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  • TifJ
    TifJ Member Posts: 1,568
    edited January 2012

    Oh crap Bak! I hope the incision heals back up quickly and you get rid of this damn infection. I was given oral Keflex after the IV antibiotics, but after a few days started itching like crazy- I am allergic to it. My port scar is big since it was left open to heal.

    Welcome ATeamNana and MKPinky77. We are here for you!

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  • mags20487
    mags20487 Member Posts: 1,591
    edited January 2012

    Welcome to our new TN sisters!!  You will love it here...full of wonderful ladies helping with whatever you need.  Just ask and you will receive!

    Bak--so sorry for you.  Hoping that you can start recovering from this soon!

    Maggie

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited January 2012

    Welcome AteamNana and MkPinky77

    Bak - Hope you get healed up soon!!  I had a seroma burst in the middle of the night too, my husband freaked, was ready to take me to the emergency room.  So sorry your going thru all of this!

    My port scar is about 2 1/2" long and a very thin line.  I put vitamin E oil on all of my scars in the morning and I have to touch my port.  Just grosses me out. 

    I like the battle scar idea.  I think eventually I may get some sort of small tattoo over my lumpectomy scar.  That would make 2 for me and hubby wants to get something in reference to BC & me.  That would make 2 for him.  I think that's enough.

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  • Hope60
    Hope60 Member Posts: 223
    edited January 2012

    Hi ladies - Wasn't sure if I should post this here or in the "waiting for results" thread, but I think my TN sisters will understand.  Just had a stereo biopsy this morning, after having "suspicious calcifications" found on my mammo in December.   I just finished treatment -- lumpectomy, chemo and rads -- in March '10.  My doc said these new calcs are either junk from radiation, or else DCIS.  I can't believe I'm going through this again so soon.  I had just gotten my head out of Cancerland, and going for this biopsy brought it all back.  Now comes the "big wait" for results, which I probably won't have until middle of next week.  Feeling very low right now.  Guess I'll go ice my breast and have a good cry. Thanks for listening.

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  • laurajane
    laurajane Member Posts: 321
    edited January 2012

    I had my port removed last June and then had it reinstalled 2 months later. I would do it all over again. Those 2 months were wonderful thinking it was all behind me. I say remove it and never need it again! the majority of us never need it again.

    Bac- dog gone it! So saddened you are going through all of this.

    Welcome to the new ladies.

    Hope you all are having a great day. I think I might actually take a shower today. I've been wearing my jammies since I got home Tuesday. I don't know which is so rough on me the cetuximab or the Cisplatin . I guess I'll know next week since I will only get the cetuximab. I didn't think this first round would be as bad as it has been. All I want to do is sleep. My onc did up my pain meds. I hope tomorrow is better. Yup, tomorrow is going to be a better day!

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited January 2012

    Hope, I'm so sorry you have to go thru this again.  From what I understand radiation does cause alot of stuff that show up on mammo's.  Praying for good news for you! 

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited January 2012

    Laurajane....So glad to hear you are feeling a bit better. Fatigue always seems the hardest part of this process for me.  Hoping that you have enough energy to enjoy yourself a bit.  Thinking of you each and every day.

    Bak.....oh boy!  What a terrible time you are having.  I hope they can get your infection under control so you can go home soon.  Sending you lots of healing energy.

    I opted to keep my port in for awhile after I finished my first round of chemo and radiation.  It was/is a bit of a security blanket for me.  I can, and do, touch it often to remind myself that I am still ready to start the fight at a moments notice.  Turns out I needed it again right away so kind of a moot point.  My goal is to have a few clean scans under my belt before I let it go.  It definitely doesn't "weird" me out as much as some of you.  I also don't have any issues with it so can ignore it when I want.

    Well, I have one more treatment before I am done, again.  My Onc said I will be seeing him on a monthly basis for awhile to keep a good eye on me.  I'd like to think I will be going to keep an eye on him but we'll let him think otherwise.  

    Welcome to all the "newbies".  You will find much love and support here.  

    Here's to a good day for all!

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  • laurajane
    laurajane Member Posts: 321
    edited January 2012

    Hope- we must have been posting at the same time and I didn't see your post. I'm so sorry you have to go through this fear again. I'm praying that it is calcifications. Push for earlier results. It's amazing how obnoxious I can be with phone calls but it works! Just keep calling and I hope your fears can be put to rest.

    Inmate- I just love your attitude. Hoping this is indeed the blast you need to kick the FC.

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  • Titan
    Titan Member Posts: 2,956
    edited January 2012

    Remember...Hope...because of your "history" they are going to very careful with you..."translate..biopsy everything"....I had the same thing happen to me and they were called vascular calcifications....they were in my "so-called" good breast....I betcha the calcs are benign...I know that you are going to freak no matter what but try to put it in the back of your mind if you can...and bug them..like Laura Jane said to....

