INSOMNIACS place to talk in the wee hours

sas-schatzi

If all else fails read the directions----if you think you know the directions ----and things aren't working-----then read the directions again

tangandchris

I am convinced that Hydrocodone causes insomnia!!

Gonna try to go back to bed now.

Blessings2011

2TA – Cute pic for LMG! And the Cat in the Hat? Too true!!!
LOL

Chevy – I always suggest ladies starting chemo have a
baseline audiogram. Certain chemo drugs are known for their ototoxicity. A
friend of mine sailed through several rounds of chemo, but the last one – the “just
in case” one suggested by her MO – left her deaf. Another friend lost a
significant amount of hearing after chemo. She was prescribed hearing aids, but
since she didn’t have a baseline hearing test prior to chemo, they said she
could have had the loss all along. If she had a report showing normal hearing before she had chemo,
her hearing aids would have been paid for as a cancer treatment-related
expense. (And they ain’t cheap!) Probably not a bad idea to do this with other
drugs, eh?

Good pics, Teka! Re: the BP meds, do you have side effects?

FBB – I always wanted leaf prints in the concrete, too. I’d
also like to have raccoon prints, but that’s another story! I SO hope you get
seen soon, so you can get to feeling better….

Tang – So did you have to go on BP meds? Any side effects? Good
luck with taxes… we JUST got ours done. My brother swears that hydrocodone
gives him insomnia. Not me! I love my Norco.

Nettie, dwill, Alyson – big hugs!!!

Holeinone – I am so jealous of all the bulbs in your garden!
I have some miniature daffodils that last for maybe two weeks. I also have some
cute miniature calla lilies that haven’t come up yet.

Sassypants – slow down, Missy! I know you want everything done NOW,
but don’t wear yourself out. Will check out the 2D6 thread, thanx.

Ziggy – love old B&W photos!

MissGrahamCracker – are you trying to make me hungry?
Because you did! YUM!

Wren – my MO agrees it’s the Femara raising my BP, but she
believes I can get it back down again with diet and exercise. And yes – the BP
machines at Kaiser SUCK. They go out of calibration after about 5 patients. I
usually ask a nurse to take it with a sphyg one o’ them old fashioned cuff and
stethoscope models. They’re old but accurate. The nurse at my MO's has me rest a
while, then stand up suddenly to see if he can get my BP down. Nice trick, good
for about 20 pts. Do you have any SEs from your BP meds?

Dutch – I have done that before. I have three of those empty
“weekly” pill organizers, but I always take a different cocktail of drugs at
night, so it’s not efficient for me. Hope you get a good night’s sleep anyway!

O.K., my little Owlettes…. Sweet dreams to all of you!!!

xoxo 

Blessings2011

FOR MISS SASSYPANTS:

sas-schatzi

Tang, any drug can cause insomnia. dirrahea constipation abdomial discomfort .The AI's and Tamox are horrible for this . but I don't think you are there yet? You're still on chemo?

sas-schatzi

Before I forget

Blessings I truly need to think--rough--enjoying wine

Orthostatic hypotension test- i.e from laying/sitting to standing should allow 2 full minutes for equillbration. translation-----the body needs to adjust by the systems involved. if the BP is taken before this allowance for the system(sympathetic nervous system) to adjust , then you can get a false low reading. Yes, it will drop your BP , but it is not accurate. Where your nurse ever came up with this as a way to show a difference in reading /evaluating a BP.has been a problem for BP evaluation for decades. It's poorly taught to young nurses(and old) and unless they are taught the hemodynamics of the nervous system the value of orthostatic BP's . There's no point. Trying to think of an analogy.....----not coming. Sorry , but her technique is absolutley WRONG.

Not understanding hemodynamics and proper Bp taking  leads to improper analysis of BP.  

The outcome way of doing a BP in this way is false. 

The doc then bases his/her judgement on management is based on false information.

This knowledge has been available since the early 80's

What it means is you could be hypertensive and b/c the nurse is playing this game is,  all her docs patients are at risk----for all the outcomes of uncontrolled hypertension.

Congestive heart failure, undx'd renal problems, stroke, peripheral vascular disease.

Wow , that's allot.

Please come back and tell me I have the situation  wrong?

Anonymous

Slept for 2 hours and now I'm awake again.  Poop!

sas-schatzi

Blessings I was trying to put a radioactive  choice in my documents section for avatars. Based on the directions given by whomever gave the directions , I was able to store many choices. At the time,I didn't know was going to be radio active at a given point. 

