INSOMNIACS place to talk in the wee hours

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited June 2016

    Lori, I meant to ask what surgery you will have in less than 2 weeks. You must have been working really hard preparing for you to sleep well at night....good side effects.

    Ms. Sas, I can't seem to open the link to the NASH. Thank God the bright yellow stool doesn't occur that often (maybe 3-4 times a year). I know my body doesn't digest fat properly with the removal of the gallbladder and maybe even prior.

    Did I miss the Wacky Wednesday call yesterday, ShepK? Today is Traveling Wednesday for us. Heading south to Oceanside for a week. Unfortunately, we are in LA traffic and it is not even rush hour yet. Not proud to say that LA won the worst traffic in the nation. image

    I had to take Mitzy to the sitter yesterday evening. The girl has good memory. As we approached the sitter's front door, Mitzy got really anxious and started to pull me away. For a skinny little thing she is quite strong. The back of my right hand is still sore. Jill texted us earlier to inform us that Mitzy is bonding beautifully with her 11 year old son. She sent us pictures and updates of Mitzy. Such peace of mind knowing that our baby is in good hand. This is much better than to have her at a boarding place where she would have to be in the kennel most of the time.

  • WenchLori
    WenchLori Member Posts: 1,558
    edited June 2016

    Loveroflife, I will be having a double modified radical mastectomy with immediate TEs. I was going to have a MX on the left with just a lift and implant on the right. My BS decided it best to remove my right breast also. She said the right has some pretty dense tissue and she doesn't want to take the chance of cancer hiding there also. I cringed and said ok. The waiting for the past 3 months has not been fun

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited June 2016

    Whenchie, you have viewed the stuff I posted? I know you are on the June group. Please, consider talking with your docs. Actually, be pushy with them. It's hard when change is occurring and not proven to decide what to do. But if the request for ketolorlac is not against your overall condition, then push for it. You know the stats on TNBC. Anything that can give you an edge is good.

    Loverly There you just did it again --yellow stools only 3-4 times a year.......... Girl..........taking a history from you is like my yard that has Bermuda, Augustine, Johnson, Bahia, and clover. ...............Get thee to a GI doc. Stop playing with your health. STOP. I love you muchly

  • JunieB
    JunieB Member Posts: 1,023
    edited June 2016

    Feline - Thank you for the explanation on the knitted knockers. That's really cool. Literally! Anything silicone is so hot and uncomfortable to wear.

    Sas - Just wanted to let you know that my MO's office called today to let me know that despite her being an associate professor at the hospital in Portland, she doesn't have privileges. But she also wants me to skip the June Faslodex treatment and restart in July when I'm back from rehab. Apparently the Faslodex already increases my risk of developing a blood clot and that added to me being less active post-surgery, she feels it's best to wait. So that's one concern off my list. However, being that my cancer has been stable for 21 months, it makes me a bit nervous to be skipping treatments. But what are you gonna do.

    I hope your DS sees the light and doesn't resist his Mother.

    Loverly - Funny pic you posted for Sas. Also glad that Mitzy is in a comfortable/safe place. So glad I don't have to deal with that traffic. Yikes! Enjoy your time in So. Cal.

    Do you remember that I had told you that I ordered my Garden of Life products through iherb? Well they've just gotten on my last nerve and I will no longer be shopping from them. They've made significant changes in how they handle customer service, plus I had problems with their wedsite which caused me to be charged for duplicate orders to the sum of $132.00. And today I received the probiotic I ordered, which was delivered warm with melted gel packs. Instead of just giving me a credit, they want me to return the item before giving me a credit. The probiotic is ruined and cannot be used by another customer. I'm seriously considering making a report to the BBB.

    How has your experience been with VitaCost?

    Wenchlori - The modified radical mx I'm familiar with, but what is a TE? I hope it all goes well.

    Susan - how are you doing? How often do you have your chemo treatments?

    Hey Shep, Lookie, Purple, Jazzygirl, and everyone else.

    Goodnight & sleep well!



  • WenchLori
    WenchLori Member Posts: 1,558
    edited June 2016

    Good morning everyone!

