INSOMNIACS place to talk in the wee hours

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Everyone put the above link in there FAVS  If you re-read multiple times that one post where I started with who the players are, it will start to make sense. Plus I'm going to transfer Ziggy's analysis of what I said b/c she is exactly right about what I said. It may seem like I know allot about it. Well I've been reading about it for 20 years. Intensely studied in Jan 2010. I know it seems crazy, but really when you think that your are dealing with only seven players, it makes it less intimidating.

    Things won't change until WE change it. Each one of us to the next one, then that next one to the next one. 

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Spookie I also transferred your response to that thread. I'm going to go to some of the drug threads and do a blurb and a link to that page.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Hi Folks, I haven't posted here before, but recently found out some info that has pissed me off in re: the drugs given to me during treatment for BC. I was almost killed  with my one and only chemo. Taxotere was the culprit. I "failed" all three AI's b/c of s.e.'s. All of this could have been avoided had my MO paid attention to the Cytochrome450 genetic testing. Of the six genes tested, I have abnormalities in three. ONE(edit correction) is a major player in the drugs I was given. Had I been tested ro some pharmacy detective work done initially before the tests were available(edit correction), it would have been known. The drug choice and /or dosage modifications could have been made

     Rather than rewrite the details here The link below will take you to a thread that has the posts that I have written in the last few days.

    I'm not trying to sell Genelex. Other laboratories are doing genetic testing. But Genelex is the only company right now that provides the application of the genetic results to the drugs we are taking. Other companies, I'm sure are trying to build the same business model. It's the future of drug administration.

    Why? Patients will no longer except being experimented upon with drugs that can harm them. If the docs won't do this because it's the right thing to do it. Then we have to PUSH them into doing the right thing.

    http://community.breastcancer.org/forum/73/topic/7...

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    I've spammed this around the boards, hopefully, the mods will get that now is the time to get our MO's and PCP's to take our care seriously by protecting us from injury by drugs and or drugs that aren't working for us because of our genetics.

    So, far no note/pm from the mods sassy

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  • Teka
    Teka Member Posts: 10,052
    edited February 2014

    Good Morning, Owlettes!

    image

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  • Teka
    Teka Member Posts: 10,052
    edited February 2014

    sas, time out for a cup of coffee!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    mORNING TEKA---HOW CAN EVERYONE BE SLEEPING. Did Cami pass that stuff around last night. Where was I? Phooey must missed it.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    I finally fell off the soapbox, play time.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Chevy's playing over on the OLDER thread. I checked. Chevy Chevy COME OUT and PLAY

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited February 2014

    Sass, from what I understand, it was just a rod....  no ball joint on the end.... I didn't hurt the ball and joint.... just a hair-line fracture at the top of the femur...  before it involves the joint.

    My PC said I could ask for the disk from the surgeon, explaining or showing just what they did...   I looked at all of those pictures.... but she had explained, that just a rod, a screw and a bolt??? was used.  The rod was about 6 feet long, and about 20 inches round.... probably....Ha!  

    I slept a lot better with just the 2 Aleve last night!  So I just took an Oxycodone....  It must makes me sort of dizzy.... shut up Cammi....  So I'm not taking these anymore!  I can take Xstrength Tylenol, or Aleve....  They gave me Oxy in the hospital, but I was just laying around...  MAN, I don't know how you can function with these.... maybe it's just me....

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2014

    Good Morning--I'm just waking up--and having my first sip of coffee. oooo---I've been sleeping a lot lately so I haven't been on here as much, plus my big job that kept me busy yesterday, LOL

    That cartoon is exactly me--words and all, that exactly how I think--I haven't done taxes since 2007 and I'm still getting my papers ready for them--I've tole you all I'm insane in my way and I am. In all fairness to me--I was told my chances didn't look promising so I figured why bother and I'm still here, those damn ?Drs. are always wrong. SEE

    Sas u have to start the morning slower with small words and little meaning--nothing is awake yet.

    Wren I saw that on TV last nite and LMAO--what a place to sell cookies---Brilliant. And yes I've done pot--Geeze u act like no one has ever done it.hahaha--It's not so easy like u think, if u've never done it. I did it in a bong? and had to be taught--can u imagine being taught--everyone was laughing at me but I trudged on til I finally got it. Everyone said I was so funny but I didn't feel like I was funny so I don't know but u do get the munchies for crap. U could say I got high with a little help from my friends, and I get by with a little help from my friends. Sounds familiar.

