Calling all TNs
Comments
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HEIDI!!!How the h*ll are you? Glad to hear you are not thinking of f*cking cancer much! Good for you.
My heart goes out to those of you that are having scares and scan anxiety right now. It is so tough. I know years ago when I had bc the first time and had a lumpectomy I felt all kinds of lumps and bumps, especially along the scar line. It always turned out to be nothing. As far as ports, I still have mine and my last chemo was October. I actually like having it for blood draws and my once every 3 month zometa infusion. Anyone else getting zometa? I can't believe I am coming up on a year since I finished chemo! Why haven't I gotten my energy back?
I had a stress test, ekg and echo today. Anyone else have a stress test before? Wow, I was surprised how tough it was for me! The treadmill they have you walk on goes steep! I did not last very long. I had to do it because I am participating in a clinical trial where you have to exercise at least 3 times a week to see if it cuts recurrence down. For me, being forced to exercise is a good thing! I hope I passed the test! I have been having hip pain that I am trying to ignore, as it scares the crap out of me. I have had it off and on for years, but it doesn't seem to be going away this time:( I had a ct scan, would that show spine stuff and hip stuff? I know they did my pelvis area.
We are having crazy nice weather in Seattle. It is perfect! Sunny and not too hot. I hope you are getting a chance to enjoy it Inmate! I know how you love your garden. Those rads better be taking the pain away for you.
Happy end of summer to everyone! I love this time of year.
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Hey Heidi: Nice to hear from you. Glad things are going well for you.
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Morning ladies,
There is a lady on the Canadian thread and her tag line is 'FOKTOBER'
I have my date for rads... October 4, Mon-Fri for 5 weeks, so will spend the next couple of weeks enjoying feeling pretty darn good.
Sending everyone hugs and love and sunshine for their day.
And I agree Bak... this is the best time of year.
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Bak, since I was 1% progesterone positive, doc advised I take zometa with aridimex. I absolutely could not tolerate aridimex, so stopped it after 3 months. I did take one zometa and then stopped. It was supposed to be taken every 6 months. Are you taking it every 6 months as well? Don't worry about the energy - After Rads, I remember each day after work, I was lying on the couch, thinking the stuff was back, its got to be that. But it is just part of the process. There will be one day very soon when you will feel normal again, believe me, if I can say this, then anyone can. I never thought I would get out of that lethargy situation. I did go through lots and lots of checkups and doctor visits, to clear one thing after another. After the cancer diagnosis, the chemo, the rads, then came the lethargy, hair thinning - diagnosed with a thyroid nodule, did some biopsies, and then came the eye pain, now am diagnosed with an eye condition. It is one thing after another, non-stop, the down trend. But I can handle the nodule and the eye pain - just can't ever go through that other crap again.
Got my blood tests done for tumor markers yesterday - get my results tonight after work. I honestly am so numb from fear getting those results that I become like a piece of stone or something, without any emotions. Bak that clinical trial sounds great, you get the benefit of the exercise, as well as first hand results of their findings. Good luck with your hip pain - maybe it is the zometa, since it works on your bones. Hope everything checks out just fine.
Love to all you lovely ladies today.
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Hang in there Lory. Today a little better but my brother baked me a pumpkin spice cake. LoL WW points are out the house!! LoL Like everyone else in here, I JUST WANT A BREAK & I am sure I will have to learn how to breath again, how bout you?
I felt some lumps back too but they disappeared~No pink for me !! I pray mine is psychological. LoL ~~ I pray yours is good too. When are your tests? Prayers
Well not worrying about what I eat today and I sure haven't walked today either. Lazy Daisy Today!! Back on it tomorrow and I am pretty sure I will be buying some yogurt tonight at the grocery store ksmatthews, can't give up everything!!
Prayers
Karen
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Inmate, been thinking about you lots. Hope the treatments are going well, check in when you can.
I went and saw my therapist for the first time in almost a year yesterday. I've been seeing the psych for my meds, but I don't really talk to them. Well my poor therapist had a lot to catch up on in my disastrous life! I saw her because I'm OK during the day, but my nightly nighmares have become unbearably grotesque and disturbing. They even seemed to freak her out a bit when I described them. She didn't have much help to offer, but it was good to dump out all the mess of the last few months on a listening ear. And... she thinks I'm on too many drugs, and is concerned about the opiates. They'll have to pry them out of my cold dead hands, there's no way I'm giving up my pain meds!
