Calling all TNs

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  • TifJ
    TifJ Member Posts: 1,568
    edited June 2012

    Great news Lovely!! I don't know if you have Sonic restaurants there, but today their milkshakes are half price all day!

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  • minxie
    minxie Member Posts: 484
    edited June 2012

    Fighter, so sorry about your father.

    Lovely, glad to hear it was benign!

    I had my 6th rads today, so far so good... Last one should be done on July 30th. I am planning on going back to work July 10th, right in the middle, which has me a little worried about fatigue... I'm hoping they'll be tolerant at work if I have to do less hours some days.  I have a stupid plastic marker for rads high up on my chest that shows with all necklines, and then the half boob left from surgery, and all the weight I've gained from not exercising. Not really looking forward to showing myself to the world again!

    Inmate, how are you, I know you asked way back why Dr C only recommended the 2 chemo regimens (FEC and TC ?)... I asked about Gemzar/Carbo and she said they had better luck with that on BRCA + women and metastatic cancer. I am seeing my regular onc Friday to see what he thinks, but I am still leaning towards no more chemo unless I get some compelling reasons.

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Happy that you have #1 of treatment under your belt Jazzy...one step closer.

    Cocker... so NZ isn't like Oz with their huge spiders then?  Hoping the 7th Taxol is treating you not too bad.  Sure hope your week gets better - you've really been suffering lately eh?  And still making us laugh.

    ksmatthews - hope the pain in the underarm dissipates.

    Titan... hope those allergies clear up.  I have never suffered allergies..but have the taxo'tears' and continual snotty nose and if that is anything like allergies - eurgh !!

    Best wishes for the mammo Lory.

    Happy for you Lovely... and please keep us posted on the possible/maybe ‘romance'.

    Riley - like you are not going through enough... you now have a wrist problem - hoping it heals soon.

    Hope - I've not gone through any follow up mammos yet... but I'm getting anxious thinking about last chemo this Friday and not have my MX until beginning of August... I mean what if.... So I can totally understand your anxiety... bet it is so very normal.  Good luck - let us know how it goes.

    I am sure I have missed people here - Oh! Bernie I loved  that joke...my DH is Irish - ha ha !!

    To you all and wishing you a wonderful  Wednesday - for those of you in treatment here's to very minimal SE's.

    Peace & hugs xxxxxxxxxx

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  • Hope60
    Hope60 Member Posts: 223
    edited June 2012

    Just back from my mammo & ultrasound....everything was fine.  I feel like I'm free to enjoy my summer now...but first things first....I'm celebrating with a big bowl of ice cream, to be followed by a nap! It's a hot one here today...95.....yesterday it was 70....crazy.  Thanks to all for your words of support. Hope everyone is having a good day.

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  • kathyrnn
    kathyrnn Member Posts: 393
    edited June 2012

    Congrats Lovely and Hope!



    Good to see you Minx and hear you're doing well.



    Kisses to everyone.



    Hope the following will make you chuckle.



    I wanted to tell you the last part to my cable saga.  Parts of these instructions are very important, so you may want to save them for future reference.

     

    I walk into the kitchen and Mom tells me the cable is out (shit, I thought I had two more days!).  Ok, I suck it up and open the box from cable and remove the digital adapters.



    @.  (Dear God NO!  Not another go round with customer service! !!!!) 



    Now this is where you might want to start saving these instructions.



    *Open a shot of Rum, pour over ice and pour a splash of coke,*



    *take sip of rum, while keeping back to Mother to avoid full effect of evil eye  *



    Go further in instructions and find that both TV's have to be hooked up first.



    *take sip of rum* to celebrate that MAYBE, you won't have to call customer service*



    Go into living room and while grunting  frequently manage to shove a 2 ton console away from the wall.  Immediately realize that because the adapters require power, you now don't have enough outlets.



    *crawl up from floor, take a sip of rum*



    Proceed to search the house for the power strip you KNOW you brought down.  Said power strip is nowhere to be found.



