Things to do to help your wife during treatments

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2011

    Rupe-----------I don't won't to deny anyone's feelings, but You get what I'm saying please, without saying it. TB wake up share what your husband is trying to do for you. You have a time together that will never be compared. Of course, you wished you never came to this point. YOU are ALIVE. Get your Tb moving when you can.

    Greg and I had Ca dx'd 3 months apart. He died in  AUg 2010. 38 years joined at the hip. I'm still not right--------------the point being is you have each other make every moment count.  We did until the end and then my nursing took over.

    Tiger Blood - get your blood moving sweetie............may all of what we pray for become true.. Please consider joining us in our novenas. Only today did we find out that ST Threses's mother died of BC. We have extented our novena to her until Mothers day..

    Namaste sheila

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited May 2011

    Hello Rupe - I tried to catch up on all the posts ... I am so happy to see some of the ladies on here that I have made conncetions with and offer such great, loving advice! 

    I wanted to just mention a few things ... I had a very wonderful conversation with the Patient Advocacy Counsil from my hospital in regards to a nasty work situation.  They are terrific and it's free.  They are experts in ADA and EEOC laws.  You may want to check if your hospital may offer the saem.  My ONC recommended it ... and then ,,,

    I have been on anti depressants now for two weeks.  Not my style as I have always been full of energy (example, I was an amatuer kickboxers for several years...I pretty much never stop, all day long).  That has all changed and I am well aware it's because of this journey and the brick walls I run into.  This medication has helped...for the first time, I didn't feel like I was going to throw up before treatment and I didn't cry during the whole process (even after a big scare in the labs from an allergic reaction!).  I don't have any side effects and it's just going to get me through treatments.  I will admit, I was very reluctant, but I feel very comfortable with my decision.  Just what we all need, right??  Another dang pill!  But my mood has been better, my focus is a little bit better and the edge is off ...

    Anyway...I just wanted to see if my experience would be of any help.  I'm an open book and just one of so many that have a journey of a million steps!  And I just keep learning more and more as I go ...

    ((((HUGS))))

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2011

    Tiger blood and rupe------I was going to add you to the Intentions page and saw that you posted I am so happy. Try and read all of page 4 and part of page 3. We try to keep only intention s on that page so they can be run off and taken to the shrines. The discussion page is the Catholic thread Please, go there and say that you are joining. The reason that's important is we pray together weekly and they need to know your name. Then there is a prayer page.

    The novena to ST Therese is on the Prayer thread, It has a hyperlink to the Intentions thread. That thread is an accumulation of prayers

    So, there are three threads-------discussion, prayers, intentions,----The thread headers will make it clearer why there are three threads

    We just found out this past Thurs. that ST Therese's mother died of BC in the 1800's. So we extended the novena until mothers day so as to pray for her mom and our own moms and all moms. You still can do the novena just count from when you started and then do it for 9 days.

    If I sound a little disconnected had to take a pain pill and it makes me a little scattered.

    Namaste sheila

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2011
    Hi R&TB--------checking in to see how things are going. Haven't seen you post yet on the Catholic thread. All you have to say is hello we 'd like to join you we're new. AND you will get a lot of swell answers. WE love new posters. More to pray for and more to pray with usSmile. Hope all is well. Pm me if you need help. sas
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2011

    Hi R& TB------hope all is going well. You should be heading towards 4th tx and done with 3rd?

    The novena is continuing and you are being prayed for. When you feel up to it join us on the Catolic discussion thread ------------Namaste sheila

  • Tiger_Blood
    Tiger_Blood Member Posts: 270
    edited May 2011

    SAS, 

     TB is doing great.  4th treatment is this coming Wed.  The light at the end of the tunnel is getting brighter.  She has been going to acupuncture treatments which seem to be really helping her, so if anyone is having a hard time I would recommend trying it.

     Rupe   

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2011
    4 minutes ago sas-schatzi wrote:

    I just declared an end of the world party on OMG if ya"ll want to pop by apparently we have to be done by six, cuz that's when the Rapture suppose to happen. But whom ever statred this rapturing  nonsense , they didn't say whose 6pm. WE know the nz'ers aren't getting raptured because they already checked in. So. if you have any nonsense you want to bring our way come on over. Can't be sure of turn out, because it's Sat afternoon. But would love to have you drop by and offer up some nonsenses during this serious event. BYOB and Tin Hat.-------sas

    SAS
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2011

    gLAD THINGS ARE GOING WELL NAMASTE SHEILA

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited June 2011

    TB and Rupe----------we ar starting another novena on june 11th. Please just pop in to the discussion thread to say hello , You and I have you covered on the intentions thread.

    It really doesn't matter if you go to the discussion thread, but i like us to know each other, but again if it doesn't happen that's ok. We do discuss other things than religion on the dicussion site. There is this whole thing right now about a new manager having problems. It's normal stuff. We are cohesive as threads get when people post. We care about each other and worry and be happy when things go well. It's like family. The same may be had on all threads. Thats why I said most people do whatever amount of threads they can handle. In your case I guess I'm just being  a mom and saying okay just one visit. Silly isn't it. It sounds like you had your last treatment a week ago today.--------------no complications. Yeah--------- champagne and caviar. You'll feel punk for a couple more weeks, then each day will be better. AND let us believe it will become a distant memory.  Tb you don't want to be here --trust me I get it--------so, I will still check in until I know you are gone.

    Instructions---------

    Don't over do ----everything in moderation. 

    If they took any lymph nodes be careful with that arm--------don't fly, watch bug bites closely. protect the arm

    Follow up--abbreviated f/u as dierected

    Have all paper work for both you and Rupe in order,        I missed one stock worth about 7000$ with out a benificiary on it----------a problem that didn't have to be--------there were about + - multiple other items that I always made sure there were benificiaries on. Greg and I thought every thing was covered.

