Calling all TNs

SherylB

DorMac,

Thank you so much for putting a smile on my face first thing this am. I love the story, revenge as they say is a dish better served cold.

Sheryl

SherylB

minxie,

I am so sorry, I wish I was close to you I would help you out as one wounded warrior for another. I don't have kids but I have watched my siblings deal with lice on their kids.

Hang tough, Sheryl

kathyrnn

Cocker - very close, but picture the right one being 2 sizes smaller than her sister. ;-)



Dormac - I've put your Bible reading of the day all over the place!

liv-

cocker  - i wish

xx

Cocker_Spaniel

Liv I wish too.

Titan meant to say to you on my last post but pressed send instead  we have a holiday this Monday so we have a  nice long weekend and lovely weather.  So will be thinking of you every minute whilst you are working on Monday, yea right!  Might even go for a 5 mile run !!!!

DorMac

I had my first post-chemo haircut last week - she cut off about 1/2 an inch. It grew in white (no more haircolouring for me) but curly - never had a curl or wave in my life - now I look like a poodle ;-)

Titan

Cocker...how did you get that pic of me???

You go girl!   You can run 5k..I know it!

5thSib

My first Taxol treatment went pretty well today. I don't feel anywhere near as bad as I did on the day of my AC treatments, so feeling hopeful. I slept most of the afternoon after I got home from the Benadryl. They did have to pause the treatment at one point for about 15 minutes because I started feeling some tingling in my arms and my BP went up. They gave me more Benadryl and then continued the treatment. It went fine after that.

DorMac -- I've read your hair will eventually get back to your original texture. I've been turning gray since 20's and coloring it. I'm sure it's going to be all or mostly gray when it comes back in. I'm thinking I'll just leave it and not worry about coloring. I'm 55 and was beginning to wonder how I was going to stop coloring, so this took care of it for me.

MonikaV

Hi Lauren15- sorry just now i saw your post. As OBxk explained ... my doctor said they considered remission until you pass the 5 year mark . I am BRCA positive .  At first i saw my doctor every 2 months, then every 3 months and now every 6 months. I feel well and honestly love my new boobs better than my original ones I think my doc did an incredible job . I had a NSM (Nipple sparing mastectomy) and eventhough I do not feel the nipples ... they react to cold or touch .... Have you had your surgery yet? 

minxie

Ah, just got my drain out today. That's much better! PS is saying everything is looking great, much better than he expected after radiation and everything else this boob has been through.



My scalp is SORE. I have slathered it in everything, combed it over and over, and I still keep finding nits. I'm considering hiring a professional nitpicker ( yes they do exist) because I am in no shape to keep doing this . Lice have just topped yellow jackets as my most hated insect!

Cocker_Spaniel

Vaseline

A man doing market research for the Vaseline Company knocked at the door and was greeted by a young woman with three small children running around at her feet. "I'm doing some research for Vaseline. Have you ever used the product?" She said, "Yes. My husband and I use it all the time." ... "If you don't mind my asking," he said, "what do you use it for?" "We use it for sex," she said.

The researcher was a little taken aback. "Usually people lie to me and say they use it on a child's bicycle chain or to help with a gate hinge. But, in fact, I know that most people do use it for sex. I admire you for your honesty. Since you've been so frank so far, can you tell me exactly HOW you use it for sex?"

The woman said, "I don't mind telling you at all. My husband and I put it on the doorknob and it keeps the kids out."

Luah

minxie: glad to hear the drain's gone - what a relief. I think hiring a professional nit-picker is an awesome idea. You really don't need to be picking nits on top of everything!

Tazzy

Cocker:   ha ha ha ha !!

QueenKong

Oh my the lice! I feel so bad for you. Lice suck!!! literally. 

I've had to deal with them twice in the past with both my own and my daughter's long hair and we survived. I found the best thing was to use a ton of cheap conditioner on the hair and comb it out once a day for several days using a lice comb. You've also got to to find the source. Both times my daughter's locker mates in pre-school had them before she did and I only found out when I called the parents. No one notified me, so annoying. I also used a combination of oils after the conditioner and a plastic cap at night to kill everything. I wanted to do it totally natural with no chemicals. It worked but was tedious. I sprayed around the tea tree rosemary oil on couches and things like that too. Such a pain in the ass when you need to rest! 

Both tea tree and rosemary are deterents I use those in her hair now on school days. 

YOu don't have to wash everything, a long hot ride in the dryer will kill off much. 

