Calling all TNs
Comments
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Doreen said it so very well. Dawn showed me what a true Warrior is. Peaceful journey dear Sister. I'll see you on the other side.
Una - I'm so sorry for your news. I did find one article for you, but it is not specific to TN, and it is very, very technical. I will give you the link if you want, but I think you would be better served by info your MO gives you. -
I am relatively new on these boards, so I did not get the opportunity to know Dawn. She sounds like an amazing woman. My heart is heavy with sadness - no one should have to endure this awful disease.
Lori
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I don't post here but I have read this thread everyday for a couple of years.
Dawn was an amazing woman & an inspiration to all.
Another wonderful woman taken too soon.
My heart breaks.....R.I.P. Dawn.
Karen xoxox -
This is very sad news... My deepest sympathy to Dawn's family and friends. She was a great lady.
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My heart is heavy at the passing of Dawn (Inmate). What a wonderful brave lady she was. Never gave up but always had time for our moans, grumbles, worries and woes. Yes Linda another star in Heaven always looking over us like she always did on earth. It was such a pleasure to know her. My heartfelt love to her husband and family who will be grateful that she is now at peace and in no more pain. Rest in Peace dear Dawn. In my heart always. xxxx
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Thanks Kathyrnn....I have confidence in my MO but I also like to gett my own info. This has just been a frustrating journey for me. I had a lumpectomy, my lump came back. I started chemo, had to stop and get a mastectomy. I was relieved after the mastectomy. Now the pathology of the mastectomy comes back and I find out that in addition to being TN its choriocarcinomatous. What next??
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Dearest Dawn... strong-willed, resilient... she rocked us with her humour, sparkled with energy. What a loss. I will miss her.
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Hi Everyone,
I wanted to share this with you!
I'm taking a certification class, and the president of the company is the one holding the class. I know of him through another organization that I belong to, and I've known that his wife was a BC Survivor, but I didn't know much about her or her bc until I took this class. I had also known that it was an aggressive type of bc, so I had wondered if it was TNBC. I finally got the chance to ask about her and find out more!
She is a 10-year Survivor of TNBC! She was dx'd in 2003 with 11/13 nodes positive, and her tumor had grown from 1.5 cm to 7 cm in the initial 3 weeks that they were going through appointments. She was stage 3. She had a UMX first, followed by chemo and radiation.
She is healthy and living a full life!
She read a book called "The China Study" (I just downloaded the 30 minute short version), which influenced her to where she changed her diet dramatically, she also incorporated exercising, juicing, and now she does yoga and meditation, but I don't believe she did yoga and meditation right away. She also employed several other things, such as refusing to let fear control her and really developing a fearless consitution. She tackled it from every angle it seems!
I also saw on TV the other day, that if you want the benefits of juicing, but don't have a juicer, or feel it's too time-consuming, that you can do it another way. You can blend the ingredients, and then use a small strainer to pour the liquid into your glass. You will have juice, without the pulp, just like juicing. I've gone out and bought my strainer, and now will be looking for some great recipes.
By the way, if you don't have Kindle, guess what? You can download (for free) the kindle reader for your computer, and then buy the books for Kindle and it places it right on your computer. I don't know how I discovered that, but it's awesome, and I'm a maniac now buying all these $1.99 to $3.99 download. I think actually if you go through Amazon, they have it set up to where you can press a button next to the ebook, to download the Kindle to PC program, instead of having to go out to the internet to look for it. I'm thinking now that this is what I had done!
With our diagnosis, we all have hope and at times fear. I'm hoping this positive story to refer to will uplift you all!
Hugs,
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Ugh! But I did it ... and came right in to tell you ladies, and so far it is staying down!
)I put raw carrots in the blender. About 10 of those baby ones, and enough water to cover the blades, and threw in a piece of ginger. By the way, nobody told me ginger was a spice! I thought it was something else. *more surprises*. Then I placed the handheld strainer over my glass and poured the blended carrots into the glass, through the strainer. When done, I took a spoon and mashed the remaining pulp that was in the strainer to get out any more juice. Then I decided, no pain no gain and downed it without stopping. Okay! Now that it's over with, I can make a few recommendations:
1) Have a bite of something nearby, if you need to change the taste of it right after drinking. I didn't, I faithfully came right in here to update you ladies on how the strainer works.
2) Do this when you are kind of hungry, so that way you are readily looking forward to it.