    *DO NOT SIP THE RUM!*



    Take a shower and get dressed so you can drive to Home Depot.  Stop at neighbor's house to let him know he may have to pretend to be Dad if customer service has to be called.  Find out said lovely neighbor has an extra power strip.  *Kiss neighbor.*



    Return home. *take a sip of rum*



    Set up living room TV. See same exact message to call Comcast.



    *take another sip of rum*



    See in instructions that remotes have to be set up.  States that channel button may have to be pressed "numerous times" to do this.  Program first remote.



    *take sip of rum along with 2 aspirin for the pain in your thumb*.  They were serious when they said numerous!



    Program second remote.  Look at TV to find same message to call Comcast.



    *bang head on counter 3 times, then take another sip of rum*



    Look further to find out you can activate your service online (been there, done that, doesn't work from a mobile phone)  or you can call a number (different from number on the TV) to auto activate.  (OMG, could it be my beloved robot lady again??????)



    *take a sip of rum*



    Dial phone and reach your beloved!!!  Walks through activation in no time flat.  TV's working!!!  Confuse poor robot lady by saying "I LOVE YOU ROBOT LADY!!!!



    *while watching TV , take repeated sips of rum till beverage is finished*

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited June 2012

    Hope - Hooray on the good news!!!!!!!!!  Yeah!  Live normal again until the next time.  I guess that is our new reality.  There is just no way around it.  Enjoy the ice cream, just go all out and do whatever feels good and it sure does today.

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  • borntosurvive
    borntosurvive Member Posts: 213
    edited June 2012

    Awesome news Hope and yes, just in time to have a great summer. 

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited June 2012

    minxie - is there any way in the world you can delay going to work another few weeks.  I swear I was in the same exact position as you, except I also had my son's wedding.  I had to go back to work for a week or so, then be on vacation for my son's wedding, then go back to work again.  That was absolutely not a good idea.  I did not feel good about myself as I needed a little more time.  I suggest finish the rads and then go to work.  My Onc. told me that "I deserved the time off".  BC is not a small matter, my dear.  You are dealing with a huge situation and it should be "your" decision when you feel good enough to be a normal human being again.

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited June 2012

    kathyrnn - this really happened to you, didn't it?  So funny!  You are a very good writer! I chuckled all the way through! Ha! ha!  Loved the last line the most...........ha! ha! ha!

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    wonderful news lovely - enjoy !

    kathyrnn - laughed out loud throughout.

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  • ATeamNana
    ATeamNana Member Posts: 464
    edited June 2012

    Waving back Navymom! Hello to all the lovely ladies on this thread. I rarely post but I do read n try to see how you are all doing. Wishing you all the best:)



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  • onvacation
    onvacation Member Posts: 1,344
    edited June 2012

    This thread is great - makes me smile!  Thanks!

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited June 2012

    Good Morning Ladies

    Hope you are all well.

    Minxie - Glad you are back and everything so far is good for you.  It's not so easy with your job is it to take time off if you need to keep it or need the money but try to take it as easy as you can.  Will be thinking of you and sending hugs.   

    Kathyrnn - That was hillarious. 

    Tazzy - Yeh not feeling too special at the moment.  This taxol is kicking 'my arse to the kerb'.  I don't think I have felt as bad as this as when I first went onto chemo. I have never felt more like making a bucket list.  Can hardly type because of fingers but have to, terrible thrush in the nether region that the creams hardly touch, rash all over my hands that itches like mad and generally feeling unwell. I don't feel miserable just tearful especially if I see an unloved animal on facebook. I really feel like I don't want anymore.   Well thats my pity party (never heard of that until I came on here) over for the day.  Time I bucked myself up and got over it. 

    As for the spiders,  hell no we don't have Aussie spiders here or I wouldn't be here.  Ours are nothing compared to theirs or yours come to that.    Years ago when my old fellar had had an accident, there was a spider, all of ½ inch long on the bedroom ceiling one night.  I said you will have to get it or it might crawl down and go in my mouth when I am asleep.  He was balanced on the bed with his leg in plaster, one arm in plaster and he killed the spider with the crutch he was using at the time.  My hero!!  He was probably hoping it would crawl into  my mouth to shut me up.

