Calling all TNs

Luvmydobies

My doctor called me and said my ultrasound was completely normal which is good news! But we still don't know what's going on. So I guess I'll be trying to get in with my GI doc this week. Don't know if I'll be able to because we had bad weather Thursday and Friday so I'm sure their appointments will be backed up! If I can't get in this week I'll see if my PCP can refer me to another one stat. We are supposed to fly to Florida next Saturday and won't be back until the 12th. Ugh!

Arlene, I sure hope you're recovering well. Check in when you can!

slv58

Ally great news! Sorry you have to wait again, I know how hard that is but celebrate your good news!

Luv, that's great news also! A clear scan- love those words. Hope they can get you in before your trip.

Arlene still thinking of you, let us know when you feel up to it, hope your resting comfortably.

It's a beautiful sunny day here today. Took a nice walk with my daughter and followed some deer tracks into the woods, but didn't see any. Came home with cold wet feet but it was so worth it!

eileenpg

LUV= Glad that was all good.

Lisaj514

Slv and all others, it's amazing how we appreciate the little things now, right?

Also waiting for Arlene to check in

Good news luv

Lisaj514

Slv and all others, it's amazing how we appreciate the little things now, right?

Also waiting for Arlene to check in

Good news luv

slv58

Lisa this is so true. I'm forever grateful that my daughter had selflessly decided to stay with me for surgery. She is moving to Vancouver after so these special times are even more important. I'm oscillating between crying and being myself. This is so hard on my hubby and daughter but I've had so many setbacks with this. I still can't believe it's back, I was sure I had it beat

anotherNYCGirl

Luv! What wonderful news! Hope you feel better and enjoy FL! That weather will be such a nice change!!

(I am just wondering, - could your pain be something as simple as lactose intolerance?? A few years ago I complained to my gyn about pain. His suggestion was to go 3 days without any milk or dairy products, - and he was right! Lactose intolerance can appear even if never having a problem with it before. Just a thought!)

Cocker_Spaniel

Sly58 its heart breaking to read this. I'm also glad you have the support of your hubby and your daughter.  Hopefully this time it will all be gone after your surgery. I must admit I have never heard of anyone having rads for the second time but maybe there is some new evidence out there.  Sending prayers and hugs.

LUV good news on the scan hopefully they are a little bit nearer to finding out what the problem is.  Sending hugs to your mum and hoping she gets good news from all of her tests. 

Ally some good news is better than none so you are half way there.   Hopefully the deeper spot will turn out to be benign.  In your pocket always.        

Tobycc

SO happy Luv! Where are you flying to in Florida?

Luvmydobies

Thanks ladies! I am glad the ultrasound was negative because even though we don't know what's causing the pain at least my female parts are clear because it wasn't too long ago I was worried about those due to off and on bleeding/chemopause. So I guess that issue is/was from chemo. Still sucks not knowing if my periods will return but oh well! No Cancer there is a relief! Hopefully my GI doc can figure it out. AnotherNYCgirl I don't think it's lactose intolerance but will definetly ask my GI doc a bunch of questions. I'm making a list. It hasn't hurt too much the past few day's. Thanks!

If we do go to Florida for sure it will be to Orlando. Our nephew's high school basketball team is in the playoffs and if they keep winning we won't go because they will be playing still, plus we were mainly going to spend Spring break with them. But that will be ok if we can't because we want our nephew to do well with his team.

sylviaexmouthuk

Hello Shari,

I am just popping in to say I am sorry you are having such a bad time and wanted to wish all the best for your surgery and to let you know I am thinking of you.

Best wishes from the UK.

Sylvia

slv58

Hi Sylvia, thank you, I think of you as well.

Just got more info from my 'electronic chart'. It is obvious to me that they have purposely released all my test results gradually- probably to allow me emotional time between each kick in the heart.

Apparently there is a tiny spot on my liver "too small to characterize" that should be assessed with focused ultrasound as none appeared in Feb. 2013.

A 'bulky uterus' was noted with a complex cyst on both right and left ovaries. 'Asessment of pelvis organs by ultrasound is recommended'

Ok, so the only test that I havnt received full info on is pathology of core biopsy. I know I was told it was 'about' 2.1 cm and grade 3. So because it has 'likely invaded skin and muscle' I realize I am now stage 3 :-(

I honestly don't know how much more I can take. Every time I get news, it's bad. I don't know how to hold onto hope and stay positive. I'm feeling like I have to come to terms with my mortality. I'm sorry I'm being a downer but it's so hard for my hubby to hear me express these fears and I have to express them because holding it in is tearing me apart.

