our bones after, it seems to make our bones osteopenia at least of not more--I have lower vertebrae and the bottom 2 discs decaying (I can't think of the proper word) I have scoliosis, and extreme arthritis all in my back and arthritis everywhere this all happened quickly after crap, I've gone to pt and such and do what I'm supposed to do but the pain is always there and not much they can do--and so many of us have lower back problems now so I guess it could be scary, but I do know other people who found mets and did go quickly it just depends I guess--My sister has bone mets and is going good for for 7 yrs still working FT but again it just depends on each person.

Did u understand anything I said, cuz I know I'm bad 'splaining everythin. 

susan3

wait...what did I miss...do we know where sas is and why is teka being deleted...why am I so confused . Someone help me out here

susan3

Nettie, I have mets to the spine. C7 to be exact.  Didn't show in the last tests..yeahhhh. This chemo must be halting it a bit. The best way I can explain is that since it's in my nodes, they can "break" apart and travel anywhere. When they hit the spine, they also get into the bone marrow, and again, they can break off, so to speak, and travel. When bc gets into the nodes, it has already traveled out of breast, but still called breast cancer cause that is it's DNA, so to speak. If a recurrence isn't a primary, it's harder to treat. Primary's are always easier cause they r new. I kinda think of it as....the cancer has been sitting there a long time plotting its return, if it comes back, it is smarter, and comes back to fight against the treatments .   But they have a lot of tricks in their bags to help us along. I am a good example of that. Been fighting this for 12 yrs and I am walking a marathon tomorrow .  So it isn't always gloom and doom.

Hope that made some sense .     I am not sas....lol

camillegal

Susan calm down--Teka deleted her own post--I've done that at times, when pics don't turn out right and someone will search out Sas.

Chevyboy

See Susan.... It's all okay....  Teka deleted herself, for just because....  that's alright....  I think Sass is taking a break or something.... 

I don't think you are confused, anymore than we are..... Of course WE ARE, but that's another story.... Ha!  

If I can help you in any other way, just holler!  

ziggypop

whew.. I have been missing a lot even though I've been checking in every so often. Last thing I knew Chevy was playing with chickens and Cami had had a shower and smelled good & sassy was in the doghouse which luckily Chevy and I left very clean when we vacated (not like the good-for-nothings that occupied it before us). And there was a discussion going on about an unmentionable slithery thing, which I was luckily backed up on about non-allowance in the doghouse. 

Susan - I'm so glad that you didn't get that holeinone was hole in one 'cause for a very long time I was reading it like holl - leen- ih-noo-nee. Like that name in Harry Potter that I still can't say because I never saw the movies or read the books. I call her Hi, ho sometimes and she doesn't seem to mind. Pretty even-keeled gal that lovely delphinium. (I have one blooming in the garden now hole). 

TANG! - Stop it with these infections. Time for you to be done with this chit. And you will be. With the chemo done, your body should be able to heal better. Hugs to you sweetie.. you have sure had a rough go of it. As far as your daughters go.. they really are coming up with new tests and things all the time. It's hard to say what things will be like ten years from now - I know one thing, Sassy's going to have rid the medical world of paintball therapy... and that is going to be a big improvement. For now, just get yourself better. 

ziggypop

Ok the Chevster lost her marbles (well duh) and Cami got drunk and Nettie's falling down - YUCK, vertigo, nasty stuff, I hope you're upright again Nettie. Chevy I didn't break any more fingers, but I think I rebroke the one and some of the keys on my keyboard went out - a few are still sticky so if I don't pay attention, there won't be any ems or cees or vees in my posts. But before it was the ee and the ar and the esses plus the aitch sometimes and it's REALLY HARD TO WRITE WHEN HALF YOUR LETTERS ARE MISSING!!!!!!!!!!! It's kind of like trying to understand things when half your marbles are gone. You know how that is. Oh FBB I am glad that you had a family memorial day AND that you caught the fact that Cami & Chevy were showering together AGAIN. (we won't talk about that cause it gets chevy's chicken feathers all ruffled up). FBB, I'm going to make one of these to attract Orioles, and we get finches and cardinals and bluejays and woodpeckers ... but unsure how to get bluebirds to come visit so you're going to have to be my one and only bluebird, which is fine with me since you are bestest and fiercest bluebird of them all: 

Pawprint, so glad that little pooch of yours is doing okay. 

Chevyboy

Oh Ziggers!  Lilshit I'm so glad you found your way back...!!!  BBL in the morning! xoxoxo

camillegal

Hi Ziggy missed you. Oh and I like the reasoning why spelling is so difficult yes my keys stick all the time nd there the ones you don't see when I'm typing.

Spookiesmom

Netti. I have read in several places on BCO that if a pain lasts more than 2 weeks, get checked out. My MO said bones mets hurt a LOT.

