Calling all TNs

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    Bernie- I use to tell that joke *years* ago. Thanks for reminding me of it; it was always one of my favorites!

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited January 2012

    Luah......Congrats to you on feeling healthy and energetic!  I am hoping to get over to Sun Valley in February.  It has been awhile since I've been up but I can't wait to play in the snow

    I will be finishing treatment for the third time on Jan 12.  Hoping this treatment will be my last. Everyone on this board is so supportive.  Without that the last year and a 1/2 would have been much more difficult.  Thanks!

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited January 2012

    3's the charm, right?  Good luck, I'll be praying for you. 

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited January 2012

    Just went for my bloodwork, next week is my first follow up appt.  I can feel my anxiety kicking in.  Guess I have to dig the xanax out of my medicine cabinet

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  • CharB22
    CharB22 Member Posts: 310
    edited January 2012

    I met with MO today for the 1st time. She's recommending 4 treatments of Adriamycin + Cytoxan and then 4 of Taxol. She said that because of the TN status and my age (47) and the fact that I'm in good health otherwise and I have young kids (11 & 13), she's recommending 8 treatment (1 every 2 weeks). "We need to go at it with everything we've got." She said this is what is done at Dana Farber, Penn (where she was trained), and Sloan Kettering. Getting a MUGA scan on Mon 12/9, then getting the port put in (waiting to hear back from BS on date for placement), and MO wants to start 1st treatment on Thurs. 1/12. Personally, give me my 1st infusion while I'm under the twilight from the port! (I wish). Does any of this sound familiar to anyone else??

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  • gillyone
    gillyone Member Posts: 1,727
    edited January 2012

    Hello CharB - dose dense AC/T is very typical chemo protocol. There are lots of us here who did chemo like this, including me. I am 2 years out from the end of treatment - rads followed chemo -and doing fine. You will get lots of support here as you go through tx.

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  • mitymuffin
    mitymuffin Member Posts: 337
    edited January 2012

    Friends, Today I went for a bone scan because of pain in my back that has persisted since October. I've been too scared to talk about it, too scared to post about it, and too scared to find out what it was. The fear cast a shadow over Christmas and finally I knew I had to face it because the fear was darkening my life. It was good news, osteoarthritis!

    It was reading the brave posts of the women on here who are dealing with metasteses that finally gave me the courage to go for the test. Ladies (you know who you are) thank you for sharing your wisdom and grace in the face of your great trials. You helped me. 

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  • Babs37
    Babs37 Member Posts: 455
    edited January 2012
    Great news Mity!!!! Isn't it weird to be "happy" for osteoarthritis???Tongue out I guess only we can understand........
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  • Suze35
    Suze35 Member Posts: 1,045
    edited January 2012

    mitymuffin - stepping away from the fog of my "flu" to say how happy I am that your scan came back clean!! It IS so scary to have aches and pains, always worried, thinking maybe you are better off just now knowing. But getting the scan was the right thing to do, and now you can once again move forward. I'm just sorry it cast such a shadow over your holidays. F-in cancer, grr.



    Back to my bed... (I have some bug I think, as 1/2 my family is sick. Yuck.)

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited January 2012

    Yay!!! Mity

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  • KSteve
    KSteve Member Posts: 486
    edited January 2012

    Mitymuffin - Yay!!!!!!!!!!!!!!!

    Char - That is exactly what I did.  My last chemo was 12/30/10.  It is very managable.  I was able to work through chemo.  To me the hardest part was waiting for the "plan".  You can do it!!

    Kathy

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  • Luah
    Luah Member Posts: 1,541
    edited January 2012

    Mity: Good to hear!  Also, nicely put about the ladies here sharing their grace and wisdom in the face of their own trials... I agree 100%.  

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  • TifJ
    TifJ Member Posts: 1,568
    edited January 2012

    Great news Mity!!

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  • mitymuffin
    mitymuffin Member Posts: 337
    edited January 2012

    Thanks ya'll!

    Suze, rest up and I hope you feel better soon.   Not fair that you should be hit by a flu bug. 

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  • christina1961
    christina1961 Member Posts: 736
    edited January 2012

    Mity,

    I am so glad that your scan turned up benign! 

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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited January 2012

    Char - I did the same protocol between June and September.  I'm 61 and got through it really well (better than I'm doing with rads, to be honest).  You can do it!

    Yay Mity!  You're right, it's funny that osteoarthritis sounds so good to us!

    Suze - hope you are on the mend soon!

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  • Titan
    Titan Member Posts: 2,956
    edited January 2012

    Char...I had exactly that same treatment (49 at diagnosis)...4 AC 4 Taxol, dose dense...except that I  didn't have a port......and guess what..I'm still here...no se's at all..you can do this.

    Oh yes MIty....happy to hear it was arthritis!

    One year ago I had a creaky type neck..whenever I moved my neck it felt like gravel or something...plus shoulder pain..guess what..I'm having it again..exactly at the same time as one year ago....My onc said it was arthritis..it must be the weather... ah well..I see the onc again in a few weeks and if it persists I will talk to him again...

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  • CharB22
    CharB22 Member Posts: 310
    edited January 2012

    Mity - good to hear!

