Calling all TNs

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  • Lisaj514
    Lisaj514 Member Posts: 719
    edited February 2015

    Marsha, that was beautiful, eloquently stated. I get it all. Got more seriously into yoga during treatment and it helped me so much especially getting through tests, like MRI. Focus on your breath Arlene, during then test but can't breath too deeply during mri so I also played games in my head like saying a word that started with each letter of the aphabet or saying and picturing all the states, or saying all your students names or coworkers. And your meditation and yoga classes sound nice, strong yet calming, peaceful yet powerful. You are doing mindfulness meditation, I just went to a workshop on It. HeEr is on one my imagefavorite meditation cards that my yoga yoga teach teacher gives out at out at each at each class

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  • greenae
    greenae Member Posts: 540
    edited February 2015

    Marsha and Lisa

    Thank you very much for talking to me about yoga. I have never been a relaxed type of person...and I can see I have to find a way to let go of some of my anxieties in a manner that will calm me, and make me a more positive person. I truly appreciate you both sharing your experiences and thoughts regarding yoga and meditation. I belong to the Y, and spin and lift there. I am going to look into their Beginner yoga classes.

    I can feel myself all hyped up...and I have been consciously trying to breathe and calm myself with thoughts of letting go of this stress and angst. I want, and need to be a calmer Warrior. And I'd prefer to do it without ativan and xanax. (or red wine...lol) Thank you so much for your thoughts and advice...definitely putting learning yoga on my list...

    hugs to you!

    arlene

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  • greenae
    greenae Member Posts: 540
    edited February 2015

    simplelife...Thank you for that info...get me Dr. Perez...Sign me up!

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited February 2015

    Simple that is the first real piece of good news I have had for a long time.  You made my day. Thank you.


     

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  • speechmom22
    speechmom22 Member Posts: 20
    edited February 2015

    Simple...great news!! Thanks for sharing!! I agree greenae, sign me up!!!


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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited February 2015

    Simple thanks for the link! Just wish they wouldn't put things in like "likely to come back." That's why it's so hard to be positive all the time. I am doing better but still... Even so a vaccine would definitely be AWESOME!!

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  • slv58
    slv58 Member Posts: 1,216
    edited February 2015

    I'm another who loves yoga. I have done guided imagery meditation to help with tests and procedures and found it helpful in relieving some of the anxiety. After I finished all tx, I was left with quite a lot of joint pain mostly waist down. After every blood test imaginable it seems I have chemo induced inflamatory arthritis. Not being able to walk the distances I use to be able to and finding myself in a lot of pain just getting up from sitting I thought I would try a gentle yoga class. I'm so glad I did! I've been going since last July and I can't explain the feeling of peace I get. It's like I'm filled with endorphins, it's such a positive experience I know my body is thanking me. I have an excellent teacher who knows how to push me a little but never wants me to feel pain and I see improvement. Two weeks ago I was finally able to do a cobra pose which I found impossible when I first started, everyone cheered me on!

    I really believe the peaceful atmosphere, better breathing, increased circulation and flexability help to centre oneself in a chaotic time of dx and tx.

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  • Lisaj514
    Lisaj514 Member Posts: 719
    edited February 2015

    Great stuff. I'm going to bring this up to my MO on fri when I go for a follow up. A good doctor will welcome our research and challenging questions. Us TN gals are a fierce group!

    Nice to see that yoga and meditation is making a positiveimpact on so many of us

    http://www.medicalnewstoday.com/articles/271779.php


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  • jenjenl
    jenjenl Member Posts: 948
    edited February 2015

    i read about that trial, it's in jacksonville i believe and monthly visits. Bummed.

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  • breastcancerhusband
    breastcancerhusband Member Posts: 85
    edited February 2015

    Ladies, first of all that is good news about a possible vaccine. Massive strides are being made in breast cancer research and especially TNBC research every week.

    Please however do ignore the poor reporting on what is an excellent piece of news. The comment "likely to come back" is simply not true. Disease free survival rates are at an all time high for TNBC. I posted last week about a recent study where survival rates for early stage TN now match those of non-TN tumors. Even older studies show that more women survive TNBC than don't.