Ok, so I'll try not and worry about the whole picture and concentrate on my appointments tomorrow. I will try and make the best decision for me regarding reconstruction. I will ask questions and try and feel at peace.

Thank you everyone for giving me a place to express my fears

Shari

natL12

Shari - I've been away from these postings for quite awhile, so have been reading about all the issues our group members have been having. I agree with you that this forum is important as a place to express our worries without upsetting our immediate families (especially our spouses).

My thought and good wishes are with you as you face whatever comes your way. I'm sorry to read that you have so many reports that are bad news. 

I HATED having people tell me to "keep a positive attitude". The only thing I was positive about was that I positively hate cancer. Don't we all?  Nat

eileenpg

Shari= I hope you get some good news tomorrow. I will keep you in my thoughts and prayers.

Luvmydobies

Oh Shari! I'm so very sorry and bummed to read what you've posted this morning! It's near impossible to stay positive with this disease. I always struggle with that and the bad thoughts are with me again this morning. I had the abdominal pain again last night. I am thinking this can't be good because it hurts on the left side but is more noticeable when I lay on my right. Again, I am really thankful my ultrasound was clear, but I see more tests in my near future to figure out the problem, and it will be stressful. Listen, I know you have your own fish to fry. Just saying I know how hard it is to stay positive. I'm thinking of you and praying. In your pocket tomorrow, holding your hand! XOXOXO!

Nat, sometimes I think other's including our famillies want us to stay positive because it makes them feel better. I can't tell my husband all my thoughts at times, because he's like you cant always think everything is Cancer. He's right but it's obvious after reading things here and other websites that everything isn't always textbook. So to me, odd aches and pains don't always seem "normal"!

slv58

Nat, Eileen, Luv, thank you. Whenever I feel I need 'human contact=hugs" it's when I'm overwhelmed, which has been pretty much ongoing this week. I can see my hubby is also overwhelmed as his answer to everything is 'you have to stay positive' 'you can beat this' and I truly appreciate him trying and I'm not really sure if there would be anything he could say to make me feel better, but just verbalizing my fears seems to help a bit. I already know what he is going to say-he's at a loss also. Coming here and being able to get it all out helps, so thank you. It's so much easier for me when I know everyone here understands and knows how being TN is different.

Luv, I'm so sorry you are still feeling the unexplained pain, I'm proud of you for being such a good advocate for your health and hope they can schedule you for necessary tests quickly so that your waiting is minimal. As AnotherNYCG suggested, my daughter became lactose intolerant a few years ago and says she gets bloating and pain. Do you think you could try excluding dairy and see if that makes a difference while your waiting? Could it possibly be an ulcer from all the anxiety?

It's very frustrating trying not to let every ache and pain become more. The funny thing with me is that I truly was getting on with my life. I really thought cancer was behind me and even though I felt pain and a slight harder spot- I was pretty sure it was scar tissue. I guess TN is much more elusive.

Ok, I'm going to have a shower, put on some makeup, maybe go for my first snowmobile ride (been preoccupied since the lake froze) or a walk and breath deep with a smile. Well at least that's my plan ;-)

Love to all, Shari

sylviaexmouthuk

Hello Shari,

I have been reading back over your posts to try to put everything together in my mind as this thread is very active and it is hard to take everything in. I have always read this thread from its inception but I do not recognise many of the names here now, but my heart goes out to everyone here and I do hope things work out for all of you.

From my own experience I found the best way to get through this cancer journey is to deal with one problem at a time. Put everything else into a drawer and try to forget about it until you have to deal with it.

I am so sorry you are having to deal with this again but you will get through it. I do hope everything will go well tomorrow with your appointment. Are you having more surgery to deal with this other tumour or is it arrangements for future reconstruction?

I know we are all different but I had a large tumour 6cms + and I was told the prognosis was poor. I delayed my treatment and the cancer came through the skin of my right breast, but I had chemotherapy, then a mastectomy of the right breast, seven lymph nodes removed, only one affected, and then radiotherapy. This was in June 2005 and it will soon be ten years since all that happened. I am telling you all this to encourage and motivate you.

