Calling all TNs

mags20487

born...ignorance is bliss I suppose.  I had a friend who I was updating through facebook and she was not responding to my pm's so I asked if she was getting my messages.  Her next message to me was along the lines of how hard it was for her to think about me having cancer and she just did not know how to respond.  I messaged her back saying do not feel sorry for me because I do not feel sorry for myself.  I have not updated her since.  She was in a car accident a few weeks ago and has undergone some surgery with more in the future and of course I called her to see how she was.  No--she did not ask about me.  Selfish baby!!  Ah well cutting my losses and going by the song by Katy Perry.  Love the line where she says she just wants to know who is really there for her...this DX definitely separates those who really care and those who were in it for themselves. 

Thanks all for the well wishes.  I am doing ok.  My arm hurts from the LE swelling but get tomorrow off along with a party for my DD's bestie for her graduation.  Gonna dance the night away---with double comprssion on my arm of course. haha  Today was a little bit of a rough day.  My son's wife brought him lunch to work ( he works for me at my shop) and they talked for over an hour and a half...she still wants a divorce but keeps calling him for "dates"   Hope she is not gonna really break his heart in the end.  Trying to keep my distance and keep my nose out of it but still worried about my baby. 

have a great weekend and gotta get myself a copy of 50 shades...want my sexy back!!

maggie

Titan

Bak..if you even try to leave us we will come and find you and hunt you down...right ladies???

Hopefull..yeah..the pain is from the taxol...tell your mom she is not alone..I had no pain from ac (except from the freaking nuelasta shot..I hated that thing)... but taxol made me..well..creaky..and hurt.....It hurt to stand up...walked bent over until I felt I could stand up straight...the pain is usually the day after the day after...it sucks..but do have your mom try the claritin.aleve thing..it really does help...

borntosurvive..your screen name says it all...your friend is ignorant...I am hoping she is kicking herself in the rear for saying something so stupid to you...I think the best thing is to educate your friends and relatives about tn...I really think they just don't know...my sweet niece..and I love her dearly asked me how I could still be alive when I have tn and she had heard that no one survives it...I printed off information for her..sat her down and quietly told her the facts....people just hear crap and they believe it...I think they just need to be informed...Yes..women die from triple negative...heck..people die from any cancer..it is what it is..but...there are a bunch of us still around....

kathrynn...any luck at the casino?  have fun!  

Cocker_Spaniel

Good morning Ladies. Hope you all slept well.  10.30am again for me, it was wonderful.

LuvRVing - get your mind out of that gutter with that filthy book or your old fellar won't know what hit him. Told you it was Ooo la lah didn't I lol.  

Your right about the weather,  come December I will be basking in it and you will all have on your eskimo clothes and warm woolly knickers.     

Glad your treatment is going well and that you had time with your grandkids.  Nothing quite like spending time with kiddies.  Keeps me young at heart if not in looks!!. 

Tazzy - you really brought things back to me with that picture of Hattie Jacques, god she was funny.  I loved those Carry On films.  Remember Lesley Phillips and Charles Hawtrey that skinny chap with the glasses, priceless.   They were so near the mark in those days but so comical.      

Hoping your last treatment goes well for you. I will rechoice with you cause you so deserve that wonderful feeling.

Taz I don't know the time difference here because everyone lives in different states and I can't keep up with it.  When I say good morning its probably lunch time or evening where everybody else is. 

Hope60 - mini vacations are good for you.  Enjoy every one of them.

Borntosurvive - how insensitive can somebody be.  I would have said, "Terminal, god no, you probably will go before me".  (After all she had one foot in her mouth she only needed the other in the grave lol).  I really don't think those kind of people are worth bothering about but of course they do upset your day.  You most certainly will be here to see your son graduate and to go to the wedding and see grandkids so don't let me hear you say that again (I'm telling you off here lol). Just tell yourself that you feel sorry for her because she will never be a good friend to anyone, people like that never are. They just like to ferrett out information. There is only One who knows when our time is up and he's not letting on, so enjoy every minute that you can and the next thing you know you will be shopping for a wedding outfit for your son's wedding.       

