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  • macatacmv
    macatacmv Member Posts: 1,386
    edited September 2012

    Yay, Leah drains out and home!!!!

    Ginger Boo! for the migraine, those are no fun! Hope they can reschedule the scan soon. 

    Off to biofeedback! Not sure what I think of it yet. It works while I am practicing it at her office, but i'm not real good at practicing it on my own.

    Nancy 

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  • purple32
    purple32 Member Posts: 3,188
    edited September 2012

    "Today I went to get a massage and the therapist wouldn't give me one. Said I needed a doctor's note saying it would be ok. She gave me a bag of epsom salts and told me to take a bath. WTH?'

    WHY maca ????


    So glad you found another DR.

    Best of luck to you !

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  • Wren44
    Wren44 Member Posts: 8,585
    edited September 2012

    My massage therapist looked terrified when she realized I had a mx and nodes removed. She said deep tissue massage should never be done due to lymph risk. She made me promise it would be the first thing out of my mouth when seeing a massage person.

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  • Alyson
    Alyson Member Posts: 4,308
    edited September 2012

    Purple, I agree with Wren. You must always use a person who knows about lymphoedema and deep massage is the worst if you have had a mx and node removal. Even my LE therapist caused problems for me when she tried a method of using pressure points supposedly to relieve pain. I was in agony for days. Maca, how are you? And you really should be careful about hot baths as well. I have LE in my arm and side but I do have a bath, its RA or LE and when it comes to a relaxing bath which my joints are screaming for, I have one but be careful about putting my arm under too much.

    Have had some beautiful days and now a storm is brewing, well I suppose its spring.

    DD has just called to say she is coming over as her DH is trying to complete a contract and needs a couple of hours of peace. 

    Hope you all have a great day

    Big hugs.

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  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited September 2012

    yup, i used to be a massage therapist, earlier in life.. they're suppossed to take a full, in depth health history before, and no therapist in their right mind, would do any massage on a bc patient, w/out a drs note.. for tissue/ nerve damge, and the lymph system.. they can modify it, and it can still be enjoyable. i like my neck rubbed, bt it has to be very gently, bc its a major sight for lymph drainage..

      you may ask around, we have a therapist here, who specializes in lymph drainage.. its' a much lighter touch, and then she deepens it for my trigger points in the scapula..

      I'm afraid the days of anything easy are gone..

      Leah!!I was soo pleased to see you're home, and w/out drains is amazing.. mine stayed in so long, the tissue was beginning to grow around it, and they had to use a sclpel to start it to move..

      i've been lighting a candle for you, right beside Marybe's .. even though it s officially been a week, we're going to keep it till her "party" in Ohio sunday, the 16th..

      Anyone who doesn't know how to post pics, pm me.. i've been collecting some cards, and pics, that i'll post, and you can write your rememberances with them.. just pm me..

       A lady in Photobucket gave me an awesome site, and taught me how to do stuff with frames, and such.. let me know what you'd like, or i will post examples here, on this site..

      so, sept 16th they'll be "fresh" and Tim and Daddy, and her local friends will be able to see how loved she was, if we can't physically be there, we'll be in spirit.. spread the word. i'm praying for a big turnout...........3jays

     Oh, chrissy, I love the pic for the banner, been meaning to ask you where is it in the world? ya never know with you!!!

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  • QCA
    QCA Member Posts: 1,539
    edited September 2012

    Mac, it's so good to see you!  Hope the new doc will be able to help, too.  Very interesting what others said about massages, and I wonder how many of us have been cautioned about them by our doctors.  I know I wasn't, but then I've only had one massage in my life and that was pre-bc.

    Yay for being home with no drains, Leah!  You're sounding great and I'm glad you're home.

    Ginger, so sorry about the migraine.  I've been lucky enough to never have one, but my DD suffers terribly with them about every 3 months or so.  She stopped taking birth control pills thinking they might be contributing and actually hasn't had one since she stopped, so who knows?  (I'm hoping being off birth control pills might have another little effect, but not so far!)

     Hey Wren, purple and 3jays!  Good to see all of you, and hey Alyson too.  3jays, i'll be PMing you re posting pictures.  Marybe tried to teach me and I've only succeeded a couple of times.  Think I'll try using Chrome instead of Firefox, or maybe windows explorer this time.  

    Hope everyone has a great weekend.

    Hugs to all.

