INSOMNIACS place to talk in the wee hours

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2015

    Chit, Donnie feel asleep.................................

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    Hahahaha....that's is something DH would say about me. Did you snooze? I am thinking ...,Mr. Furley from Three's Company. Hehehehe

    Edit: wrong guy...it's Mr Roper!!!

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  • Cubbie2015
    Cubbie2015 Member Posts: 875
    edited December 2015

    Patty, so sad to hear about your son's friend. I lost my Dad when I was about that age, it is so, so, hard.

    Chevy, OhMyGarfield about the vinegar. A little goes a long way, girl! Yikes! The purple stuff was gentian violet, maybe? Bet Sas would know. I like how the doctor was unperturbed about it, makes you wonder if you were not the first person to do that.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    MammaRay!!! How are you and family? Done with radiation??

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2015

    Hey mammaR How you doing?

    Hi Loverly.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2015

    fading fast here, Catch up tomorrow.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    Good idea!! It's late for you

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    Oh dear, bad news? Progression?

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    What plan does your team have for you? How long since you you were told of the progression

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    Kathi, are you up by chance? Ms. Wren? I think Ms. Sas hit the sak.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    Are you aware of the brain mets thread?

    https://community.breastcancer.org/forum/8/topics/...

    I am sure you will most likely find support there also. Can compare notes.

    Are you having symptoms from brain mets?

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    Need to charge my phone and brush my teeth, but I am not signing off. Not sure how much wisdom I can offer, but can listen. Be back in a bit

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    Yes, I know what you mean. This is my home thread too. I love these ladies as they accept my weirdness....I think hmm

    Anyway, constant headache makes sense with the fluid and swelling. I am sorry. Hopefully, you don't get the nausea/vomiting with the headache. So, once the swelling goes down, they will do radiation therapy to the brain?Is the steroids keeping you up or is it the running thoughts in your mind?

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    Which steroid did they put you on, decadron (dexamethadone)? It is possible it's the steroid on top of the angst. Anyone would struggle if it's progression. Concentrate on getting better and don't worry too much about telling your other family members about your situation yet, unless you think you will get better support from them. You don't need more stress at this time.I know you are a believer. It would be a privilege for me to pray for you sweetheart.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    I need to go now as I have to work early tomorrow. Try to get some rest. Leave it at the alter. Hug

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  • kathindc
    kathindc Member Posts: 2,042
    edited December 2015

    MammaRay, I just popped on. So sorry to hear your news. Now is the time to think only of yourself. Family can wait. You don't need any added stress in your life. You are definitely in my prayers sweet sister. Wish I could put my arms around you for a big hug. Hope this substitute can relieve some of your anxiety ((((((HUGS)))))).

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2015

    Ask for Ativan if you continue to have racing thoughts at night. It might help you rest. Rest is important to fight.it's tough when you have a little one who still needs you. Ok, I'm going to bed now for real. Good night.

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  • JWoo
    JWoo Member Posts: 1,171
    edited December 2015

    Hello Owlettes <3

    Just wanted to pop in and wish you all a Happy New Year. I hope 2016 offers us all a chance to find peace and some joy. I know 2015 has been hard on us all. I for one am not sorry to see it go.

    MammaRay, sending you a ton of love. I am so sorry that you are having to deal with this. I agree with Lover and Kathindc, you do what you need to do to care for yourself. Your family will be there for you.



    image

    Much love to you all.

    jeni

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited December 2015

    mammaray. - sorry to hear about progression. That stinks will be praying for you

    Jwoo. - Hi. Nice to see ya

    Hootie vh8

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited December 2015

    MammaRay- good to hear from you, but sorry to hear about the news. It sounds like they have some very good treatment to offer you however. I am sorry you have constant headaches.

    Talking to friends and family about any of this is tough. Perhaps give yourself so space to just adjust to this news as best you can and prepare for the treatment plan and the rest can follow.

    Sending you love and hugs across the miles. Wishing you better days sister.

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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited December 2015

    MamaRay hugs and prayers. I hope you can get help for the headaches. Friend here in Wicklow dealing with brain too. She has 4 DD's all still in school. No words bad enough for such a bum deal you both got. Your faith NOTHING can take away, not the drugs nor the cancer.

    Patty hugs too. So sorry for your son's shock and pain, how good he is to care so much. I hope his friend is surrounded by love.

