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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited January 2016

    OMG SA8PG I agree wholeheartedly with Meadow you are beautiful and your wee babe is too. I wish my hair looked like that. Whereas everybody seems to have come back in curly my hair was curly before and now is straight as. I really hate it.

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited January 2016

    Hello Ladies. Been awhile since I have posted. So sad to see so many new gals on this thread. Sending all of you positive thoughts and prayers.

    I loved all the recent jokes....Made me laugh out loud!

    Life for me is good. My son was home for the holidays. He has re-enlisted for another 4 years of military service. And will be stationed in the Northwest. A big change from Florida for sure.

    It has been over 6 years since I finished treatment and I just had another birthday. Things do get better the further out you get from dx. Hang in there and don't give up hope. Sending everyone a hug

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    The northwest is awesome, he will love it here.

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  • Teka
    Teka Member Posts: 10,052
    edited August 2016

    NavyMom, Hi!

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  • Lou53
    Lou53 Member Posts: 81
    edited January 2016

    SA8PG, thank you for sharing the beautiful photos. They made me cry. To all of you, thank you for your encouragement and kindness. One day at a time

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  • slv58
    slv58 Member Posts: 1,216
    edited January 2016

    SA8PG, you are so beautiful!! Your life force shines strong and your baby is so precious, what great pics and a wonderful way to show the new ladies that in time, we do return to normal (mostly!)

    NavyMom, so nice to hear from you! Happy belated birthday and thanks for sharing your 6 years! Yahoo!!!!

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  • jenjenl
    jenjenl Member Posts: 948
    edited January 2016

    an awesome update NavyMom. Miss you.

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  • SA8PG
    SA8PG Member Posts: 371
    edited January 2016

    Navymom. 6 years!!!! Wonderful and happy belated birthday. So so happy to hear this great news. Please thank your son for his continued service to our country. Xoxo

    Thank you all so much for your kind words. Cocker I get the hair thing. Mine was super straight before bc and now it's curly. Go figure. Lol. I will be 5 weeks out from the Diep Wednesday. I am up moving about again which was my biggest concern since I am home with all my crew. I see the PS Thursday so will see what he thinks for stage 2. Honestly, I am hoping for a long break from surgeries. I don't think there is a time frame to do stage 2 but maybe I am wrong?

    I am very thankful to be where I am, I honestly didn't think I would I get this far in the beginning. Everything goes so fast and you have no time to think. The Dr's tell you your cancer is aggressive and we need to treat it as such. It's like a hamster wheel and your left wondering will you ever get off?!?! As we go along we realize that yes, we do get off & sometimes sadly we lose dear sisters along the way. :(((

    My heart goes out to all the newly diagnosed and I know the others on here feel the same. Remember that there is great wisdom on this thread. I still ask questions and get feedback. We need each other to help lift us up when we feel we can't take another step & to laugh & celebrate the milestones and many blessings along the way. :-)

    Love you all.

    G

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  • Luah
    Luah Member Posts: 1,541
    edited January 2016

    navymom: Congrats on your birthday and 6 years out! Good to know you're doing well.

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    I thought your hair grew in differently, but eventually went back to what it was pre-chemo. No?

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  • jenjenl
    jenjenl Member Posts: 948
    edited January 2016

    My hair was the exact same after chemo - i was hoping for curls but it is just the same straight brown hair.

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited January 2016

    Hi NavyMom! So good to read your update!!


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  • simplelife4real
    simplelife4real Member Posts: 563
    edited January 2016

    Hi All,

    It's been a while since I posted. It's great to hear from people like Navy Mom and Debra....I miss you both, but am delighted that you are doing great.

    Kelly, I had the same diagnosis and treatment as you will be having. I didn't get a pCR, but I'm doing fine....Feb. 1 will be 2.5 years out for me. Wishing you the best. The beginning was terrifying for me, but it does get better. You can do this!


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  • ALHusband
    ALHusband Member Posts: 344
    edited January 2016

    LoveMyVizsla my wife's came in extremely curly, which it wasn't before chemo. Now, a couple of years later, it's exactly the same as it was.

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  • LifeAloft
    LifeAloft Member Posts: 150
    edited January 2016

    Thank you SimpleLife4real! It's so good to hear positive stories! I already feel a little better now that things are falling into place. 

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  • Allydp
    Allydp Member Posts: 520
    edited January 2016

    Cocker - thanks for the laughs! We can always count on you to keep our spirits up and support us no matter what!

    G - beautiful...inside and out!

    Navymom - huge congrats to you on 6 years!!! Thanks so much for checking in and letting us know how you're doing!

    Kelly - welcome from another fellow Michigander.

    Welcome to the other newcomers as well. Very sorry you're joining us, but this is a wonderful group.

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  • ALHusband
    ALHusband Member Posts: 344
    edited January 2016

    image

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited January 2016

    Good one AL. Nothing like a good laugh to set up your day.

    Ally has there been any improvement in your pain since taking the Omeprazole. Hope it worked for you.

    NavyMom great to hear from you again. So sorry that young man of yours is being deployed again but is this a better area than he has been going to. Six years, well that will give us all a lot of hope. Went to the Navy Band Concert again this year and again thought of you and your boy. It's such a great evening with the music they play and there is always a tear in my eyes when they play music from America. So glad you are doing well. Whatever you have been doing, keep on doing it, it's working. Love you Hon. xxooxx

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited January 2016

    Thanks for all the nice comments, ladies. This TN thread and my August 2009 chemo starter thread were absolute life savers. especially while going through treatment and then all the issues afterwards. We are so very lucky to have each other. I know I had many sleepless nights and could always rely on the "boards" to get me through and keep me company while I waited for the sun to come up.

