OMG They Found the Cure for Stupid

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited August 2013

    Shira - welcome to this crappy club - the people are great - the reason for being here is #$%^!!!

    There's always somebody who wants you to do it their way.  For me it was my daughter.  When I told her that i was continuing with my doctors and conventional medicine she apparently decided I was already dead, as she hasn't spoken to me since.  There's always something..  Just keep on keeping on - all the ladies here are really great support.

    Oh yeah - if you can get an oncotype test, that would be good, as it will give you a lot of information about what your next steps may need to be.  I managed to avoid both radiation and chemo.  With a lumpectomy, I don't think you can avoid radiation, but if you can manage to avoid the chemo....

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  • Shira
    Shira Member Posts: 64
    edited August 2013

    Thanks again Ducky!  I will look for those threads, they sound perfect!   

    And thanks proudtospin, I am swearing in my head anyway!  But don't worry, my journey is just beginning so I am sure I will swear in print soon!

    Hi Mary, my husband has been like this for at least 10 years, and he was able to get his sister on board with his thinking and she's even worse, so I'm glad husband bashing is ok, and good to know everyone has people in their lives like this! (and as a side note, I had pretty strong beliefs about alternative medicine, but when my brother was diagnosed with a rare cancer, I read many books, researched, even called Mexico, but I never told him I was doing that, and I never found answers I was confident enough to share with him). 

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  • Shira
    Shira Member Posts: 64
    edited August 2013

    Hi gardengumby, I am so sorry about your daughter, that must be so frustrating.  The docs said I won't need Chemo because of the grade and because it's estrogen + I believe (although I am guessing that could change if my lymph nodes are not clear), but they said I will need radiation and estrogen blocking medicine.  I asked about an Onco Test, and they said I won't need that, but so far I have only met with the surgeon and not the Oncologist so I will ask about the Onco Test again.

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited August 2013

    :)  If they already say you don't need chemo, that's great.  Have they told you how much the cancer is ER+?

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2013

    Tell your DH to ask Steve Jobs about the "natural" route not much research needed to do that.

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited August 2013

    Shira.....demand the oncotype......my Dx was just like yours...my surgeon did an oncotype.......better then wondering if no Chemo was the way to go......I came back an 8... Very low score..........ask for it, demand they do it.....I was 76 years old and they still did it........better to be safe then sorry

    ..

    Remember....it's your body.......don't get pushed around by anyone, not even your Doctors......make your demands..........speak up.....ask questions, and demand answers......and if you do not understand what they said......ask till you do........it is not an easy road, but you can make it better.....the more you know......the better you will be.......good luck....



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  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2013

    Hi Shira

    Guess u heard all about my potty mouth.

    Don't even get me started

    Best advice I can give you is dont mention the pink shit.OK?

    Veggy..it doesn't look like we are goin to see Mary,Mary...or are we?

    Ill be back

    Grannydukes

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited August 2013

    Shira......also forgot to mention.....in this nut house I am the oldest, smartest, prettiest, sexiest, funniest, one.......and also a member of the Mile High Club.......ask anyone on here .......they will agree... .RIGHT LADIES.........quiet GRANNY.........just agree with me....

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  • Shira
    Shira Member Posts: 64
    edited August 2013

    Hi gardengumby, if I am looking at the pathology report correctly, which I am not sure I am, then ER is 95% and PR is also 95%. 

    Spookiesmom, I told my husband about what happened to Steve Jobs, and he had some answer to explain it away.  It's things like what happened to Steve Jobs that make me go more towards the conventional, but my husband is well beyond unfortunately Frown.  Did I mention my husband smokes cigarettes (not in the house though).  Yes, mr. natural smokes!

    Ducky, I am confused about the Onco type test.  For all my conventional talk, I am not sure I would go ahead with chemo as a preventative measure, unless it changed my odds completely.  Is Onco Type only to determine if Chemo would help, or does it tell you the chances of the cancer coming back overall?  Also, if I am pre-menopausal, does that make a difference?  Last, I read that grade 1 means the cancer is least distinguishable from normall cells, so chemo may not be that effective since chemo targets cells that are moving fast.  This may not be the right thread for this, and I haven't researched much yet, but feel free to pm me.

    Grannydukes, omg you are too funny!  I am afraid to ask about the pink shit (there, I swore)?

    Ducky, just saw your last post, got it, lol!

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited August 2013

    Of COURSE you're right, Ducky!!!

    (sshhhhh, just agree with her - she'll be fine, as long as you agree with her....  )

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  • Wren44
    Wren44 Member Posts: 8,585
    edited August 2013

    Shira, Sometimes the onco test is a surprise. I've seen a couple of women whose results were unexpectedly high. Still, grade 1 is unlikely to benefit from chemo. Be sure they test the entire lump, it can vary within the tumor.

    I know what you mean about the set beliefs. My Mom liked to marinate cucumber slices in vinegar before serving them. My Dad swore they were poison, despite watching us eat them for years without so much as a tummy ache.

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited August 2013

    My onco score was a surprise - a good surprise, though, as my MO was expecting it to be higher.  Everything else about my pathology was very middle of the road, and she wasn't pushing either for or against chemo - said it was my decision to make.  We got the oncotest done and then there was no question.  Without the test I probably would have opted for chemo, as I was scared. 