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Hi Minxie
I'm afraid if I see a therapist, she will quit her profession. haha I bet it is nice to talk to someone though!!Inmate haven't met you yet but PRAYERS!! Sounds like you are definitely the survivor in the group!!
Minxie PRAYERS for your nightmares.
Karen
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Hang in there BAK, I started walking again, for a while after rad I was tired all the time and was afraid that I would fall on the treadmill. LoL
I really appreciate you sharing. I actually feel great but late at night when I TRY to sleep, everything goes thru my mind and next thing you know I am crying and panicking. I am just happy I am not the only one. Well NOT HAPPY because don't wish this on anyone!! But releived I am not the only one. Thanks a bunch for sharing
Karen
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EnglishRose, how did your exam go today?
Lovelyface, how about your results?
Fingers crossed everyone will get clean reports. I have a strong feeling that all will be well! -
Ugh. What is wrong with me? I had a sweating episode at work today like u wouldnt believe and it sent me into an anxiety attack with crying involved. I called my doc and spoke with a nurse. I guess i am not tolerating tamoxifen well at all. That is drug number 2. I just really wonder how much good it does with my 3% er anyways. I also wonder if the flashes and sweating will go away if i quit tamox. And then i am having hyster. next month. Errrrggg. I am tired of all this crap and really i should be thankful. Thanks for listening.
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bak94 I had my worse hot flash ever today while I was in the docs office and let me tell you I look terrible when I have one because I get these big red splotches every where and the sweat just runs. Therefore, she put me on chlonidine and said it should help. I hope so
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Just couldn't resist this ladies
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Bak - I was ER+ for the first go round. I took tamoxifen for 1 year. I thought I was going to die, I felt so badly. So I stopped taking it for 30 days. I felt 90% better in 3 days. Started it again felt miserable in 2 days. I told my onco, I needed QOL! And stopped taking it.
Hope you can find one that works for you! -
Good one Cocker!
Crap on the hot flashes..nasty stuff...my DD told me I was a bitch during chemo...well of course...I went through menopause AND chemo at the same time...it's a good thing I didn't kill anyone...
Now I'm just an old bitchy lady and loving it
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I'm going through Chemo and Menopause at the same time. Hot flashes are horrible, especially at night...... Sleepy Time hot tea at bedtime and a room air conditioner helps me a lot. We keep the house at 76, but I turn the bedroom unit down to 68 at night. Even my Akitas get chilled :-).
BTW - whoever in my earlier days recommended Watermelon to snack on shhould get a gold star. I too have eaten my weight in Watermelon this year and it's kept me cool, easy on the gums/stomach and helped with hydration! Thank you, whoever it was. BTW, I get the Chemo Brain thing now...... 14 weeks later, I can speak to it!
Hugs to all! -
Hi Ladies !! Officially dxed last week with IDC and DCIS, 3cm, stage IIA, T2 NO MO, in left breast, just found out today I am triple negative too. Enough already !!! Am I reading all these posts right,,reoccurance is higher if you are TN ??? Had just called my BS yesterday and told her I wanted bilateral mastectomy and immediate reconstruction, followed by chemo.Waiting now for appt with PS and hoping I have made the right decision for myself
. Can't believe how much my life has changed in 3 1/2 weeks !!! Any advice would be appreciated. Prayers to all.Pam
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Nanatwo6- You came to the right place for support, guidance, friendship and comfort. I can offer advise on getting through the chemo part since I am now 14 weeks in to treatment. I have also learned that Oncologosts have different treatment strategies, so use this board as a source of information, but run everything past your own medical team.
Recommendations:
-Hydrate. Drink a gallon of fluids every day
-Watermelon is a great snack food. Cold, hydrates, easy on gums
-Take the Nausia meds as instructed
-Soft children's toothbrush
-Biotene toothpaste and mouthwash
-High protein diet to rebuild tissue
-Redi wear eyelashes (already have glue strip)
-Shave head as soon as hair starts falling out. Usually 2 weeks after first treatment
-All natural soaps and body lotions
-Get beanies, wraps, wigs, etc... In advance. Don't over buy...