    Sas, I have reviewed all of your posts, you are a treasure trove of information, thank you so very very much. I have my pre-op with my PS on Monday and an appointment with my BS and my surgery pre-op on Wednesday. It would be great if I could remember where I've seen all of your posts so I can print them out (with your permission of course) and take them with me so I don't look like a dummy and I can give credit where credit is due. I'm trying to keep a level head being this close to my surgery date, but the freaking out part that I wasn't doing thelast few months I'm making up for this week! Yikes!

  • WenchLori
    WenchLori Member Posts: 1,558
    edited June 2016

    JazzyJunebug, TEs are tissue expanders


  • Smaarty
    Smaarty Member Posts: 2,951
    edited June 2016

    wrench, watch this first, about 30 minutes Lon. Then go to the toradol thread. LOTS of info.

    ;amp;amp;feature=youtu.be


    https://community.breastcancer.org/forum/73/topics...

    This links to the last page on this thread.


  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited June 2016

    Good morning, afternoon, and evening! image

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited June 2016

    Lori, the above video is good to watch. Sorry the anxiety attack has arrived. My experience was the opposite. Major anxiety attack right after the news. Lost weight because I could not sleep or eat. A few days before surgery, I had this unexplainable peace. I think it was because a lot of people were praying for me and also because I had the sweetest and most compassionate surgeon. I wish you have this peace. Hugs

    JunieB, I have only ordered the probiotics once from VitaCost. My younger sis has more experiences with them. Have not heard her complains about them yet. Sorry for the stress of not very good service.

    Ms. Sas, thank you for caring. The next time I get the bright yellow stool, I will request to see GI doc. So far I don't remember having one this year yet.

  • WenchLori
    WenchLori Member Posts: 1,558
    edited June 2016

    Thank you Smaarty, Sas and Loveroflife! I tried to download the video but no luck. We live out in the boondocks and not much bandwidth here! NOOOOO! I'll go to the library later and watch it. Headed to the toradol thread. Thank you again!

  • WenchLori
    WenchLori Member Posts: 1,558
    edited June 2016

    I talked to my daughter for 30 mins or so and I feel much better! Serena knows how to make me laugh and relax. I'm still feeling relaxed so far and hoping it lasts for awhile. If not I'll call her back :-)

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited June 2016
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited June 2016

    Smarrty, I put this thread together in March. The topic box explains all the particulars how to use each post. Post #3 is the hook post. I've posted it since March. Previous to that it was a different post to the surgical group in Feb, maybe jan. I forget what I did before that. The composite thread should work well. Dr. V's video is such an excellent introduction. It's almost like he took all our concerns from last summers work and answered them in the video.

    I have some concerns though, the biggest being that I continue to remember to do it each month. I could ask that it become part of the template they transfer from month to month. But I looked at the viewing numbers for each item on the template and for the number of years x's the amount of gals listed for each month, the template items aren't getting much viewing traffic. So, I chose to do it by the hook post.

    Actually, you could help :). Give it a read and let me know what you think.Thanks.

    https://community.breastcancer.org/forum/73/topics/843381?page=1#idx_6

  • JunieB
    JunieB Member Posts: 1,023
    edited June 2016

    Well, I've done it. Since I recently joined Facebook I decided tonight to reach out and send my half-sister a message to see if she is open to becoming acquainted. So now all I can do is wait and see.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2016

    JunieB ~ Ahhh, I was wondering if you were going to contact her! I didn't want to ask but I have been wondering :) Reaching out through FaceBook will allow you two to communicate at a pace you are each comfortable with. What a fun distraction to pass the time during your recovery! Saying a little prayer sis will become a positive part of your life. Hope your surgery prep is winding down and you can relax a bit before the big day. Tumeric was suggested to me years ago but I never tried it - kept forgetting - what strength and how often do you take it? I take Culturelle as my probiotic. Each pill is individually wrapped in foil and is supposedly the same quality as the type that needs refrigeration. That is sooo bad you spent all that money and the company didn't properly protect your order. Have you been able to contact a a supervisor? Jeez, you have enough things to worry about right now! Wonderful that the church lady apologized. You handled yourself as a true lady. That woman should be ashamed. I can't promise I won't share any more creepy crawlies - I will try to warn you though ;)

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited June 2016

    Wenchie, Look back three posts, to the post I wrote to Smarrty. The thread is what I'm calling a composite post. The "Hook" is Dr. V's video. Rather than rewrite what the other posts mean read the topic box. It's one stop shopping. It has all the connecting links to all the research. Your doc can reach all the research from the one thread. For you, the most important research articles are Dr. Forget's and Dr. Retsky's research b/c they are directly related to your upcoming surgery.