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  • susan3
    susan3 Member Posts: 3,728
    edited December 2015

    imagegot you under my wing mamma ray. And of course and waaay more importantly, God has you in His arms. Love you bunches sister

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  • susan3
    susan3 Member Posts: 3,728
    edited December 2015

    patty, sorry about you sons, friends, mom. Sad...and it does bring to close to home.

    Took my daughter over an hour to get out of the car to go into the wake the other day. He died of cancer, 4 days after diagnosis. It's so tuff when you mind races and you can't calm it down. It not only happens to us...it effects all around us. Prayers for you family.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2015

    Morning Susan..... so sorry for your Daughter...Was that story in the news? I thought I saw something about this....

    Loverly and MammaR.... That is just special that you two can talk like that.... late at night, and all by yourselves... and I know it helps......Sorry about the head-aches MammaR........ Wish I could help........ I've read about that going on, here on the blog, but find where Loverly is talking about, and maybe women going through this will have some suggestions?

    Hi Jwow and Wren! Feline, I know they are coming out with so many new drugs to help all these complications with cancer.... I just hate it when my "friends" here are going through so much.... especially when little kids are concerned!

    Wren, yes.... THANKS! I thought I read somewhere, that it is an STD..... Holy crap! I never heard of those things when I was in my 20's! But yes, I was always given antibiotics..... mostly for my rashes from drugs from allergies, and always having bronchitis....

    Maybe when you get to be my age, most things just give it up.... I am healthier now than I ever was..... I was so lucky ... I mean luckier than most that my breast cancer wasn't any worse than it was... and that when I fell and broke my hip, I came back from that....I wish for all of you gals, many more years.......

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2015

    image

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  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited December 2015

    Sorry Susan, Patty, MamaRay. I completely get your fears. No need to tell the family now. It's hard to comfort others when you are scared chinless.


    I've heard good stories from the brain thread. You are young, strong and have a big reason to fight. I think our children make us stronger.


    I remember those steroid days. Had a clean house. Not any more:( I didn't like Ativan. Xanax works better for me. Don't be afraid to ask. Then it will be there when you need it, instead of having to wait. There's no shame in needing help. It's a tough ride.
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  • mdnghtdeb3
    mdnghtdeb3 Member Posts: 130
    edited December 2015

    G"morning pretty ladies!

    MammaRay - Sending you hugs!

    luvmygoats - I have an ultrasound of right and left axillary region scheduled for tuesday and then they will decide on what type of biopsy to do based on location, and adjacent nerves, etc. My Dr says she might want to remove entire mass.

    Hope you ladies have a wonderful day! Hugs all around!

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2015

    I forgot you Cubbie.... yes, I think it was! What a MESS! I mean purple was everywhere! I remember our neighbors were over helping my Husband put up a swing-set, and it hurt so bad, I could hardly TALK! It's funny now, but not anymore... I know now, to eat lots of yogurt, and drink Aloe-Vera when I have to take an Anti-biotic... like with my hip.... AND BC surgery...My incisions around the tubes in my breast were VERY infected, so had 2 different ones....... Didn't get that yeast infection either time...! Maybe the anbi-b's are different now......

    Is everybody still in bed?

    Sass, I think you should get some sleep.... your little brain is always working overtime!

    Not doing anything tonight.... but Janie is coming over today.........She is bringing a Hot and Ready Pizza... Ha! Going to help me sort all the stuff out I don't want.... And we will donate what she can't use.......

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  • susan3
    susan3 Member Posts: 3,728
    edited December 2015




    Zills, does Xanax help with nausea too.? I take Ativan for a few days after chemo cause it helps with nausea and doesn't block me up for 2 weeks like zophran. I have enough internal problems and zophran is not my friend. Get the smallest dose possible during treatment, and that throws me over the edge. Managing side effects is a full time job. Thank God I have a very competitive nature, thrown it with a healthy dose of stubbornness. And I might as well add, a big mouth, which helps me to be my own advocate. See how I can spin negative attributes and make them look so nic...lol

    Have a safe New Years everyone ๐Ÿบ๐Ÿท๐Ÿ’ž๐ŸŽ‰๐ŸŽˆโ›„๏ธ๐Ÿˆ๐Ÿ‡บ๐Ÿ‡ธ

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2015

    http://www.flixxy.com/12-days-of-christmas-with-americas-funniest-home-videos.htm

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