    And if there is a next time..have the dang biopsy on a Monday...so if you don't have worry over the weekend.

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  • Hope60
    Hope60 Member Posts: 223
    edited January 2012

    laurajane - I didn't see your post either.  I have been following your ups and downs here, and I love your positive attitude.  

    mccrimmon32 - thanks so much for the good wishes.  I'm pretty sure I saw you over on the Insurance board, too...if I'm right, we have similar issues on that front.  

    Titan - thanks for being the voice of reason. You are right about no Friday biopsies....didn't think of it at the time because I was just so happy to get the appointment.  

    I feel much better now, after a long nap and a chat with my sanest friend, another recent BC survivor.  It's too easy to go over to the "dark side" in my mind....gotta fight that!  Thanks and hugs to all!!

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited January 2012

    Mity...yay!

    Suze....the ICK.  Hope you are feeling better.

    Hope....waiting is the worst.  Hoping for calcifications as I hear that can happen, often.  Fingers crossed for you!

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  • Suze35
    Suze35 Member Posts: 1,045
    edited January 2012

    Wow, you guys are so chatty, it is awesome!



    I'm still feeling fluish, not sure of what the temp threshold is for calling the doctor. Right now I'm at 99.9. I *think* 101.0 is the cut off...so I'll go by that. My WBCs are down, so I need a Neulasta shot on Monday, hate those! I hope it doesn't become commonplace. I've been sleeping a lot, barely awake through treatment today. I'll have a CT scan in 2 weeks to judge effectiveness, I'm going to temper my enthusiasm because heaven knows this FC is tricky. We think I'm having steroid withdrawal symptoms, as I stopped taking my 0.5 mg dose on Wed. I refuse to take any, I'd rather suck it up.



    My port doesn't bother me at all, now that it has settled in. It's surgical placement was a bit traumatic (long story), and there was a stitch that was irritating for a few months, but now, I don't even think about it. I would have kept mine for at least a year anyway since I was so high risk.



    Laurajane - I am so sorry you are feeling the effects of your drug combo. And crap to your acupuncturist! You only need positive, forward thinking people in your life, period. This other drug you are on, I'm going to have to look that up. It sounds a bit scary! I hope it does the job!! Enjoy your time with your beautiful family. They sound so wonderful.



    Good thing of the day - we booked a Disney cruise for February, and will also do Legoland and some of the Disney parks. I've never been on a cruise! I can take my boys snorkeling and fishing, and on another day we can throw them all in their day "club" and have some adult time with DH. We had talked and talked about doing it, found a good price, and said screw it (with the blessing of my MO).



    Welcome to all newbies, although I'm so sorry you are here. You will find some amazing information, and don't be afraid to ask questions!



    Best to all!

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  • Titan
    Titan Member Posts: 2,956
    edited January 2012

    Suze...I was just thinking of you and here you are!   hmm..maybe if I think of winning a million dollars???  Well...we could all go to NYC and buy stuff...on me..

    Laura Jane...hoping that stuff is kicking that FC but hate that it's kicking you..dang it.  But you will probably will feel better tomorrow..I certainly hope so...

    Hope..glad you are feeling better about things...when I had my calcs I googled them endlessly..honestly I had never heard about them before..dumb me.....I thought..geez..isn't having breast cancer enough and now calcs can be cancerous?...so I googled them and found out about rod shaped calcs, looked at pics of normal ones and not normal ones...I had 4 in a row...one was rod shaped which made it suspicious...and that stereotatic biopsy was weird too..laying on the table with your boob hanging down...I felt like I should "Moo" or something (hey I'm a farmer's daughter)...

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  • Suze35
    Suze35 Member Posts: 1,045
    edited January 2012

    Crap, am in the hospital. My fever went over 101, and my resting heart rate is 157 (quite tachycardic). So, I'm sure I'll be getting lots of scans, blood draws (thankfully I prepared my port with EMLA) and probably a crappy nights sleep, blah.



    I'll keep you posted.



    Susan

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  • Lynn18
    Lynn18 Member Posts: 416
    edited January 2012

    Suze, sorry to hear you are in the hospital. Tachycardia can be scary-perhaps it is your fever causing it? Hope you feel better quickly and can go home.



    Laura, I think about you a lot and I am sorry you have been feeling lousy, I hope tomorrow is a better day for you.



    Welcome new friends, too.

