Calling all TNs

Fighter_34

LADIES I AM IN REMISSION!!!  I can't thank GOD enough!!!!!!  Sorry I haven't updated lately, I have been to busy trying to enjoy life through treatment, managing a family; all while working.  I asked the Dr., should I start counting all over since this reoccurance?? What stage does this local reoccurence make me??  His words, "count your self lucky and keep on keeping on!"  So I have officially stop counting; YEAH RIGHT!  I am just going to focus on living, but I still can't shake the feeling of what's next.  But I am glad to be out of chemo just in time for the summer...

Sending wishes to us all!

simplelife4real

Congratulations Fighter!

JenJen...wishing you the best on your scan results.

adagio

fighter - that is awesome news!! Just live life to its very fullest - and enjoy and embrace every minute. So glad you made it through chemo - look after yourself well!!

DorMac

That is great news, Fighter! So very happy for you! Have a great summer!

To everyone going through treatment or waiting on results of tests, good luck and hang in there, there is light at the end of the tunnel.

Doreen

Cocker_Spaniel

Fighter nothing makes my day go better than reading or hearing the words "Remission".  Wonderful news.  You just keep on going girl and forget about the counting.  You've made it and you will keep on making it.  Yes God was watching over you. 

Jenjen hope all turns out ok for you too.  Keep fighting.

Cat how are you doing. Ok I hope.

Bak what lovely dogs you have.  Your story was so gorgeous. It's not very often another dog will do that. 

Big HI to Linda, Titan, Mags, Jan, Navy and all the other "old timers".      

TifJ

Congrats Fighter- love to hear the word remission!! I hope you have a wonderful, healthy summer!!

ALHusband- great news about Kathy!! So happy she is doing well!

Had another appt. with my breast surgeon today for what I call the "feel me up" exam. Everything was fine until I asked her to look at a crusty spot on my back. She said to have it removed and biopsied right away! I started to freak out a bit, then she said it's not a metastasis, but probably a squamous cell skin cancer which is taken care of simply by removing it. I feel better, but really hate the thought of having to see yet another doctor to have this taken care of. Damn cancer.

Lookingforward66

Fighter that's fantastic news.  So happy for you. Remission is a great word!  The good Lord was watching over you. 

Al Husband so glad for you & Kathy. 

Keep on ladies. 

Three cheers for our good news!!

Marsha

Radical2Squared

Congrats fighter! Good luck on not counting, but do enjoy life anyway! Very happy for you!

Meadow

So happy for you Al and Fighter!

JAN69

Annie - A big HI back to you.  How are you doing?  Do you have any lymphedema symptoms?  I've been sent to the sidelines with some nasty lymphedema caused by cutting, sewing, etc my 50 donation quilts.  So now I sit in my recliner and pout.  A bit of good news for me is the DEXA I had last week shows some improvement from the one two years ago.

And hugs and HI 5s to you all.  Seems like things are looking up for many of you.  Yippee!

Jan

Cocker_Spaniel

Hi Jan good to hear from you.  Yep like you I have lymphoedema in my left arm.  Doesn't stop me typing but does get a bit achy sometimes.  I'm doing ok but still scared of recurrence as everybody is so just try to make the most of each day. Great news on the DEXA.  Nothing brightens our day more than good news.  Keep up the good work girl, you are doing great.  Get a good book to read in that recliner.

Hi to everybody and hope your days are going good.

    

mags20487

biopsy is thursday....holding my breath!  Report from US says lesion is 9.2 x 6.5 mm lobular and thinly marginated with complex central heterogenous appearance with no color flow....whatever all that means!  Fingers crossed that it will just be more necrosis in the new girls.  What is really worrisome to me is that sometimes when I breathe in it radiates pain from that spot through both sides of my chest....UGH!

Maggie

Homehelp

hope it all is benign

What are they doing a biopsy on?

So much surgery , hopefully necrosis and scar tissue 

mags20487

there is a spot that has come up in between my "new girls"

tekwriter

Great news Fighter

Meadow

Mags thinking of you tomorrow, keep us posted

Nettie1964

Mags - thinking of you..keep us posted!

natL12

Mags...my best wished to you in what you are going through. It's always such a worry! Nat

Islandmama2

good luck Mags!

Allydp

ALHusband - wonderful news!!

Jenjen - thinking of you and sending prayers for a clear scan. Stay strong and keep fighting! 