OBXK - Thats all I probably will get,  the left overs. He seems pretty serious about it though so I will have to support and encourage him, as long as he doesn't get too tired from it all. Though he loves to chat to people, bit like me. 

Bak94 - I'm sorry my darling I didn't mean to leave you out. I was just trying to remember peoples names I hadn't seen for a while.  Bugger about the drain.  I don't think I will ever forget what they felt like.  Hopefully it won't be in long.

Congratulations on getting a B in geology, you go girl.  There's no stopping you.  Yep taking the summer off will do you good and you will need the break from all that studying. 

I had a hysterectomy at age 32 because I was having problems and couldn't have any more babies.  Best thing I ever did.  No more of those periods and a week or two after the surgery I felt marvellous. 

Mags - you enjoy your dancing and try to forget that LE, not easy is it. 

Ladies, I need some advice from those who have been or are on taxol.  This will be my 8th this coming Wednesday and its really playing havoc with my fingers.  I can't open a box, or type properly it looks like chinese, having a bit of trouble doing up buttons now, can't hold anything,  can't close up together all the fingers on the hand and having so many problems with it.  I have to go back after I have typed and put it all right again and takes ages.  The right hand is not so affected.  Mine was left BC. Do I carry on and hope it doesn't get worse or stop the treatment. I know they don't want me to stop but I have to think of my typing because I need to work and I don't even want to give up my job because I enjoy it. Just not sure what to do. Can anybody offer any advice.  Part of me is scared to give it up because it just might be the last four treatments that kick this cancer to the kerb or have I got all the benefits it was going to give me already.     Hope you can help.

Titan - keep on tracking.  Remember we are all with you with those clapping thighs.  Let us know how you get on.     

Have a good day ladies.  Kick LE to the kerb.  Kick all side effects to the kerb in fact just keep on kicking.  Love you all Annie              

         

Cocker_Spaniel

Could'nt resist this

LuvRVing

CS - that's adorable!!!

Kathy - which casino?  I love casinos...maybe we should meet up???

Sugar77

Hi ladies, wow....been away from the thread for a few days and am trying to catch up. Must admit, I'm been away from the boards because I've been tied up reading the 50 Shades book...he he!!

I had my six-month MO checkup on Tuesday and all went well.  However, I need to have some physio on my shoulder as I pulled/strained it a few weeks ago. Nothing delibilitating but he says some physio will do wonders to improve my range of motion. It's on my BC side so I'm wondering if I can just go to the normal place where I used to get physio or if I need to find some sort of special PT for cancer survivors.  Does anyone know?  I've had various issues in the past with the same shoulder and have had physio but that was before BC.

Hope you are all doing well.

riley702

minxie, I am! I've had Tamoxifen for a year, then Aromasin for about 6 months, and now Arimidex. I will say going in that everyone reacts to these drugs differently, so my SEs may not be your SEs, etc., and like me, you may have to try a couple before finding one that works for you. With that in mind:

Tamoxifen was horrible. My blood lipids shot through the roof and I'm now taking Niaspan and Zocor for that. I also gained 30 pounds concrete-welded to my midsection like I was 5 months pregnant. My liver numbers were also getting wacky, so a liver US was ordered. It showed I had fatty liver disease, which goes hand-in-hand with metabolic syndrome (pre-diabetes, basically, with an increased risk of heart problems).

I was switched to Aromasin, which didn't do anything but add aching joints to the mix. I was on the brink of complete revolt by then (for 8% ER+ I was going through all this!), but my onc. convinced me to at least try Arimidex. My joints quit aching. My blood lipids came down a little. I asked my primary doc for Metformin and have been taking a low dose of 500 mg at night. My border-line blood sugar is back down, and I've lost 15 pounds.  I can tolerate this, and if the SEs don't kick in again, I'll finish the 5 years out with the Arimidex.

