INSOMNIACS place to talk in the wee hours

camillegal

Nettie don't feel bad I do the same thing. I can't remember a lot.

Aly did u find u'r earring yet?

I'm glad u figured out the melatonin thing, I never tried that actually, I don't think I will now. Blessings just do what works for u.

Anonymous

I have been wondering about NickyJ and totally forgot She started a thread, thanks to Hi1 for the reminder.

Here is her thread:

https://community.breastcancer.org/forum/8/topic/8...

I PM'ed the mods to see if they could email her but was told she doesn't have email contact, just PM, so I sent her a PM. They reminded me there's a Central Address Book for BCO (and I do have access), but Nicky is not on it. If case we need to contact another Owlette, maybe we should have a back-up: on the Central Address Book or one another:

https://community.breastcancer.org/forum/7/topic/7...

And, yes, Sassy, I posted to your "Saver" thread (aka Warm and Fuzzy...) too.

Will let you know if I find out anything

Holeinone

great detective work Maddy, that central address book had not had a post in almost 4 years. I wonder if its still being used, Sas might know..

Anonymous

Hi1, it's like the Picture Forum. It tells how to get access by PM so you don't post directly on that thread. You get access then update a separate area. Follow the instructions 

Oh, BTW, Nicky J wasn't on it (maybe I said that already)

Holeinone

okay, thanks

dwill

Hi all,

Sending hugs and love out to you all especially to you Sas,  Been lurking on this thread  but will try to make myself more visible.  Been sleeping through the night with melatonin and Xanax. Just doing what I have to do to get through work everyday,

Teka

ziggypop

Oh Sassy, those who tilt at wind mills often slay dragons no one else can see. I would love to help you save the world  in whatever way I can & will send phone number. Busy asw zsssssssssssssshit right now. Love to all & Chevy it the POShusband of yours keeps giving you a hard time, I am going to come up there and kick his ass six ways til Sunday and I don't even know what six ways til Sunday means, but it doesn't matter 'cause I am capable anyway. 

Anonymous

Or any night!

Anonymous

Ziggy, can you fit in an as* whooping for my POS husband (POSH is too good for him) too?

Blessings2011

Not an owl, but close.... 

Smaarty

someone's off key

Alyson

Probably me, can't sing these days because they radiated my neck and so have nodules on vocal folds. I loved singing.

Anonymous

saw this and thought of LuvMyGoats

Chevyboy

Morning gals!  Blessings...  I'm one of those women who just stopped taking my Tamoxifen....   I ASKED my Oncologist, if THAT is why I lost my hearing...  She didn't have a clue...  Asked the ENT people....  Same thing....  Asked MY Doc, and she said "Let's treat it like allergies for a month, and maybe it will clear up"....  Right! 

Another month passed, and I still could not hear!  DH said it HAS to be something you are TAKING!  Tamoxifen was the only thing.

Called the other Oncologist on-call.... HE didn't have a clue...  I researched and googled, and found at least 5 articles about how Tamoxifen CAN cause hearing loss.... because since it is like a chemo drug, hair follicles cannot hold up to that onslaught of  meds! 

And your tiny nerves in your ears are little hair-like follicles... and since "certain women with a certain gene"  CAN have a stroke in the brain-stem, near the 8th cranial nerve, causing hearing loss" then that is what more than likely happened to me.  In other words those "nerves" are either damaged, or will completely lie down, never no more to roam. 

So that is the story of why I just stopped the Tamoxifen!  But this was over 2 years ago, so with the hearing aids, I am once again perfect!  Ha, ha!  That's funny.

You guys what is POS or POSH  oh wait, is it piece of ...you know?

Man, did I get at least ONE right?

Okay, so get this...  I was at my wits end... which meant I didn't have far to go, and at one point, I just said "Okay, that's it!  I'm walking up to Starbucks!'  And my cane was thrust rather loudly on the floor!

I changed my top, and flounced out the door!  So I'm just walking along, and all of a sudden I thought   "I CAN'T DO THIS!  I CAN'T WALK 5 MORE BLOCKS!"  So damnit!  I had to turn-tail and slowly walk back home!  Dejected as it were!  Damnit!  I couldn't show my  "I'm sick of the way you are acting stuff" any other way!   

I walked in...  with that feeling of "I couldn't do it" and he finally said "I'm sorry.... I just wish I could take something to get me in a better mood."

To which I firmly stated....  "Honey, you don't NEED any more pills...I will take care of you ALways, just quit being such a jerk, and let me take CARE of you!" 

So then things were better!  I KNOW he hurts, and is disgusted, because he cannot walk!