If you lived nearby I'd come and comb out your hair! A really good magnifying glass helps with these things too. Oh good luck. 

I'm so upset thinking about the lice, I completely forgot anything I was going to write about the TN. 

Lovelyface

Hello everyone!  I am sorry I have not posted for a while.  I was on vacation in December and just came back on Jan. 16th, however, prior to that, I was lazy and kind of drifted away.  Anyway, I am happy to find many of you and even read somewhere that Inmate had posted on facebook.  How nice that she is doing well.  I just had a blood test done for tumor markers and thank God all the tumor markers are really low.  I am seeing the Onc. next week for my 3 monthly appointment.  So far so good, ladies.  My left breast would never let me totally forget this experience because of its appearance, and that is a good thing.  I would never want to forget this experience as long as I live.  But I want to tell the newcomers that life does become normal and you do start to live again.  For me, psychologically something is not right, as I think I am denying that this happened to me and I try not to think about it.  I try to even move my appointment dates so that I can avoid dealing with it, which is not a good thing.  I canceled my Oncologist appointment before leaving for vacation in December, as I just did not want to deal with it. I decided I will deal with a mammogram and blood tests when I get back from my glorious vacation in Fiji, and that is exactly what I did.  I am acting this way, maybe because I have convinced myself that this is not going to happen to me ever again and I totally believe in this conviction 100%.  Is anyone else dealing with this like me?

I was diag. in July 2010, finished all my treatments on March 31, 2011.  Counting from July, 2010, I am 2 years 6 months out.  If I count from the treatment finish date, then I am 1 year 10 months out.  I know I am still very much in the danger zone.  My Onco. had told me that 1 year 9 months is a dangerous time, that's when it strikes the second time.  Love to all you courageous, lovely ladies.  You all and I have walked together in this lifetime and share very deep feelings and very scary emotions together.

QueenKong

Good to hear from you LovelyFace, I can understand wanting to go to Fiji and forget about it all. Letting your mind and body be at peace without the TN in the forefront could only be healthy. Don't be hard on yourself. Be healthy in mind, body & spirit I want to hear more about Fiji trip. I need a place to fantasize about goingto once I am more out of treatment. It's a tough Winter.

I would say work on the exrecise & all those good things they sat stave off the reoccurance as best you can. One day at a time.

Loafer

Great to hear your story Lovelace! I think we would all put off an appointment to go to Fiji!! Living vicariously through you! Hugs!

Lovelyface

Fiji - Oh! I love you!  I feel like I just came back from paradise.  We stayed at a 2-star hotel for a week as the beach there was mostly untouched by humans, just as it was when I was there.  It is my motherland.

SherylB

Hi all, reading and listening to TV video/music and heard this song. While I already enjoyed the song I hadn't really heard the lyrics until this am. Hope it brings you positive feelings and peace as it did me.

Phillip Phillips was the American Idol 11 season winner and these are the lyrics for his song “Home”

I felt it said what we are feeling so clearly.

Hold on, to me as we go
As we roll down this unfamiliar road
And although this wave is stringing us along
Just know you’re not alone
Cause I’m going to make this place your home

Settle down, it'll all be clear
Don't pay no mind to the demons
They fill you with fear
The trouble it might drag you down
If you get lost, you can always be found

Just know you’re not alone
Cause I’m going to make this place your home

Settle down, it'll all be clear
Don't pay no mind to the demons
They fill you with fear
The trouble it might drag you down
If you get lost, you can always be found

Just know you’re not alone
Cause I’m going to make this place your home

Hang tough, Sheryl

purple32

RE: BREAST BLEND

http://www.dreliaz.org/recommended-product/for-breast-cancer/

Just an FYI for TN.
It is being touted for use for triple negatives ( FEB 2013 Prevention mag) as a Medical breakthrough.

Claims that it supresses Triple Negative cancer and also reduces spread to lungs by 70%. I know it contains DIM, as well as other ingredients.

Pls do your own careful/thorough research.

Hope this helps someone !

netty46

minxie my drain was horrible it was pressing on my rib.  That was my only pain not even the breast hurt but they placed that thing in a bad spot and it pressed on my rib.  Horrible

Titan

Hey Lovelyface!  so good to hear from you and that you are doing well....agree 100% to postpone your dr visits until you come back from vacation....