But it's totally up to you whether you decide AIs are for you. Someone posted somewhere (still have chemo brain; sorry!), that AIs for low ER+ women may actually be as or even more protective than for women with high ER+/PR+ percentages.

Cocker_Spaniel

Tazzy

Morning...well its 3am here in Kelowna (pacific time)... think you are a day and a half ahead of us Cocker.   Oh! how I loved those Carry on films.... now you can understand why I referred to the nurses as nurseys.  And as for Lesley Phillips and Charles Hawtrey OMG... so near the mark.   Has made me want to find them on DVD now and watch again.

 The dexmethasone are working well, unfortunately the brain isnt' too much - you can relate I know.   Sorry have no advice: re the tingling. Somewhere, someone (couldn't been this thread) said to try rubbing your hands/feet in different textures...like sand or even dried rice, carpet... anything that gets the nerve endings going.   I have not had the tingling as bad with taxotere as it sounds you have with taxol... geesh, that's not good.   Love the posters...both of them.

Sugar..happy your check up went so well... sorry dont know about physio.  I am not that far ahead in treament yet.

Good luck with the run Titan... and remember when you are feeling tired, just remember us all there with thighs-a-clapping.

Welcome hopeful...sure hope you can convince your Mum to come on board - good luck and she is lucky to have a caring wonderful daughter as you.

If I have missed anyone I am sorry - swiss cheese brain at the best of times, at 3am its really holey.

We had an amazing thunder/lightening storm here a couple of hours ago.  Hope it clear the air as was so humid yesterday afternoon.

Hope you all have great weekends... just say NO to SE's - now wouldn't that be nice if it were that easy.  Hope they are bearable though.

Peace and hugs xxx

NavyMom

Good Morning everyone. Trying to keep up on the comings and goings of our group here.  Nearly impossible! Sending good vibes to all.

Hey, Jazzy, you mentioned your family is outside of Chicago.  I am about 40 miles SW of the city.  What burb are your people?

Have a great weekend, ladies.

Oh, and about the dumb things that people say....I was told that since it was "only breast cancer" I should be happy.  Because I wasn't gonna die or anything.   Are you F%&*ing kidding me????     Yep, haven't spoken to that woman for almost 3 years now.   DUMB PEOPLE.

DorisMarie

dumb things that people say....my son in law..not my fav by the way..said after my surgery..well..the worst is over..LOL..I just gave him the "look" and walked off....after I had started chemo he came down and asked about why you want to kill off fast growing cells? so I politely gave him an education on cancer...doubt if half of it stuck..but sure did me good...some peeps are just sooo dense..

Tazzy

Morning (again).  Anyone else on here read the "Dumb Thing People Say when you Have Cancer"... called something like that... Unbelievable eh?   My neighbour said to me - because I had the sick bank and full LTD at the end of it - I have chosen not to work since my bc dx.   Any she said "well least you dont have to work"... like you think I want to be at home with chemo SE's...then  surgery then rads - yeah its a blast.   Bloody stupid people eh?

kathyrnn

Hi Ladies, just rolled out of bed after a late nite at the casino, and have to be at a cookout in an hour!



Had just enough time to catch up on you busy bees, and will answer later.



Annie, I wanted to answer your Taxol question. No one can tell you the right choice, but I will tell you what my MO said to me when it got really bad. (think I had 4 tx left). She said, "if you had to live with this pain for the rest of your life and it never got better, could you stand it?". It really hurt (felt like walking on burning glass), but since I could still walk, and I had to beat the cancer and be alive, to be around to complain, I chose to keep going. Where it's your hands (will limit your life much more than feet, and impacts your job) I don't know if maybe you should talk to your doctor and see if she can lower the dose or switch you to something else, to kick the beast's ass. You are in what we refer to as "between the rock and the hard place". ((Hug)).



*clapping thighs for Titan*



*hugs to everyone*

OBXK

Hello ladies!