Now following the directions I can't seem to accomplish the same thing. OH well-----It's okay b/c I put some weird things in the group, that will be weird during the time.

sas-schatzi

Philly where are you?

sas-schatzi

Okay Talked to phylly she's in NO, but awake------But wants to sleep.

Blessings2011

MissSassyPants - no, you're absolutely right about the orthostatic hypotension.... that's the reason for the "stand-up-quick" method of getting a reading.

However, this is not just some nurse's lazy way of getting a good reading- the way it was explained to me is that the initial high number is logged in. A few minutes later, another reading is taken, and if that is still high, a final reading is taken at the end of the visit.

The test for orthostatic hypotension has more to do with diagnosing the type of high blood pressure. If BO can be reduced by changing positions, that means something as opposed to BP measurements that cannot be changed positionally. All readings are reported and logged in along with any comments as to how they were obtained.

But in MY opinion, no machine can replace a good nurse with a functioning stethoscope and BP CUFF!

Did that explain it any better?

camillegal

Good  Morning all, I hope everyone has a good day today and feels decent and travels safely.

BTW Phylowherethehellyouare----are u traveling alone or with someone---I missed it somewhere.

OK I'm so far behind I can't remember chit, but I do remember Nettie having a terrible start to the day, but it got better and Sas u keep u'rself to busy, just relax

Chevy I hope things are going better for u, I told u if he won't stay down, use a hammer--works every time.

Busy day yesterday, for me to busy and emotional and just tough--long story but my DD was upset our bank acc't was frozen by the IRS, well yea my fault who I have been fighting with the government for 3 yrs now and that's how the day started--It took me almost 3 hrs to straighten everything out but she gets hysterical and I went for my scan, the best part of my day actually--Oh the cable went out too, Then I go for more tests 1 and 1/2 hrs I could not pee I finally left they were closing and one of the techs says u'r color isn't good would u like us to take u to ER-WHAT???? NO--so I have to pee again today and go back. If I had money I ould understand about IRS but they see the little amount I have and I've been trying to work it out and they freeze the little money I have, so my skin was gray No Wonder.  I was so tired and Joey knew our day wasn't goo so he spent the evening with me just cuddling and kissing and he rubbed my back, My sister called about 9"30 and we talked for almost 2 hrs. and she has to work today so that was stupid. Then Katie-Kat and  I cuddled and we both fell sound asleep.

Hope everyone has a decent day today.

Chevyboy

Man, I leave you guys alone for a few minutes, and all hell breaks loose!   Sorry about that money stuff kid....  It can drive a person nuts!   Guess I can't help you with THAT one...  I'm so glad you have Joey and Katie-Kat...  I don't have no-one...  Or is it anyone?   I mean sometimes you just want to say FI, and go to bed, and try again in the morning.  I guess we ALL have those days... 

Okay wait..... I have to go get my coffee..... 

dutchiris

Dang, Cami, such chit!  Glad you got it straightened out.  

Chevyboy

LilshitZiggy!   THAT was great!  I loved prancing around on that roof-top with you guys!  Ha, ha!  I needed to smile this morning! 

DH getting so depressed!   I mean I could REALLY give him something to be depressed about,  but I am waiting until the sun comes up...

JUST kidding!  sort of..... DD coming over tomorrow, maybe then he will perk out of it....

I'm making a run to the store today.... Yep, WALMART!....   We need to stock up on some vittles....   for the ice-box.  

Morning Spookie!    YOU who live in Florida, where it is always not WINTER! 

TANG, you are just playing into Ziggy's hands!   If you TELL her that, she will just do it more....!  And make me laugh even MORE...

Soon your taxes will be done....  If you were old enough, you could get them done free?  I mean I DO know people who are of a certain age, and we.... I mean they get them done free!  With AARP... 

I think when you even get older than THAT, you move on to OPDGAS....  That stands for old people don't give a s...!   And that's like my neighbors!  They don't even DO taxes!  I don't know how or why, but they don't!

Phylliswampgal!  OMG!  She is becoming ONE of them!    Just take your teeth out, and they won't get stuck!    And "crab" things and some B. sauce, and GUMBO?   That is probably good if you are a Penguin!

Spooky, My Dad lived in San Francisco, and he made his coffee just like those folk did!  I mean with that Chicory coffee, one spoon of his finished coffee, could make a POT of normal people's coffee!  I'm sayin' that he held his coffee over-night, and warmed it up in the mornings!  When me and my Brother visited them, we ran to McDonalds for REAL coffee! 

Hi Teka and Wren and Dutchess!

