Calling all TNs

Options
1…897898900902903…1198

Comments

  • Tobycc
    Tobycc Member Posts: 789
    edited February 2015

    PRAISES Arlene! you have EARNED that wine and pizza, NOW SLV we are all in your pants!


    Toby, our 15 year old rescue

    Kathimage

    · Share on FacebookShare on Twitter
  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited February 2015

    Aww Kath, Toby is a dollbaby!

    Shari, be safe driving tomorrow.

    Tom, so exciting about the baby boy! Thanks for the hugs and prayers. Same to you and your wife!

    · Share on FacebookShare on Twitter
  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited February 2015

    Aww Kath, Toby is a cutie pie!

    Tom, thanks for the hugs and prayers for all of us. Same to you and your wife and little one. Congrats

    · Share on FacebookShare on Twitter
  • greenae
    greenae Member Posts: 540
    edited February 2015

    I love the dobies, too...and rescues are the best. All of my dogs, all of my life have been rescues. I am getting mixed up with everyone's names and dogs, so if I've left anyone out... Big Hugs, and good results for all...positive vibes sent from me and Augie!

    Arlene


    · Share on FacebookShare on Twitter
  • slv58
    slv58 Member Posts: 1,216
    edited February 2015

    Well, just got home from another long day at the hospital.

    Good news is that all my scans came back clear. The pain I have in my hip is from a cyst and I have to go back to my rheumatologist for treatment.

    Bad news is that I have a local recurrence of cancer. We were able to meet with my breast surgeon as well as my oncologist and there is no question, I need a mastectomy. It is the same cancer- trip negative and they are very surprised that it has recurred especially since I had pathological complete response to chemo and good margins with surgery. Unfortunately they don't know why some recur. I will be having a breast MRI hopefully in two weeks and surgery, hopefully in one month. Because I had high dose chemo, it is unlikely that I can do it again. My onc said that she will wait till surgery- get full stats on the cancer and then take it to the 'tumour board' to discuss whether I can have a different chemo and possibly more radiation.

    I have (very easily) decided to have immediate reconstruction and met briefly with the plastic surgeon as well. Because I had radiation, I will be having diep flap surgery. So...looks like I get a new boob and tummy tuck! I will be loosing my nipple :-(

    I asked how my prognosis looks and she said ok- obvious not great since I had a recurrence so soon. She said my nodes look clear but will check during surgery again.

    So, I face this battle with a dwindling army. Surgery. If I'm lucky some sort of modified chemo.

    Sorry to give this crappy news but I have to say that I was really afraid it was already in my bones, so I am grateful. My battle begins again. Thank you everyone for being with me in spirit, your positive vibes has kept this to a local recurrence!

    Shari

    · Share on FacebookShare on Twitter
  • Lisaj514
    Lisaj514 Member Posts: 719
    edited February 2015

    oh Shari,So sorry to hear this. We all don't know what to say I'm sure. My heart sank reading this. It's not in the nodes and not in your bones. Is it in the same area as prior tumor?Stay with us here and march forward again into the fight. We'll lift you up when needed

    · Share on FacebookShare on Twitter
  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited February 2015

    So sorry Shari! (((((HUGS)))))!!

    I haven't seen all your history, but maybe they can do Adriamycin or Abraxane? Abraxane is in the Taxol family but is supposedly easier on the body. I tolerated it very well. Keep us posted. I will keep you in my prayers always. We will be with you every step of the way

    · Share on FacebookShare on Twitter
  • mags20487
    mags20487 Member Posts: 1,591
    edited February 2015
    image

    just had to post! Me and my daughter from her wedding on Saturday. 3 1/2 years out. Life has returned to almost completely normal with the exception of surgery in April for just a small tweak on the "girls" It was so wonderful to still be here to share this awesome day with her!

    · Share on FacebookShare on Twitter
  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    Shari,

    I'm so sorry, and please remain on this thread for support. *Hugs*

    Mags, lovely photo!!


    · Share on FacebookShare on Twitter
  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited February 2015

    Shari, glad to read that your hip problem is a cyst and not more. You will get through breast surgery and move on. There are so many chemo combinations, - the dr will know which is right. You have a good attitude. Stay strong and know that we are always here to talk to!

    Mags, - beautiful photo!

    · Share on FacebookShare on Twitter
  • eileenpg
    eileenpg Member Posts: 467
    edited February 2015

    Shari=Oh no!!!! Glad your hip was a cyst.We are with you. Stay strong,stay positive. HUGS!!!!!


    Great photo Mags.