Annie - they stopped my treatment 5 of 6 - due to neuropathy. Have they given you Neurontin to try? It helps with the zinging, but not the pain. they told me they like to get you to 80%.



I was ER + the first go round, I took tamoxifen for 1 year. I was miserable - I told my onco I had to stop, my quality of life was more important. Hated the AI's too. My cancer returned 7 years later as TN. BS says they see that a lot in women who took tamoxifen. They think it surpresses the ER + allowing the negative to thrive.



I do not regret any decisions I have made. I couldn't spend years in mental and physical pain, in hopes of not having a recurrence that would not be treatable.



Have a great day!!!

Clapping for Titan!!!!

mccrimmon324

Hey ladies, 

I missed so much I'll never catch up.  I hope everyone is doing well.  I've been enjoying my new social life but between that and my new job I need a break and am so happy to be staying in to clean tonight.  I wouldn't change it for the world either.  I do miss my husband and dogs though.  Will see them next weekend then hopefully we'll move them up at the end of July beginning of August.

I have to share one of the best things that happened to me.  Last weekend at a birthday party I re-met my stepfather's cousin and his wife, really don't remember them that well.  I was a child the last time I saw them.  They ended up buying my stepfather's house which he had inherited when his mom passed.  I pretty much grew up in that house but have only been there once in 20 years when my stepfather was dying from cancer.  We all got together last night at the house for a wine and I got to take a tour and WOW did it bring back some wonderful memories and they did a beautiful job re-doing everything.  They left a little piece of my stepfather or grandmother in each room.  It was really wonderful.

tnbcRuth

Quick question:  Does anyone have pancreatitis?  or know a website to blog on?  I"m having another attack and just need to bounce ideas off someone...like should I go to the hospital NOW or wait?  lol  

Before you say....don't take chances, go see what's up...I've been 3 times before and all they do is take me off all food and water and hook me up to an iv and I watch tv for 3 days.  Funny thing is, I don't have the aching pain this time, but I do have edema. hmmm

Thanks ladies  

JazzyJ

Hi ladies. I wanted to add something to the "dumb things people say....". We are dog people, so our 2 Akitas are a very important part of our family. Today, a friend said that I should think about giving them up because of the germs and dust they carry and it cant be good when going through chemo. Honestly, I can't imagine life without them!! Have your onc's ever suggested such a thing? Mine told me to carry on with living and that included not changing the things that I enjoy. The pups aren't going anywhere :-)

JazzyJ

A huge thanks to all who suggested Claritin. I was finally able to function today!! Took 1 with 2 alieve and felt better about 2 hours later. The benefits of Neulasta outweigh the pain, but Claritin makes it soooo muche easier to deal with. Thanks again

Simplyblessed

I will join in from the original thread. I am 34 Years old. 3 kids. Dxn May 9th. BMX June 6th. Start DD chemo Monday 6/25. A/C bi weekly x 4 then T weekly x 12.



I have been given the option to do daily radiation for 12 weeks or have the ALND. After that. I will cross that bridge when I get there. After all of that I will start reconstruction.



I'm so glad we have our own TN thread. It is such a different animal. People just don't understand that having BC isn't cut and dry. I get so tired of explaining why my situation is different than their moms, aunts, cousins etc. People just don't get all of the variables with this disease. Of course neither did I until I had to start living it.



Thanks for all the tips and suggestions on this thread. Most of all the encouragement. I'm sure I'm not the only one here that when I found out I was TN I at first felt like a was screwed! Lol



Much love!

Spica16

Hello to Everyone!

I mostly hang out at the Multiple Sclerosis & Breast Cancer thread (under DCIS, for some reason?), but do read this thread daily, since I am also TN. Having MS for 9+ years now, I'm pretty much an "expert" on all things tingly and numb!

I had DD Taxol x4, after DD A/C x4. Taxol was sooo much easier for me. I would feel lousy from day 3 to day 10 on A/C, but only had a few days that were bad on Taxol, with no nausea, but that lovely bone pain. I had a Neulasta shot the day after each chemo, so the bone pain was probably magnified by that.