Wishing you all the very best and the same to everyone on TNS. Let me know how you get on.

I have just received an e-mail from a friend in Ottawa and she said that they have had the coldest winter on record.

Sylvia xxxx

Teka

So much going on!

*Ladies*

anotherNYCGirl

Sylvia, - your encouraging words to Shari are so helpful for all of us. Thank you!

Shari, - I agree that we may hesitate to express our feelings to our husbands and families, - we dont want to make them upset, and also, they dont see things the way we see them, That is why this board is so wonderful. Without having met any of you in person, I feel that we are good friends, even a family.

Dont consider a 'cancer stage' as a prediction of the future, - I know several people living a long life with even a stage 4 diagnosis. My own Mom had cancer starting when she was 12 years old, another cancer in her 40s, and later had breast cancer at 68, yet lived to a month short of her 99th birthday.

Dont deny your feelings, you have every right to be angry, disappointed, etc. but then gather up your warrior mode!

Hugs and BE WELL EVERYONE!!

slv58

A huge thank- you everyone, you are all so supportive and I feel your love giving me strength! Today was a good day, although my DH 's snowmobile broke down so we didn't go far, but I rode mine and got some fresh air!

eileenpg

Shari= You look beautiful and very healthy. I am happy to be with you through this journey. Hey!!!! WE CAN DO IT!!!!

InspiredbyDolce

Shari, you do look amazing!

I wanted to share this link with everyone. What originally looked like it was an article on exercise and how it may help with cancer patients, it turned into an article that had a lot of other immune boosting tips in it, so thought it was valuable to share here: http://fitness.mercola.com/sites/fitness/archive/2...

Continued prayers to all.

slv58

eileenpg, thanks! Your absolutely right WE CAN DO IT!

Teka, thank you, I think a group hug is in order!

InspiredbyDolce

Electric blankets - we have a lot of cold weather folks out there .... that article I posted has a small note about electric blankets, something I had never considered about electric blankets before.

Luvmydobies

Shari, so glad you had fun today and got some fresh air!! LOVE the picture! I'm grateful for everyone on here too. It's a great feeling knowing we are all here for each other!

Oh and thanks for the article Inspired!

Spica16

Msmath ~ Hello from a fellow MSer!

I am now 3 years out from BC treatment, so I can tell you the before, during and after of chemo, and how it affected my MS. I also had to stop my MS therapy, but did not have to stop my other MS meds, such as Gabapentin. Just make sure that you let your MO know all of the medications and supplements that you are taking. Also, make sure that your MO and Neurologist are in contact with each other, to coordinate your care, if needed. BC treatment takes precedence over MS therapy, because BC is a real Diva who knows no patience!

You CAN handle more than one illness at one time. In fact, I think we have an advantage over the other gals, in that we have already been through many of the things that they will experience for the first time. In my case, I had already had infusions, injections, multiple medications, and had experience with neuropathy, dizziness, weakness, and fatigue. Baldness was a totally new experience, however! Most importantly, I knew all about "good days-bad days" with MS, so when chemo knocked me down, I hung on until the good days cycled back.

The tricky part of MS/BC is after you are finished with BC treatment...MS is a Diva who will only step aside for so long, and then she reclaims her spotlight!

Since our journey is rather specific, let's take the conversation to PM, if you are interested.

Been There - Done That ~ Shar

Tobycc

Shari, you look FABULOUS! You are covered in love, prayer, and gentle hugs!

Kath

Spica16

Shari ~ Your clouds are dark and snowy right now, with all the tests and reports...but once your treatment plan is in place, those clouds of yours will turn silver again. Looking at that photo ...YOU are the sunshine that lights up the sky and makes the snow sparkle! You are strong - You are an inspiration!!!

~ Shar

Meadow

Shari I love your picture and how much fun to play big in the snow!

Nat, Im afraid I am guilty of being one of those "think positively" people.I know it has helped save my life so I cannot help but encourage others to do so. But I do try to be sensitive to others when I know they hate hearing it....sorry if I ever offended you! I just cannot help myself!

Cocker_Spaniel

Shari you look beautiful.  I have no doubt you can beat anything.  Just one step at a time.