    The fact is its more likely NOT to come back. As a medial researcher and more importantly a husband watching his wife go through this some of the reporting on TNBC leaves a lot to be desired.

    Stay brave you all lovely people

    Hugs and prayers


    xxxx

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  • Tobycc
    Tobycc Member Posts: 789
    edited February 2015

    Thank you BC husband!

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  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    breastcancerhusband, Thank You!!

    Pleased to hear about the vaccine trial on the local news, but feel sad about the TNBC information reported.

    I was Dx on January 20, 2010 at the age of 60. Yes, 5 years!

    Dreading come May, 5th yearly mammogram of both breast since last TNBC treatment in March 2011.


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  • eileenpg
    eileenpg Member Posts: 467
    edited February 2015


    I love you breastcancerhusband!!

     

    Teka=Good luck in May.

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  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    Thank You!!

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited February 2015

    Thanks BChusband! XOXO!!!

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  • greenae
    greenae Member Posts: 540
    edited February 2015

    BC husband, THANK YOU!!!

    Hi all ...I had my dreaded MRI tonight...and it was FINE! PHEW, WHEW, and so relieved I did not try to scramble out of the machine. (MRI of neck last year was NOT fun!)The xanax worked great and I Breathed and thought calming thoughts, and everyone was so nice...we were actually laughing because the doc had to try 3 times to get my IV...I made HIm nervous??? Anyway, praying for good results tomorro...then onward through this journey. Want to get this junk out of me! Thank you all for your support and advice!

    arlene

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  • Lisaj514
    Lisaj514 Member Posts: 719
    edited February 2015

    arlene, great news. Hoping for good news for you. Glad you were able to "relax" and git-r-done

    Bc husband, thank you so much. I knew I felt uncomfortable when I read it. Hated that sentence and kind of put it out of my mind, ignored it. Not our story. XO.

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  • greenae
    greenae Member Posts: 540
    edited February 2015

    Thank you, Lisa...And I found a Beginner yoga class at my Y...definitely going to check it out and learn to find ways to attain some peace and calm in this whirlwind.

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited February 2015

    Arlene, prayers for good news tomorrow on your MRI! Glad you got thru it just fine.

    Also every time I see something about yoga I think of what the comedian Caroline Rhea says which is yoga is another word for try not to fart! Hahahaha!!! I know it helps a lot of folks though. HUGS!!

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  • TeriMP
    TeriMP Member Posts: 89
    edited February 2015

    hi ladies, i do not have TN BC but my mother-in-law sent me this link that I thought might be of interest; the Mayo clinic is starting on trials to stop reoccurrence in TN BC survivors...

    http://www.usatoday.com/story/news/nation/2015/02/...

    Take care ladies (sorry if this was already posted by someone else).

    Teri

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  • slv58
    slv58 Member Posts: 1,216
    edited February 2015

    Arlene so glad your done with that MRI, hoping for good results!

    It's very exciting news about the trail-let's all hope results are quick and effective.

    I need some support, I'm afraid I fell apart last night-something I havnt done since dx. I had my hip x ray 3 weeks ago, my whole bone scan 2 weeks ago and today I was suppose to go for mammo and ultrasound. I got two calls from the hospital yesterday, first one to let me know I'll be having a CT with contrast on chest and CT on pelvis and abdomen also. Then a couple hours later they called to tell me that I need to get a full blood work up also. My mind is racing and not in a good place. I'm thinking that if my hip pain was bursitis or arthritis they wouldn't be scheduling me for more tests. Something must have shown on the scan. I'm scheduled to get results with my MO on the 11th, but I'm scared. I thought that TN usually goes to soft organs so maybe that's why all the CTscans-to see where it is? Yet it's my hip that's in pain. I really hate these dark worries, it's not usual for me. Thanks ladies for letting me air my fears.