At the initial consultation with my MO, he was trying to decide between Taxol and Taxotere, because of my unique situation (not wanting anymore neuropathy than I already had with MS). He also told me that he didn't have much experience with MS patients - I told him that I would educate him!!! He decided on Taxol, at the DD x4 course, because we wanted to be very agressive against this very agressive BrCa, but also told me that if I had too much trouble with that, he would switch me to the 12 week course. You receive the same amount of Taxol, just in smaller doses, each time. He told me that either I would not notice the neuropathy much, or it would double! Oh Goody!!!

Luckily, I did okay. I did start feeling neuropathy in my feet and fingertips, but not until the 3rd Taxol. I don't know if it made sense to him, but I could feel the difference between the Taxol tingling/numbness and my regular MS tingling/numbness. My left foot/leg, which I have had MS problems with, became weak and tingly after each chemo session, including A/C. After the first one, I thought that I had had a MS relapse, but when it happened each time, I knew chemo was the culprit. It seems that it hit my weakest areas. Chemo brain???!!!

I am now 4 mos PFC (the PFchemo version!), and the neuropathy in my fingertips has faded. I still have it in my feet - somedays it feels like I am walking on stones, other days it is a mild tingle. So...it does fade away, just hard to know how long it will take for each individual. 

I am now 2 mos post-rads, and 2 mos post-active tx. I had my check with both the MO and RO last week, and they were both amazed at how well I am doing. I have this shaggy, 3in hairdo, eyelashes and eyebrows. And, oh yes, all the unwanted hair is back, too. Darn! That's the "normal" I could have done without!!!  They will never say you are cancer-free, but as far as I'm concerned, I am PFC!!!!!! (the other version!). Of course, I will be vigilantly watched, with visits to my MO every 4mos and my RO every 3mos, with mammos every 6mos, and other tests, as needed. There is life after BrCa tx! I sure had my dark days during tx where I began to doubt that, but I have been to Hell and came out the other side, and the sun is shining on that other side!!!

Now, it's back to dealing with MS - my normal.

All you Gals dealing with Taxol...I guess all I can say is "hang in there". It's tough, but it does get better with time.

Annie, you have a very difficult situation to deal with - typing. If you've never had numbness in your fingers before, it must seem that you have these unwieldy sausages to manipulate. I was quite clumsy at the worst of it, and felt for sure I wouldn't have a dish left in my kitchen cupboard, for all the dropping!

Hopeful999, I hope your Mom can get some relief, by talking to her MO. At least she has you to cheer her on/comfort her. That support is the most important thing of all. Between my great docs, wonderful chemo nurses (don't be afraid to ask them questions - they have the real "hands on" daily experiences with patients), and family & friends, I made it through. It's tough - but doable.

Neurontin (gabapentin is the generic - works as well, and is a lot cheaper) helps with nerve pain/neuropathy. I have been on it for years, and it really helps me. Be forewarned - if you do start taking it, it can throw you for a loop the first few days or so. It makes you very dizzy and unbalanced until you get used to it - not a good feeling. The docs start you out at a low dose and increase until it's effective. Just make sure you are in a safe place with safe activities, until you get used to it.

I was also told to take glutamine powder, 15grams, twice a day, to help with the neuropathy. It is an amino acid, so a natural remedy - I liked that. It did seem to help. It is very gritty, so mix it in something warm and drink it fast! 

Don't be afraid/ashamed to use assistive devices, such as canes or walkers, if you get too numb and wobbly. I normally use a cane for keeping my balance, but on my worst Taxol days, I used a walker at home, for the security. Awkward, yes, but far better than a fall! Also, wear shoes that are supportive and protective - you don't want to risk clumsiness from loose, flimsy shoes. Tennies gave me support and good traction.