    Thank you all for the encouraging words about my treatment plan! Titan, LuvRVing, Mitymuffin, KSteve -- I'm glad to hear there were those of you that could work through it. I'm the major bread-winner (DH works but makes 1/2 what I do), so I need to work for the financial reasons (I've got an 11 and 14 yo boys that eat me out of house and home!!)

    Thanks everyone!!

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  • laurajane
    laurajane Member Posts: 321
    edited January 2012

    Good morning ladies.

    Kymn- welcome back. I'm glad you made it through the holidays and YES! It's a new year and a new you.

    Patti- just reading your post made me day. Thank you for sharing your 10 years with us. Sounds rough but your here. Absolutely put a smile on my face.

    Inmate- I'm celebrating January 12 with you. Let it be the miracle we all hope for you.

    Bac- hope your feeling better

    Suze- I hope there is someone there to help take care of you while you're getting over your bug. I'm sending you some homemade cyber chicken noodle soup and hot tea.

    Lush- you're always full of such kind words , thank you.

    Welcome to the new ladies.

    I made it through my first round of Cetuximab and Cisplatin. My daughter and son went with me. It was so scary. I had two nurses at all times. They had me so doped up for the cetuximab I could not talk just garbled words and so sleepy I could only open my eyes ocassionly but when I did I'd look up and see my daughter looking lovingly at me with this sweet smile. she watched over me the whole time. My son was with me right next to me holding my hand. From start to finish infusions started at 11am and we left at 8:00pm. After today the danger period will be over until next Tuesday.

    Then I do it again. I'm praying this works. I met with my onc before hand she ran all of the tests on my heart and blood work prior. Tumor markers doubled in the last month in a half. My acupuncturist fired me. FOR REAL! She told me that if I did this chemo combo I had a 100 percent chance of dying and if I stuck with my herbs and acupuncture I had a 50/50 chance. I explained that with my macrobiotic diet changes for the last two months, meditations, herbs and acupuncture my cancer was spreading so fast I had no other choice. I'm hoping my body is strong enough to get through this and it works. I'm looking forward to getting my hands back in the dirt this spring. I hope you all have a good day.

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  • laurajane
    laurajane Member Posts: 321
    edited January 2012

    I'm typing this from my iPad and it often changes my words. My iPad keeps insisting that Luah.... Is now Lush.LOL any other spelling errors I will blame on this iPad also. Ha ha!

    Almost forgot Mity.- so beyond happy your scans are clean. Sorry you are having so much pain though.
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  • TifJ
    TifJ Member Posts: 1,568
    edited January 2012

    Laurajane- I hope this is your wonder cocktail! How wonderful to have your kids right there beside you during infusion! You have a good day too!!

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited January 2012

    LauraJane - Hoping this cocktail destroys your F'ing BC!!

     - and how dare your accupunturist say that you!  She should still be helping with the side effects. 

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  • Luah
    Luah Member Posts: 1,541
    edited January 2012

    Yup, shame on that accupuncturist,LJ - no one knows your odds for certain, and I for one envision you out in the garden on a warm spring day, creating some wonderful landscape. Hang tough between now and then. Your daughter and son sound like gems - you must be a proud mama.   

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  • CharB22
    CharB22 Member Posts: 310
    edited January 2012

    Got the call from BS office - port going in on Wed 1/11 and 1st of 4 AC treatments starting on 1/12. Got an Rx for Lidocaine and I'm supposed to rub that on port 1 hour before treatment starts. I meet with onc nurse on 1/9 to sign consent forms and get other info. MO gave me tour of infusion ctr yesterday and got to see a woman's port - ick.

    Anything else I should do to help me prepare?

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited January 2012

    Char - Just get lots of rest and drink plenty of fluids before you start as well as during & after.  There are a couple of threads that people have started on what to do to prepare, things like have pepcid, pepto etc... on hand.  Also, if you've getting the Neulasta shot the day after each chemo to help your WBC - take a claritin the day of and for 2 days after the shot along with tylenol or aleve to help with the bone pain it may cause.  I'll bump those threads for you. 

    Good luck! 

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  • TifJ
    TifJ Member Posts: 1,568
    edited January 2012

    Char- after you rub in the Lidocaine cream, put some plastic wrap over it- I liked the press and seal wrap. It keeps the cream in place and doesn't get all over your shirt!

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited January 2012

    I never had the cream, they just used freezing spray on me, it never really hurt.  I think the anticipation of the pain was worse than any actual pain. 

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  • TifJ
    TifJ Member Posts: 1,568
    edited January 2012

    My PS used the freezing spray on me whenever I had a fill, but the infusion nurses never offered it.

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  • Hope60
    Hope60 Member Posts: 223
    edited January 2012
    Char - I just want to wish you good luck with chemo.  I had the same regimen you're having, except I didn't have a port.  It was much easier than I expected it to be.  My side effects weren't too bad, and they were predictable after a while....I learned which days in the chemo cycle I might feel icky,  and which days I'd feel good...so I was able to plan around  it.  I took time off from work but probably didn't need to....I hate my job, so it was a good excuse for a timeout :)  I live alone, which was a concern at first, but I was able to do everything I needed to do for myself.  You can do this!!!!   Wishing you the all the best!!!
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    Char, definitely use the cream as these ladies said.  Be aware though that it might not help with any pain under the port from bruising since you just had it installed.  I would make it clear to the chemo nurse that that the port is brand new and ask she take it easy when feeling for it and not to push down harder than she needs to for access.   

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