Oh Sassy, we didn't even notice you changed your Avatar!  WHAT?  You mean it is DIFFERENT???    Ha, ha!     I think there is a name for that...   It is "IwilldrivethemcrazywonderingwhoIam" syndrome. 

I understand "un-glued"  but usually not the rest...

Okay Blessings...  I had one test... the cyp2d6?? test, but I know that is not the one you are talking about...   Interesting about your friend!  No, I had never HEARD...of that test, or even TOLD that SOMEtimes you could have a stroke from Tamoxifen...  Yes, it does warn of that, but like all the other SE's mentioned, we never pay attention, or even THINK that it will happen!   There is that certain gene, in the latest findings, that DOES say, we should all be tested for that....

I mean people of a certain age.....  (Oh wait till Ziggie gets a hold of THAT one!)  Yes, hearing aids from the ENT were over $5-6 thousand.  But Costco has them for 1/2 that... 

And now our Insurance will pay all but about $6 hundred for each one... I mean if I ever need new ones...  Thank you for posting that... 

An Oncologist SHOULD have known this could happen, right?  But the group that I went to did not.... Even after I sent them information on about 6 pages from the Internet!  

I think they didn't want to be responsible... 

Oh Hi Dutchess!  What-choo doin' up so early? 

Linda-n3

Just stopping by to say hello to all - am way behind, about page 368 I think.... anyway, I think of you all, hope you have some moments of peace and joy today. I caught up enough to see that there is a lot of crap going on for many of you, so I am just sending you all hugs and lovingkindness to get you through just one more day!

camillegal

Hello it's me lalalalalal--I go into song.

Chevy just where do u live?  Where u go buy vittles and have an ice-box--what century are u living in. I mean my Grandma used to say and ica-boxa so I think  there are more years on u than u admit to. I'm glad u'r dd is coming tomorrow, but can't u wait for u'r vittles til tomorrow?

My niece just called my brother is out of surgery and it went well. So that's done. I'll bet he woke up and wants some vittles.oh I mean food.

OK Gotsta do some stuff.

Nettie1964

Damn it!  I go to bed early and sleep all night and now I'm way behind again!!  Anyway, can't remember if I posted this pic before, but here it is!

ziggypop

Sassy - no more spelling corrections, I am so sorry. Sometimes I play too hard. I would not want to change a single thing about how you write your posts. They are fun and smart and of course your spelling isn't going to keep up with your mind. Also, yes, very impressed. 

Will check back in later today and see if the Chevster had had anymore Starbucks adventures and if Cami was able to pee.

Nettie1964

Chevy, my husband makes his coffee strong like that and
he never pours any out! He will heat in microwave for days! YUCK!!
I finally bought a Keurig, thinking this would stop that, you know, one
cup at a time, but NNNOOO, he still makes the full pot and somedays it's gone
by end of day and somedays he's still working on it for two days later!

And Cami - dealing with the IRS just sucks!!!
Wishing you luck!! I have had my fair share of dealing with them,
but I'm pretty good at numbers and believe it or not, I've always won!!
I've had them settle with me several times!!

And Chevy, the hearing loss stuff is scary!! And to think the doctor’s did not know this
could happen! And wow, I never realized
hearing aides were so expensive!

And I forget, but did I read that one of you is going to New
Orleans! It’s sad, I live only 3 hours
from there and cannot stand to go! It
was just NASTY the last time I went, smell of alcohol and urine! Hope you have a much nicer time!

And about the BP, my MO said I needed to see my PCP because
my BP was high, thanks to Aromasin!! But
when I went to the PCP and they took it the old fashioned way, stethoscope and
cuff, it was fine! Go figure! I think someone else mentioned that this was
the best way! But anyway, due to the
suggestion of my MO about high BP, my PCP put me on med anyway!

Also, I’ve been reading on other threads and it’s odd that I
find so many common medical conditions among us.. another being the thyroid
problems! I too have that but I’m not
sure to this day if I’m on the correct medicine! I don’t think I’ve found a doctor yet that
checks all the sides to this problem!

Well I’m at work, so I guess I better get to it! Hope you ladies have a nice day! Mine will end with my massage
appointment! Sounds nice, right??? NOT!
This is the appointment where they are trying to “release” scar tissue
from radiation to relive other issues!!
It is very painful!! Oh well, it
has to be done! Such is the life!! Just curious though, have any of you had
issues with scar tissue? I mean, this is
on my right side and it is wreaking havoc with my right arm, but also, my left
hip! Yeah right, I said, my left
hip!! Something about the way the body
is connected through nerves and fascia!
My son, a PT, tried to explain it to me because I thought the others
were feeding me a line of BS! But he
said it can happen! Get that “can”
happen, and yep, I’m the one it “does” happen to! I can never just have the norm, always got to
be different!!