With some of these unGodly temperatures that we are having, it is a good idea to keep cool during Taxol tx (except Annie!) MSers usually suffer an increase in SEs when the temps rise. I don't know if heat would affect 'normal' folks on Taxol, but it might be a good precaution to stay cool, anyways. 

Another thing I dealt with was "Taxol fingernails". Luckily, I never lost any, but I could see the nail bed changing, like it wanted to lift. I did have ridges develop, and this weird brown staining - looked like I had been refinishing furniture with wood stain! Wear rubber gloves when doing the dishes or anything that will be harsh on your hands/nails. Also keep your nails short, so that they don't catch and rip/lift. My nail problems have mostly grown out, now. 

Be careful shaving, if needed. It is very disturbing to try to shave numb skin. I still have a numb underarm on my MX side, and it is a challenge. I also find that my skin, allover, is sensitive, and I nick myself easily with a razor. That is probably a consequence of all the chemo.

Talking about hair...it often starts growing during Taxol treatment. I had this fuzz everywhere, except my eyebrows and eyelashes that said "see you later" during Taxol tx. They are back, now. So far I have my usual straight hair, with the growth pattern making it swirly, and the white hair I had before is also back. However, it is very dark - much darker than my usual mousey brown. Kinda fun! 

Has anyone had an increase in facial hair after chemo? I've always had peachfuzz, but yee-gads, I'm giving my Golden retriever competition for fluffiness!!! 

Well, this is long enough. I think I have beat CS for wordiness!!!

May the sun shine on you, temps rise or fall for your comfort, and Life be gentle on you this weekend. As that wise-old sage, Red Green, says: "I'm pulling for you. We're all in this, together" 

Take Care ~ Shar 

  

Spica16

jazzyj - your friend probably poses more danger to you than those pups!

I was told to live my life and enjoy being around my almost-2 year old grandson...and we know that there isn't anything germier than an active little boy!!!  I just had to stay away when there were active colds or flu in the family.

Keep lovin' those pups ~Shar 

mccrimmon324

Tazzy, I would be lost without my dogs

OBXK

Welcome Simplybless!!!



Shar - great advice! Sorry you are having to deal with the double trouble of BC and MS.



Heather - what a lovely experience!

It must be nice, to be back with your family.

So glad your DH is going to visit next weekend. I would be lost without mine! I mean who would take out the trash, do the laundry & the dishes ;o

Titan

spica..on the facial hair w taxol..yes...I shaved it with my husbands razor and it never came back..now that was weird...standing in the bathroom shaving w my husband...very strange

Hey simplyblessed..welcome to this thread...agree with you on how hard it is to explain tn to people..they just get confused...

Ok..ladies..my 5k today..it was hot as heck but I made it through the whole thing..all because of you..I thought of Mary, Suze and Laura and all of your thighs clapping for me...and it worked...took a minute off my time from the last year's race...placed 6th in my age group...this was a run for triple negative research so it means alot to me...

Thanks for your support!  There were 3 freaking hills and I just wanted to quit..but I couldn't....

There were over 500 participants...it was awesome...I just hope and pray that some day...very, very soon..our new ladies can come on here and say..I was diagnosed with tn...and they are giving me this pill, vaccine..whatever..and now it is GONE...forever....I want this so bad

LuvRVing

Woohoo, Titan!!! 

My hair stylist shaved away my facial fuzz when I got my first "trim" and it never came back.  Don't be afraid to remove it.

wendy49

Hello everyone.  I've been hanging out on the surgery board, but came across this one tonight.  Hopefully, this post will make sense.  I'm having a L UMX on Tuesday and not thinking clearly at the moment.  Brief history:

DX 12/02 with IDC, ER/PR-, HER-2+, 3 cm, 0/4, stage 2a.  I had a R UMX with 4 rounds of A/C and reconstruction with implant and augmentation on good side.

DX 5/12 with new primary IDC, ER/PR-, HER-2- by core biopsy. U/S and mammogram showed two benign appearing nodes, 1.8 and .8 mm tumors.  I will get my staging after my R UMX.  