    · Share on FacebookShare on Twitter
  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited February 2015

    Hello Shari,

    I am just posting to say that I am sorry to read that you have a local recurrence and just wanted to send my best wishes that a mastectomy will take care of this.

    I was glad to know that the pain was a cyst and that there is no problem with the bones.

    Stay positive. You can get through this.

    Best wishes from the UK.

    Sylvia xxxx

    · Share on FacebookShare on Twitter
  • greenae
    greenae Member Posts: 540
    edited February 2015

    Hello Shari

    I am so sorry to hear you have to battle this again. Your docs will get that junk out of there and you will keep it from going anywhere else. I am sending hugs and prayers and love,

    arlene

    · Share on FacebookShare on Twitter
  • slv58
    slv58 Member Posts: 1,216
    edited February 2015

    THANK YOU everyone! I will definitely remain here for support and guidance. If anyone here has had diep and wants to share with me what it is like and if your pleased with results, or if you would do it again that would be great. I really want to feel like I can beat this but I must admit, I'm scared- with such a good prognosis the first time and me giving it the hardest tx available, how the heck do I have it again? I guess that's the million dollar question. Debra pm me and asked about what I experienced to phone my MO in regards to breast pain and I'd like to share this in hopes it will help others.

    My breast was always pretty sore after the feeling started coming back. Exams were painful and even sleeping on my side was sometimes uncomfortable. I always felt a lot of hard/thickened scar tissue internally, however the uncomfortable soreness was only during self exams. Then about a month ago I noticed I was experiencing pain spontaneously. I've had breast cysts before and it was similar. It was a burning -blunt jabbing- pressure type of pain. It was new. As I felt I was surprised to feel an area just above my LX scar that seemed harder than the internal scar tissue. Both my BS and MO said the recurrence is in the scar but I feel it just above. I don't want to alarm anyone, but please don't let up on self exams. My next mammo would have been June. Any words of encouragement are greatly appreciated. I still can't understand how this bugger survived chemo and radiation.

    Mags, beautiful picture, so happy for you and your daughter-gorgeous bride!

    · Share on FacebookShare on Twitter
  • Allydp
    Allydp Member Posts: 520
    edited February 2015

    Shari - I am so so incredibly sorry you have to fight this again. I hope you'll lean on us. We will all be here for you and you WILL get through this. Since you didn't have Adriamycin the first time, is that something they could do now? Sending you hugs and strength.

    · Share on FacebookShare on Twitter
  • slv58
    slv58 Member Posts: 1,216
    edited February 2015

    Allydp, thank you, my mo said that because chemo was so hard on me the first time, she doesn't think I could have it again. I had high dose vs. dose dense and it's usually reserved for metastatic cancer but is the way she treats TN. I've had my lifetime limit. She did mention one of the platinum chemos but was unsure ' the board' would approve, so right now I'm counting on surgery and will find out after surgery and complete pathology if I can get chemo. She also said she doubts my RO would approve more radiation to the same area because it came back so quickly a year and a half after initial rads.

    · Share on FacebookShare on Twitter
  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited February 2015

    slv, - you are right, -radiation is not given a second time to same breast.

    re chemo, - I had a hard time after my first dose of ACT, so my onc divided up the following treatments. After one round of AC, she gave 3 of cytoxin, then 3 of adramicin, then the 4 taxol. Perhaps your body will be ok with something like that, too.

    Also, my closest friend is dealing with pancreatic cancer for over 8 years, and is now repeating a chemo regime that she had some years ago. It helped before, and the hope is that it will help again. So it seems that they do sometimes repeat chemos.

    Stay warm up there, - and think GOOD thoughts!


    · Share on FacebookShare on Twitter
  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    Cocker,

    Thank You!!

    I never stopped lurking on this thread.


    · Share on FacebookShare on Twitter
  • breastcancerhusband
    breastcancerhusband Member Posts: 85
    edited February 2015

    Slv

    I'm so so sorry to hear this news.

    At least its a local recurrence and hopefully its remained local. Did they say anything about the size of it?

    I hope the board approves you getting a platinum agent - its worth a shot.

    Many many prayers and much love

    Tom

    xxx

    · Share on FacebookShare on Twitter
  • simplelife4real
    simplelife4real Member Posts: 563
    edited February 2015

    Shari, like everyone else here, I'm really sorry to hear you are dealing with this again. I'm just glad it is a local recurrence, but still...yuck! Thank you for telling us how it felt in your breast as the cancer returned. It helps all of us in our own self-exams. I hope they are able to come up with a chemo cocktail that is both effective and doesn't wear you down too much. This disease is so frustrating.