I’ll try to catch up again later!

FierceBluebird

ziggypop, you should have warned me not to have three glasses of wine before ledge dancing!  Of course it took three glasses of wine to get me up there, but even so!  It was a blast though!

Teka, loved the chicken and the owl. If only the owls around here felt the same way about my chickens! Owls will pull the heads off of chickens just for fun. Ugh!

Blessings, I raccoons do the same thing to my chickens. Not a fan of them either and wouldn't want prints around! But they are so darn cute.

dutchiris, don't worry about taking extra levothyroxine. My endocrinologist tells me if I'm feeling sluggish to take an extra levothyroxine once weekly.  Can't help you with the tamoxifen though. 

Have a lovely Tuesday to all.One month ago today I was getting my skull split open!  Sas, my typing and vision has come a long way baby! You were a goldmine of information and help.

camillegal

Oh Bluebird u sound good, I'm so happy that u sound good like this.

Nettie if u think it, it will come. I swear 1/2 the Drs. really don't know ALL that could happen with all this crap we're given. Like my sister said they're looking at one thing only and what treats it, but we have to endure ny kind of side effcts for who knows how long and yea I've got the thyroid thing too and numerous other crap that doesn't leave me and yet I'm fine with the cancer, but watching me walk u'd never know.  Like I always say-ahem--There are no rules with cancer.

dwill

Teka, I started with one blood pressure pill which I had been on for 20 years, then I started the Anastrozole and my pressure shot up and now I am on 2 more plus a water pill to keep my blood pressure stabalize.

Sas, I was wondering where you were.  Glad to see you!    

Wren44

Tang, Vicodin keeps me awake. So do sleeping pills. 

SAS, Check to make sure those wine bottles are not sterilized with iodine. You'd be amazed at all the things that are.

Can't remember who asked, but I have no SE's from my BP meds. I take hydrochlorathiozide (HCT) and losartin. I also take potassium because the HCT washes it out. They check the blood level to make sure I'm in the right range.

Anonymous

thank you all for starting my day off in a very good way

Nettie, a big YES to the scar tissue. Went to PT regularly, part of each session was a massage. Always painful when I left, but overall felt better after. Funny thing, was seeing the same two PT's, when I saw third one she found huge spots of scar tissue they never addressed. They also me what I could do to help with it all.

Sassypants (love that name), so what does the new avatar mean and what's the mood behind it?

Linda, it's always good to see you here.

FBB, one month already? Hoping you're a little better every day

Enjoy your Tuesday!

Anonymous

oh, I forgot to post this yesterday. I washed my car by myself, lots of pain trying to wash the roof even with a step stool. On another thread, someone sent me this to help out:

Thought I'd share

Spookiesmom

Um my car needs to be washed too. Could you send him over?

Anonymous

gladly, I share!

Blessings2011

Oh, Cami - CRAP on the IRS!!!! And a two-hour phone call with someone you love, and makes you feel better, is never stupid, no matter what time it is. I routinely have those kind of long phone calls. (Yeah, I talk as much as I write....)

Chevy - I have a picture for you. See below.

Hi, dutchiris! Hi, Linda! Hi, Ziggy!

Nettie - cute pic! I'm definitely ready to kick some chit over stuff right now.

Bluebird - gosh, you sure sound better! I LOVE raccoons, but man, those suckers are MEAN!!!

dwill - It was the anastrozole that caused my BP to shoot up so high in the first place. It went back to low/normal once I stopped. Then I started Femara. Since I wasn't having many SEs on letrozole, I honestly stopped checking my BP - DUH! Think I will start taking that diuretic every day now, though...

Wren - if I have to take a BP med, I want to be like you! DH takes Losartin... he says he doesn't have any SEs from it...

Oh, 2TA - you are SO KIND to share your, er, um, "helper"..... nudge, nudge, wink, wink....

~ ~ ~ 

Oh, chit. I just re-read my earlier post and I wrote "If BO can be reduced by changing positions, that means something..." Well, wouldn't THAT save us $$$ on deodorant!!! Of course, I meant BP.

Gosh - so many of you are on BP meds. I'm starting to think I have a mind-set like I did before I started the AIs..... NO WAY! I'LL HAVE AWFUL SIDE EFFECTS!!! DON'T WANT IT!" So..... maybe I shouldn't be such a big weenie, and just see what the doc says.

Check it out - we have our air conditioning on right now! Gettin' HOT here!

xoxo

Blessings2011

FOR CHEVY