It is hard to deal with any new ache or pain. Always in the back of your mind, is it back?  But as time goes by, it does get easier. Really. 

Spookiesmom

I just called Sas, got her ans mach.  Left message to call me, or put a message here. 

ziggypop

Tree Babies!

I think I'm gonna get Sassy a tree baby for her birthday. Shhh.. don't tell. 

Nettie1964

Crap, I take the night off to go dancing and I missed do much..... hope to catch up tomorrow. Going to bed..tired and achy. Was achy before dance, took muscle relaxer and had a good time. But it's wearing off do I'm off to bed.

Blessings2011

Owlettes - many, many thanks to all of you who responded to my post about quitting Femara. It meant the world to me to hear your encouragement, and I know in my heart that I'm doing the right thing.

And if I had any doubts left, I had the most amazing phone conversation with the new Cancer Coordinator at Kaiser this afternoon, who assured me that I had done everything and tried my hardest to stay on the meds and now it was time to stop. She said that my quality of life was more important than fighting SEs for another three years, and that I should start making those plans with my husband.

Today is my third day off the drug.... we know that the chemicals don't completely clear your system for six days, but mentally I am in such a better place. We went for a bike ride after dinner... (me on my adult trike, all trussed up with my back brace) The breeze was cool, the sunset was beautiful, the birds were flying overhead as we rode past a stream.

I have so much to thank God for, and I just wanted you all to know that YOU are all special blessings in my life, and I am grateful for each and every one of you.

xoxoxoxoxo

Get it? THREAD? yuk yuk yuk.... 

Smaarty

ok, I know most of you have gone to bed already. Here's the girls and me and the happy couple.

Anonymous

Blessings, it will only get better from here! Having the stress gone must be a relief in itself.

Love the tree babies!

Can I ever get caught up? That would be a No!

Blessings2011

Happy couple, BEAUTIFUL dresses, and one gorgeous, svelte Smaarty!!! 

2TA - thinking about going to be early tonight - I have an early appointment tomorrow: NOON!!!  You are right. The mental stress diminishes day by day. Sending you L&H&P..... and 

LeeA

Great photo, Smaarty!  Everyone looks beautiful and happy. 

---

Susan, that was a very good explanation. 

---

We had some disturbing news today.  We live in a 55+ adult community (I'm 55, my husband is 54 and we just moved here from California in late September).  Apparently there was a murder/suicide a couple of blocks away sometimes yesterday.  We didn't know the people but our neighbor told us the husband is said to have killed the wife, the dog and then himself.  It feels like there's a dark cloud suspended overhead.  When I think of how many people are trying to stay healthy and stay alive and then someone has to end another person's life.  Why not just take your own??  These are rhetorical questions of course.  I'm just having a hard time shaking the thought of this happening.  I mean, I know it happens all the time but . . . (trails off)

camillegal

Blessings, I'm so glad u have that relief, now u can get on with enjoying u'r life with u'r DH.

Smaarty I love that color for the dresses and u look so proud---beautiful pics.

camillegal

Lee- OMG I know we hear of these things, on TV and news stuff, but to have it so close to home must be shattering whether u knew them  or not. U can never understand the mindset of anyone doing such a horrible thing like that, how can anyone take anothers life for any reason and then take their own, like u said when so many are struggling to make it thru life. U'r whole neighborhood must be in shock, maybe just stay clear of all the drama for u'r sake, but knowing me I'd want o know everything that led up to it. But I'm weird we all know that.

chit how sad.

Chevyboy

So am I mistaken, or did Lilshit somehow pop in ?  I mean I THOUGHT I saw her, and she actually SAID something, but then I .... Oh wait, then she posts a picture of "tree babies"???  WHAT did I miss?

What does that have to do with anything somewhere, or likely no-where?   Oh well...  She comes and she goes....  probably off working in her gardens somewhere...

Spookie, that makes sense...  about the pain...  Maybe that will help Nettie.... We've been HOLLERing at her to go get it checked, just to make sure....  Maybe she will mind us now..... 

Oh?  So now she's "dancing?"  That's what she SAID gals.... Nettie went pole dancing!  Did I read that wrong?   Oh well, you GO girl!  I LOVE dancing!  I used to do that, but only when our guys were deer hunting, and gone for a few days, and THEN we would go out and raise hell, and have fun!    And we would drink, and tell dirty jokes, and just do things I never did when I was younger....!

Just like Cammi did.... I mean SHE was out every night with Billy Bodandistal, raising hell, and never going home!  Ask her!  She'll probably deny it, but we all know different...

Blessings!  I loved your post.... and the kitty!  Yes, I love this thread too, cause YOU gals are here!  Glad you quit the med.....  Sometimes those things are harder on you than the actual DX.... 