    · Share on FacebookShare on Twitter
  • slv58
    slv58 Member Posts: 1,216
    edited February 2015

    I will kick cancers *#€¥!!! The good wishes, concern and positive thoughts fills me with much love and hope, thanks everyone. BCH, my MO had just received the results from biopsy and it showed TN-she said aggressive again, so I guess grade 3 and I think the largest measurement was 2.1 cm, but I may need to correct that as I was in a state of shock. I didn't think there was a possibility of it coming back with PCR, good margins and all that radiation. I honestly thought it was scar tissue, maybe a cyst. My results aren't posted yet for me to read.

    Please ladies pay attention to the tissue under your scar. Learn what it feels like even though you may have hardness from scarring. If anything feels a little different/new or you develop a pain that is new, get it checked out. TN is sneaky, I'm learning that.

    · Share on FacebookShare on Twitter
  • mags20487
    mags20487 Member Posts: 1,591
    edited February 2015

    shari...I am so sorry you must deal with this! I had diep and can share. Just pm me and I can answer anything for you

    · Share on FacebookShare on Twitter
  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited February 2015

    Shari this is shit news for you. One step forward, two steps back. First it turned out to be a cyst which was reassuring then a local recurrence. No wonder you were in shock.  I am so sorry you are going through this.  AnotherNYCG is right you can't have radiation again on the same breast, but there must be a lot of chemo's out there that they can try. On the up side it is a local recurrence and hasn't spread to other organs.  I know you are afraid, as we all would be, but you can do this.  You have done it once and you can do it again.  We will all be in your pocket and will come through this set back with you.  Sending lots of love and big hugs to you. 

    Cancer SUX big time. 

    · Share on FacebookShare on Twitter
  • Meadow
    Meadow Member Posts: 2,007
    edited February 2015

    Mags thanks for sharing the beautiful picture of you and your daughter. You are glowing. So wonderful.

    · Share on FacebookShare on Twitter
  • Meadow
    Meadow Member Posts: 2,007
    edited February 2015

    slv, just so sad and angry about your recurrance. But this mastectomy will get it FOR SURE. And then you wont have to deal with that no more, no mo'! you are in my thoughts and prayers ((((big hug)))


    · Share on FacebookShare on Twitter
  • JJ62
    JJ62 Member Posts: 65
    edited February 2015

    Shari another lurker here wanting to let you know there is more positive energy coming your way!

    FYC! (F*** you cancer)

    · Share on FacebookShare on Twitter
  • Meadow
    Meadow Member Posts: 2,007
    edited February 2015

    love our lurkers JJ

    · Share on FacebookShare on Twitter
  • Zenful
    Zenful Member Posts: 599
    edited February 2015

    slv, I sm so sorry to hear that you have to deal with this. I am somewhat of a lurker, too. I had a BMX with immediate reconstruction-DIEP. I am so very happy with the results. Not a single regret. I am more than happy to answer any questions. Sending loving thoughts and healing energy your way. ((Hugs))

    · Share on FacebookShare on Twitter
  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited February 2015

    Mags beautiful as usual and so is your lovely daughter.

    Some gorgeous dogs on here ladies, just love that gorgeous old feller Toby


     

    · Share on FacebookShare on Twitter
  • slv58
    slv58 Member Posts: 1,216
    edited February 2015

    Cocker, Meadow, Zenful, JJ62, Mags Thank you for your loving concern and positive energy- I will use everyone's positive gifts to add to my army. I'm starting to mentally settle in to this new dx. I've decided to get a portrait done celebrating my girls. Probably sounds weird but I love all my body parts (no body image problems here even though I'm 40lbs over-lol) and giving one up saddens me. This is my way of 'letting go' and getting ready to fight. I'm very content with my decision to reconstruct because this to is my way of fighting. I'm fully aware that it may not 'take' and in that case I will eventually get a beautiful tattoo to cover scar! I have this planned now and feel more at peace. The first time, chemo, surgery and rads gave me peace and strength. Now it's surgery but still hoping I can have some kind of chemo after. Wow- how many people want chemo?!

    I've already had someone ask me if I regret not getting a MX the first time -how can people be so insensitive? I'm a control freak by nature and I had to struggle and learn to give control over my cancer to the pros. When I did, I felt better but it was hard. My doctors don't understand why I have a recurrence, but my MO says it's good that it's TN because it means that is was a errant cell not that my body is making all kinds of cancer. I have to trust.

    Everyone is in my thoughts and your attention is so appreciated. Happy week end everyone!

    Shar

    · Share on FacebookShare on Twitter

Categories