    Love each other well ---as I know you do-----------never let a day go by without saying it. Never go to bed mad. Always kiss goodnight. Play allot. Treasure that baby-----duh----- not like you don't. 

     Reminds me of a story from my husband who died in August. He says my son said "As much as I argue with that woman you can't believe how much I quote her" My first thought was I didn't perceive that we argued----it was a discussion. And Then  I said"Yes I'm in his brain". Like always have a Designated driver-----------he and all his friends are on the program.  no dd then they sleep over where ever they are. but there's lot's of other stuff. In a different time we called it instilling values. My Mom and Dad are in my head.

    Well anyways Hope and our Faith gives us strength.  You are in my intentions which means if you never come back here you are still going to be prayed for. 

    May God and Our Mother Mary , and the Holy Court of Heaven  Bless and protect you from any further harm. May all the novena's that we do follow God's plan. May you love each other to the deepest part of your souls and may your  life together be happy and without fear Amen

    Namaste-I SALUTE THE GOD WITHIN YOU--- sheila

  • Tiger_Blood
    Tiger_Blood Member Posts: 270
    edited June 2011

    Thanks Sheila,

    Your thoughts and prayers are always appreciated.  TB had a real rough time with #4.  Not a good way to celebrate a birthday but she is getting better by the day.   The tingling in her hands and feet are really bothering her.  

    Got her a Stella Scooter for when this is all over.  By this time next year she will be scooting her way to work with the sun and wind in her face.Cool

     Rupe

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited June 2011

    http://community.breastcancer.org/forum/44/topic/753120?page=73#idx_2184

    Anyone having trouble with bra fittings and migrating foobs, this is the site you want to go too. Amazing information.  Will be back want to post this on some other sites :)) sheila

    Just all over the place with this because I had misery for 2 and 1/4 years. GREATTTTT !! info on this site

    Sorry Tb your feeling bad, wish I could make it better, Honey. It sucks. But believe you will get through it. Each day of life is a gift-----though some gifts are better than others. 

    Think Disneyland in Orlando ------I'll meet you at Harry Potter.. And you can stay with me---I hour drive to the parking lot.  I have a pool and a dog LOL. L&H&P's sheila

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited June 2011

    Tb--------------your HUSBAND HAS MORE BELIEF THAN YOU. didn't mean to hit the caps , but when that happens I take it as a sign.Katie you are doing avoidance on the BC thing. Thats your choice-babe. But question why? There are several thousand women on this board that would jump at the chance to have your husbands support. It's not that you are not getting it at home. But you could be getting support from us too.. The one time you came to the Catholic Intentions thread and identified yourself. No one responded. It was because it was our intentions thread not the dicussion thread. We Intentionally keep the intentions thread short. SO. when we want it run off to be sent to ----------wherever it can, with the minimum amount of ink and paper. You said you wanted to join us, clarifird how ---------i think-----------i know...........katie come join us, we support each other. and we have a great teacher in Theresa.  Nameste sheila

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited June 2011

     Love to both of you----------------please give each other a hug It's now one day past my 39th anniversary and .................................you guys still can hug

  • AthabascanWarriorPrincess
    AthabascanWarriorPrincess Member Posts: 18
    edited July 2011

    Hi, this is my first post. I have been reading since day one. How is your wife/ family? I am married with 3 beautiful children, DS 11, DD 10 and DD 3. I just finished 4 of 6 chemo cyle, and like I said have been reading your posts and find strength and hope in them. Please post an update. You and your family are in my prayers...

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2011

    new thread on hot flashes --------some good info

    http://community.breastcancer.org/forum/78/topic/770796?page=1

    posting on a bunch of threadsL&H&P's sheila

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2011

    New thread on social security questions answered by a lawyer whose wife has BC. Knows his stuff------posting on a bunch of threads---------go to financial forum

     Can't make link work without trouble, not up for it.

  • Sousek
    Sousek Member Posts: 8
    edited August 2011

    My wife was diagnosed with breast cancer a little over a year ago, June 22, 2010.  It's been one heck of a ride for both of us, but here we are a year later and she's doing great!  She had a mastectomy followed by six rounds of chemotherapy (TAC).  

    I blogged our way through this journey and talk about everything we faced on pretty much a daily basis.  It may help to read through it as I talk about the challenges we faced and how the two of us got through it.

    You can do this.  You made a vow when you were married to "love, honor and cherish through sickness and in health!"  There will be times when you want to just throw your hands up in the air and say "I don't know if I can do this anymore" but you can!  

    She needs to see you with a positive attitude.

    Like I said, reading through this may give you some help and hope.

    WhatARideBlog.Wordpress.com

     Ed 

  • Tiger_Blood
    Tiger_Blood Member Posts: 270
    edited August 2011

    Good advice Sousek. TB just got out of surgery and they said it went smooth, and that she had responded well to the chemo. 1 step closer to being cancer free! I pray that they got it all. Thank you all for the support and PMs.



    Rupe

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2012

    Hi tb and rupe--------how are things going? sheila

  • hpmhugo
    hpmhugo Member Posts: 1
    edited August 2018

    Hello SunDiego,

    I tried the link you provided, but could not open it. Is this link still available? I'm also supporting my wife ... and trying to gain tips and insight.

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2018

    Hi hpmhugo, and welcome to the BC.org Community!

    We can't find that thread either. Anyway, it was an old thread, and this is an old topic too and hasn't been active since 2012, so we would suggest you join in some of the following conversations which are way more active:

    Topic: Open Letter

    Topic: The Husbands Corner(for family, friends, boyfriends, ect.)

    We hope this helps. Happy posting!

    The Mods

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