    Hope60 - Wonderful news on the mammo and ultrasound result.  The big bowl of ice cream, the nap and a long hot summer is just what you need.  Just go with it girl and enjoy.

    ATeamNana - Good to hear from you.  Hope all is well.

    Well somehow I have got to get going and type as I have mounds of it but a bit hard when I was awake all night.  Enough self pity, time to enjoy the day.

    Have a good day ladies. Go out and do something reckless like treat yourself to  something expensive.  Lots of warm hugs to you all. Annie                                     

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  • JAN69
    JAN69 Member Posts: 947
    edited June 2012

    Annie, Warm hugs to you, too.  I wish I could comfort and inspire you as you have done for so many others on this blog.  I so well remember the crappy feeling I had during chemo and that I often felt like giving up.  You and so many others have to focus on the NED goal and that minute by minute time passes and we get better.  And a selfish reason to carry on:  we need your humor to keep us all smiling.

    My PCP referred me to 3 specialists: an ob/gyn for possible hysterectomy; a CT of head for chronic headaches; and more lymphedema therapy.  It's another round of appointments right when I want to spend time with my little grandkids.  They live 300 miles from here and I want to make up for rarely seeing them last year during all my treatments.  I have to stop and remember I survived a very serious disease and am lucky to have great insurance and don't have to work.  Oh yes, my husband is good old feller.  

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Jan69 - ditto to your comments re: Annie.  Sorry to hear you have to go through all those appts.  and yes its a bad disease we are all fighting.   How old are your grandkids?  Are they visiting?  did I miss a previous post.. ha ha - blaming that ol' chemo brain again.

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  • riley702
    riley702 Member Posts: 1,600
    edited June 2012

    Annie, I didn't feel old and falling apart prior to BC. I felt and thought I looked pretty good for 49. Since diagnosis and treatment, I feel like I've aged 10-15 years instead of 2.

    My wrist does feel better with the NSAIDS and the brace, but this one-handed hunt and peck typing is for the birds!

    It's ungodly hot again today. I've lost track of how many days in a row it's been over 90° or how long it's been since it rained. They say we may get rain tomorrow evening, but I'll believe it when I see it. :)

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  • OBXK
    OBXK Member Posts: 791
    edited June 2012

    Minxie- so sorry you have to go back to work, before you're up to it. Rads really made me tired. I hope they will be understanding at your workplace.



    Tazzy - I hope your last chemo goes well. Try not to worry... I know...



    Annie - I'll pull up a chair at your pity party and serve you tea and cake. Sorry you are feeling so punk. I remember at some point in my treatment, I looked so bad and felt so bad, that I'd burst into tears when I looked at myself in the bathroom mirror. Things will get better!!!!!



    Hope - great news! Enjoy your ice cream!



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  • mags20487
    mags20487 Member Posts: 1,591
    edited June 2012

    hello my lovely friends.  I love this thread so much...feel so connected to you all.  Have gotten back to the land of the living again after Monday's pit of despair.  Hate days like that but feel I am entitled to them once in a while.  Went back to LE therapist and sure enough the arm is swollen again...errrrrr!!!  I knew it by the way it felt.  Guessing it is from having the port taken out on the other side causing some inflamation in there and preventing fluid a free ride.   This was my last visit with her until after recon as I only get 25 visits a year and have used 14 of them for crappy Le.  SIGH!! 

    My recon choice is coming into focus...DIEP....just waiting on DR Massey's office to figure out how much these new beauts are gonna cost me.  Not that I really care at this point I just want me some boobies.  I also want the VLNTx to relieve the LE.

    Tazzy baby you made it only 1 to go ---awesome. 

    Cocker--love ya --you make me smile with those great posts

    Hugging you fighter still...no words

    Minxie...we are all still here for you.  Take care and keep us posted on what is up

    To all you new gals...welcome to the group of the best women I have ever had the priviledge to "know"--support here is amazing.