Ten years ago, with the first DX, Herceptin was not given as the standard of care with HER-2.  At that time, only women that had advanced BC.  Therefore, my only treatment was UMX and A/C x 4.  I have had no problems 10 years later. Now, I have TNS.  Isn't it basically the same dynamic as what I had before, since I had no treatment for ER/PR- and HER-2+ BC?

On the other hand, my friend, who was ER/PR+ and HER-2-, she decided to have a MX, with DD A/C x 4 and DD Taxol x 4.  She decided not to take the Tamox for five years.  

In addition, I was told that chemo works better on women who have ER/PR-  Any thoughts or comments? 

Don't these scenarios seem all the same?  Am I making any sense at all??   

JAN69

Titan--Hip hip hooray!  I'm in total awe of your achievment today.  I can't seem motivate myself to even dust off the exercise bike.  I'm so ashamed. 

SimplyBlessed--I agree, this is a wonderful site to get love, encouragement, and support.  I'm nearly a year NED, and still want to stay connected with women who really understand.

Jan

OBXK

Well done Titan!!!!



Welcome Lovemysamoyds - too tired to figure put your question, but I sure someone will come along to help. I had a/c/t the first go round - you can only have the A once - causes heart damage. So with my new dx - I was given T/C.

Hope you get the answers you need.

bak94

lovemysamoyeds-sounds like you did have treatment for your er pr neg her pos the first time, the 4 ac. OBXK is right that most docs won't do ac a second time due to heart damage, but I did get ac a second time! Kinda scary, but he said I did not go over my lifetime dose and he delivered it with a 24 hour drip. Well, I struggled with the idea of having ac a second time but it is the treatment I decided to go with and I had a complete response to it, I just hope i don't wind up with other issues later. They did a muga scan on me with each treatment and so far my heart function is really good. Going thorugh bc a second time pretty much sucks, but I felt my decesions were much more researched out this time.

Annie-I hope you know I was teasing you:) I don't know how so many remember so many names! Even when I go back to look again I forget!

Great Job Titan!!!!!!

Cocker_Spaniel

Good Evening Ladies

Thanks to everyone who answered my post on neuropathy.  I will have to talk to my oncologist when I see her next but they give me the feeling that I should continue with the taxol and give my typing away which I am not ready to do yet.  They keep saying we will monitor you closely and I keep telling them what is happening but they still insist on giving it to me anyway so when does the close monitoring start??

Heather - glad you are enjoying your  job and new life and that you caught up with some long ago memories.  Good that your hubby and babies will be with you soon. 

I couldn't be without my dogs (well may be Chloe lol)  either or my big boy cat.  I have never caught anything from them and neither did my girls catch anything when they were growing up around animals.  They are cleaner than some people.  I don't stay away from the grandkids either unless they were going down with a cold and then of course it would be stupid to go near them but on the whole I see them almost as often as  if I did not have BC.

Titan - well done.  We are so proud of you.  We knew you could do it and at a quicker time too.  I'm glad you could hear us clapping cause we went all out and even waved banners!!   We too want the pill or vaccine and one  day it will come hopefully in time for all of us.  I hope you opened that bottle of wine when you were finished, you certainly deserve it.  Well done girl.

Jan69 - whats an exercise bike????

Bak94 - of course I know you was teasing but I am sorry I missed you out and won't ever do it again.   I seem to keep promising not to do things again on this site, I must put my foot in it quite a few times lol, typical me. 

Oh dear those dratted abbreviations are stuffing me up again. I just don't know what you are talking about so will leave it up to the ladies that do know how to answer questions.     

Spica16 - that is just what my fingers are like fat sausages that won't move.  I'm so sick of putting my chinese typing correct and its really stressing me out. Spica does Gaberpentin make you vomit or feel nausous at all?     

Have a great day ladies and enjoy your sun whilst you have it, my turn next lol.

Annie