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  • Stupidboob
    Stupidboob Member Posts: 345
    edited May 2014

    You all are very welcome............I will be adding peaches too.  

    Marsha always my dear....................always.

    Catwhispurr two is a start...........:) :):)   I have some peach trees in my yard too but they don't produce very nice tasting fruit.  I used to just eat them bitter but after chemo, bitter is real bitter.


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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited May 2014

    Marsha, I like how you told the doctor you are aiming for arthritis and how he said he would try his best. :) I just logged on to see if you had an update yet, will be keeping an eye out for your update tomorrow.

    Regarding implants - to limit encapsulation I was told to (every day) do this exercise for 15 seconds each direction.  Move your implant North and hold for 15 seconds, East and hold for 15 seconds, West and hold for 15 seconds, South and hold for 15 seconds.  You can go in any direction you want, as long as you move it all 4 directions and hold for 15 seconds each.  

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  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited May 2014

    Inspired- great news on NED! 

    Marsha- prayers are being said for you! 

    I just finished #11/25 rads today, can't wait for it to be over. We have a long weekend getaway planned when I am finished! Can't wait!

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  • tekwriter
    tekwriter Member Posts: 216
    edited May 2014

    how long after chemo does taste return to normal.  Pepper is an issue for me since chemo. Even small amounts are too hot.  We normally use some spice to our foods so I am wondering.

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited May 2014

    Tekwriter, I noticed my tastebuds starting to come back to normal at about two weeks pfc.  I finished chemo Jan 14, 2014 and as far as I can tell everything is back to normal with my tastebuds.  I have a leftover adversion to one food and to the smell of coconut oil when cooling, but I think those two things are more associated to the nausuea I had to those two things during chemo.  I've never been big for spicy hot foods though.  

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  • LPBoston
    LPBoston Member Posts: 89
    edited May 2014

    Fierceblue and Marsha - I am a little late to the game - hopping in your pockets as well - thinking and praying everything is great.

    Inspired that is great news - my docs won't give me any type scans - it's a wait and see  but they are optimistic that I will be fine

    Cocker keep those pictures coming - they are hysterical and make my day

    Everyone else please know your all in my thoughts and prayers and you will get through this

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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited May 2014

    News!!!!

    Results back. Bad arthritis & degenerative bone disease in all joints & spine (especially low back).   MO told me the symptoms are very similar & was glad I checked. If pain becomes hard to manage go to Primary & get meds for pain. May want to see him for meds for degenerative. But I can't take them. As usual I get violently I'll with them (allergies again) I am on cloud nine so to speak. Don't know of another group of people that would wish for arthritis. We would any day!!

    Thank you all for being with me. It truly is comforting knowing others understand. 

    Today is one of my Bestess Days!!

    Marsha

    Ok fierce how you??

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  • Lisaj514
    Lisaj514 Member Posts: 719
    edited May 2014

    Marsha, yippee, yea, great news! Arthritis...oh yea we will take that!

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  • DorMac
    DorMac Member Posts: 155
    edited May 2014

    Marsha,

    Glad to hear you got the result you wanted.

    Arthritis is certainly no picnic and will be a burden especially if you can't take the pain meds but I know it is the lesser of two evils for you. I hope that it will be easy on you, not get any worse and that you will find some natural remedies which you can tolerate.

    Doreen

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited May 2014

    Marsha, I never thought I would be congratulating someone on arthritis, but obviously I'm smiling ear to ear for you, and for your wonderful news that this was not the other thing!  So happy you also got the results before the weekend and didn't have to wait any additional days. 

    Also, SlyviaExMouthUK who is very active on the TN UK Forum had her annual checkup today and all was great with her appointment.  She is approaching 9 years!  

    It's a nice day to celebrate these victories!

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  • lilyrose53
    lilyrose53 Member Posts: 216
    edited May 2014

    Marsha, That is great news!  Just sorry to hear your allergies will be a problem for managing pain. 

    Inspired,  so glad to hear you got great news too!  We all love NED!

    Fierce,  Hope you are doing ok.

    Hugs to all,  lilyrose

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  • Allydp
    Allydp Member Posts: 520
    edited May 2014

    Marsha, I can't stop smiling for you! Yay for arthritis!

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited May 2014

    Fiercebluebird, thinking of you....we are still in your pocket.

    Marsha, hooray for the arthritis!  It's amazing how the big C changes our perspective on things.

    Hope everyone has a good weekend.  I'm happy to be getting a two day break from rads.  Today was day #24 of 33 for me.  So far...so good!

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  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited May 2014

    Marsha, congrats on the good news.  Happy dance for arthritis!

    I'm still in a holding pattern for now.  More tests next week. sigh...

    Got a phone call for a clinical trial for a phase I drug that doesn't even have a name yet. (They call them license plate drugs)  But not interested in being one of the first few to determine dosage of an unproven drug.

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  • megomendy
    megomendy Member Posts: 141
    edited May 2014

    Marsha, Wow. I am so glad you got a "good" result.

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  • Meadow
    Meadow Member Posts: 2,007
    edited May 2014

    Bluebird, thinking of you

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  • tekwriter
    tekwriter Member Posts: 216
    edited May 2014

    So glad for the arthritis Marsha

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  • slv58
    slv58 Member Posts: 1,216
    edited May 2014

    Marsha, happy it was the lesser of two evils, big sigh and smile for arthritis!

    Fierceblue, hoping for easy tests next week, positive thoughts

    Congrats on good follow ups everyone!