    Take care and "see" you all tomorrow

    Maggie

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  • Titan
    Titan Member Posts: 2,956
    edited June 2012

    Lovelyface...you rock girl!   Love the good news

    Hope...ok...now you can enjoy your summer!  I'm off the hook for six months and I just can't believe it...it will be COLD again before I go to see the onc again...on the other hand...that means I need to be much more diligent with breast exams and what not..that's ok...I can monitor myself

    Oh cocker...I hate that taxol is kicking your arse...I didn't much care for taxol either..my whole body hurt...feet were numb..took me forever to stand up when I had been sitting for awhile...plus knowing that it was the last "leg" of the chemo treatments...I just got impatient...just wanted it over!

    Yuck on the spiders..wow..I've never had a spider stand up and hiss at me...what a story...I think I would have gone hysterical....glad you killed it kathrynn!  nobody messes with us...heh heh...

    and cocker..you would be proud..I went out in 95 degree weather for 2 miles today..on Saturday I'm going to think of all your thighs clapping for me...I just hope I can run w/o laughing..you guys are my inspriation...IF I place I will owe it all you guys...oh..and I plan on placing...I really do dang it..

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  • JAN69
    JAN69 Member Posts: 947
    edited June 2012

    Tazzy, Thanks for asking about grandkids.  I've turned into one of those obnoxious grannies who brag to anyone who will hold still.  My middle and youngest daughters each have a daughter: one is 12 the other 13.  But my oldest daughter has five little ones!  The oldest just turned 6, then she had triplets(!!!!) who are 4, and finally a 2 year old.  All babies were miracles of medical science.  They are sweet, well-behaved, and so much fun to be with.  They live 300 miles from me and they only get "over the river and through the woods" twice a year (we live in the Sierras near Yosemite and they live in Los Angeles county).  I'm sure you can imagine what a hard trip it is to travel with so many kids.We have to go to UCLA every 4 weeks now to receive shots in my eye to keep wet macular degeneration at bay.  We usually have a 2 day visit with them during those trips. 

    See I told you, I can talk on and on about my little people. My husband would always talk about them when I was at my lowest.  I'm sure that helped me carry on.

    Hope all are doing better this evening than this morning.

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Riley... I totally understand how you feel.. somedays I look at myself in the mirror and I'm like... WTF? who is that person?   Tongue out

    thanks OBXK - just feel as though I'm being pushed towards a cliff edge....

    Mags - you are so allowed to have pity parties... we have earned that right !  That's sucky about your LE.  BC really is the gift that keeps on giving - whoever first said that hit the nail right on the head.   Hang in there. 

    Tomorrow off for my pre-treatment check in... then meeting a couple of girlfriends for lunch.   Hoping the weather stays as good. 

    Michele

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  • Titan
    Titan Member Posts: 2,956
    edited June 2012

    and hey to all of you ....hope things are going ok with you Jazzy..

    Mags..don't know much about recon...but my sil saw the boob of another friend who had the diep and she said it was the most beautiful boob she had ever seen...it looked like a 20 year old.

    BC sucks..but I still have to chuckle about all of us going around showing our "new" boobs..

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  • kathyrnn
    kathyrnn Member Posts: 393
    edited June 2012

    *pulls out Pom-Poms and gets ready to cheer*

    Tazzy's last Chemo is the 22nd and Titan will be racing on the 23rd. *sneaks a look around, applies bag balm to thighs in anticipation of some serious clapping*

    Congrats on 6 mo of freedom Titan



    Annie, I'm so sorry that it's hitting you so hard. Each time is a little worse. Not that the drug is any different, you're just becoming weary. Stop doing housework, stop anything that isn't essential to survival and try to get some rest. (The house won't fall to pieces if it gets ignored for a few weeks) Despite your notions to the contrary, you are not WonderWoman. (OK, OK, I'll let you have the tights and mask back after chemo!!!). You have 5 to go. Lean on your friends and family, and let them pitch in and help you. (I found that friend's felt better when I asked for assistance. Made them feel less helpless.). Is there anyway you can get a break from working? I'm sending lots of love your way. You NEED to do this, and I wish there was someway I could help.



    Jan - how wonderful they all sound. You are so blessed.



    Mags - sorry to hear the LE is worse. You're a better woman than I, I don't think I would cope well in any way if I had LE. I can't begin to imagine how irritating and frustrating it must be.