    I was busy yesterday, my usual Mondays I wonder what people do over the weekend to always have a crises on Monday with electric. I mean important things use batarries now so I just don't get it.

    This is how bad I am really--Joey is home today, he doesn't feel well, but I love when he's home except he's afraid to come to close to me so I don't catch anything so I have to tell him with all my meds I'm so immune to all this kid stuff I'll be fine. Go thru this every time, I'm bad.

    OK 2nd cup of coffee coming up see how long I stay awake now.

    BBL

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited February 2014

    Hi GG... just read the last page...Ha!   Yes, my Doc also said, the whole procedure would have been much worse, and painful! 

    I AM lucky in that way!   I think that's when they need rehab, and a much longer time to recover??? 

    Spookie, I remember SV talked about an "overdose" to chemo she had one time!  Her description was just as violent as yours!  Don't know WHAT caused it, but she just swore it was an overdose?    She wanted to sue her whole team!  It's just awful what happens to some of us, and maybe they never know why!  She said all her hair fell out at once!  AND all her nails...   I sent her a wig, and some crochet caps I made, and her whole tale of what happened was just un-believable! 

    Cammi, you little turd!  I can't call you little shit, because there really IS someone on here that IS one, Ha! 

    JWoo...  Have you gals tried "Mary's Gone Crackers"  These little crispy things are my favorite!  I like them with Goat-cheese, mixed with a little steak seasoning!  They are gluten-free, and I just like them...

    Morning miss smarty-pants!  Love the cartoon!  And is it just ME, or is that dog of Spookie's moving all around?  And sometimes he's dressed?  Am I hallucinating....???  Again? 

    Sass, what do you mean about little-shit-ziggy knowing something?  You mean she actually does?   But what you said is right...  I mean if they would have done a gene study, with me, about the probability of me taking Tamoxifen, they would have KNOWN that I had this certain gene, which, when given Tamoxifen, COULD cause a small infarct-(stroke) somewhere, usually in the brain stem, near the 8th cranial nerve.. affecting the HEARING!  So that's the reason I went deaf overnight.  

    That test, IS available, but since there is only a small fraction of women that have this gene, that would take Tamoxifen, they don't consider it that important.  The drug only lists that strokes are possible.  It's a crap-shoot... 

    And here you guys thought I was dense.... Ha, ha!

    Sass, if you want, I could go waaaaay back, to find SV's posts as to what happened to her and that chemo "overdose"? 

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited February 2014

    Oh!  Morning Cammi honey!  I have to be gentle with you?  And Joey is home?  Perfect!  It's okay if you smoke weed....  You should!  You just probably shouldn't drink that Jack though...  

    Have you ever tasted those cookies they make with MJ?   Man, with all of that around us here in Colorado, you would think they would be selling it in the grocery stores, like next to the spinach or something!  Or in the cookie aisle?   I've just never tried it...  Man, that ONE Oxycodone I just took makes me feel just weak and like chit!   I could sell the rest of them?  Ha!  DD says give them to HER, that SHE will take care of them in a flash!    And make a couple extra bucks!    I could sell this whole new prescription..... !  Nah.... I'll just cut it up....

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Morning Cami and Chevy:) We've already finished a pot of coffee. I learned today to not eat toast with jam and then try to use the mouse roller. Once it gets jam on it , you can't get it off

    Chevy don't bother about details on SV, they can't change anything. Same with details on hip ---irrelevant, it's fixed and that's all that matters.

    Cami , My Mom tried POT one time, she was so stoned. she thought she was normal. We had to put her to bed.

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    Sas, I think I did start to understand the pathways lesson. Ziggypop little Cliff notes did help. My Dr. Are so conservative, if its not standard protocol, you are talking to yourself. I made it through dose dense chemo, felt like I was poisoned, but I survived. I seem to be ok on the Arimidex, so far.

    What in the heck is a mouse roller?

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2014

    Thanks Hole--I thought what is a mouse thingy, so I'm not the only one good.

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  • 4sewwhat
    4sewwhat Member Posts: 2,093
    edited February 2014

    Sas,

    You really should not use the words scrotum and blow by blow in the same paragraph!!

    Feeling ambitious and on a mission!  Off to see my PS and sort this mess out!

