Calling all TNs

mags20487

the radiologist at the center did an ultrasound and says she believes it is just scar tissue or necrosis from the recon.  She did not biopsy but suggested that we do an MRI and get a better look at it before we do anything invasive.  SO HAPPY

Maggie

Cocker_Spaniel

Mags so happy for you too.  Great news is always welcome.  It they were unsure they would have done that biopsy.  Keep well and happy.  

MomMom

So happy for you Mags!  Sleep well tonight.

Titan

Yay Mags!  Yay Fighter! 

saw the onc and bs today....everything ok...going to ONCE A YEAR NOW....or actually the bs in 6 months..the onc in ONE YEAR....then alternating back and forth so someone sees me every 6 months...I'm to call with any concerns during this time..wow..didn't think I would see this day...they asked me if it was ok..and I said yes.....I know that I will never be let go completely...which I don't want to be anyway...but yes...you CAN survive tnbc,...at least for now........and hopefully for a long long time

Gramof2boys

Great news Mags!!

Ally-I had my last chemo on Feb 21 and had my surgery March 14, so I think everyone is different, maybe see if they will do it earlier. They really want your blood counts to recover from the chemo before surgery. So if you are having issues with your blood counts they may want you to wait.

MomMom

Titan - Excellent - good for you!!!  Thanks for posting.

Cocker_Spaniel

A huge woo hoo to you Titan.  Great news.  Your on your way to six years now.  Keep it up Girl. xx 

Cocker_Spaniel

simplelife4real

Hi All,

Just a quick post.  I'm actually on my first vacation since being diagnosed and finishing treatment last month.  We went to Wisconsin to a wedding (hubby was best man) and now we are in Ohio for a couple days right next to a super flat paved bicycle trail.  My goal is to get back on my bicycle and build up a tad of strength.  Hopefully, the weather will hold out for us.  There are supposed to be thunderstorms off and on the next couple days....so I'm thinking we will need to bike between the rain drops!  

Wishing everyone a good weekend.

Radical2Squared

Sounds like fun simple! Enjoy the ride...even if it's a wet one!

jenjenl

My abdominal scan came back clear (yay!) but it did catch a little uptake in the lumbar area.  I'm hoping it's just a false positive, apparently it happens since CT scans are so sensative.  I don't have any pain there so I'm hoping thats a good thing.  They are going to compare the scans (had them at different hospitals) from last year to see.  It's so small its unmeasurable.  But I won't lie I'm worried bc I know it wasn't there last year.  Still hopeful!

Has anyone else had false postiives from a scan?

simplelife4real

JenJen, I so hope it turns out to be a false positive for you.  Keeping my fingers and toes crossed for you.

Well, I did my first long bicycle ride today since being diagnosed last July.  We went 38 miles on FLAT paved trails and I felt like I was in heaven.  It poured down rain for about 6 miles of the ride, but it didn't dampen my joy of being outside and back on my bike.  It was a wonderful day and the best day I've had since this journey began.  I am tearing up as I write this because it just feels so good to feel good again.  I don't know what the future holds, but I am so grateful to have gotten to enjoy even a single day of feeling somewhat "normal" again.

Wishing everyone a good evening.

Hugs,

Kay

Allydp

Thanks everyone for the feedback on my surgery date. My BS said they schedule 4-6 weeks out. I'm at 5 weeks (I was mistaken with the 6), so I'm right in the middle. Phew. 

Titan - congratulations!

Mags - wonderful news!  So thrilled for you!

Simple - I'm smiling ear to ear for you! I've been really struggling lately with feeling crappy from chemo and reading your post reminds me that this is all temporary.

LPBoston

Mags, Simplelife, JenJen - I love hearing of all the goods news!  Keep strong and enjoy it whenever you can!!!

TasiaB

Hi everyone I am not usually one to post on here but have been around for 2 years following posts .

I was wondering if anyone has had problems after chemo with their eyebrows and/or thining of the top of your hair  it. Has been a year since my last chemo and kinda worried .

Has anyone had a similar experience and if so what are some things to help ?

Thanks

simplelife4real

Ally, I'm glad my post about biking was encouraging for you.  Chemo wiped me out completely and after it ended, I was discouraged about how long it was taking me to build up any strength or stamina, but it does come back with gradual increases in exercise. I still have a long way to go, but I can see huge improvement from where I was.   You will too.....it just takes time.  I'm one month out from the end of rads and had my first three month checkup with my MO last week.  I told her that fatigue was still my number one issue.  She said that is normal.  She said I will really start to feel less fatigued about  two months post rads.   In the meantime, I just lie down when I need to rest.  You will feel better!

mitymuffin

Hey Ladies, I wanted to share this news with you. Yesterday I went for a checkup with my Sloan Kettering Oncologist and she gave me a big hug and said " Congratulations, I never want to see you again". 

I'll still go for mammograms and breast ultrasounds (because I have dense breasts), but no more check ups with the Doc. 

I still get teary eyed when I remember the start of this journey and how frightened I was four years ago. I'm wishing all of you this kind of celebration down the road. 

sylviaexmouthuk

Hello mitymuffin

I just wanted to say congratulations on your four year survival and also on the fact that you do not have to go for any more check ups. I do remember you from sometime ago when Titan first started her thread. I used to post back then and in fact I still view the TNS regularly and am amazed at the camaraderie among the women on this thread. I do not recognise a lot of the names now, but I do remember you clearly.

Wishing you every happiness from the UK.

