TRIPLE POSITIVE GROUP

moodyblues

Denni, I didn't have any nausea related to the surgery.  I did get car sick the day after my surgery when I took the two hour trek home.  I usually do well after surgery and anesthesia.  Hope that you feel well soon!

Melanie

Gigilala

KimCee: did you tell your oncologist that you take supplements???

I remember my oncologist told me no supplements during chemo

Dannajae

Does anyone else feel guilty about complaining? There are so many others that have it worse than I do.

KimCee

Gigilala, I did when the girl from his office called the other day...gee, ya think he would have told me not to take anything... Thank you, I sure hope that's what it is causing the elevation.

Danna, yes sometimes I do but other times I justify it. Bald and boobless just stinks...pity party here and there 😕

Binniebin

danajae, I don't feel guilty about complaining. Here I have a place to express how I feel, good and bad knowing that someone else has felt the same thing. While there certainly are others with more advanced disease or more troubling symptoms I don't feel that what I'm feeling is more trivial because it is big to me at the time. I need to be able to say what I hate about cancer, to get it off my chest (!) And then I can pick myself up and face the world in a better frame of mind or at least a damn good mask. I love seeing how we help each other out here too with support and also ideas to help symptoms. This is good for my soul.

Lita19901

Hap, while I heartily sympathize with the financial burden you and others incurred while being treated for any illness, the medical costs deduction was raised to fund ACA specifically, not to fund the government in general. ACA has helped many, many cancer patients to have any insurance at all.

To me, it’s flat out wrong that anyone should have to face financial loss because of any illness

Lita19901

Hap, I agree with you that funding should have come from another source. I was speaking only to clarify the use of the revenue.

The Senate bill retains the deduction but the House bill eliminates it completely. Definitely time to contact your representatives

aterry

Thank you,Lita19901, for the clarification. I don't know many details about the bill (either version) but a friend emailed me in panic today. That made me think I'd better start reading.

rljes

I don't feel bad complaining - I justify it by-  if we all 'complain' we can learn from each other.   When we feel bad, we can let it out - when we have something to celebrate that nobody else would "get" - we get it.  I want to hear it all - the good, the bad and the raw deal.  
  I'm complaining because my Mouth is full of sores - raw horrible sores and my MO finally called in the Magic Mouthwash and It won't be ready till noon tomorrow.. so I'm sucking on ice.  Whining ....because I don't have the throat lozenges to numb or the Mylanta or Liquid Benadryl to swish.  I only have the usual suspects: Biotine, Baking Soda, Salt concoction.  Night all

rljes

PS Hap B - what you said really is true '(About BC becoming a pink cupcake party)' when I told my brother I had cancer - and then said Breast Cancer, he said "Oh, that's nothing, you'll be ok" 

KimCee

Rljes....that just made me say Grrrrrrr. The pink cupcake party ticks me off

deni1661

I don't consider any of us as complainers, we are simply sharing what we're going through in a safe and supportive environment. Like Hapb, I was taught to suck it up buttercup but I think all cancer patients have earned the right to say anything they want. It is not healthy to keep things bottled up. I can't fathom not being able to express myself freely as I can with this group and other cancer groups I belong to. My friends and family simply cannot relate to what I'm going through so I don't say much any more. I think there needs to be a balance though so you don't get stuck on just the negative; we all have those periods of frustration and really crappy days. I believe in getting help if there are more crappy days than good.

Please don't ever feel like you're complaining, we're here to listen and are often saying, "yes, I feel the same". I am so grateful for the support and inspiration from each of you

I hate pink cupcakes, ribbons, etc. too. It really paints a very "warm and fuzzy" outlook of breast cancer when it is anything but.

rljes

Hi All - Day #10 / Chemo #1  
After getting the "Mary's Magic Mouthwash" that CVS compounded from MO rx - My mouth sores that felt like dozens of tiny razor cuts went to just 2 sores inside upper cheeks. Yeah!  Relief.  I had tried everything, and nothing was working.  Then, my scleroderma, specifically Calcinosis in my finger tips are in over drive.  
    Besides those 2 things : I'm OK. 

