INSOMNIACS place to talk in the wee hours

susan3

I just figured out how not to have my "pics" show up on the bottom of the screen!! Now I can just post a pic. Go figure...love to learn new things....but it takes me awhile...lol

Loveroflife

Susan, I was going to say something, but thought that was your "signature". I am learning too. Just recently learned how to post videos. Jazzy was gracious enough to take the time to show me how. Proud of you and proud of myself

Loveroflife

Just took this. Walking Mitzy now.

Chevyboy

So peaceful! Beautiful picture!

JunieB

Aww Chevy you're so sweet! My initial BC was in 1991 at the age of 31, then I had chondrosarcoma in my left hip in 2000 at 40, then was DX'd with MBC in August of 2014. Can't believe the BC has been lurking about for 23 years. Anyway, it so far is in my T11 vertebrae only. The tumor is 2 cm. and had been pressing on a spinal nerve that caused me to have abdominal pain in the upper right quadrant. E.R. docs checked for gall stones, kidney stones, etc., but nothing. Apparently the tumor showed on a CT, but the radiologist missed it. I was in severe pain for 6 weeks before my back popped while brushing my teeth one morning and I ended up back in an E.R. 50 miles away, because I didn't trust the local one. The first MO was a W.O.W. (Witch on wheels), so I was very fortunate to find the one I have now. She is incredibly smart, but very kind. I also went to the Mayo Clinic in Arizona in December 2014 for a consult. I initially started on Arimidex, but it made my fibromyalgia & osteoarthritis much worse, so my new MO switched me to Faslodex and added Ibrance when it became available. So far cancer is stable. Yeah!

I hope it continues, especially since I plan on getting a puppy in the next few months. I've paid my deposit to the breeder and am just waiting for one of her females to get pregnant. I am getting a Cairn Terrier. My absolute favorite breed. I had one for 14 years before, so as you can see I need to be around and functional for at least that long. By the grace of God!

I am single with no children, so the dog will be great company. I volunteer 1-2 afternoons a week in the Admin. office of the local homeless shelter. I do sew, but have not really had the motivation to sew since my DX. Maybe my new dog can get trained as a therapy dog, so I can take him to the local hospital's oncology floor or where ever. I enjoy making cheesecake for special occasions and used to love to cook dinners a couple times a year for my church group, but I just can't stand that long. The last dinner I did was in Feb. 2015 for a lady who had hit her 5 year cancer free mark, and while I was very happy to do it, I suffered greatly during and after it, even though I had plenty of help. The Pastor was even washing dishes & pots after dinner. I spent 6 days in my recliner on oxychodone. So that was my wakeup call to be more careful.

Thank you for asking. I hope I wasn't toooo long winded.

Here's a pic. of my 2 dogs that passed in 2010 & 2011. I miss them a lot.

Spookiesmom

hi and welcome! Just wanted to say there are a few Carins at our dog park. Cool pups

JunieB

Yes, I love them. They are spunky and a little like me. Literature says they aren't lap dogs. But they forgot to tell my last Cairn that, because my lap was his favorite place.

Boyd748

Hey everyone and thanks Chevyboy,

Well I had my follow up diagnostic mammogram and an ultrasound to check where needle biopsy was done on the fibroid mass. The ultrasound was normal however the radiologist said my mammogram shows that there are now more microcalcifications which are all different shaped and that they are in a line so she gave me a birads 4c. I saw the mammogram from one angle they looked all clumped and than from the other there was a clump and than line. She couldn't figure out why I didnt have a biopsy already done month ago since they found them in July. So next Wednesday I go in and have a stereotactic biopsy than she said she will help me find a surgeon and go over options. It's going to be a long couple of weeks I get results Monday after biopsy. At least now something's being done, they tried to get my biopsy done this week but no openings I was given the first available one, they are not messing around. The radiologist said the handles of it being cancer are good but it's the best kind to have. Not sure what kind though it's all a daze should have had my husband with me. Thanks girls looks like I might be joining for real soon. You all are wonderful! God Bless!

