Calling all TNs

Options
19839849869889891198

Comments

  • jenjenl
    jenjenl Member Posts: 948
    edited January 2016

    Hell yeah Angie! Major high five and fist bump.

  • LillieRose
    LillieRose Member Posts: 112
    edited January 2016

    yay Julie!!!! I'm so happy for you! Getting that call after surgery is such a good a feeling! I remember walking outside with my daughter looking up at the sky and being so thankful 🙏 the chemo worked!

    Congrats!! I hope your healing well!

    Amy, I'm sorry you've had a rough time :( your almost done though! I hope the rest of chemo goes smooth!

  • Meadow
    Meadow Member Posts: 2,007
    edited January 2016

    Amy, so glad you are feeling better.

    Julie, celebrating with you!

  • greenae
    greenae Member Posts: 540
    edited January 2016

    julie

    Most Excellent News! Now have a speedy and uneventful recovery.

    Carolina, I am sorry you had such a rough time. I am glad to hear you are better!

    Hugs to All

    Arlene

    Trying to keep a calm attitude. My first mammo and US on right since dx is scheduled for Monday morning. Fingers are crossed.

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited January 2016

    I haven't caught up with everything yet. I've been crazy busy at the dobie rescue and when I get home. Anyway, three years ago today I was diagnosed. It doesn't seem that long ago.

    Ally, so glad to hear your Onc wasn't too concerned with the CT. I'm glad you're doing better too!

    Amy, wow, you've had a hard time but it's good to hear you're much better too! I can sympathize with the C Diff. Ugh. Nasty stuff!

    Julie, congrats on PCR!! Happy dancing for you lady!!

    Arlene we will be with you on Monday! I'll say a prayer and will be waiting for your update!

    To those I missed, you're all in my prayers! Have a good weekend ladies and our men here too!! XOXOXO!!

  • greenae
    greenae Member Posts: 540
    edited January 2016

    hi Luv

    THREE YEARS!!! Woohooo! So glad to hear you are luvving your dobies

    High Five and Hugs!!!

    Arlene

  • Meadow
    Meadow Member Posts: 2,007
    edited January 2016

    Yes thinking of you Arlene

  • greenae
    greenae Member Posts: 540
    edited January 2016

    Thank you, Meadow!

    I am going to try to stay positive.

    ;

  • SA8PG
    SA8PG Member Posts: 371
    edited January 2016

    Arlene. Awesome!!!! 3 years. :-))). Congratulations to you. So so happy & thankful.

    Hugs

    G

  • Shopgal2
    Shopgal2 Member Posts: 649
    edited January 2016

    luvmydobies 3 years is really great, as a newbie I love hearing about thriving stories. I am having a down day today. Just feeling emotional about starting rads this past week when I am barely adjusting to life post chemo. It's just a lot right now. I know it gets better but I just gotta be patient.

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited January 2016

    Shopgal, I'm so sorry you're having a down day. We all have those! I still have them.You'll adjust. It's hard in the beginning after treatment, or it was for me anyway, BUT it will get better. Just hang in there and we are here for you too! Congrats on finishing chemo! Radiation will be over before you know it! (((((HUGS)))))

  • Meadow
    Meadow Member Posts: 2,007
    edited January 2016

    hugs to you Shopgal

  • Ruru99
    Ruru99 Member Posts: 7
    edited January 2016

    I have just revisited BC.org after a long hiatus. I'm being worked up for recurrence but I don't think it is. I think I have something new, not BC related.

    I found out this past week that I was triple-negative. When I had my pathology done in 1999, they didn't test for HER2, but one of my physicians post-treatment tested and I was negative.

    While it isn't as fresh for me as it is for you, I hope I can help you to know that what you guys are experiencing is normal. Chemo is challenging, to say the least. I found radiation a nuisance, mostly because it was a daily event, and since I had had the mastectomy, I felt strongly that the cancer was gone and the chemo had taken care of any errant cells. I was feeling so much stronger and I was getting my energy back, along with eyebrows and eyelashes. :-)

    I hope that knowing that I have made it 16 years is helpful for you. I was monitored very closely for 4 years and that was tough going, as you know. Every doctor's appointment, ache and pain scared me. Until I felt that I had had enough of worrying all the time and gave myself rules: Does it wake me up? Is it getting worse? Has it lasted 2 weeks? Surprising how many 'serious' symptoms went away...

    For those who are going through treatment, hang in there. Eventually it will be over and you will be able to get on with life.

  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited January 2016

    Arlene, - thinking of you , - and knowing you will post a good update!

    Shopgal, - As Luv wrote, hang in there, and rads will be over soon! It is annoying to have to go every day, but after the first on or two, it is a quick visit, and so much easier than chemo!

    Luv, - 3 years! YAYYY! Here's to the next 3 DECADES, - and more!!

    Ru, - wishing you well!

    Meadow, Ally, Al, and all of you here, - you are in my thoughts and BE WELL wishes are always being sent to you!

    Hugs from NYC (where we have our first snow on the ground!

  • Lou53
    Lou53 Member Posts: 81
    edited January 2016

    Ruru99, thank you so much for your post. I have really been struggling lately and needed to hear this! Being triple negative is so frightening and I find myself wondering how long I am going to make it. It's so hard to stay positive when fear grips you and the side effects of chemo knock you down. I have a lot of work to do with changing my attitude.