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  • purple32
    purple32 Member Posts: 3,188
    edited September 2012

    SUCH good info...I had no idea. Thank you. I DO get massage. I *think* I have breast LE.  Of course that is not where she massages, but I did not know rubbing your neck etc .. could make it worse. About  a mo .  ago, I had deep tissue massage.

    No more relaxed muscles!

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  • macatacmv
    macatacmv Member Posts: 1,386
    edited September 2012

    Hello all,

     I am ok , just really jittery on all this prednisone and steriod inhalers, so I thought a relaxing massage would help. But I felt pretty rejected the other day when the therapist would not give me one. But I understand the risk and she was very sorry. I will see my PCP next week and maybe there is a better place for me to go, or she will have another suggestion.

    I am certainly learning as I go along this journey. I am so grateful that I have you wonderful ladies to help me navigate.

    Nancy 

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2012

    Hi girls!  Hope everyone is feeling okay.

    3jays I took that pic while visiting family in North Queensland, Australia.  The river is the Mulgrave River and the place is called Ross n Lock and is a great place to swim and picnic.  If one feels up to it, the river flows so well that riding down it on an inner tube is a whole lot of fun!

    Leah yay!!!!!  So glad to hear that you are home and on the mend.  So glad all has gone well for you.  Rest dear girl so you can heal all the quicker.

    Nancy, my DD2 is a trained masseuse and used to give me loads of massages but refuses to touch me now as she is afraid of hurting me.  Her hands are so strong that her gentle massage feels really heavy to me........even when she gives me a foot rub.....lol.  I do agree with the others though, you can get massages but you need to get them from practitioners that know what they are doing when it comes to BC and the problems that brings. Are the inhalers helping with your breathing?  I sure hope so as you have been struggling with it for so long now.

    Kathy I use Chrome and have no problems posting pics but I have heard that Firefox can be a hassle.  Give the Chrome a try and see what you think.

    Well I thought I had finally finished sorting and putting all my bits and pieces away......not so......lol.  While sorting out and cleaning up my back verandah I have come across another container full of my bits and pieces so my tidy room in not so tidy anymore......lol.....I will get it organized and then post a pic for you all to see......lol.

     Havea great weekend all!

    Love n hugs.   Chrissy 

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  • purple32
    purple32 Member Posts: 3,188
    edited September 2012

    Chrissy

    I just have to say that I am so glad your " old" (NOT!) avatar is back.  Love to see your smiling face and beautiful grandchild.  Hope you are doing well.

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2012

    Awe thanks Purple, you make me blush.......lol. I am doing great right now and I hope you are too.



    Love n hugs. Chrissy

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  • purple32
    purple32 Member Posts: 3,188
    edited September 2012
    THX Chrissy.  Actually, I am into a whole new chapter here ( breast LE) , but who knows what tomorrow will bring ?

    Thanks
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  • chabba
    chabba Member Posts: 5,065
    edited September 2012

    Chrissy I liked the picture your grandson did very much and really hope you will post more of his art for us to enjoy. I must admit  though, that I really do enjoy seeing your smiling face on these pages.  You never fail to brighten my day. Love ya

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2012

    Thanks Chabba. I have asked my grandson about some new art but other than what he needs for his year twelve certificates he hasn't done much just for the sake of doing it. I did see a partially completed water color he was doing for school and it is beautiful. It definitely is him but beautiful never the less. I have told him I want a photograph of it but I guess I'll have to do the prodding reminder on that one....... Lol.

    I have told him he has a large fan base on BCO.......his answer?.......really? I just laughed and told him yes, really.



    Love n hugs. Chrissy

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  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited September 2012

    I am on my way home from Ohio..at airport and finally have WIFI??YEA!:-)

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2012

    Enjoy the wifi while you wait! Have a good flight home and I'm sure you'll have some pics to share at a later date.



    Love n hugs. Chrissy

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  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited September 2012

    QCA, about your daughter with the migraines taking birth control pills. I was taken off of BCP due to migraine. BCP's are contraindicated in persons having migraine. It increases the chances of stroke enough that they have been contraindicated since the late 60's. Sometimes one doc doesn't know what the PCP knows and visa versa.   Perhaps this has changed but I would be surprised.   

    Yes, migraine sucks! I have opthomoplegic migraine and my aura includes my left eye pulling out to the left, losing a big spot of my left field of vision and if I do not get my ergot medicine I lose my ability to speak or understand what words I might want to say. It is a lot like a stroke, I am told. I had three this week and that really worries me. usually it would be every few months.