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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited January 2012

    Suze - sending healing thoughts your way and hoping your stay is short.  (((Hugs)))

    Michelle

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  • Babs37
    Babs37 Member Posts: 455
    edited January 2012

    Suze- I'm so sorry you are in the hospital. For sure that low WBC and the flu don't go well together! Praying that you will be better fast. Hang in there. (((BIG HUGS)))

    Isabelle xx 

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  • rhondalee
    rhondalee Member Posts: 13
    edited January 2012

    I, too, don't know if I am triple neg. because original path report said ER+ but doc called yesterday and said Oncotype test results were in and score was a 53! and that it said I was triple negative.  I had a bilateral mastectomy with tissue expanders put in place at that time, does anyone know if I will likely need radiation now too, originally told no when ER+ was reported.  I am afraid they will have to remove the expanders now.  I don't have a treatment plan yet, just know for sure I will need chemo now.  I am frightened by the high oncotype score!!

    Rhondalee

     surgery on Dec. 5, bilateral mastectomy, stage 1, grade 3, clear nodes....

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    Suze- wishing you a speedy recovery!

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  • mags20487
    mags20487 Member Posts: 1,591
    edited January 2012

    Oh Suze...sending healing thoughts and prayers your way.

    Maggie

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  • tracie23
    tracie23 Member Posts: 598
    edited January 2012

    Suze, I am sorry to hear you are in the hospital , you will be in my prayers.

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  • TifJ
    TifJ Member Posts: 1,568
    edited January 2012

    Thinking of you Suze.

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  • laurajane
    laurajane Member Posts: 321
    edited January 2012

    Suze- my first response was "call your doc" but I see you did. So sorry you're in the hospital but at the same time glad they didn't procrastinate. Heal quick, sweetie.

    Titan- thank you. Also your description of your biopsy was hilarious!

    Hi Lynn - how are you?

    Rhonda- sorry you are going through this. I think radiation is standard with TNBC but I could be wrong.

    Hope everyone has a great day. The sun is shining here as I hope it is for all of you.

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  • LRM216
    LRM216 Member Posts: 2,115
    edited January 2012

    Suze:

    Sending all my love, strength and good wishes and vibes to you - that this shall quickly pass with good resolution.  Going through a bit of my own right now, so haven't been on the boards posting, but always read.  Stay strong, sweet sister, and look forward to that cruise.  I am thinking of you, and use you as my own personal inspiration. 

    Much love,

    Linda

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  • naturalhorse
    naturalhorse Member Posts: 33
    edited January 2012

    rhondalee,

    I went through treatment for Stage IIb TNBC in 2010 with tissue expanders at the time of bmx.  It was determined that the expanders would not interfere with the rads so they did not have to be removed.  The rest of the reconstruction wen't relatively well.

     Ask the RO and PS if it is possible to keep them.

    kc 

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  • Hope60
    Hope60 Member Posts: 223
    edited January 2012

    Titan - you're hilarious! Your description of your biopsy gave me the first laugh I've had in a few days...thanks for that!  They didn't do mine that way, probably because they were aiming for the top of my breast.  I was lying on my side in this awkward position with my breast in the mammo machine....kind of like doing having a mammo while doing yoga.  I've also been Googling this stuff like a maniac, even though I know better....  "Dr. Google" has scared the hell out of me in the past, so I'm going to stop now. It's a nice day here and I'm going to take my poor mangled boob outside for a walk in the sunshine.

    Suze - Wishing you a speedy recovery! 

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  • ATeamNana
    ATeamNana Member Posts: 464
    edited January 2012

    Thanks for the welcome!

    Wishing all of you a Happy New Year and hope treatments and all are going well.

    ATeamNana (Marsha)

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  • christina1961
    christina1961 Member Posts: 736
    edited January 2012

    Suze,

    I'm so sorry you are in the hospital!  Are you anemic?  My heart rate has run a little high from time to time with the eribulin but not over 100.  I hope you are better and get to go home soon.  I've been on a Disney cruise years ago to the Bahamas.  I think that will be a lot of fun for your family - your kids are great ages for it as they will have lots of available activities if it is still like it was back in the mid 90s.

    Rhonda, I had radiation but I chose to do it because i had 2 positive nodes. I wish in retrospect that I had done the rads with the tissue expanders in- seems to me that that is often done.  I know the methods differ between the staining type of test typically done in the pathology department at the hospitals and the onconotype tests. 

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  • Reality
    Reality Member Posts: 782
    edited January 2012

    Hello to all - I realize there is probably a more specific thread for this topic, but since I am trip. neg., I decided to post this here. I had chemo, lumpectomy and just completed rads. I am, of course, concerned about mets. Due to this, I have decided to become proactive. I have an appointment for my yearly exam with my gyn on the 31st. I have already advised her that due to my "incomplete" response to chemo, per my post-op path report, and possibility of cancer being metaplastic, I would like to discuss a preventative removal of my ovaries. (I had a hyster in 1997, but they left the darn ovaries in!). A lot, unfortunately, depends on weather or not my insurance will pay. Based on the path report and gyn recommendation they may pay due to the aggressive nature of my cancer cells.

    Have any of you had or considered having a preventative oophorectomy? Am I being extreme? 

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited January 2012

    Suze, wishing you a speedy recovery!!

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