    The Toradol topic box is overwhelming with links. There was no other way to do it. It is logical LOL. The final step was to connect Fallleaves, and 123JustMe and my thread. It was a round robin thingy. The way it's put together allows anyone searching to get to all the other current info. But it explains why I did the composite thread. The intent of the composite thread was to allow someone that is a non researcher to have info that should at least be discussed with their doc and keep's it simple.

    Now in saying that, I wonder about "Round Robin", I knew what it meant when I asked them to do it, and Falls and 123 knew. But it's a strange saying.

    How do you get through this stuff.........put your head down, shoulder forward, and pussssssh

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited June 2016

    And Pray......................................

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited June 2016

    Pray not to survive, pray to be.......... day to day, that you deal with today, with hope that tomorrow is good to excellent. We change our old ideas about days. We change our ideas about minutes when the need is there. At first, numb. Then a fog. Then a flurry of activity. Then a slow down of activity. There's more, but I'll leave that out for now. Feel the wind, feel the warmth, and breathe........................

  • WenchLori
    WenchLori Member Posts: 1,558
    edited June 2016

    On my gosh Sassy, thank you so much! I really appreciate everything everyone does to help get us all through this. I've got 10 days to be a complete sponge. I think I still have a hard time getting it through my head that all of thisreally relates to me and not just a big mistake. I can honestly say I've buried my head in the sand the past 6 to 8 weeks. Stinkin' thinkin' at its best!

    I can do this will all of your help 😀

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2016

    Sas ~ How true; so perfectly worded.

  • PurpleMinion
    PurpleMinion Member Posts: 165
    edited June 2016

    Hey everyone! I've been on a bit of a break, sort of just feeling blah from post chemo steroid crash. Hope everyone is good.

  • Wren44
    Wren44 Member Posts: 8,585
    edited June 2016

    Purple, Good to see you again.

    Lori, Nothing wrong with burying your head in the sand. My motto is worry about it when it happens. DH had heart surgery and I never worried - I knew he would be OK. That was probably denial, but he was ok and still is.

  • Smaarty
    Smaarty Member Posts: 2,951
    edited June 2016

    wrench, have you got a part of small pillows yet? Do you sew? If not, let me know. I can get you a pair in the mail before the week is out. I've made about 4 sets so far.

    Sas, yes, I like to thread, all In one spot.

  • WenchLori
    WenchLori Member Posts: 1,558
    edited June 2016

    Thank you Wren, I will push on :-)

  • Wren44
    Wren44 Member Posts: 8,585
    edited June 2016

    I just talked to my SIL. My niece is in the ICU. Her blood sugar was 26 and the paramedics treated her and took her to the ER. The nurse warned SIL that blood sugar that low can cause brain damage. We are hoping that's not the case. She was trying to get up and remove her IV, so they restrained her and she's medicated with sedatives. We're all worried about her. She's been extremely depressed after her husband died a few months ago and her diabetes has always been hard to control. Prayers and healing thoughts are welcome.

  • sensitivehrt
    sensitivehrt Member Posts: 359
    edited June 2016

    Wren44-prayers and good thoughts being sent your families way.


  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited June 2016

    Hello ladies!!

    Ms. Wren, I will lift your niece and your family up in prayers.



  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited June 2016

    popping in to day hi. Great to see so many new people along with so many " old time regulars ".

    Hugs and Hootie hoo

  • kathindc
    kathindc Member Posts: 2,042
    edited June 2016

    Wren, your niece is in my prayers.

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited June 2016

    Wren: your niece is definitely in my prayers.

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