    Hi every body.  

    DGD was here today, she is 25 months old. She went from charming, empathetic, to screaming like a banshee because she couldn't have an entire half gallon of ice cream for herself.  I guess that is being two. 

    Love Ginger 

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  • QCA
    QCA Member Posts: 1,539
    edited September 2012

    Thanks for the info re BCP and migraines, Ginger.  I'll definitely speak to DD tomorrow and tell her what you said.  It appears to be exactly as you indicated in that the PCP and the OB/GYN aren't communicating with each other, since I know she's gone to PCP about the migraines.  So glad she's stopped the BCP on her own.

    I've been wrestling with photobucket for the past 2 hours and am giving up for tonight.  3jays has been so kind trying to help me but it appears that I'm hopeless! 

    Have a great Sunday, everyone, and hugs to all.

    Kathy

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  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited September 2012
    sent you a pm Kathy with some pics for tommorrow. your'e covered either way, now.....3jays
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  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited September 2012

    The memorial is lovely. Thank you 3Jays for all the work you have put into making this so nice. 

    Ginger 

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  • purple32
    purple32 Member Posts: 3,188
    edited September 2012

    "DGD was here today, she is 25 months old. She went from charming, empathetic, to screaming like a banshee because she couldn't have an entire half gallon of ice cream for herself.  I guess that is being two. "


    hahhahaha.  I love it, Ginger!  My DGD is 25 mos too!  So far, she is still a  little angel, but I have been waiting foir the other shoe to drop Undecided

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  • Alyson
    Alyson Member Posts: 4,308
    edited September 2012

    Morning all

    Love it Ginger, because my DGSis only 18 months and is a very determined young man to say the least. If you say no the lip drops and if you try to get him to do something he doesn't want to do we have full blown on the ground trantrums. It is very funny really. He is little so very easy to pick up and remove from the scene.

    Have check up with onc today. Thought by now that things would have improved - I stopped taking Femara in July but actually some of the pain is worse.  So will discuss this with him but it is probably just the RA from which I also suffer.

    Must go and get breakfast.

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  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited September 2012

    Alison, it took a few months for me to notice an improvement from Arimidex,pain.

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  • QCA
    QCA Member Posts: 1,539
    edited September 2012

    Those tantrums are really a sight to behold, aren't they?  DGS is 3 now and he can still be a champ at them, although I must admit that there are fewer of them now.  The strange thing is I honestly don't remember either of my children ever having a full-blown tantrum--which is probably a blessing!  The thing that really gets me is when their bodies suddenly become boneless, like jello, when you're trying to remove them from whatever they're obsessed with at the moment.

    Alyson, hoping for good news from your onc visit today.  Please let us know.

    3jays, adding my thanks for the wonderful job you did on the memorial.  You did Marybe proud and I love all the pics you posted.  Still trying with photobucket myself but no luck yet.

    See everybody later.  Hugs to all,  Kathy 

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  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited September 2012

    I wish my Son and DIL would start training my grandkids for no whines...they drive me bonkers

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  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited September 2012

    thanx gals, for the comments.. it actually was someone elses idea, and i just "did My thing" i still have so many pics, and qoutes.. i'm making a scrapbook for Tim, and Daddy to go thru when they're up to it...

      Kathy, I don't remember how i did it, in the beginning, but there's some add on you have to put in, to say "allow acess" im gonna research it for you.. in the meantime, a lot of the ladies use the "tree thing" i've never been able to use it.. try to talk to chrissy, she's the one who taught me how to do it, and many others.........

      about the tantrums, my oldest would throw himself on the floor in like target, some store.. i would say "I wonder who's little boy that is, making such a racket, and then start walking away.. worked everytime!!!He got up, mad i was leaving... now, they'd probably arrest you for leaving them!!hahaha3jays

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  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited September 2012
    chrissy, this rose is for you, alongwith my little friend.........
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  • QCA
    QCA Member Posts: 1,539
    edited September 2012
    Whoa!  This is Bud The Dog.  I did it, 3jays!
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  • QCA
    QCA Member Posts: 1,539
    edited September 2012

    I don't know quite how I did it, but it worked!

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  • chabba
    chabba Member Posts: 5,065
    edited September 2012

    So cute!

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