    Shari


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  • simplelife4real
    simplelife4real Member Posts: 563
    edited February 2015

    Shari, crap! I know it's hard not to be scared right now. I think it's mean and unprofessional that they called you to schedule these extra tests without someone calling you to tell you why they are being scheduled and what the result of the bone scan was. When I start to freak out about things, I try to remind myself not to cross any bridges until they are right there in front of me. We are here for you. Is there any way you could get the results from the tests you have already had done? Right now, your mind is racing to the darkest places because you don't know what is going on. I sure hope everything is okay for you. Let us know when your other tests are scheduled and wear big pockets. I'm jumping in for moral support. ((hugs))

    Kay

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  • slv58
    slv58 Member Posts: 1,216
    edited February 2015

    thanks Kay, it means a lot. My DH is trying to be strong but I see it's really hard on him- he can't fix this one. I'm having all my tests today which is good as I live 2 hours from hospital. DH is going with me. Having to have an apt. to go over results reminds me too much of my first one at dx. She has usually called me to tell me other tests so this adds to the worry. Sorry have to put a couple hours of work in before I go. Trying to smile.

    Shari-da*# it's cloudy here

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited February 2015

    Shari, holding your hand and praying for you right now. Last Spring my rib was hurting from coughing and I thought I may have cracked a rib and my Onc told me that IF they did a bone scan and the rib was in fact cracked that it would be positive and more tests would be ordered, and it would freak me out so I didn't have one. So maybe it's still arthritis or something like that.

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited February 2015

    Okay, Shari, I'm in your pocket...I'm hoping it's a big one because I'm sure others will be jumping in as soon as they see your post. I'm so glad you are having the tests done today. I hate that your MO wants to meet with you in person to go over the results. The 10th is a looong time to wait. It's up to you, but maybe it might be worth it to you to call her office tomorrow. I'm expect she will have all the test results by then. No matter what happens, you WILL BE OKAY. We are here to support you every step of the way. (((Hugs)))

    I just want to add that having cancer turned me a believer of Ativan for those super dark times. Maybe this is the time to pull out your stash (if you have one), or anything thing else that works for you. There's no rule that says we have to deal with the extra scary stuff without help!

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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited February 2015

    Shari,

    I'm jumping in your pocket also.

    Marsha

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  • MomMom
    MomMom Member Posts: 523
    edited February 2015

    Shari, All great advice from Simple. I'm on a road trip with DH so not able to make a longer post, but had to let you know that you are in my prayers. Sending huge hugs your way!!

    Breast cancer husband, you rock!

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  • eileenpg
    eileenpg Member Posts: 467
    edited February 2015


    slv= Call you MO office and ask to speak to her or him. Tell them on the phone how much anxiety you have and the MO should call you back and at least tell you what is going on. I tell them at all the test that I am really anxious and then I start to bug them. Each time the thech has given me my results. However, I think that is a violation and they cannot give out results. Even call the office and speak to the chemo nurse. Soemone should tell you what is going on. The fear of the unknown is the worse. I am will you today holding your hand.  Good luck.

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  • slv58
    slv58 Member Posts: 1,216
    edited February 2015

    thank you everyone, it means so much to me to have your support and to be able to freely express my fears. I know everyone here gets it. As we all know, it's hard to really open up and express to our loved ones because we try and protect them from the really dark stuff. My DH keeps saying things like 'don't think about it-keep your mind busy-you can beat it-your strong ' he doesn't want to understand that you can't cure mets. That being TN limits tx for mets. I've thought about phoning her, but I think that being face to face will allow better communication and I know if it's not good, the nurse navigator will be there to advocate and be supportive for me. I can wait till the 11th, it's just not going to be fun but will allow me to think of any questions.

    Ok, enough gloom. Time to start my grateful journal again and I think I'm going to see if we can afford me going to yoga twice a week.

    I'm going to wear really big pockets, maybe something like this.....(sorry about size and quality!)

    image

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  • ALHusband
    ALHusband Member Posts: 344
    edited February 2015

    Sounds promising! Let's pray it's the silver bullet! http://www.firstcoastnews.com/story/news/health/2015/02/02/triple-negative-breast-cancer-vaccine/22748819/

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