Calling all TNs

Ka-cey

Hello ladies, I don't post very often, but I do read everyday to see how everyone is doing. 

Dawn - sweetheart, keep fighting and please know that healing vibes are being sent your way. 

Titan, I don't know if I have ever thanked you for starting this thread, and, now thank you for inspiring me to get my rump out of bed and dust off the runners and hit the path for a run, (I may curse you later on when the aches and pains kick in).

Ladies, you are all in my thoughts everyday.   

   

bak94

My good things for today:

My animals are being crazy today! I let the chickens out and they ran over to my neighbors yard and started walking in a line like cops in crime scene investigation, they were looking for bugs. It was too funny.

Then my goats jumped the fence to go to my neighbors to pick up the plums that have dropped from the tree. Neighbor says he doesn't mind, less cleanup for him.

My dogs are acting like puppies, running around in fast circles. They all must know summer is coming to an end and want to enjoy every last minute of the nice weather.

Thinking of everyone, it has been slow on this thread.

Dawn-I am hoping the rads are offering some relief for you and knocking those tumors into oblivion.

Hope-Thinking of you.

OBXK

Bak - I love your day!

BernieEllen

Just home from a brilliant weekend at my Uncles 80th Birthday Party.

Had a smashing time - well my nose and cheekbone did.

mitymuffin

Inmate, You are wonderful and beautiful lady. I'm sending love and wrapping arms around you. 

xxxxx

Was sent to this thread from another thread. I am a little over a week from getting all my tests from all my treatments and the painic, tears and sleepless nights are back agian!!

Inmate I know I am new but BIG OLE PRAYERS going up. Once in a lifetime is enough!!!! AND ENOUGH ALREADY is being screamed right here and now. Being new to this board, I do not know how to pm on here yet but I fb a lot  As for me I usually figure things out sooner or later. LATELY later has been more of me than sooner

Lory48 you already answered one of my questions. DA PORT!! I sware I hate mine and I hate getting it flushed but that should be the least of my worries. Had someone tell me she has had hers for 7 years and I panicked without thinking DUH she must have been going through a lot more herself. Cancer does S-U-C-K!! bigtime!! So I am just going to nickname mine and be grateful they have progressed from when all my mothers veins collasped from her treatments and cancer. BE GRATEFUL....BE GRATEFUL....BE GRATEFUL....

PRAYERS to EVERYONE!!

TifJ

Welcome Kareybeth. To PM someone, just click on their name and their profile will come up and there is a box that says, send member a private message.

Reality

Bak - love the animal escapades - especially the chickens - too funny. thanks

xxxxx

Thanks a bunch

Karen

JazzyJ

Hi Ladies - Need some input please. When starting Chemo, my MO said that there were no diet restrictions and to eat whatever I wanted to including my daily high protein and vitamin packed smoothies. I read on a blog yesterday that Vitamins and other suppliments may have a negative impact on Chemo treatment. Did your MO's tell you to stop taking Vitamins during treatment? I'm freaking out now wondering if I trashed 4 months worth of challenging treatment......

borntosurvive

Welcome Karen.  Sorry about your diagnosis but you will find nothing but love and support here on our TN site. 

JazzyJ: The only vitamin my MO told me to avoid was vitamin C in supplement form - in food form was fine.  She also said not to take any antioxidant supplements but other then that I was good to go.  I ran EVERYTHING by the pharmacist in the chemo suite and he was amazing and knew what affected what.  Most to all supplements I asked about were totally fine.  

JazzyJ

Thanks Bornto..... CoQ10 is one of the antioxidants that I've been taking. Will stop now, but really worried about the impact of the last 4 months of a vitamin packed diet. Shouldn't they tell us these things?! Like this cr@p isn't hard enough on us!

rachelvk

JazzyJ - Just run them by your MO. Regular multi-vitamins should be okay, and I was okay taking B complex and vitamin d (which is supposed to be important for TNs), but other supplements might have an impact. I think I saw even Iron supplements might interact, but it all depends on which cocktail you have.

The only other dietary restriction I had was no raw fruits or vegetables that couldn't be peeled because of the possibility of contamination. I spent my chemo time craving salad, which is a good thing because now I'm making up for it. I wasn't a big salad person in the past, so that's been good for my diet.

Kareybeth - I hated my port (and now that it's out, the site still irritates me and I have this bump where the button was; hoping it's just all scar tissue that I'm trying to work out), but you're right on about protecting your veins. That's a big silver lining. Mine came out a few months after I finished treatment. I'm praying I never need it again. 

Titan

Jazzy  I didn't take any supplements at all during chemo...but those were additional supplemnents...my onc never said I couldn't EAT good stuff...the only problem I had that good stuff didn't appeal to me at all....now I take all kinds of supplements...