January 19 was my 4th year anniversary of finding the f''ng lump...ya know..I did think it about it some..but then I just forgot about it...my daughter has had some health concerns..nothing major but I feel so bad that she freaks out about what is probably nothing because of ME!  I hate that....she had a lump in her jaw area which turned out to be a lipoma...now she has the flu....plus she had a sinus infection and with the antiobitics got a yeast infection...one thing after another..poor kid...

Minxie..woo hoo on getting out the drain.

Thanks purple on the info...I still don't take curcurmin...but I'm thinking about it.

And to the rest of you..have a good week...January almost over...enough of the snow and cold already

Lauren15

Hi all, I'm still in the hospital since Saturday, and I think they will keep me here for a while.  I think they will take the port out.  Ive been holding a 102 fever (without tylenol).  I'm scared shit though, I am short of breath, and they did labs on me and think I may have a blood clot causing it.  I'm getting another CT scan soon.  Of course I googled it, and it's so scary, especially for cancer patients.  I'm going to try to find another group that may know more, when is the bad news going to stop!  If anyone knows anything about this, please let me know.

minxie

Down to 2 nits yesterday, progress...

Did I tell you guys about my cruise? I've put 1/4 of my 401 K into a Roth so I can take from it without penalty, just taxes. I booked a polar exploration cruise for my oldest son and I this summer. I've always wanted to visit the Arctic, and since I'm not sure if I'm making it to retirement, why not have fun now? It should be pretty amazing. Fiji does sound nice though, Lovelyface!

Cocker_Spaniel

Minxie been waiting for this news for ages.   I am so glad you are doing something just for you. Forget everything and just enjoy.

Lovelyface was wondering where you were.  Just living it up in Fiji you lucky girl.  Glad everything is going well for you. Nobody could think of appointments while you are in Fiji,   so glad you put it on one side  and had a great relaxing time.

Titan four years, yay but sorry to hear about your girl being poorly.  And so glad the lump was a lipoma.  Great news.

Its so hot here all we feel like doing is lazing around and drinking lots but gotta bath my little Chloe so she looks beautiful again cause she dug a big hole, probably to bury everything she steals!! 

Got an appointment tomorrow with my breast surgeon and due for my poor defunct port removal on the 5th. So nice to have something to look forward to!! 

Have a good day lady and those with snow, don't get too cold. Annie

Titan

Hallelujah on getting that port out Annie...that is awesome! 

NavyMom

(((Lauren)))  I did not know you were having such troubles.  Will hold a good thought for you to get past this quickly.

Nice to see you again Lovelyface.  I am liking your style, Minxie.

Good Morning and hello to all of you!  I am feeling happy today.  Finally skyped with Navyson after 17 days of no communication.  He has been working anywhere from 14 to 20 hour days.  His comment was that there is alot going on all over the world that needs military monitoring.   OH GEEZ.  Anyway, He is Tired but OK and just doing his "job"  

Love that kid. 

Hugs to all of you.

Luah

Titan: Big congrats on the 4 years!

liv-

beach walking for over an hour, deluxe.

lauren how are you going?

bak94

Hi everyone! Good to "see" you lovelyface, glad you are able to get out of cancerland.

Minxie-good for you! Go have fun.

Titan-Congrats on 4 years!!!! You are truly an inspiration, with all your running, keeping at it!

CS-I know it was posted awhile back but that photo made me miss my boobs! Not that mine ever looked like that:) I wasa told I could do reconstruction a year after radiation and that time is coming up but I just do not feel ready to go through a major surgery. My hysterectomy knocked me down quite a bit.

I am having mental issues:) I can't seem to book my appointment with my oncologist. I am due for Zometa and an exam. I know he will want to scan me and I just don't want the anxiety. Has anyone told their onc that they won't do a scan? Mine seems to like to scan way more than I want to. I understand his thinking, but it is just too much for me emotionally. I still have my port, how long can you keep it? Doesn't really bother me, but does make the skin a bit sensitive where it protrudes. 

I also have other issues, like really not taking anything seriously. It makes my hubby mad! I don't do what I don't want to do anymore, and sometimes that means a messy house and laziness. I am thinking I need a dose reduction in anti depressant, as I just don't care enough about certain things! I had an accounting exam the other day and it got too difficult, I still had an hour left to finish it and I just quit, turned it in and didn't really care. Anybody else feel like this after treatment?

Hi Navymom!

Lauren, it does sound scary, but it is good you are being looked over, as they can treat it. I hope you are feeling better and found more information.

Ugg, drains!!! Mine were terrible and I had to have them reinseted two more times after surgery! Drains may be the reason I decide not to have teconstruction!