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  • DorMac
    DorMac Member Posts: 155
    edited June 2012

    Well, had my last tx on Tuesday - I am very lucky - only 4 TC tx once every 3 weeks and no rads scheduled. Rang the bell at the Cancer Centre but I'm saving the happy dance for when the SEs are done. Gave myself my final Neulasta shot on Wednesday - I just take Tylenol for the pain and haven't had too much of that over the whole course. My main SE has been the fatigue which has been getting progressively worse but I can handle that. Just like I can handle the mouth ulcers, thrush, watering eyes and nose, D train, burping and some nausea. I wasn't going to post this as I realize so many others on this site are having much worse SEs but maybe this will also encourage some of the newbies that sometimes the SEs are not too difficult to deal with.

    To all those who are having a tough time right now - I'm sending you best wishes that you feel better soon. And for anyone waiting for tests and results, that they get the best news ever.

    Doreen

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited June 2012

    Good Evening Ladies. Well I'm still around and feeling a little better. The old fellar has just fed me!

    Jan69 - thank you for the warm hugs, I really needed them today.  I don't feel as if I comfort or inspire anyone on here.  When I read the advice all you ladies give to others it sounds way better than mine but thank you. How heartbreaking it is for you to have your grandchildren 300 miles away but I am so glad you get to see them every four weeks. At least that way they won't forget you  and they won't have grown so much since you saw them last.  I am so lucky that both my daughters only live five mins away so see my grandkids nearly every day.  I have Jessica who is 14 going on 21. I have always remembered when my daughter brought her in to see me one day and she had the biggest scowl on her little face. I said,  oh dear are you grumpy today and she said "I not grumpy,  I appy) still with the scowl.  I have Connor who is 12 and is my gorgeous darling boy who gives the biggest cuddles.  Then there is my Caitlin who is 8 and she is a perfect little girl, all pink and purples and everything has to be very pretty and lastly my 6 year old Ben who has dimples and is so handsome.  He said to me one day, you know Nana I love my daddy so much cause my daddy loves me, bless his heart.  So I am a very lucky lady. They keep me young at heart and I love each and every one of them  and I brag just as much as you, why not they are worth every bit of it.       

    Tazzy, tazzy tazzy - one to go. Yay you lucky girl but you desearve this so very much. No, no what ifs.  Everything will be fine.  This is just wonderful for you.  Congratulations you have really kicked that cancer to the kerb.

    Riley702 - I bet you are just as young and georgeous as you were before chemo. At 51 you are still such a wee young girl.  Remember 50 now is the new 40 so you have years ahead of you yet with plenty of time still to kick up those heels.     I am so glad your wrist feels better.  Keep that brace on and you will soon be like new again.

    Karen - I daren't look in the mirror its so depressing.  No hair, A large scar, one boob, no other hair anywhere and a bit of a sticky out tummy. Its enough to scare any window cleaner.  I look like a newly born chick that went wrong lol. 

    Mags - I hope you do get those new boobies.  No good me having them they wouldn't match the rest of me lol. I hope that LE comes right soon.  Do we always have it or does it get better and go?.   

    Onvacation - glad you are back with us and glad we make you smile.      

    Titan - I am so very proud of you.  You make me sit up and take note.  Not that I did a lot about it, too bloody lazy.  You are the inspiration for me and on saturday I will be thinking about you and cheering you on.  I will have to clap my thighs though because my hands are numb lol but WTF I'll clap both.  Remember now plenty of hydration but not the 'wine variety' until after you have placed then you can have the whole bottle!!

    Kathrynn - Blimey girl I've never been wonder woman love, I can't jump as high as her.  Good god do you know what my house would look like if I left it for a few weeks, some bloody advice that is girl. You wouldn't be able to find me.  No seriously I do like cleaning my house. Gives me a lovely warm feeling to have it nice for my old fellar but I am going to wake up early on Saturday, have my breaky then go back to sleep for a while. Worked last week and I felt a bit better so will try it again - no hardship really!!

    The old fellar just came in laughing his head off. He said do you know what is good for insomia. I eagerly said no what, he said a good nights sleep. Silly sod lol.

