INSOMNIACS place to talk in the wee hours

Chevyboy

Me and my Harley.... 

Chevyboy

FierceBluebird

Sas, it did make sense. Of course all I saw was yet another genetics company getting rich, my private gene information getting out there and my getting dropped by insurance companies. Of course this would never ever happen `cause it's not allowed but we all know how that works.  So when you`all are skinny and fit and feeling fine cause you have drugs that actually work, and I am laying here moaning about all my pills that don't do a damn thing for me, you can say I told ya so!

FierceBluebird

Damn Chevy, is that the After and Before picture? That rod done straightened out your leg good!

sas-schatzi

LOL  Chevy--Your DGS will tell you , you had an Austin Moore, Your break was different than you told me. Actually, they had to reem out the femur to put the ball joint in. Interesting on the bruising, usually not much. But that may have been from WALKING around on a broken femur. You are a WONDER WOMAN. Cuz if it was a ball joint, you were walking on weight bearing portion of the hip.

Would you call that docs office and ask them the name of the procedure, and if they put a ball joint in.? Please.

Ziggypoperoni---yup, you got it:) 

Everyone here's the link to the intro video

http://www.youscript.com/movie

I'm still learning BBL

JWoo

Ladies, I have a question for you: Does your face actually look like your physiognomy has changed? I kept looking at myself in the mirror, thinking that I didn't look like myself, and thought it was an emotional response. But yesterday I was out with several old friends and some photos were taken, which once I saw them, I had to ask my bf if that was what I looked like now. He said yes, that my face looks different now. Not just a weight thing either. 

Chevyboy

Okay Sass....  I told GS when I was in the Hospital.... He assists on spinal surgery, with DePuy Spine.... But he knows all about "Open Reduction Internal Fixation surgery.

It did not involve the ball and joint.... just a fracture at the top of the Femur....  I could not walk..... or put any weight at ALL on that foot/leg, until they put that rod in.   The PC said today, that if I TRIED it, the bones would have separated, and it would have been much worse.   

http://en.wikipedia.org/wiki/Internal_fixation

sas-schatzi

This link is how to use the site. Give it a try. IT'S FREE FOR 90 DAYS. LOL What can you lose. You plug in your drugs >>hit save on top of screen. Then hit interactions. If you don't hit save, it'll wipe out all the drugs that you have entered.

Even if you aren't genetically tested. The drug checker will look at drug interactions. If you see a RED icon on the side of the pill name in the interaction checker ---that's a major drug interaction.

Live on the wild side.....give it a go.

https://www.youscript.net/doc/help/2014QuickStartG...

Chevyboy

http://www.nlm.nih.gov/medlineplus/ency/patientins...

sas-schatzi

Chevy, note last one--austin moore

http://www.aaos.org/news/bulletin/may07/managing9_...

is this what they put in

https://www.google.com/search?q=austin-moore+prost...

sas-schatzi

Oh well I do or did too, but what you describe is the placement of a device into the marrow canal. I don't remember doing it any other way then with an austin moore -----okay, I give.

Spookiesmom

Here goes Sas. 3 days in hospital with multiple DVTs and PEs assured me of Coumadin for life

4 cycles A/C, the Taxotere. I cycle. Started reacting before I left office. By the time MO saw me I was convinced it was going to kill me. He called it a severe allergic reaction. Think hand foot syndrome from the soles of my feet to the top of my bald head. Every symptom, a thousand times worse. My whole body pealed. Lost every nail. No showers, the water hurt too much. I lost almost 40#. Took about a month to recover. 

Was Coumadin the culprit? Or reacting to polysorbate 80, the carrier?

Too bad about the chair, my fibro was flaring and slept through lunch sat. 

Holeinone

Jwoo, I think, I look different also. My ( excuse my language ) scrotum bag neck is more obvious since I lost 20 lbs very quickly. Now, I am too afraid to eat anything fattening or yummy cause its not on the  plant based diet, for the rest of your life. Nightmare ! One of the ladies, on the lobular thread posted a photo several months after chemo & then 2 years later. It was striking the intensity of her features after tx. She is a beautiful woman but it was very noticeable.

Chevy, glad you did not need that ball removed. DH has had both done & it is a violent procedure, not that yours wasn't horrific. But they have to dislocate that ball out of the socket...Yikes !

I got grease all over the oven....chit, taken me all day to clean it...

sas-schatzi

Spookie--HOLY CHIT, it's amazing you survived. How long ago.? It'd bee interesting if your genetics would have shown that something wasn't good for you. The skin peeling google stevens-johnson syndrome

http://www.mayoclinic.org/diseases-conditions/stev...