But maybe, if it hasn't gotten any better by Wednesday, I will either take him to Emergency, or to the Specialist she said she would refer us to...   She said to stay off of it for 3 weeks!  Holy God in Heaven...!!!  I will have rented a room at Motel 6 by then!

Other than that, we are fine...

Blessings!  That was not even CLOSE to an owl!  WTH????  More like this...

Okay.... that's a pink owl.

Everybody must be asleep!  Okay.... I had better go be a dutiful little wife...  He is so cute, just laying there...!  Maybe I should just quietly tie his hands and foot to the bed!  Notice I said "foot".... not "feet".... because one is still not working.... I'm such a bitch!   But you know I am just kidding!  Relax!

Teka

Valsa123

thanks..will try!

Teka

FierceBluebird

Blessings, if that was my chicken she'd have cement shoes and be in the river by now.  Just kidding. I would probably leave it! I always wanted to stain my patio with leaf imprints. What's a few chicken prints? 

Not feeling too good lately and wanting to get on with treatment. The problem with seeing top docs is they are never around. Flying here and there and lecturing everywhere.  I'm ready to go to Joe's cancer R us treatment center just to get a move on with this! 

Hugs to all.

tangandchris

Oh boy Teka...that is just what I needed! Thanks for the reminder

 

Nettie1964

Just completely fed up this morning!!  Don't know any other way to put it!  I won't bore you all with details!  So I'll just say that I hope you all have a nice start to the week!

Teka

*Hug*   *Hug*

tangandchris

I'm sorry Nettie...I don't know the details, but I do know the feeling of just being fed up with it all!! ((hugs))

Nettie1964

Thanks!  This is one place that can always make me smile and feel better! 

Holeinone

Morning all, 

Chevy, I can just see you stomping through your yuppie little neighborhood headed for some joe. Wish we could of seen your expression heading out & then right after the U turn....he he he...your DH sounds like a great guy. He was so sweet when you were hurt & now he has to accept help, and deal with immobility & pain.

F.Bluebird, hope they get you started soon...waiting is torture. Are you able to do much? Go for short walks? Is it difficult to watch TV ? 

Nettie, hope your day gets better....life's a bitch & then we die....that's a downer! sometimes we have to feel the emotional crap to be able to move on. Try to treat yourself with something you enjoy.

Maddy, nice pic for LMG....she went AWOL on us...

Alyson, feeling better? 

The temperature is supposed to be in the low 70s tomorrow ......I am on flower bed duty today, I have flowers blooming, lots & lots of purple, white, pink hyacinths, daffodils, tulips...

Teka

Lucky You!!

Nettie1964

Well I'm feeling better! 

FBlueBird - hoping you get some relief soon! 

Chevy - I had no idea that Tamoxifen could cause hearing loss, that's scary!  Glad you realized it! I'm not taking that, I'm supposed to be on Aromasin, but because I couldn't get the MO to agree that it was causing issues, I have self diagnosed a 4 week break to see if SE subside and most of them have, so I will start it again and see if they return and if so, I'll be asking for a change!  However, that in itself is scary as they say Aromasin is supposed to be the easiest!

I'm guessing that it is time for me to insist on some sort of scan to find out exactly what is going on with my back and arm!  I'm one of those that really doesn't want to know, but realize that I need to!  Not sure what is worse, worrying because I don't know, or finding out something that I wish I hadn't!  Just becomes so tiresome with the hurting and worrying all the time!  I can't take pain meds and really don't need them, it's not that the pain is so bad that I can't take it, it's just the fact that it's there at all that drives me up the wall!!

And the more I find ladies that had NO node involvement, yet end up with mets, the more I'm convinced that this will be me!

Anyway, the sun is coming out and my work day is half over, so I'm on the downhill side of Monday!  YAY!!!

Anonymous

Nettie, felt the same this weekend, couldn't do or say anything right, so I gave up and gave  BCO my attention this weekend. Hopefully it will be better today, and this week. 

FBB,  you cracked me up with "Joe's Cancer Treatment Center R Us"! Let me know how the waiting line is.

Chevy, you always make me smile and laugh!

Hi1, that sounds lovely! Your garden will be bee-you-tee-full!

Sassy, you've been quiet. You are enjoying the new bathroom (too much)?

LMG, are you lurking? Hoping everything is ok.

Posting this because it made me smile:

dwill

Hey Insominacs--   cute pictures you guys have been posting.  Thanks Teka for your gentle reminder to be kind to ourselves .  Chevyboy--thanks for the laugh about you tying you hubby hands and one foot while he's asleep.  I have this devilish sense of humor, too!  It cracked me up!

Teka