KimCee

I rinse with warm salt water too and it works. I never got mouth sores before and am not quite sure whether it is chemo or Invisalign. Whatever it is, warm salt water is da bomb.

PoseyGirl

Hi Girls,

My mouth gets sores in it, so back I will have to go to salt and baking soda. I'm not sure if it's the Letrazole or Zometa, but it's definitely there. I did have a prescription for Magic Mouthwash, but lost it!

Binniebin

rilles, does your scleroderma cause mouth sores, or make the chemo related sores worse. Glad to hear magic mouth wash works so well for you. hope you have enough of your magic potion to last. It must be powerful stuff

PoseyGirl

Hi Hapb, the first time I had Zometa, I felt really sick (flu like) for a day after. The secon infusion wasn't bad at all. Some people get lots of bone pain for a few days too (I didn't).

Meowmmy65

First chemo yesterday! Long - but mostly uneventful process. By 10 p.m., I looked sunburned on my face, neck, and chest... and my face is puffy. Morning - less red, but still puffy. Tired and a little headachey. So far, so good!

I think I'll take a nap now.

coachvicky

Meowmmy65,

I had a rash immediately after my first infusion. Called my Oncologist and got an Rx. Cleared up within hours.

Vicky

coachvicky

Happy Friday Everyone!

Well ... this getting back my strength and feeling better continues. If you don't know my last treatment was mid August.

I polished my copper bottom pans last week. First time since diagnosis in June 2016.

As I think about this getting better ... I somewhat miss those days of no energy and not caring how things looked! LOL.

Love to all of you.

Vicky

Meowmmy65

Thanks Vicky! Just noticed swelling where my neck and shoulder meets above the port, and the red flushing is stronger again, and my face/neck feels warm. Called the on-call number. Waiting for the onc to call me back. No fever, and probably nothing, but they stressed CALL, so I did!

BellasMomToo

Meow: Did you take dexamethasone? I took it the day before and the day after my infusion and was given IV dexamethasone during my infusion. I believe it's a steroid. I was warned that I may turn red like a lobster from the chest up. And I did turn red. It lasted a few days.

Meowmmy65

Yup. Took the steroids. Just had my last dose. Doc said probably a mild allergic reaction to herceptin. Took benadryl. Watching for other symptoms. This should resolve.

KimCee

Oh the lobster look...so fun. The worst part of the steroid is my man sized hunger and total lack of sleep for two days. It will end when Taxol ends...thank goodness.

Cowgirl13

Coach Vicky, your pots look fabulous! What did you use to clean them with?

Gigilala

I had a rush after my first infusion for 1 week

My doc told me it was perjecta

Thanks god I had it only after my first infusion

coachvicky

Cow Girl

Are used bartenders friend. My husband got it at Home Depot.

A friend told me about it and I had no idea it was that good. You can use it on the copper bottom and the stainless!

Best wishes when you feel so well to do this. Frankly, when my oncology team told me I would begin to feel better by December I didn't believe them. I have loved reconnecting with my home.

I hope these postings inspire others to know that life does get better. When I was in the middle of treatment I only wanted someone to tell me it would get better.

Love, Vicky

SpecialK

I definitely got the steroid flush - cheeks looked sunburned and sometimes my upper chest and neck. It went away on its own after 24-48 hours, but an allergic reaction can look similar, so it is good to let your onc know.

coach - I use Bartender's Friend on my stainless that is in my outdoor kitchen - it does the job! Are those Revere pots and pans? We spent 4 years in Rome, NY at Griffiss AFB - both of my kids were born there, and it was the home of Revere manufacturing.

Meowmmy65

I wasnt worried about the redness. The education session covered that. It was the pouch of swelling at the base of my neck on the port side that prompted my call. No pain or fever, but definitely fluid filled. That was weird. They really stressed calling them sooner rather than later, so I took them at their word! Benadryl has helped. Feeling lucky so far... Nothing I can't deal with. I know more side effects are coming, but I remain cautiously optimistic.

Awake at three am to pee. I need to drink all my water earlier in the day. Hopefully,. I can get back to sleep now!

Thanks all!

coachvicky

Yes, Special K, that is Revereware. Some were my Mother's and over 50 years old. Still on great shape.

Vicky