Boyd748

Jazzygirl

Boyd- calcifications mean it is super early. That being said, it may mean less treatment if it is positive. I had calcifications years ago and they were benign. That was my first biopsy.

myra104

"Hello" "how are you?" (Sing it like Adele😂)

Sorry I've been so out of touch with these boards...I'm back...for good. Hope to remember my password, I kept having to request it and finally gave up last time.

Boyd748, when they say that you can go alone to the stereotactic biopsy, don't listen...that was the dumbest thing it did in my entire treatment. In fact I would just go straight for the MRI, then surgery to get it out...stupid doctors.

I really hope everyone is hanging in there. I finally have soft boobs and the beginning of nipples after years with expanders, another dumb invention.

I still have rads scarring from Last summer...like summer 2014😬🙈

I have one more nipple surgery before I head to see Vinnie the Nipple magician in NOLA!

Yes, I'm bitchy, the tamoxifen is kicking my arse and I have skipped two days and now obsessing on the Internet about quitting for good.

What I have read so far is that tamoxifen is preventing 40% of recurrence for women. Then I read that I have the same rate of recurrence without it? I'm all over the place but I've gained 60 lbs on this crap...I've been jogging for over 3 weeks now and no difference...oh and drinking a bunch of green crap too! My husband and kids hate me and tamoxifen hates them too. I'm done, I'm tired of feeling shitty, dizzy, crazy, stressed, foggy...,blah blah blah.

So here's my choices:

Stop tamoxifen and most likely hit a stage four soon.

Leave my husband for sanitys sake.

Or suffer on tamoxifen until I hit stage four.

Ugh, spewing venom, so sorry but I know that you all get it and have great insight to this monster. HELP

Boyd748

Hey myra104,

I had an MRI back in October and was told not to be concerned by my than surgeon but she scheduled surgery. The mammogram technician showed my images and pointed out what they were worked about the polymorphic cluster and than how now there is a line, I told her I had an MRI she said that's why they wanted this because it wasn't good. As far as doing a stereotactic biopsy now instead of surgery is so that I only have to have one surgery and they are going to put a marker in during it.

I am sorry to hear of the hard time you are having with your medication😞 . I, of course don't know anything that can help you but there are so many very wise women on here who can probably give you so words of wisdom. I wish you many blessings and thank you so much for responding to my post.

Boy

Holeinone

Myra,

So sorry you are struggling right now, but WELCOME back !

I have only taken Arimidex. Can you take something besides Tamoxifen ? I am guessing you are not "old" enough for Arimidex. Some ladies go on the ovarian suppression meds, in order to take AI. Sounds like trading one problem for another. I hate taking the Arimidex, but I know it's important.

Someone will come along with more through advice. CHEVY will fix you up, chocolate cokes & walking Walmart.

sas-schatzi

Omd Myra your back, Sent a PM ever so long ago, Girl you are talking crazy. YAY. I did that one time. I was restless, Thought I needed to go back to school. Needed to travel. Needed to divorce. Needed to change careers. Then I laughed that was too much too do and I got happy again. Continued with the same guy for the next 30 years. We were married for eight years at that point, I thought all that restless stuff.

"most likely to hit stage four soon" Why think that? Yeah, we all think the worst is coming with the next body thingy. Everyone here just went through a 7 year meltdown with me, but life is good. Everybody part hurts and weird stuff happening, but okay I get it checked out.

Get Happy, stay with us, happy thoughts YAY MYRA missed you

Holeinone

Myra, wow, you changed your avatar photo while I was posting. Decided to update? I like it.

myra104

Thanks for the caring...I have been sitting in a corner in the dark for two hours trying to read as much as I can. I haven't had a period in two years next month thanks to AC. I hear of other meds so I'm sure they will want to put me on them. So so very tired of it all, have to keep reminding myself it's the meds and treatment, that I'm actually a nice person, lol👎🏻 stupid cancer!

X

sas-schatzi

Had a wonderful dinner with Dr Retsky and his wife Myrna. It was at the restaurant connected to the hotel they are staying in. She was discharged from the hospital this afternoon. She is doing well. Much better than I expected.. Lot's of laughing. Enjoyed them immensely.

