INSOMNIACS place to talk in the wee hours

Anonymous

how about:

Or

4sewwhat

Hey, I have one boob that looks like that!  Where can I order one and does it come in different colors?  Maybe Chevy could just send me one of hers!

sas-schatzi

Helloooo, Sorry been working on house and 2d6 thread. Going to change the world ---as much as I can

Linda my dear sweet pharmacist friend love to hear you feeling better.................and can you drop in on 2d6 and give it a gander. A few of your well educated words would help . pretty please. Yes, neuroendocrine YIKES. The biggy for me was Autonomic nervous system. So, loved it, but it was a bugger to learn.

Golfgirl, I'm thinking there's a real analogy between golf and the whole liver system CYP. Any chance we could brainstorm and see if we can make it work. I referred to you today or yesterday. I figured out to compare an inhibitor drug as a golf group ahead blocking movement forward. Did think of a drunken group saying "hey play on through" that would be equivalent to an inducer drug, but didn't use it.

SO wish we had Bluebirds number. Even if we asked the MODS to contact her she's likely not home yet.

Bummed about Nicky, H-1 and Spookie thanks for getting us plugged in

Maddy, you must be feeling somewhat better cuz you are posting more YAY

I'm gonna try an substitute the meerkats for awhile---The birds will squawk, but I'll put them on the warm and fuzzy page to be brought back when things settle.

Blessings ------so nice to have a PJ day. always makes me feel like I'm playin hookie. Remember as a kid if you stayed home sick the rule was you couldn't get dressed and couldn't go outside.

Chevy---cane girl LOl---Cami--hair chalk and all nails painted different colors---we are NOT our mothers who'd never think of such stuff. LOve it

Love and hugs to anyone I missed

Need to get busy on the meerkats L&H&P's sassy

justmejanis

Happy to report that both my Slammo and ultrasound were normal.  Now that is a word I can definitely embrace.  The radiologist told me the happy news.  She has no idea what can cause it.  The ultrasound did reveal small cysts in the breast and she did say they can be quit painful.  At this point I don't care, just so relieved to hear the news.  I can talk to my MO about it when I go back next month.

Love the jammies...although the third one isn't quite suited to my body type.  I would lose ten pounds in ten minutes in that second one, just from sweating.  Guess I have to go with door number one!

I sure hope Bluebird is okay.  I have been thinking about her all day.  I'll keep checking.

Thanks ladies for your support while Miss Lefty was being a bit of a bitch!

badger

hey ladies, two days away and five pages behind.

Finally caught up but now it's bedtime LOL.

Love the meerkats!  L&H&P's to all  ♥ 

Blessings2011

4sewwhat - The ports to my TEs were metal, and huge, so I wasn't at all surprised I could feel them. The port I feel now is the one to my permanent saline implant... it's supposed to be made of silicon, and much smaller and softer than the TE port. It's possible that the muscle is thinner than I thought... guess this means a trip back to the PS! Arghhh!

Chevy - Chocolate is the answer!!! Doesn't matter what the question is, chocolate is STILL the answer!!! 

Linda - L&H&P for a relatively simple time with this round of chemo. May you rest and recuperate every chance you get.

OMG!!! 2TA - where did you get that pic of my jammies? (The third one...) You know, the CROTCH FLOSS..... NOT!!!!!!! How would anyone get any sleep in something like that? 

Sassypants - Oh, the meerkats!!! I took one of those Facebook quizzes, like "Which (fill in the blank) Are You?" and the one I took was for which animal I was. I got..... MEERKAT!!!!! Love them!!!!!

Hi, justmejanis! Hi, badger! 

Just watched American Idol. Worked better than sleeping pill. We'll see how long that lasts.

Nighty-night Owlettes!

Anonymous

so excited to be able to post pix from the iPad, now just need to learn how to size them. The third outfit made me laugh so I thought I'd share.

Really tired, maybe I'll get to sleep early and get a restful nights sleep

camillegal

Good Morning all Owletts----I'm way behind but I will say if I had a body like that third girl I would wear that anytime, but since I have a body like a barrel of wine--I'm better off not being jailed.

Oh Linda I hope hope that chemo kicks ass and not yours and u can tolerate it well.

And our Bluebird we're all waiting. And I'm glad we heard from Nicky our French lady is on my mind too.

Sas u sound good and I hope it just gets better.

OOOO muffins and soup, sounds good to me.

I'm waving Hi to everyone. and I'll be back later, depending on how this carzy job is today--It took up most of my morning yesterday. WTF I'm really not a worker--(shut up Chevy)

dutchiris

My body hurts this morning.  Hopefully I feel better after a warm shower.

I'm actually awaiting word about Bluebird.  