    DH and i are on our winter get away now to the warmer climates of Florida. Its a long drive from home but worth it to feel the sun on my face and the sand on my toes. Love and peace to all of you.


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  • Ag23
    Ag23 Member Posts: 37
    edited January 2016

    My LDH level is 567 the normal range is 100-225). I'm currently undergoing chemo (had 4 rounds of AC, now on 2nd round of Taxol). Did any of you have such highly elevated LDH levels during chemo? I've read that this could be good (chemo is killing off cells that my liver is processing) or bad (cancer has spread). Have a call out to my doctor, but I have a feeling I won't get a call back for quite some time. Thank you!

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  • ALHusband
    ALHusband Member Posts: 344
    edited January 2016

    Ag23 I cut and pasted the following....

    "A lactate dehydrogenase (LD or LDH) test is a non-specific test that may be used in the evaluation of a number of diseases and conditions. LD is an enzyme that is found in almost all of the body's cells (as well as in bacteria) and is released from cells into the fluid portion of blood (serum or plasma) when cells are damaged or destroyed."

    Unless your MO tells you different...let's think positive and assume it's from cancer cells being destroyed!!!

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  • Allydp
    Allydp Member Posts: 520
    edited January 2016

    Cocker - yes! I've been taking the Omeprazole every day at 4:00 pm and it's made a huge difference. I've also stopped any and all NSAIDS I was taking. I'm very happy to say I haven't had any chest pain the last few days. I even forgot the Omeprazole yesterday without incident. I'm going to continue it for another week or so and try weaning off. Hopefully my esophegus and acid will have calmed down by then. Thanks so much for checking in on me and for suggesting I take it later in the day! Never did hear back from my onc about the nodule. I'll ask her at my next follow up, but I figure no news is good news. How are you guys doing over there? How's your Old Feller feeling? :)

    Age23 - so sorry you're dealing with the scare of elevated levels. I had low blood counts and elevated liver enzymes towards the end. Everything went back to normal within a few months post final chemo. Wishing you all the best and please keep us posted.

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited January 2016

    Ag23 like Ally I also had elevated levels during chemo. I was told it will take a bit of time after for the levels to go down.

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  • Meadow
    Meadow Member Posts: 2,007
    edited January 2016

    Ag, I like Al's post, very good information.

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  • CarolinaAmy
    CarolinaAmy Member Posts: 281
    edited January 2016

    Hi everyone,

    It's been so long since I have posted, but I've finally caught up with the pages and am so glad to see sisters hitting new milestones of NED!

    After my third AC treatment in October, I was diagnosed with a DVT in my internal jugular and then a raging ear infection right above it hospitalized me for a week. I finally got back on track only to wind up being admitted again the night of my daughter's birthday... for two weeks. UGH. Other than C diff. and a bladder infection that was quickly taken care of, they couldn't determine the cause of my ongoing fevers. They did every test on me imaginable, pulled out the port (which was fine), performed a bronchoscopy, and destroyed my veins trying to get bloodwork multiple times a day. It was pretty horrific. :(  I was so weak and ill by the time I came home that I couldn't take a shower without losing consciousness and needing to lie on the floor of the shower for several minutes before continuing. During that time I fell WAY behind on the handful of threads I keep up with here, and it felt too overwhelming to try to catch up.  :(

    But things are more stable now. I'm done with Taxol #8, so I have only four more to go! I'm in the final stages of deciding between LX and BMX (probably doing BMX) and if so, which reconstruction. I just learned that I *am* a candidate for DIEP, and after reading about various complications with implants, I think I may go that route. My body reacted so badly to the port that I have some concerns about how it would accept implants.

    Ally, I also wanted to say that during my hospitalization in November, a lung CT showed multiple 2mm 'foci' nodules. It also showed a 2cm x 3cm nodule in an area they could not biopsy without a terribly invasive procedure. None of this was on my staging CT back in August. I had to wait 30 days to have another one run, and I'll admit that was really not fun. But I learned on Christmas Eve that the little areas were gone and the large nodule had reduced in size by about half. It seems it was some kind of inflammatory process that was resolving on its own.

    G, I'm sorry I missed the pictures; I would have loved to have seen them!

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  • JulieAggie03
    JulieAggie03 Member Posts: 71
    edited January 2016

    Sorry I've been MIA for a few weeks, after the holidays I had to bust a move at work to get ready for my surgery I had this past Tuesday. I am home from the hospital, only had to stay 1 night. The pain has been manageable with the hydrocodone and Valium they gave me. I've even been able to take just regular Tylenol a few times today instead of the hard stuff. The drains have been easy just annoying, can't wait to get rid of them!

    Got my pathology report call today and I got a PCR! No residual cancer anywhere and the 3 nodes they pulled during the SNB were clear! Maybe I can avoid radiation now, I have a follow up with my MO in a few weeks. So happy right now neo-adjuvant chemo worked for me!

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  • CarolinaAmy
    CarolinaAmy Member Posts: 281
    edited January 2016

    Julie! That's the best news of the day!!!!!!--😄

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited January 2016

    Julie congrats on pcr. Amy good to hear from you here and on the sept chemo board.

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  • cassylou
    cassylou Member Posts: 52
    edited January 2016

    fantastic news Julie Aggie. So happy for you and your family X

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  • Angtee15
    Angtee15 Member Posts: 209
    edited January 2016

    Julie! I am so happy for you having the PCR to chemo. And the fact you are managing so well post bmx. Made my day!

    High five sister!!!

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