You know I gift glass to whomever comes. I had some Cambridge glass. Dr.Retsky is from Harvard which is in Cambridge, Mass. It was perfect that Cambridge goes to Cambridge. But found out tonight they live in Conn. The thought though is solid. We had a talk about glass and she loved it. She promised to pass it forward.

myra104

Haha, thanks, my chubby face with my preteen...between his hormones and mine it's like ww3 sometimes. I think the stress from work doesn't help either, I'm a good faker? So the expectations are a bit much, perfect leader, perfect mom, perfect wife, perfect friend...puke!

Smaarty

hi Boyd. The good kind I think they are referring to is DCIS. Like mine. Sounds like really early since there's no mass yet, like mine. It probably means lump and rads if that what you chose or mx. Lots to think about. Do take someone with you and if you're really anxious you can ask for something to help that. The biopsy was probably the one thing I was most anxious about and wished I had asked to take something. Closest I've ever been to a panic attach! The tech said I could have asked, but I didn't know to ask!

Good luck and keep us posted.

myra104

sassy pants, aka, mama bear!😍 Hope you are well, post some funnies pretty please

myra104

sas-schatzi

These were the glasses that I gave Myrna. I thrifted them along time ago. Used them and the they weren't used. I loved the idea that they would go to Cambridge. Pattern name is Regency-Stradivari. I have always thought this stem in the pattern was the most elegant. Came up with a new phrase today to explain why I gift glass. "I rescue glass". Others in this pattern RC list at a higher price, but none are more elegant

http://www.replacements.com/webquote/CAMREG.htm

myra104

Nice!!

Wren44

Myra, Your preteen is about the age mine was when I began counting the years until I could legally toss him out. Have you told your MO about your bitchy mood? Sometimes antidepressants really help with that. Or a counselor you could blow off steam to? A place to bitch about your job, hubby, and family? Of course you can do it here, but sometimes in person is better. I think we all sometimes think "I'll just go out and eat worms." and want to chuck it all. I know it's not a fun place to be in. Glad you came back here.

sas-schatzi

OH wee was so busy today forgot the minute phone call that I got from my counselors secretary. He kicked my insurance to the curb. They reimburse very little comparatively. I asked why. She said his financial counselor recommended it b/c he was doing a relook at retirement. Honest answer. I appreciate that. But been going to him for 6 years. Bummer. Chit...........Forgot that when I first went to him, I did block visit buying b/c my insurance didn't cover him..........then it did.................Now have to decide about block visiting again, very expensive versus a 20$ copay.

susan3

sorry sas....I wish things stayed easy....hate change that isn't good for us

Hi Myra...I don't think we have met .sorry you are having problems on tamoxifen. I was on that for 5 then on femera.....are they still using femera?? Hope you don't move up stages

I will try to put a funny picture for you:)

susan3

susan3

sas-schatzi

Myra, don't know if I started Warm and Fuzzies when you were here last. It's all funnies..........

Warm & fuzzy owls, goats, kitties, dogs, birds ETC. PICS &LINKS

susan3

sas, I think I dropped the ball in getting back to you on ideas for your dinner per my hubby. So sorry...I forgot...yucky chemo brain...poo

Jazzygirl

Myra- hi and welcome back. I have real issues around these drugs and the weight gain. I take anastrozole and have gained 20 pounds on it. I eat very little and work out regularly. It is impossible to loose weight on these, very easy to gain on them. I took a break from them for a month once and lost 10 pounds without changing anything else. What does that tell you?

I am going in to see my BS today and MO tomorrow. He manages the AIs, she checks my imaging. My mammo and ultrasounds were good, so I don't expect anything else today. Except the regular lecture to loose weight. Here is where I get pretty unhappy. Take this drug that makes you gain weight and never be able to loose it, but LOOSE WEIGHT.

I am going to talk to my MO tomorrow as I know I am not alone with some of this stuff and see what he says about the whole AI weight thing. Will share anything from this that may be helpful to the group at large. I am leaving town right after my apts tomorrow so you will have to wait until next week though.