 Chevy have DGS send link of what they put in........amazing , I forgot something? OH MY....never liked orthopedics anyway---hammers, nails, screw, drills,osteotomes it was like carpentry.

camillegal

OMG WTF is everyone talking about I read and yet I did not see, the I read again and realized I'm quite unaware of everything that's on this planet to talk about and even Chevy said words that meant nothing to me--I think I need a break in order to understand anything. BBL

camillegal

 Luckily I have this to help---Oh now I understand everything and I need some potato chips.

camillegal

Holeinone

Cami, did you understand that my neck looks like a scrotum bag?

camillegal

camillegal

OK it took me a few times, but now that I've had some I understand every word and now I want potato chips. Pot the plant that keeps on giving.

4sewwhat

Golf Girl,

If you go someplace cold it should pull up nice and tight :0)

Wren44

Cami, Did you see the photo of the girl scout in front of the medical marijuana store? She sold way more than she did at Safeway. She knew who had the munchies.

JWoo

So sad that all GScookies have soy. I did find a thin mint recipe though:

http://cybelepascal.com/allergy-free-girl-scout-co...

I have not tried it yet, but will be!

sas-schatzi

Cami--okay did I read that right , you smoked pot? Cool......Stories... With who? where? 

It is just sooooo stupid that it isn't legalized all over. technically and actually, the DEA could bust through my door and tear mu whole house apart. I would be arrested for about a thimble full of pot. Just for having a pipe I can be put in jail. Just writing this I'm a a friggen watch list.

 Hey, it might be a mechanism for single  old people to have a worry free environment. Three meals a day, free medical care. Cable free, No junk mail. Not have to travel allot, may be to court once and a while. cooperative social environment. Books, The first part cost $3000-40000 in an assisted living. Better facilities >40000. Chit.....No worries, no decisions., no cost LOL..........starting to look good.

sas-schatzi

Then i post and I look at the post above and woo-woo has a gun. Who covers that ? What's their acronym.  Something ATFA.....or is that like 44444's AFT. Do you think they could do a coordinated bust with us alllllllll over the world? Can you imagine the officers assigned to monitor us. Sitting at some desk , next to each other ----reading about Chevy's Tramp shoes? Ziggypops MOVEMENTS?, MY 2d6 code. Christ they probably had computer guys all over those posts. Did I tell you DBF's name was Aldous?

Spookiesmom

Sas, the clots were about 4 years ago. Installed a vena cava filter ASAP at hospital. Heparin(gotta love rat poison) then  lovenox, then Coumadin. Doc said I was very lucky. 

Taxotere was a year ago. They told me it would be easier than A/C. Somebody didn't get the memo.  I did a little digging, what I found pointed to polysorbate 80 in the solution as the cause. No one ever mentioned the Coumadin as a cause. 

I was supposed to get 4 cycles of T. MO said no more chemo and stopped it. So the little black cloud we all have hanging around, mine feels a bit bigger. The what ifs a tad more frequent. And WTF happens to me if it comes back?

Smaarty

This is for Cami, I think, maybe Chevy, someone was organizing?!

Anonymous

Smaarty, love the cartoon! Hearing we will getting rain this weekend, send it down our way

sas-schatzi

Morning Owlettess, Maddy you were up? was everyone sleeping? cool.

There was serious punning in the last number of post

Scrotums wiggling under chins that would tighten up in the cold. Girl Scouts finding better places to sell there cookies. Wonder what Buddy Holly would have written about that? OH George Carlin would have had a time with that one too. Cami, please we have to have a blow by blow  erhh puff by puff description. It's okay, if you don't understand when you partake. It makes everything mellow out. You can say whatever you want it's legal where you are.  AND you won't care about getting organized. LOL. 

sas-schatzi

Spookie: you are the absolute classic patient that should have genetic testing for the  the  CYP450 pathways. The link below is to a topic thread that died a very quick death. I've kept it in my FAVS b/c  I figured someday we would start to advance. We should be testing everyone

If you look at the genelex video link last page, I was way off on the numbers related to drug reactions are billions of dollars and hundreds of thousands of problems per year.

I would suggest you call G  1-800TESTDNA get the info take it to your doc PCP and PUSH very hard. to be tested. Obviously, something isn't right. 

Try the genelex thing. Remember there is a 90 day free trial. Once you get registered and plug in your drugs. Call them back and ask to talk to a pharmacist. There pharm docs are very knowledgeable about the CYP450 paths and are willing to talk. 

 I talked to Daugherty yesterday at G, he confirmed that my taxotere dose should have been reduced. I was overdosed in the sense that I should have received less of the drug, even though it was in normal dosing range. Same with the AI's.

Sorry the topics thread name is so huge, but it just copied that way.

Topic: CYP2D6 ability to metabolize tamoxifen and recurrence

http://community.breastcancer.org/forum/73/topic/7...