    Have a great day ladies!!

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2014

    44444ThumbsUp

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    morning Cami, see our brains aren't fried due to a little help from our friends. I wonder if that would be a better choice than my occasional red wine. Ah, the tough decisions of life...

    Teka, yum, looks so good

    Chevy, do not tear that prescription up just yet. Think about it, cause shit happens, and even though you might not need/want it now, it never hurts to have a strong pain med hidden underneath the mattress. I do not like oxy, actually I have never been prescribed it. But I did take a couple when I was very sick with diverticulitis. It does its job if there is raging pain. 

    Morning all, I promise I won't talk about my neck.....today.....

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    $ goodluck, i'll watch my blowing and scrotums in the same sentence.

    GGthe mouse has a center thingy that rolls to move the cursor. I got jam on it. Btw It's your fault I was talking about scrotums and blowing.      each time you read the cyp450 stuff , it'll make more sense. Think of it as a golf course and all the rules you have to follow for golf. As far as the doc, we change'em. by being knowledgeable about stuff. I didn't pay attention in 2011 that a test was available. I'm now tested for the 6 big players. If there's a drug screw up b/c of it  I'll holler. 

    After studying the results , I had a major interaction between coreg and wellbutrin @3a4.---- recommendation to change beta-blocker. I have cut dose in half and am monitoring BP. Of course, I'd tell ya'll too see your doc.

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2014

    Oh hole talk about u'r neck, u'r head, u'r chest, u'r cumsequama anything u want, anytime u want.

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  • kathindc
    kathindc Member Posts: 2,042
    edited February 2014

    SAS, check the bottom of your mouse to check if the piece the ball drops through to let you scroll can come off.  Some have arrows.  If that's the case, twist that piece.  It will loosen so when you turn the mouse over it and the ball will drop out.  You can then clean the ball.  Also, check to see if there are little roller balls around the inside.  If there are, they get a build up of dirt, usually in the middle of them, that can be cleaned off.  I use a paper clip that I've opened up.  Your mouse should work like a charm if it's the kind I had when I worked.  

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited February 2014

    Sas thanks for all that info. I'll start looking into it this week. DH is prepping for colonoscopy tomorrow, men are such babies. The upside is I don't have to make dinner tonite!!

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited February 2014

    Chevy I changed the pic again, somebody wanted to see Spookie in full coat. She's on the coffee table, no coffee there cause Kris would drink it. This pic was her 3 rd bday, just back from groomer. 

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2014

    OK Spookie, I'm on u'r DH's side this time that crap to drink--oh just give hime thenewspaper, phone and let hime sit there--that the most disgusting test we all know that.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Cami your a genius. I had a patient one time that responded that the prep wasn't so bad. It was just as you said.  Whoa Nelly. Queried him and used his method ever since for myself and patients

    As soon as the first bowel movement starts, just stay in the bathroom on the throne. Have the jug on tray table or counter. As soon as you feel the pressure, let go. No tightening the butt and running. In one end out the other. Read. Have another chair in BR to switch to if butt gets sore.

    Kathy HI, Thanks, gotter fixed

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2014

    Well Sas Thanks but we all know I'm no genius, but I do anything that makes things easier for me always---beside my IQ is 139, hardly a genius level. Loopy

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    Envera, 

    CNN has been doing a leading story on Venezuela, and the problems, economy, demonstrations. It sounds like a mess, is the President a dictator? 

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2014

    Hi Insomniacs- I hope everyone is having an okay Tuesday. I am home sick with a bit of a cold. I was super tired Sunday, sneezing all day yesterday and voila, woke up with my achy sneezy self today. So I opted out of working at the client site today, and working from home as well as napping. Everyone is sick with colds around here, less so with the flu now (very bad in Dec and Jan here).

    The comments about not using scrotum and blow by blow in the same sentence made me laugh, and laugh and laugh.....

    Cami- no taxes since 2007? You lucky girl. Our government is too busy trying to get themselves out of trouble anymore to come after anybody these days. I mailed my tax info to my accountant on Saturday, and wait to see what else we need to do before we file.

    Chevy- I hope you are feeling better and stronger every day.

    Teka- hi girlfriend! Happy

    Over and out for now ladies. Will check in again when I can.

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited February 2014

    this is for Cami and teka

    image

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