Nicky, I hope the pain meds are controlling your pain and this second surgery surgery resolves everything.

camillegal

I'm sorry Dutch, I'm ready for my shower too--nice and warm and let it flow on u'r back for a while. Hope u feel better----take meds--oops I'm such a pusher in my old age.

4sewwhat

Dutch, a warm shower has the promise to make anything better :0)

G'Mornin' Cami and the rest of you owlettes!  Hope everyone has a great day!  Weekend's in sight!!

Chevyboy

Morning gals!  I thought... WTH?  I mean about NickyJ.....  So I tracked her down...

http://community.breastcancer.org/forum/8/topic/81...

Did you gals already know this, and I just skipped over it?  I mean I THINK my brain has taken leave of my head sometimes! 

But I just sent the Mods a Pm, wondering if they could call or somehow find out how Bluebird is doing....   It's just that it's hard  to not hear when we are worrying...

Dutchgirl...  Yes... just shower.... then go run around outdoors in the snow...  that's supposed to be good for something, I think!  Oh wait...  I am on the last page.... your shower with Cammi is probably over by now....

Sassy, I LOVE our Meercats!  Did the owls put up a fight?  We might need them too, you know!   I have to post this, before I lose it completely....

Holeinone

Good Morning all, 

Dutchhris, I have decided a hot shower is the best part of my day. Hard on the skin, but good for the soul, & muscles & bones. 

Linda, good luck with your treatments, thinking of you with healing wishes.

Cami, you are right on, sometimes meds are the answer. 

Thinking of Bluebird & Nicky.....BBL...

sas-schatzi

Cami, I've always fantazied about sleeping in a warm tube of water that would change to the exact temperature that I needed. i.e. cold>>>warmer, hot flash>>>cooler. 

Now 16:41---4:41 pm All the reading I did this morning is forgotten mostly, busy day. 

Saw ENT today, got a call to come in. New it was trouble b/c he released me last week.

2nd opinion path report verbally passed to local path guy then  to ENT. Final copy not even received yet. Papillary-follicular CA both sides of thyroid. ENT guy thinks I'm brilliant because I had to convince him to do sx. Path guy relooked at original bx and said he can now see it was there. HMMMMMMMM. Carmono has been a path guy for >the 22 years I've lived here. SOOOO, have to think that one over.

My instinct the fourth time around. 

1. Breast--PBMX--thinking about it for three years very hard. Then my inner voice said DO IT  >>>1/2 way through workup find aggressive, really rapidly growing ca.  Doc lied about feeling lump to get the MRI done after clean mammo. Bingo.

2.Brain, actually, that was caught cuz I fell on the other side of the head. So, the fall was a blessing. The Instinct kept pushing for MRI look. It was stable for 2years. But as soon as they noted growth on MRI, I said out with it. They wanted to continue watchful waiting--UH_UH. Continued growth would have allowed it to cross the line into ca. Found a sx on the internet that I had to teach the docs and insurance company about b/c not done anywhere here and they didn't know it existed. Had to go to Tampa.

3.Colon--Instinct to do follow up, got doc convinced to do a scope 1 1/2 years early ----Inner voice said DO IT. So, to get it done I added that I saw blood and had pain. A lie . He knew it. Doc found one for sure hyperplastic of three polyps ---these are precancerous. 

4.Now thyroid. You've all read the story. The story didn't match any of the Hashimotos description to a tee. The request late Jan. to do basic blood work, identified that thyroglobulin elevation. An inner voice said to ask for that blood work.That bumped both docs to sx. Biopsy and ultrasound didn't indicate it was that troublesome.

NO one is ever going to deny my instinct in the future. They wouldn't dare with those types of odds. 

May have the friggin colon just taken out.--being dramatic, but believe it or not that could be done. FYI Cleveland Clinic in Cleveland Ohio does a procedure that removes the whole colon and connects the end of the small intestine to the anus. It takes a bit of training to control the anus, but is doable. I know someone who it's worked for for years. Cami, it may be something to consider. Never thought of it till now for you. It would stop the explosions. A thought, I'll research it if you want. It'd get rid of the pesky colon and it wouldn't be moving around inside causing all the pain.

Treatment Radioactive iodine--haven't researched it yet. But at least I know the genetic paths. It'll help with dosing if it goes through those abnormal '3''s. It will be done within , one week even if I have to sit on everyone till they shout approved.

Plan to push for genetic testing cuz I believe the paternal side of the family is at risk. My scenario fits three different genetic thingys. Chek2, Lifraumeni syndrome, Li fraumeni Like Syndrome. Haven't been able to get family interested in individual surveillance. 53 blood relatives. Even two highly, highly trained nurses have blown it off as not genetically related. 24 major cancers out of 53 people is NOT--- NOT chance or lifestyle.