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited January 2016

    Arlene, thinking of you this morning! Let us know how it goes today.

    Ruru99, thanks for posting! 16 years is awesome! Keep us posted and I'll pray everything is ok! HUGS!!!

    Lou53. Just hang in. It WILL get better! XOXO

  • Shopgal2
    Shopgal2 Member Posts: 649
    edited January 2016

    thanks ladies. I really did have a really bad day yesterday and reading your posts this morning helped a lot. I found out earlier this month that the company I worked for 18 years filled my position. My std and Fmla ended in November and I thought it ended in December. I only had 10 weeks Fmla because I had forgotten I used intermittent earlier last year. I was on long term leave and asked my ro last week if I could go back to work. She wrote a release note and I am now waiting to hear back from my employer if there is a lesser level position I could possibly come back to, or worse if I am terminated. It just sucks because all of this crap coincided with my sim, port films, and actual start date of rads last week. A lot of stress that I just don't need. I need health carebenefits and income to pay for my cancer treatment and don't know if I can afford a big pay cut from a lesser position. It's just heartbreaking that a company I worked 18 years for can be this way.

  • greenae
    greenae Member Posts: 540
    edited January 2016

    Thank you, my friends,

    Just got out of right mammo and US. They had to repeat mammo and do spot compression for a new spot. But US was good! Spot must be from reduction surgery. I am Good to go! One year down, two to go. Whew! Thank you for your prayers!

    Hugs!

    Arlene

    PS shopgal, i hope your employers Wake Up and give you your job backYou sure don't need this now.


  • CarolinaAmy
    CarolinaAmy Member Posts: 281
    edited January 2016

    greenae, I'm so happy to hear the all-clear!

    Ruru99, thank you SO much for coming in and giving us the long-term perspective. It's so good to hear of long-term survivors.

    Shopgal, I can't believe your company is treating you this way. I do realize they have a business to run, but 18 years deserves a good level of loyalty. And I thought the whole point of the ACA was to prevent stuff like this. :(

    Heading to Taxol #9 tomorrow, and booking our very first cruise for the time in between ending chemo and having surgery.  LOL

  • Shopgal2
    Shopgal2 Member Posts: 649
    edited January 2016

    thanks Arlene and Amy. Arlene glad your mamo & us were finally clear.

  • SA8PG
    SA8PG Member Posts: 371
    edited January 2016

    Shopgal

    Man I am sorry. Loyalty is so hard to find anymore with Employers. I will be praying for you & that this situation has a positive outcome especially with pay & health benefits.

    ((((((((((Hugs)))))))))

    G


  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited January 2016

    Great news, Arlene!!

    Shopgal, - good luck with job situation!!

  • Mamiya
    Mamiya Member Posts: 432
    edited January 2016

    woo hoo, I got accepted into a phase 2 clinical trial for durvalumab and tremelimumab (immunotherapy)! This is a trial for HER2- breast cancer and since chemo doesn't seem to work for me I am super excited to have this as a possibility, hoping some good results come along!

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited January 2016

    WooHooArlene!!!

    Shopgal, I'm so sorry to hear about your job situation! That's ridiculous and really ticks me off!! Praying for you dear!

    Notdoneyet, so happy you got into this trial! Keep us posted! Congrats!

  • Meadow
    Meadow Member Posts: 2,007
    edited January 2016

    Ruru, thank you so much for your inspiring post.

    Arlene, doing the happy dancefor you!

    Shopgal, just so frustrated for you. Hoping the employer works something out for you SOON.

    Another, Snow! I saw the Professional Bull Riders (PBR) were in NYC this weekend, we follow them on tour, participate in the events by picking a "fantasy" team and attend an event in Missouri when the tour stops here....yes, we are Bullriding nerds. Did you see any cowboys in NYC this weekend?

  • Shopgal2
    Shopgal2 Member Posts: 649
    edited January 2016

    thanks for all the prayers. I hear tomorrow afternoon if if still have a job or if I get demoted.

  • Lou53
    Lou53 Member Posts: 81
    edited January 2016

    Notdoneyet, congratulations on the trial! I have been reading a lot about immunotherapy and it is very exciting. Praying that all goes well. :

  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited January 2016

    Meadow! Next time let me know if you are in the city and we can try to meet for coffee!

    Didnt see the cowboys, but my husband did mention something about it!

    Notdoneyet, - great news re the trial!

  • greenae
    greenae Member Posts: 540
    edited January 2016

    Thank you, my friends!!!

    Notdone- good news about the trial. I will be praying those drugs seek and destroy!

    Meadow- so funny you mention the Bullriders. I overheard a woman at the Imaging Center saying she had a great time in the city watching them with her kids! She had never heard of professional bullriders--me, either! :)

    Ru ru, thank you for your post! Am in your pocket to clear up your health issues, many more years free from TN!

    Shopgal, praying your employers are smart---otherwise maybe a lawyer coukd help?

    We had our first snow yesterday and looking forward to more friday night. Stay warm!

    Arlene

  • Meadow
    Meadow Member Posts: 2,007
    edited January 2016

    Another, I have not been to NYC but I would love to, and if I get there, yes we are having coffee, and a slice of pizza. Arlene, you join us!

Categories