Fighter - that is awesome!! Have a wonderful summer!  

TifJ - I'm so sorry you have to deal with the suspicious spot on your back. I'm very faired skinned and burned myself silly numerous times in my teens and early 20's. I'm 33 now and have already had a few spots removed. It's not a fun thing to keep up with. I hope you can get in fairly quickly and get it over with! 

Mags - wishing you all the very best and sending prayers for a benign report. Thinking of you.

Just a little update on me - I pretty much breezed through AC, but I'm having a tough go with Carbo/Taxol. My blood counts are being very stubborn. My onc started Neupogen 3 x week and I recently had a blood transfusion. Despite all that, I've still had to postpone treatment one week and now yesterday I found out she's reducing my dose dense Carbo from 850 mg to 590 mg (every 3 weeks). She said she'd rather decrease the Carbo than risk missing another week of Taxol. I agree, but I'm a little bummed. I was determined to muscle through anything, but I suppose I can't muscle through low counts. My platelets haven't been over 80 in weeks, hemoglobin dips under 8 once in a while and my neutrophils hover around 1.4 consistently. I guess this was finally the tipping point for her. Hopefully the reduction helps! On a better note, I only have 6 weeks of chemo left, with only one of those being a Carbo week, so yay for that! And I should be getting a surgery date any day now, too. Eek! 

Hope everyone is enjoying this blooming summer!

Alicia

Nettie1964

I see a lot of the chemo regimens lately including carboplatin, makes me wonder if I should have had that?  Just one more thing to worry about!  Especially when I see dx that don't appear is grim as mine and yet they are getting more chemo than I got!  Scary to think about!

Allydp

Nettie - when I first asked my onc about adding Carbo, she said no. She felt it added too much toxicity and not enough benefit. However, when I was dx BRCA2, she changed her tune. She said with the Carbo being a platin based drug, it would possibly target DNA repair. So in my case it was only because of being BRCA2+ that she added it in. I'm so sorry if my post triggered worry for you. This happens to me all the time on the boards and I hate to think I was a contributor for someone else. 

Nettie1964

Oh, no Allydp, you didn't trigger anything!  I've been noticing that for a while and I've read some studies on it!  I just have to learn to trust that I was given the best treatment for me at the time! 

But thanks for the reply!

Allydp

Oh good, I'm glad to hear that. I have doubts about my treatment, as well. I often wonder if I'm overdoing it. With all the blood count issues I'm having, it actually makes me second guess the Carbo. My onc nurses have made mention more than once that they're surprised I'm on it. I think they think it's overkill. Same thing with radiation. My nodes were negative, but my LVI was indeterminate. Some of my docs say no way to radiation, others say it's better to be safe than sorry. Rad onc said to do it, so I've decided to go for it, but again, I worry fear is causing me to go overboard. At the end of the day, all we can do is throw our hands up in the air and say, "I did everything the docs told me! The rest is up to you, God!"

ALHusband

Allydp I don't think you're overdoing it at all. I think TNBC calls for firing all the cannons and ammunition available.

MomMom

Allydp, I totally agree! TN calls for the big guns.  Felgreat about your treatment plan .

Allydp

Thank you ALHusband and MomMom. I really appreciate that.

I have a question for those of you who did neoadjuvant chemo. I just got my surgery date and it's 6 weeks from my last chemo. My BS has told me all along that it would be 4 weeks out. She and my PS are on vacation and their schedules are conflicting, so they've pushed me out the extra 2 weeks. This makes me nervous. Can my tumor start to grow back in that time? Should I make a stink and tell them I don't want to wait the extra 2 weeks? Sorry if this is a reactive question, it just took me off guard when they gave me the date just now. Thanks in advance. 

Cocker_Spaniel

Allydp I'm sure you will be ok.  There is a window of 6 to 8 weeks between treatment.  In my case I had to wait for three months.  I'm sure things will be ok for you.

Mags how did things go for you, ok I hope.    

Allydp

Cocker - thank you so much. I didn't realize there was that big of a window. I was thinking it was 4 weeks or less and was wondering why they'd push me out to 6. Glad to know that's the norm anyway. 

KSteve

Allydp - I actually had my last chemo on Dec 30 and had my surgery on Jan 8, so is there a possibility they could do it before their vacations?  I do recall you mentioning your counts were off though and maybe that's why they want to wait.  Just a thought if it's bothering you to wait 6 weeks.

Hugs,

Kathy