You went for a bike ride?  I would kill myself..... It would have to have 8 wheels! 

Does it look like this?

You need to put cards with clothespins on the spokes of the tires... AND a little bell to ring, to get people out of the way....  Maybe a few streamers on the handle-bars!    THEN you will be ridin' in style!

Smarty!  I love the pictures you post!  Weddings are just magical!

And MaddyMae.... Morning kiddo!  We don't worry about catching up, we just jump in, and pretend we know what we are doing...Ha!

Lee.... I'm sorry....  It's like the older WE get, and the lousy news we hear, just makes you more afraid!    People are just NUTS now-a-days.  I mean more than me and Cammi even!   I'm with you....  Don't hurt anyone else, if you are THAT mad, or hurt, just go somewhere and leave everyone and everything else alone!   Damn people!

Cammi, you are not weird...  But that word is fun.... you even spelled it right...  WHAT?  did you look it up?   

Okay gals.... the sun is starting to come up, and I have been going out back every morning to watch the world wake up.... with my coffee...

BBL..... xoxoxoxo

camillegal

Here I am again---I was out too Chevy I do a little walking now that it's nice, I do my stripping at nite 00ps I mean my phones and TV at night.  And yes Chevy Back in the day I would stay out all night and work a double shift the next day and never paid for a drink and I did drink those days, that would be the weekends my girls would stay with their grandparents and a little bit with their father00so I'd come home Sunday adternoon and sleep a little then my kids would be home but I could hide the circles then, now if I stay up it's not out of chouce but I can't sleep out of pain hahaha--but I did have fun. All my real friends were married then so I'd see them differently, these were my drinking and staying out buddies.

It's a beautiful day today and we were all out on the deck already even the cat and dog---- OK I'll be back later on

Happy Saturday

Chevyboy

You are on a deck?  On a boat?  DRINKING?  Figures.....  Just like ole' times!

Anonymous

Stripping? Good Grief! I don't even let my mirror see this body nekkid! It would probably shatter into a gazillion pieces! Pole dancing? Ha! The Polish people I know don't know how to dance, so I guess that's out too.

Have to wake up DH. He works OT all day today. Chi Ching!

FierceBluebird

So happy to see Ziggy back!  Yes, bluebirds are hard to lure to an area. They love "edge" habitats. Open fields and woods. Some people have luck with mealworms, but yuck.... I'm not a mealworm kind of girl.  I will be your one true bluebird! 

Until you get your official oriole feeder, you can try putting up a nail that holds half an orange. Fill the center with a tablespoon of grape jelly, and they love that too. Easy oriole feeder!  I sometimes eat the orange and just use the skin. They mostly just love the jelly and the orange color attracts them. 

Lee, that is really sad. I used to work in a counseling center and although it is hard to understand, try to remember the murder suicide is one of mental illness. They are not in their right mind at the time. Mental illness is just like any other disease like cancer that you can't always see. I pray for the ones who are the shooters as well as the victims. Both have families that are grieving and hurt. I'm sorry this clouded your new move which should be a happy one. 

Soteria, don't challenge Chevy! She will have you up and pole dancing in no time!  

Chevy, my mom had some balance issues and couldn't ride a bike when she got older. My dad bought her that bike! She was mortified and refused to ever use it. So it went on to a yard sale.

Pawprint

Good morning owlettes....

I love that bike you posted Chevy. It's so funny, just like FBB family, my dad got my mom that bike, and she never once rode it. I think it's a cool bike and I would ride a bike like that if I had one.

I noticed after my iron infusion on Thursday afternoon I had slightly more energy. I usually do something and rest. I was able to shower and not have to rest afterwards ) hey Cami do you rest after your showers? 

My television set kept going out over the last month. I'd be watching it and the screen would go black for about 10-15 minutes. So I found a great deal on a 50" Smart Samsung television bundled with a Samsung Blu-Ray player. It arrived Thursday morning. So today I will attempt to set it up...let's see how smart I am setting up a Smart television. Got some friends coming over to assist. I am very techno challenged. 

Anonymous

Blessings, did you get some rest? Love the sweet kitty!

Smaarty, those dresses are stunning! Amazing job you did,they beautifully (and I bet saved a chunk of change)

$oteria, $o good for extra $$$ (love the new avatar too).

Good luck, Pawprint, I hate the technical stuff, I can do it, just frustrating and takes me so long. But then, you have a new TV! Hoot, hoot!

Chevy, love the bike! I could ride that one without falling off! And with 2 baskets could carry a little sum thing, sum thing too.

Lee, am so sorry! Stuff like that shakes the soul. It doesn't seem right at all (cuz it isn't). FBB explained it best.

Cami, enjoy the deck, watch the furbabies. 

For anyone I forgot, have a great Saturday!