    Shira, if you are pre-menopausal then there are no choices as to what anti-hormonals you'll be given.  It'll be tamoxifen.  Either that or you'll need to have on oopherectomy or something else that will trigger menopause.  Some people do well on tamoxifen - others, not so much.  My mom took it for 10 years with no issue.  I took for 6 months with godawful issues.  I don't think there's a way to know ahead of time.  But if you're cancer is 95% estrogen positive, then antihormonals will almost undoubtedly be strongly suggested by your MO.  Some people don't have problems with them.  I've been on letrozole for about 2 years now, and every day seems to be just a bit worse.  Cancer sucks.

    Wren, your Dad thought cucumbers were poison, or cucumbers sliced in vinegar were poison?  Was that just his way of saying he didn't like 'em?

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2013

    Heh Heh Wren, did your dad eat dill pickles?

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited August 2013

    Garden.....ditto on the tamoxifen for Shira....and your right....friend did Tamoxifen for 10 years...not one SE......arimadex now.......... zero SE's.........me Letrozole 2 years 3 months and the only SE I did not get was hot flashes........got, aches, joint pain, hair thinning, trigger fingers, swollen ankles, foot pain, ..........did I miss anything........so everyone is different.....



    Just read where if you have,or lack certain genetic makeup it can effect whether or not you get SE's from AI's............guess my genes suck......lol......they did some clinical trials at University of Pa, Abramson Cancer Center in Philly........you can Google it........

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  • Shira
    Shira Member Posts: 64
    edited August 2013

    I think the tamoxifin worries more than the rest of it, at least with where I am at now.  I am not the type to breeze through taking medications, and I already have joint pain Frown I'll have to switch over to those threads when I am done venting about my husband!

    Oh, and I probably will get a second opinion before I go further than the Lumpectomy (tomorrow!) and/or be more persistant about the Onco Type Score/test.  Thanks! Shira

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2013

    Oh ducky!

    Yes u r the funniest,prettiest and the most lovable but damn it to hell get off those friggin meds...at our age QOL is very I portent to us.

    As I said to you many times I want to live my life to the fullest

    Laugh,scream,dance and even run but after only one month of those friggin Al's I said he'll no...it's just not worth it..

    Come vist now that I live in shits creek.

    So grannydukes

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited August 2013

    Your right Gran.....so right........

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2013

    Just do it..throw that damn bottle away and say F it.

    I did it with the hormones and now I did it again with the cholesterol meds.

    They too almost killed me...

    Hey I'm at the point right now that #1 is QOL

    Damnit I could drop dead tomorrow from all the stress my kids hand over to me sooooo

    WTF I'm gonna live for the moment.

    Oh I forgot another thing I'm gonna cut out is the stress.

    Ya got a problem with what I do as a mother go see your loser father

    Wow I'm on a roll.

    See what you did Ducky.

    Xoxoxo grannydukes

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited August 2013

    LOL........can I say ....AMEN......love ya "firecracker".........lol

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2013

    Should I change my name from Grannydukes to firecracker?

    Kinda like it

    What do ya think?

    Or Grannydukes the firecracker?

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited August 2013

    I like Grannydukes the Firecracker - it suits.  :)

    Shira - I'll be thinking of you tomorrow!! 

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  • Wren44
    Wren44 Member Posts: 8,585
    edited August 2013

    My Dad thought only the cucumbers in vinegar were poison. Of course he ate pickles - but they're different, they come from a jar. As my young cousin said, I don't want milk from a cow, I want milk from a store.

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  • chabba
    chabba Member Posts: 5,065
    edited August 2013

    In both of the communities (Norwegion immigrants) where my parents grew up people believed cucumbers were poison and that vinigar would draw out and nutralize the poisons.  I never liked them that way, love them plain.

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  • marywh
    marywh Member Posts: 2,280
    edited August 2013

    K, I take it from the names you're calling it, you dont like your your new home?

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2013

    Too funny Wren!

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2013

    Mary,Mary I do like my new home

    But

    It is in shits creek

    What I mean by that is I'm used to big towns with lots of all kinds of people comin and goin.this is a small town that I just have to get used to

    When I moved from Brooklyn to NJ my friends said I was movin to fuckbuck Egypt.

    I'm a city person in my heart.

    And I really moved here to be near my son who still has to go for more surgery..and of course the GGrandkids.
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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2013

    Hi ladies.....so I finally made it to Ottawa. I was supposed to catch the 2:30 but when I got to the bus terminal they told me the bus was full!!!! I got the next one at 6:30 and it got me in to Ottawa at midnight!!!! The next morning I was up at 7 playi g with a two year old and a very energetic poodle....have mercy....way too old for this stuff....lol



    Tomorrow I'm meeting some gals from Ottawa and I will take pics.....I'll be the one with

    her eyes closed....ha ha ha .....the GTG should be fun..we're going to have lunch somewhere near where I'm staying.



    Try to behave all while I'm gone.....😜

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  • marywh
    marywh Member Posts: 2,280
    edited August 2013

    K, no card playing buddies either I bet..Veggy where are you? Scottiee YOU behave yourself and no jello shooters at lunch!

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2013

    Mary,Mary..no card games YET..I'm workin on it tho...the senior center has card games but I'm still workin on my apt...you can bet your life ill be playin cards here too.

    BTW my new name is firecracker....forget all the other ones..thank you ducky for givin it to me...I think it suits me just fine..

    Yeah where is veggy??????hope she is doin good.waiting to see her...

    Ill be back

    Firecracker

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited August 2013

    Your welcome "firecracker"......,yea it suits you.......when something pisses you off.....you explode............lol, lol

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