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  • TifJ
    TifJ Member Posts: 1,568
    edited May 2014

    Woo Hoo Marsha!! I'm an arthritis girl too! Seems weird to be happy about arthritis doesn't it? HA!

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  • adagio
    adagio Member Posts: 982
    edited May 2014

    simple - I remember those weekends off from radiation - it was so nice to have a break. You are definitely on the countdown now - glad itis all going so well for you!

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  • jramick
    jramick Member Posts: 88
    edited May 2014

    The question IS ......why do so many of us get arthritis going through this????????? I had one onc tell me she thinks it's from cytoxan/taxotere combo.  Are there studies out there?  I was diagnosed with it at 47 and know I did not have arthritis before treatment.

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  • BanR
    BanR Member Posts: 289
    edited May 2014

    hurray for arthritis marsha( looking forward..)!!! yes, its really strange to be celebrating this.

    jramick: chemo does tremendous damage... i am pretty sure 50 years down the line chemo/rads will be used only for extreme situations. Till then chemo will continue damaging the heart, bone marrow etc..rads will continue exposing patients to unnecessary radiation related risks etc.

    fierce..pls keep us updated. Praying for you

    cat: how are u girl!!

    ally: ki67 will be in your core biopsy report and SUV will be in your Pet scan reports. Its ok, if u cant get them..they anyway just help to speak more about the nature of the tumor..treatment remains the same.

    cocker: thanks for those pictures...keep sharing more

    hugs to all of you.... love u all!

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  • Scoobydoo
    Scoobydoo Member Posts: 499
    edited May 2014

    Three cheers for Arthritis!!  That is so funny to say.  Marsha I am so happy for you that it was not the C word.  Yay!  Doing happy dance for you.

    Anita

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  • Scoobydoo
    Scoobydoo Member Posts: 499
    edited May 2014

    My thyroid biopsy all clear.  Now on to treating the hyperthyroidism.

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  • LPBoston
    LPBoston Member Posts: 89
    edited May 2014

    I have to say if anyone came across this board that had no idea why we are all on here would think we are all crazy for congratulating someone with arthritis!!  Hooray for Arthritis!!!

    Congrats to everyone for their milestones!

    Fierceblue - I hope you are hanging in there.  Thinking of you!

    Have a great weekend everyone!

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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited May 2014

    Truly is weird to celebrate arthritis. But as to chemo giving it to us, I'm not so sure. It may speed up the inevitable but give I don't think so. Reason for my thoughts is I only had 2 A/C treatments. No Taxol at all. 

    My celebration is somewhat twofold as after having to stop chemo I was given a 50/50 chance. So for me every day is a huge gift. If I could have completed the routine my chances were listed as 89%. 

    So I lost the percentage war we all look at in deciding to chemo or not to chemo. I tried & knew it was iffy from the start with my allergies. 

    So I can only commiserate with you on waiting on tests & how A/C can get bad, losing hair & bouts of depression & fighting the depression. Never had taxol experience. Friend did & still has numb feet ( 3 years later). 

    We keep fighting this battle as it can determine the outcome of the war for us!!

    Have great day all,

    Marsha

    Fierce, hang in, I'm in your pocket. Good luck on next round of tests. 

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  • slv58
    slv58 Member Posts: 1,216
    edited May 2014

    Scoobydoo, congrats on thyroid! I've had problems with mine since chemo, but I'm hypo. 

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  • stace02
    stace02 Member Posts: 1
    edited May 2014

    I'm new here and here's my story. I was diagnosed in November 2013 at the age of 41 with TNBC medullary type stage 2A node negative. They wanted to start chemo ASAP so I had a lumpectomy in November and started chemo in December. I had 4 rounds of AC 2 weeks apart and then 12 weekly rounds of Taxol that I just finished up with. I am scheduled for a bilateral mastectomy with reconstruction in 2 weeks, and then the waiting begins which is what I'm having a hard time with. My doctor never did any kind of tumor marker tests during chemo to see if it was working and now he told me he doesn't do follow up blood work or scans. He also said if it were to come back and metastasize that no tumor removal would be done and chemo could be done to prolong life span.  I'm having a huge problem since I have no idea if chemo worked in the first place and now he'll go by how I'm feeling when I see him. Well I felt fine when they found my tumor on the mammogram so I'm afraid by the time they would find anything it would be too late.  Is no follow up scans or labs common practice for anyone else or should I be looking for a new oncologist? Any help or advice would be much appreciated since I'm new to all this. Thanks!

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  • jramick
    jramick Member Posts: 88
    edited May 2014

    Stage

    What a jerk that doc is!  Pet scan, bone scans, lung xrays, and blood work cbc with tumor markers.  Since I finished treatment, I have had 1 pet, 2 bone scans, 2 xrays, and blood tests every 6 months.  With recurrence no more chemo, really?  I say baloney and find new doc immediately!!!! Good luck!

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  • placid44
    placid44 Member Posts: 497
    edited May 2014

    Stace02,

    My oncologist does not do tumor markers and does not do scans unless the patient reports symptoms. I asked about this and she said if it metastasizes to distant organs, what determines your remaining life span is not when the spread is discovered, but rather how well your spread responds to treatment. A larger met(s) that was found later can still shrink to the same size as a smaller met. A smaller met that is found earlier but does not respond will mean a shorter life span...it will keep growing.  With earlier stages catching it sooner makes a bigger difference because the objective is to keep it from spreading to distant organs.

    This makes sense to me except in the case of local recurrence, when time still matters. But in my case they would find a local recurrence by feel...I had a BMX.

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