Sylvia xxxx

MomMom

Congratulations Mitymuffin!  These are words we all want to hear down the road.  Thank you for posting!

Luah

Mitymuffin: Congratulations, so happy for you. We share similar stats and I remember your posts well. Glad to hear all is well.  

mitymuffin

Luah and Sylvia, I remember you too and hope you are healthy and happy. 

Mommom, Good wishes to you! 

KSteve

Yay, mitymuffin!!  I go in to see my onc next month, but will be a couple months short of 4 years since diagnosis.  I'm wondering if he'll say the same thing to me?  So happy for you and for everyone else's good news.  For those in active treatment, just keep putting one foot in front of the other.  You will get through it and one day be able to not have breast cancer occupy every waking moment of your life.  While not a day goes by that it doesn't cross my mind somehow, I'm not as quick to go to that dark place with every ache and pain.

My husband and I leave next Monday on a 2-week vacation (for only the 2nd time in our lives) to celebrate 28 years of marriage.  We are both so thankful for each other.  That is definitely one of the silver linings that we received from this "journey".  We don't take for granted the fact that we have a strong, loving marriage anymore.  Any chance to celebrate each other, we do it!  Feeling blessed . . .

Hugs to all,

Kathy

Homehelp

you know we were watching the news last night and we saw Jeniffer Griffin on Fox News

She had a 9 cm tumor triple negative , Stage 3.. and looked terrific .. healthy .. doing great!

She was diagnosed when she was nursing her last child  abour 4-5 years ago !!

This is a beast .. and we must all fight it , until they find a cure .

I and my 3 sons will run the NY Marathon for a brast cancer organization and in this way show our support for my wife and all of YOU brave women !

 

megomendy

Allydp, did you ever have the blood transfusion? Or has anyone had one? I've been so tired the past few days, just when I walk or go up stairs. Sitting and laying down are fine. Had to take off work today, just getting ready in the morning exhuasted me. My numbers show I've been anemic for a while, but so far I havent been low enough to need a transfusion. I just spoke to the NP and she wants me to come in a day early this week for my bloodwork and to get cross matched if I need to get a transfusion on Friday. If it helps me feel better, I'm all for it, but wondering what it is like.

Cocker_Spaniel

Yay Mitty. Good to hear your news and great to see your smiling face again.  This is great encouragement for all of us on here.   Keep up the good work and keep on smiling.

Sipmple great news about your bike ride.  I can imagine the exhilarating rush you got when you finally made it.  Your strength will come back slowly but eventually you will get there.  Keep on biking girl.

Ally hope your struggling and feeling crappy feeling is now better.  Just like Simple you will get stronger as you go along.  Try to do something for you every day that you enjoy.  You will get there,

Sylvia good to hear from you again.  Hope you are having a fabulous summer over there in the UK.  Please keep in touch with us.

TasiaB I too have thinner hair now after treatment.  Mine was never very thick but it did have a lot of wave in it.  Now its straight as and I'm not keen on it at all.  They say if you had thick hair before chemo then it will eventually come back like that so I hope yours will as well.

lilyrose53

Mitymuffin-I love hearing your kin of news!  Yay for you!  I hope to hear that one day.

Megomendy- I had a blood transfusion years ago after a very bad miscarriage.  It was kinds weird, but I felt much better after.  My MO tells me I am anemic but not enough for a transfusion yet.  We are in a wait and see period.

Simple- nice to hear you are feeling stronger after rads!  It feels like forever since I didn't feel tired all the time.

Wishing you all we'll,  hugs,  lilyrose

slv58

Mitymuffin, yea!! What great news-hope your celebrating! 

I'm going for my six month check up and mammo tomorrow. Hoping everything is good and a bit nervous as my breast is still sore. I'll pop an Advil before I guess! 

Allydp

Simple - thank you so much for your kind words. I really appreciate the encouragement! 

Mitty - congratulations!!

KSteve - have a fantastic time on your well deserved vacation! My husband and I celebrated our 10th anniversary last September by taking a cruise. It was the second real vacation we'd done since our honeymoon and it was absolutely wonderful. We vowed to never let another 10 years go by without a vacation again. 

Megomendy - I did end up having the blood transfusion. My hemoglobin was down to 8.1 and causing me to be out of breath and extremely physically fatigued…I'm talking not being able to shower without sitting fatigued. It was crazy. The transfusion boosted my hemoglobin to 10, which is still low, but I'm no longer out of breath and, while still fatigued, it's not at the level it was. I'm back to doing light chores around the house which is saying a lot. The transfusion itself is nothing. I went to the same place I get chemo. I was asked to watch a short video detailing the procedure and the risks (which are very minimal these days). They then accessed my port, verified my name and birthdate, and started the drip. It's just like receiving IV fluids, except it's blood. I wasn't given any premeds, but I've heard some clinics give Benadryl to prevent a reaction. They drip it slow, so be prepared for about 4 hours or so. Hopefully they go ahead and give it to you so you can start feeling a bit better. Low counts are no fun. I'll be thinking of you. 

Cocker - thanks so much. I'm doing a little better, but just feel like I'm in the thick of things, ya know. Like the shock of the diagnosis has worn off and the reality of chemo has settled in. I only have 4 more weeks left of chemo now, which helps to see the light at the end of the tunnel! 

TasiaB

Thank  you cocker for responding

Meadow

Tasia, I just saw your post and I know my hair is thinner on top .I am keeping it short for now till it catches up, I am staying positive that it will! Thanks for posting.