3) Loved how it was so much quicker and easier, than waiting for carrots to steam and eating them, or the time it takes to chomp on a raw carrot.
4) I think you can sprinkle some cinnamon and a squirt of lemon juice to make it a bit more pallitable. But in a pinch, the carrot with a piece of ginger was tasty enough to get it down. The ginger unpowers the carrot flavor a bit.
I'm so happy with this new strainer technique, I highly encourage anyone who thinks that juicing is expensive and time-consuming to try the blender with strainer method!
I'll let you all know if I make any good veggie shots out of it. I might work my way up to a raw green one today. We'll wait first and make sure I don't have any undesirable effects from today's experiment!
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Thanks for sharing that Debra, I plan to try it out once I get my kitchen unpacked!
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OBXK ((((((((((((((((TEARS ))))))))))!!! I have no words right now.
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I have just scrolled down and read about Dawn. Does it ever get any easier! So full of life and courage...she is at peace
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Update: It has been a rough past month for me with all kinds of crap popping up here and there. Just when I thought it was all coming to a close after radiation. We are not sure if it is chemo related or not but they did find that I was having some A-fib beats and some V-Tach beats. Both of these can be VERY DANGEROUS and you don't always feel them.........HMMMMM try to stay calm they say. ... I am on medication but I am so sensitive to stuff we have had to lower it and may have to change it all together, but trying to wait until after radiation due to side-effects. I will be starting radiation later this month. Please pray for me because I am not sure I can make myself go everyday with this agoraphobia and now the crazy heart thing to add. I keep telling myself that Satan knows that this is my best thing and he is going to stop me one way or another. Please pray because I am just about to give up but yet hanging on. I do fear death and people keep telling me if I died I would not suffer anymore.......not really comforting to someone who fears it.I am so sorry to read about Dawn.........:(. Not that this matters in a whole, but does anyone know how old she was? Just curious.Una2008 I am sorry to read about your diagnoses and I hope you find the strength you need to go forward with a double whamy as well. Welcome to the groupDebra THANK YOU for posting that about the 10 yr survivor. I so needed to hear that with all that is going on...............Sucks.Juicing........I tried it a few times and one thing I can offer is please be careful as it will raise your blood sugar to fast (some people) I did a juice with beets, carrots, lemon and something else........I don't remember but I did like most and I drank it real fast and paid for it the rest of the evening and I had even made a second batch to try later and I threw it away that is how bad it made me feel. Just please be careful.I have not felt well so I am sure I have missed a bunch of stuff so forgive me if you posted something I did not respond too.
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FYI on Ginger: I learned the hard way. It is not good for people who have gallstones or gallbladder issues.
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I'm praying for you stupidboob.
Debra, thank you for that encouraging post. I bought a juicer before chemo but don't plan on using it until done w/ rads.
My last chemo is next Thursday. It's so hard to process everything that has happened in the last 5 months. -
group hug with stupidboob in the middle of us all. I am sorry that you are having such a rough time right now. People make such insensitive comments to be sure. I think Dawn was around 46 or so. Too young indeed. We all fear the what if. Sometimes it consumes me too. My regular MO check up is coming and I amm mentally a wreck about it. I am approaching 2 yrs next month.
Hang tough and be strong my warrior sisters
Maggie
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Dawn was an amazing lady! She will be greatly missed,my deepest sympathy to her husband,family and friends! Fly with the angels,Dawn!!!
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Hello, me again.
My very heartfelt sympathies on the loss of your friend and sister, Dawn.
I want to share a song that I used to sing a lot over the last 7-8 months since I was diagnosed. It's called Warrior!!, and was inspired actually by the subject of domestic violence, but I think the ravages of breast cancer make it equally suitable.
The only good recording I can find of it is here:
https://www.youtube.com/watch?v=Xl-fbGubfxw&feature=youtube_gdata_player
This is West Coast Harmony, a Sweet Adelines Chorus. Sweet Adelines International is a wonderful sisterhood of singers, of which I am proud and privileged to be a part!
If you want to skip direct to "Warrior!!" It starts at about 8.55 mins in. The song after that "Celebrate!!" is also one you might want to listen to, as you celebrate the life that was Dawn.
in love and harmony,
Rose xxx -
((group hug with Stupidboob in the middle))
I hadn't considered that about the blood sugar levels spiking from a quick shot of juice ... thank you! I will try to chill out a bit with the carrot shots, and also research a bit more to find out which ingredients affect that more than others, etc. If I find anything of value, I'll be sure to post back.