Ka-cey..good for you!  and you can cuss at me any time....remember that those muscle aches are a GOOD pain...lol....

My 5k in Amish country was cool..we ran on this trail ..there were Amish buggies going by us and I had to watch for road apples.my time was 29 min..which is excellent for me...I was thrilled...haven't gone below 30 min so it was cool

Hugs to you Inmate....you are probably having more treatments this week...our arms are wrapped around you girl..you know it.

LuvRVing

Welcome, Karen!  I have to say I loved my port.  It was little, never bothered me and always worked.  I should have heeded the advice of my surgeon to leave it in, but I had a clean scan in October and so I had it removed.  Another one is in my future, I am sure.  

Jazzy - during  DD AC/T chemo I took a prenatal vitamin for the extra iron and folic acid, 3000 mg Vit D, Calcium, some Vit B6, Acetyl L-Carnitine, L-Glutamine, generic pepcid and generic prilosec.  I am being treated by Dana Farber oncologists and I had no restrictions except for Vitamin C.  I was told I could eat anything, including fresh/raw fruits and veggies, unless I became seriously neutropenic.  I had a neulasta shot after every treatment, so that never happened.  Different oncologists have different opinions about all this stuff. 

browerl

I always took vitamins (multi, b12, c, glocosomine and fish oil) however, when I went to my onco she said stop all of them because they could interfere with treatment.  On days when my energy is running low I would love to take my b12.

Luah

I took miltivitamin and vitamin D (calcium too I think) and my onc had no problem with those. It's all pretty moderate, she said, no worries. The only food thing that gave me a scare was something I read on the Internet about grapefruit and taxol - but they checked it out at my cancer centre and said not to worry about that either. You can drive yourself crazy! In my experience, food sources are usually considered okay by docs, but double-check with your MO to put your mind at ease.   

DesertMama

HUGE panic attack today. The little hard spot along one of my incisions, which I had my oncologist check last week, seemed to me to be a big lump when I examined it today. It is the same shape as the tumour in my breast was, although smaller in size. I became convinced it was more cancer, despite my being in the midst of chemo, and I melted down. As in totally. As in snivelling, bright red, snotty, incoherent mess.

I called my breast surgeon, but couldn't get an appt for 2 more days. I called my oncologist in a state of utter panic; I could barely breath. I was told that it was almost surely scar tissue and they would definitely check it at my chemo treatment tomorrow, but I could come by right away if I wanted to. You know I flew over there at top speed.

Yup, it is just scar tissue in my oncologist's opinion. The same scar tissue he examined a few days ago. So what did I do when he told me that? I fell apart in his office. Started sobbing, and begging him to please tell me how to stay alive, and I don't want anyone else to raise my babies, and and and...

Omg, I have been cool as a cucumber at all my appointments thus far. I only freak out in private, generally in the middle of the night. But I sure lost it today. Sigh.

And I didn't cancel the appointment in 2 days with my surgeon. I figure it can't hurt to get another opinion.

BernieEllen

EnglishRose75

DesertMama- I noticed something similar on the scar line under my arm a few days ago and am trying to be rational and not to panic and am thinking it must surely be scar tissue or something, possibly aggravated by the chemo (I've done two of six FEC-T).  I have an appointment for pre-chemo blood work tomorrow and will get it checked then.

I haven't posted here before, but I've been reading the comments regularly (stalking!) since being diagnosed in June.  It's been a really helpful source of information and comfort during a difficult time.  I'm 37 and I've now come to terms with the situation and see the treatments as a job to be done.  Luckily the chemo so far has been manageable, even if not entirely pleasant.  What I find most difficult at the moment though is thinking about the long-term, especially in relation to my two daughters (aged 8 and 12).  I've always been a planner (and a bit of a control freak!), so coming to terms with the fact that, apart from a few lifestyle changes, there's nothing I can do to influence the future has been difficult.  It really helps to hear long-term survivor stories and to know that there are many people who have gone through this and are still doing well after many years.

LuvRVing

Inmate - thinking of you and wondering how you're doing with the radiation.  I know it's a tough road you're traveling and I am sending hugs, hope and love to you.

Bernie - LOL!

browerl

DesertMoma I cried as I read your post I could see myself doing the same thing.  No one can every prepare you for how emotional bc is, I believe it is worse then the chemo and last a lot longer.

OBXK

Karen - welcome!



Titan - well done you!!!



Desertmama - oh, Sweetie, my heart breaks for yours. Once those meltdowns start, it's hard to stop them. I hope your BS confirms it is just scar tissue. Try to remember the odds are in your favor. Do you have any meds to help you with stress? I take Ativan.