    I'm gonna introduce another subject just for something to talk about.  Do you ladies believe in (the After Life - you know Reincarnation).  I can just imagine my old fellar going thank god she's gone now I aint gotta cook for her but if he thought I might return he could be very depressed lol.   When you think about it though nobody has ever come back to tell us what its like aye!!

    oh well ladies thats my speel for the evening.  Gotta go back to typing now yuk.  Have a good nights sleep.  Warm hugs to you all. Annie        

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited June 2012

    Good god, she's back. Must be feeling better look how long it is.  xx

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Thanks kathyrnn.... yep its quite a milestone - last chemo - phew... quite the past 5 months but its done... and each step is a step closer to being free of this bloody disease. 

    Titan.... we'll be there with you - thighs-a-clappin' - good luck.

    Jan... DH and me want to do a road trip next year to Yosemite.  Glad you get to see your grandkids and wow triplets ??  Cant even imagine.

    Yay and happy dancing for you Doreen.... last treatment done and dusted - what a feeling.

    wonderful to have you back Cocker.   I should know better about the "ifs".  My answer to anyone (including me) who says but what if.... "What if my aunt had balls she'd be my uncle" Laughing   your old feller sounds a scream and I bet he'd be sad if you didn't come back to haunt him.

    Just took my 2 dexamethasone so should be able to be a busy bunny today.. off for bloodwork, lunch with friends, shopping for a gift basket for the nursey's (is that even a word?) in the chemo room then home. 

    To anyone I may have missed hello....to anyone with SE's hope they are getting more bearable with each day passing and to all of you have a wonderful happy sunny day. xxx

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  • kathyrnn
    kathyrnn Member Posts: 393
    edited June 2012

    Jan - I forgot to ask, do you Skype with your grandchildren?



    Dormac - congrats *waves Pom Poms*



    Tazzy - If you're buying us gift baskets, you can call us any damn thing you want! :-)



    Annie glad you're feeling better and you are one of the ones on here that makes us laugh! That's a very special and need therapy.

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  • JAN69
    JAN69 Member Posts: 947
    edited June 2012

    Kathy, Yes, I do skype with the grandkids.  It often turns into a push-shove episode, as they all want a turn at once.  And when the baby (well, he's 2) gets his turn, he wants to push the keys on the computer and disconnects us.  All in all, it gets to be a challenge for my daughter who is desperately trying to keep everyone in line.  But it is still wonderful to see them.  On birthdays they sing "Happy Birthday" to us and cut into a cake they've made for our "celebration."  Tears are flowing freely by the time we hang up.  Jan

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  • JazzyJ
    JazzyJ Member Posts: 126
    edited June 2012

    Hello ladies! It took me a few days to get back, but wanted to check in. First and foremost, you all helped me through newbie week and I am so grateful.



    Tazzy: A huge congrat's on your last Chemo!! You made it and still have so much spirit... Glad you thought of the nursey's, it is now a word:-)



    Cocker: You are such a mood lifter!! The story about the Snyder and your "fellar" should be on late nitght television!



    Fighter: Sorry about your dad... I known how painful that one is.



    Lovelyface and Hope60: Glad your tests came out clean "Yeah" gives us all more hope so thank you for sharing the great news!!



    Kathyrnn: Now I want a rum and coke! Nutritional value...questionable. But hey, we must keep ourselves entertained, right?



    Borntosurvive: I hope you are right about the first one being the worst... Cause this one was cr@p.....



    Mags: Hope your week continues to improve. So sorry you've had so much trouble. Hope your EL stops misbehaving so you can make us smile :-)



    Titan: Thanks for checking in. I feel kind of silly complaining since this is only my first week, but it really bites. Finally got the nausea under control but the Neaulasta shot yesterday made every bone in my body hurt today, eve my toes. Managed to get through a 10 hour work day (working from home helps), but it wasn't easy.



    To All: I never gave this disease much thought before it hit me. I donate to St Jude's every month because I love children and wanted to make a difference, but I never realized how brave you all are. We are warriors fighting for our future, and I feel so blessed for discovering this inspirational and warm loving group. Hugs to all....





































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