-Night caps will help with the discomfort while your hair is falling out (it hurts!)
-Snacks for in between meals. Crackers were good for me
-Sunglasses when going outside. Sensativity to the sun
-Laugh often, love deeply and live a full life through this. Do not let it consume you...
Hope some of this helps. Huge hugs, and sorry you are here.
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Someone asked me today: "why do you grasp onto the postive bits? That' s the part the make you go WWWWWWWWEEEEEEEEEEEEEEEEEeeeeeeeeeeeeeeeeeeeeeeeeee!!!!!!!!!!!!. Ladies I think I have seriously lost it. I find myself puttin more an more stuff on. I know Whashington is the layering state, but it's still in the 80's here! We're talking patterns, styles, era, metals, plasctics,music genres. I will no longer wait for that specil occassion to pull out the thing wih eyes, from grandma. Must post pictures.
Love and layering to you all!
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xoxo Inmate. Oh what a silly question! Looking forward to the pics, especially the grandma eyes.
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Yep Inmate I think you have lost it lol. Not sure what the heck you are talking about - grandma's eyes!! but so glad you are still upbeat and giving everything a go just as you always do.
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Brilliant inmate.
Love the joke cocker - have to steal it.
Bak - same issues with the hip - had x ray in july - shows An Avulsion Fracture - whereby a piece of bone is misplced and stuch elsewhere. No idea how or when it happened, Dr says maybe a fall when i was younger. Too late to treat.
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Lovelyfae......come live with me. I'll share my woderful Dr K and Dr LEE with you wenever you wanr. My husbnad has turned out to be the most handy medcial Cinderfella as well as just aroud the house. Hmmmmmm, who know? Anywho, we have room and fresh sheets and lots of flowes, still.
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Alright Ladies,
Not Grandma's eyes, per se, but she sen me two fox stoles some time back. One actully bites the tail of the other to stay fashioned around your neck.The best part is the eyes. they were replaced my these hand made sewn on ones. Kinda creepy. I also have a monkey fur coat. Sheesh! no faes, claws or oher grossness.
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Inmate-Please post pictures! Monkey fur coat? Fox eyes? That is kinda creepy!!! I am not much into wearing animal parts:) Well, other than the occasional leather on my feet. Right now I would go around naked if I could! Clothing is just much too annoying and hot! For a long while I would not eat anything that once had eyes! Now I find myself not following that anymore, just can't think about it too much.
My lil doggie has been so needy lately. I think he misses the days during chemo where I spent hours, days, on the sofa. His favorite spot is next to me under a blankie.
Bernie-That sounds painful! With all the scans they have done on me in the past they have not mentioned anything wrong with my hip or back.
Any news lovelyface? Good tumor markers I hope! Mine seem to bounce around a bit and it worries me. The last one was at 34 and that is higher than it has been for awhile. Doc said not to worry, yeah right.
Could you just imagine me going to my boss and putting in my 2 week notice saying the reason is hot flashes!? I am so about ready to do this. I only work 2 days a week and I am miserable every minute that I am there. I am sure my coworkers are tired of seeing sweat dripping down my face and listening to me whine, because let me tell you, I have been the biggest whiner I know! It is so all consuming. I wasn't this whiny when I was on chemo! Maybe it is the hormones making me whiny also, well, at least I will blame that. Plus my mental breakdown at work yesterday.
Add me to the list of those losing it!
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(((Inmate)))- it's so great to see you post, although from the time of night I'm guessing you are probably on steroids with the brain rads and not getting much rest. Can you tell us how you're doing? You obviously have not lost your sense of humor
Seriously, I think of you every time I come to this thread and I check to see if you've been seen here on BCO. In other words, I'm stalking you!!! Seriously hoping that the rads are going ok and that they shrink those mets into oblivion. -
Inmate: Lovely to see you posting; always brings a smile to me.
Minxie: I had terribly vivid dreams/weird sensations when I took pain meds (not for long). And I don't think it was a coincidence.