Friends, it's so hard when we lose a Sister that we are close to. If your emotions are on overdrive right now because of this fear, we should concentrate our energy on reconditioning our belief of a TNBC diagnosis, from one filled with anxiety to one that "we can and will survive TNBC". Many newly diagnosed members have been joining recently, and we have quite a few healthy long-term Sisters on here, we have some with an early recurrence and some with distant recurrence. But in general, we should all do our best to build each other up and look for something positive.
I think we should all go out to the internet sometime this week, and come back and post 1 positive article we found about TNBC. Our Ladies here need some positive words, positive encouragement and inspirational stories to look up to. In the wake of losing a beloved Sister, this is the optimal time when the survival stories, the new articles, new approaches to TNBC, new ways to tackle diet and nutrition need to be presented. This is the time that we are feeling our most vulnerable. Let's help each other.
I feel many of us are sinking emotionally at times, and while we support each other, we need to help each other through an emotional setback, challenge or just plain rut. We all get them, but it's how we respond that can really make a difference. We can learn from each other. We need to band together, find helpful information and instill techniques that all of us can use at any stage of breast cancer.
And StupidBoob, that is very insensitive that someone mentioned that to you (re: the comment about not suffering). Our surrounding environment plays a pivotal role in how we are able to manage our fears and emotions. If we are in an environment where people talk like that, it will ultimately play upon our fears and trigger fear-based emotions, which are destructive. If this were me, I would limit my contact with whoever said that, and if it's not possible, I would let them know exactly why that is not a very healthy remark to make, or at the very least I would let them know how terrible that remark made me feel. I do understand how people can say things to us without meaning to step on toes ... but I feel that one comment that was made to you was very insensitive and exceeds the threshhold of what I would put up with, without saying something in return.
Have a great day and hugs to all!
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Great idea about posting a positive article about tnbc! I will definitely look into the lit.
Hugs,
Peggy -
I will do it also! I had several saved articles on my last browser on my former computer, and I thought I saved it in an e-mail as a backup. I will go through my e-mail account and locate them.
At the moment, I'm posting the title of a book I just downloaded a few minutes ago from Amazon. It explains (in form I can understand) what vitamins do to help the cells, which one does what at which time, what foods to eat, and a whole chapter on foods and cancer prevention, etc. I just scrolled through the book, but so far looks excellent and had great reviews on Amazon! I used the "download kindle for pc" option, and was able to read it on my computer, even though I don't have a kindle.
Here is the book:
Food for Life: How the New Four Food Groups Can Save Your Life
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Just checking in to see how all of you ladies are doing. So very sorry to hear of Inmate's passing.
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Saddened by the news of Inmate/Dawn's death. A lovely lady, full of hope, good spirits and compassion for all her friends here at BCO.
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Stupidboob the radiation machine will hopefully not affect your agoraphobia as it comes up to the side of you that the BC is on and just in front and then on an angle, not in a tunnel. The longest time it will be in front of you is about 25-30 seconds at the most. If your BC is on the left they will do everything possible to miss your heart and your lungs thats why they do all the simulation numbers. They can hear everything you say and do and will be with you in a jiffy if you need them. All you have to do is keep still. These radiologists do know what they are doing and you will be just fine.
Inspired sorry but |I cannot think of one positive thing to say about TNBC. I reckon it sux big time.
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ALHusband - thank you for sharing that link! I watched it and have always respected how much time and energy Patricia Prijatel devotes towards helping us. She is a gem. By the way, you can e-mail her even. I e-mailed her a few months ago with a question, and she responded within only a few hours!
Back to my experimentation with ginger. It doesn't take much to do it's thing, does it? I put a little chunk in my kale and blueberry blended drink, and it sure did change the taste dramatically. I can't say it was for the better either. I think I used too much.
Have a great day everyone!
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*slides in sideways........literally......with a few Margueritas under her belt. Cuddles up next to Cocker*. I understand, my dear friend! *Smooches Annie*
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Right on Annie! Love you, Jan
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I knew inside my heart why I was dodging the site for a couple days, this was the reason. Can't stop crying! I will miss you Inmate! You must be with the Lord, in bliss. Love you always!
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Have any of you had blurred vision from the chemo? I have noted that some people said they did on another blog.
http://www.youtube.com/watch?v=CdNfJj2rrog
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