I know we have Bluebird and Nicky too worry about. Everyone here has "stuff" on their plate. April is worried about her DD, but gave her a list by PM of suggestions. So, how does the phrase go "Cry not for me etc". I'm in fight mode--translation everybody will do what I want, as fast as I want it done or my the will suffer my pestering them.

It's the best type of thyroid cancer to have. Mine's a tish rare, but still good stats. 

So, tonights' plan is my usual whenever bad news occurs. I go out to a very very nice dinner.

Sorry, this is so long, but it's part of the plan. It's my manifesto. It starts here. L&H&P's sassy

luvmygoats

Um shower. There is no water pressure now for much shower. Took forever for washer to fill up. I think I need to go to Bath/BodyWorks for some new shower gel. I need to smell as nice as Cami. If I took a "hot" shower it would be about 5 minutes long even though DH had plumber turn up WH temp just a tad. Look - we have no young children here to scald themselves. The youngest is DD at almost 27. 

I think I will try the trick of bagging up the showerhead with vinegar and see if it helps any. At least they might look better. Anyone do this? DH will NOT let me replace shower head. Says it might never work right again. Gads the things we go thru for them.

Been cleaning out freezers and you won't believe this - cooking. Little one is looking just a bit better. Chest freezer is full to top. But need DH's help to get to bottom.

Hoping we hear from Bluebird soonest. Thanks Chevy. Hope the mods are able to let us know.

Holeinone

Luvmygoats, I read in one of the ladies magazine, about the vinegar a while back. Was going to do it the next day. Errr, never did it, but thanks for the reminder.

Sas, I have thought about your golf analogy. I am not knowledgeable on the liver, but I get what your saying. You tee off, hopefully goes straight, but you might hook or shank. You have a goal to the cup, sometimes you get lucky & it is on path, but many times you end up out of bounds. Also, the course is crowded, you are waiting....forever, beginners with there kids....

Blessings2011

Tried the vinegar-in-a-baggie trick on my WaterPik shower head. Took the mineral deposits right off! Of course, it also took the brushed chrome finish right off, too, so it looks like crap, but at least the water flows nice! 

luvmygoats

Thanks Blessing. Ours are so old (15 years+) don't think much lovely finish is left to take off. You would think we wouldn't get that much calcium etc. buildup since we are not on well water. But I know TX water is high mineral anyway. We have a chance of bad storms Sat. Willing to risk the chance for some rain. I guess I'm going to have to string hoses together and water if it doesn't soak some. And also guess I'd better do a hose inventory b4 a trip to Lowes on Sat. And monthly Mexican food outing we have missed since December.

Sharon1942

Hi, wonderful ladies. I am on another thread Bluebird is on. We are trying to get info & will share with you if we get something. We are all changing our avatars to a bluebird to show our united vigil in prayer for sweet Bluebird. 

Enerva

Ok i am in, sending hugs to bluebird!!

Sharon1942

Y'all please PM me if you hear anything from Bluebird. We are all so concerned. #Godwatchoverbluebird #thisisnotfair

Chevyboy

I haven't a CLUE how to change my avatar, but I'll send her this.... Haven't heard from the Mods yet....

Sharon1942

Chevyboy:  Save the pic to your device with a right click or holding finger down on the pic until you get the save option. Different for different devices. Go to your BCO.org profile, click settings, go to your avatar setting, click on choose existing option, then pick our sweet bluebird.

Anonymous

great idea, Sharon!

Holeinone

hey, I played around with it, the avatar & was able to get my sons kayaking photo. That's a start...

camillegal

I'm sorry I have no idea how to do my avatar, but thank u whoever hears forst will let the other know--We all care about Bluebird and are anxious,

Sas trying to understand u sometimes is difficult for me--so what I got is u have thyroid cancer, well they took it out right? So don't u have to stay in a week with the iodine treatment with no one around or something strange like that--it's like the strangest treatment I ever heard of and when will u start--or am I all mixed up---( I heard that Chevy)

Oh I'm not getting anymore operations til someone can figure out how not to kill me with being put out.

crog234

it says I can't change my aviator because I am on my iPad.  If I get on my laptop I will change it there.  Here is the picture I would use as my aviator if I could change it now...  Know that I am thinking of you Bluebird.  

Anonymous

hi Crog, I did mine from my iPad (first time from the iPad). I went to yahoo/google, searched for the bluebird I wanted. Keep your finger on the image, brings up pop up. Choose SAVE IMAGE (tap). Then check it on your main screen - in Photos. 

On BCO, to change avatar, tap upload, it brought up my photo gallery. Choose the one you want (tap), then save. Hoping this works for you.

Sharon1942

Someone from another thread called Bluebird's DH. Tumor is 100% gone & she went home today!  He said she should be back here in a couple of days. Praises!

JWoo

Sharon- thanks for the news! great to hear!