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Inmate- So glad you came in and gave us the usual chuckles for the day.. I am with LUV, I too am stalking you..lol Keep us posted girl. Oh and another thing, my hubby is the best cinderfella ever.. maybe we should start a competition category for the next olympics!!
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Hi everyone, I've been off tied up with Mom in the hospital. I've finally got her home, but she's regressed a bit both mentally and physically so I've been busy.
Inmate - come back and I'm crying already! Just plain fuck!!! I'll keep praying, but I'm getting a bit ticked off with God! I remember those fox stoles, my grandmother had one. Keep fighting my warrior friend.
Born - Yoga? *runs off in fear*. There is a reason it's a 4 letter word!!!!
Tazzy - enjoy your freedom!!
Titan - *claps thighs*. You're "family" here is in awe and sending tons of support
Hope - glad to hear you're doing OK, and hoping the rads did their job.
Cocker - so sorry about your friend. After all she's been thru, there damn better be a heaven!!
Lory - glad you complained, she's a newbie that need some teaching from her co-workers. Young nurses need lessons in telling patients what they need to know, not all the information the nurse knows.
Bak - just be careful with the plums, lol. My friends dog
got drunk as shit eating rotten apples from her orchard!
Jazzy - I agree we aren't often given adequate info and sadly can't depend on our MO's. I asked my MO the vitamin question and told "no problem", to then go off to chemo, and have the nurse bring a pharmacist up to explain to me all the vitamins I had to take, and those I had to avoid.
DesertMama - glad the news was good, and you were entitled to a fit of the screaming memeeees.
EnglishRose - welcome and glad the group has been helpful to you.
Heidi - good to see you and I want
one of those T-shirts.
KareyBeth - if it's any reassurance I had and still have sharp pains in my breast and had a clear mammo. Also, I still take Ativan at bedtime, to shut my damn brain off.
Lovely - hope your markers come back perfect
Minxie - glad you found a supportive ear. I'm thinking of looking for a counselor.
Welcome NanaTwo
Bak - whine away, you have the right.
Luv - how's your treatment going.
Last couple weeks I've been trying to do the denial, head in sand trick. My MO appt is on the 28th. I have been concerned because I've been so tired lately, but realized that stress and depression could be causing that. I saw my primary, and found out I had lost 8 pounds without trying. (last time my fat ass lost weight was before my diagnosis). My PCP, doesn't agree with my MO's theory of no scans without symptoms school of thought. Wants scans approx every year no matter what. What we settled on is he has put orders for scans, that I am to schedule if my MO doesn't. Been 2 weeks and I'm down another 4 or 5 pounds (and eating like a pig). I'll admit I'm scared right now. Keep reminding myself, "it's in God's hands. I'm just really ticked at the thought of another round of chemo. I don't know if I could do it AND continue to give Mom the care she needs. So pray that some miracle angel just decided to let me be skinnier, lol -
DesertMama- The oncology nurses looked at it when I went in for chemo today and said that they weren't sure but that it's probably scar tissue or cording. Slightly reassuring, but I kind of want some more definitive answers! They told me to raise it with the oncologist when I see him next week, so I'm going to try really, really, really hard not to let myself get in to a state about it. Not sure how well I'll do on this during those 2 a.m. worry about everything moments! Did you speak to your surgeon yet?
Smelling like a toxic waste dump today after round three of FEC. Having the lovely red pee Epirubicin experience too. Nice...Just thought I'd share that with everyone!
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Thanks Kathy, I am sure I am really stressing. Much better today. Bought a bunch of notebooks at wallyworld and am starting my Journals back up and got on 2 exercise machines today and cleaned the whole house and did laundryies and decided to do some early Halloween decorating and got a REALLY reassuing call from my sister today and from someone who is tryng to help me out!!
Sorrry for And-ing everyone to death. You know how you would keep a kid active all day so they would sleep real good at night, well I am trying that on me. haha ALL CRIED OUT for now and am on what my sister says is BE A B*&CH ALREADY!!
Sooooooooo I am thinking positive and keeping my mind busy. Prayers for a early nights sleep too!!
Inmate can't wait for the pics. I don't know how to post pics in here. Someone wanna help. Tried yesterday and it didn't work. LoL
BBL
Prayers
Karen
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