Don't feel bad about losing it at the doctors office - more of us should do it, so they'd have a better idea of the emotional toll, this disease has on us. Big hugs.

NavyMom

Anyboday else dreading PINKTOBER???  The ads are starting again......sigh.  It's not that I do not appreciate fundraising for awareness but I want a CURE, Dammit. 

FernMF

Talked to my onco nurse today - of course they detailed a TOTAL list of medications/supplements that I take, and that is updated every visit - but I had to ask, and onco nurse said the only supplements they don't "allow" are those that are "natural" and hormone based . . . what I'm taking is fine.  Huge sigh of relief.

I haven't had any major melt downs (YET) except the IV nightmare that was Round 2 - still have the scar on my hand from that day 4 WEEKS ago.

I have paid for 3 massages now for scar tissue - well worth the out-of-pocket expense.  I also went to PT for exercises specifically for the range of motion and tightness in my chest from the BLX . . . haven't kept up with those exercises during chemo, though.  Hopefully, I get back on track after Round 4 is done on 10/2.

Signing off now, worked the whole day - TIRED!!!

Anonymous

Ditto NavyMom....

I'm getting out my F*CK AWARENESS FIND A CURE shirt very soon (and the "*" is *my* addition.... the word is spelled out on the shirt)

Anyway, I'm never in here anymore.... skim to the last page and read about once a month. Hope everyone is hanging in there best they can. I'm still keeping busy with boats, horses, animals, teaching at the nature center. Plus, I apparently did such a nice job organizing a regional 4 day carriage driving event that they want me to be the regional director. Off to Wisconsin end of month for the annual meeting. I'm pretty excited about it cause, though many of you know my lifestyle, I'm happy to have something purposeful to focus on (being one of those empty nesters who's kids are all growed up).

Cheers.... see you in another  month!

PS- I almost never think about BC anymore, except when I think of my friends in here! It's so great if/when you can get to that point.

xxxxx

Hello Everyone. It is getting closer by the day for my first tests and results after all my treatment and every night I get less and less sleep. Have my CT & Bone Scans on the 27th and my Mammo on Oct 1. I am thinking about making them reschedule my Mammo. I have been having pains in my right breast for the past couple of days and I am sure I AM CONVINCING MYSELF that it is back!! Gonna go crazy by then. I usually paint and make art dolls evey day and I can't seem to focus on anything else. Tons of talking to God all day long too. LoL I know he hears me.

Hang in there DesertMama I know what you mean, I almost got on the phone today to complain about mine but I am afraid so I will be patient and wait until Oct 3. I have pain releivers. I am so afraid they will confirm my fears!! Just want a break from crying and being afraid. Prayers that will happen soon, but I know it will be awhile

Can I ask if anyone in here was told not to eat dairy??? I eat yogurt daily and I stopped because someone told me not to? How do I get calcium if I can't eat dairy???

LuvRVing I am pretty sure my oncologist is going to suggest I keep mine in for a while  For some reason it is bugging the crap out of me!!

Prayers For ALL of You

Gonna try to sleep tonight!!

Karen

ksmatthews

My dr's told me to eat or drink whatever I want.  In moderation...

Anonymous

Karen, I am totally with you on the stress for the upcoming post treatment scans and mammo. From the looks of your timeline you are a bit ahead of me in everything except rads. I have my mammo scheduled on my bday on teh 2nd. I am oing to reschedule that for next week. I just don't feel like waiting anymore. I have such hard spots, lumps and bumps in my right boob. I also have pink spot, with a pea size bump under the skin. My breast surgeon said it appeared to be benign, however, now I have 2! Scared, nervous.. but also realize it's in Gods hands.

Lovelyface

HeidiToo - Wow, it has been a long time since you logged in girl!  We have missed your wonderful nature pictures.  Good to hear from you.

My Oncologist is moving to Seattle, they told me on Friday.  I cried and cried at work.  I realized that I connected him to my cancer journey.  I can't describe the feelings I had, it was of fear, sadness, high level of anxiety, and many such mixed emotions.  I have booked one last appointment with him on Thursday, then they will transfer my case to one of the other doctors in that office, there is a new lady doctor, and the remaining doctor is also a woman.  I don't do very well with women doctor chemistry's, so not sure what I will do.  The last doctor is a man, who as you all know, I had at first and had to change him to my current doctor. I am so devastated with him leaving, but I have got to remain with the group, I feel they know me and they will understand me better than if I joined a brand new group.  I have a really very hard time with changes.

Dawn - sweetie, I have been thinking about you non-stop.  If love can heal, as they say that it does, then I am sending you so much love your way, hoping that you will get healed this time.