Calling all TNs

michelleo13

When I saw my ONC this morning, I asked her...."So when we're all done with this treatment, how do we know it worked?" Her answer was very reassuring (NOT)..."We don't". Frankly, that scares the crap out of me but I guess I'll have to learn to deal with it like so many of you ladies have! I am part of the Denosumab clinical trial which means I'll get annual bone scans and CT scans for 5 years which provides some reassurance.



Heidi, glad you arrived safely. Iceland looks beautiful!

bak94

Suze, I had high doses of abraxane 110 mg instaed of the typical 80 weekly. My first six treatments went very smoothly, didn't feel like I was on chemo. After the 7th or 8th I started to really feel it and now am exhausted. I forget, are you doing the every 3 weeks or weekly for the trial? 2 more left for me and no more avastin until way after surgery. sounds like they are going to keep me on something after the surgery and rads. Might be avastin and tomaxifien because I have 3% er positive and my doc has the thinking that it helps if you have any positivity at all.

Needed some humor the other day and got some! my hubby was outside working and heard a commotion in the chicken coop, one of the chickens was screaming and just being super noisey. My hubby ran into the coop and all the chickens ran out, but what was left was a HUGE egg! He brough it in to show me and I couldn't believe how big it is! I will have to take pictures and post it. It won't properly fit in an egg carton, it will get squahed. Probably could make a 3 egg omelet out of it!

One of my hens, all of which are organic (no peticides or herbicides used in our yard for probaably over 5 years) fed organic feed and have a huge run plus get to free range when we are out there, is eating some of the eggs. My husband says if he finds out which one is doing this we are having chicken for dinner! I said noooooooo! Hope to not figure out which one is doing it! Hasn't done it for the past few days!

Teka

bak94,

Poor hen.

bak94

I was really down and not feeling well when I went in for chemo yesterday and wound up with the lady that always has problems with my port. Nobody else has had a problem. Well after about 30 minutes she got it working and and when my nurse came out and got me I started to cry. I just couldn't deal with it yesterday. She was so nice. Took my hubby and me into the room and spoke with us for about an hour, just about life, dealing with cancer and such. She says she gets really down sometimes seeing what patients go through and she told me it would get better. She said to have her put in the port access from now on, just go back and get her. I don't know why such a little thing sends me over the edge, but the other gals just stick it in and it works, I don't get it. She was my angel of the day, how can someone I really barely know be so compassionate and kind to us? I really have a top notch medical team, never once have I felt rushed. I told her I feel like a wimp and that I should be doing more and feeling better and then that is when she told me that the doc has me on a huge dose of abraxane that they don't usually give to anyone, but since I am strong he wanted to hit me hard to get everytning, as studies have shown higher doses to be beneficial in cases like mine. she said she could lower it and I said no, lets just finish it off strong, I can take it.

bak94

Yeah, I think it was like having a fifteen pound baby! All hens are doing ok though! They sure let you know whe nthey are laying an egg, especially a big one. I di think I know which one, as she tends to lay pale green eggs and this one is very pale green and huge! She is a big girl though.

Teka

bak94,

I wonder how many know that hen eggs are soft when laid and the shell then hardens?

bak94

How quickly do they harden? I have found eggs right after they are laid and they are hard, although I don't squeze them! I know they are soft inside the hen, but they must harden quickly. Makes sense though, as if they were hard while being pushed out they would crack! It's an interesting process, I need to read up on it again!

Teka

bak94,

When hens are young, they lay small eggs; as they get older, the eggs get larger, and aren't laid as frequently.   The hen puts the shell on the egg just as it is laid.   It takes about 10 seconds to harden.

OBXK

I'm a little over the pink too. I happily cracked my eggs, that had a freaking pink ribbon stamped on them!

I had my port removed Wed. And he cleaned up my mx dog ears. I am wrapped up, but it feels like the buldge under my arm, is reduced. Can't wait to have a shower tomorrow!

Teka

OBXK,

No one had better mess wirth my eggs (

LRM216

Thanks for the pictures, Heidi, that's the closest I'll ever get to Iceland!  Hope you have a wonderful time and your flight home is as smooth as ice.

Never knew that about the eggs hardening only after they are hatched.  Yes, of course, it does make sense, but I truthfully never realized that.  Interesting.

I have those stupid eggs too, with the pink ribbon on them!  I thought it was only on the egg carton, laughed when I saw it stamped on each egg too!

Suze - glad to hear it's going well with no horrible side effects.  Hope it stays that way.

MBJ - Again, wishing you a move as smooth as I wish Heidi's flight home to be.

To all the rest of the wonderful ladies - wishing you all a good weekend.

LJ - love and prayers - buckets of them.

bak94

SOmetimes the teenagers lay huge eggs, as this hen is still pretty young, about 7 or 8 months old, It is when the double yolkers happen. Have you ever seen a triple yolker? I wonder about this one! I had a necropsy done on a hen that died and the vet said that she had several eggs in her., I did not ask her at what stage, but I thought they only devloped 1 egg at a time. Maybe she was eggbound? But the vet said the cause of death was an injury to her liver and she had bled out:(. Poor thing, I had no idea she was injured, nothing showed on the outside. I bet one of my goaties head butted her:(

Should i stamp pink ribbons on my organic eggs I sell? JK!

Titan

OMG..you guys were totally freaking me out about pink stamped eggs..I had to go and check my eggs in the fridge..they were just eggs.

You guys "crack" me up...

Ka-cey

Sugar77 - I'm out West, Calgary. 

Heidi - I loved your pictures.  Please keep them coming.

Suze35 - You are amazing.  I hope you have a wonderful pizza party with your family and friends.  

Michelleo13 - I had a similar response from my ONC.  I hadn't informed my ONC that I had started to see a Naturopath and during my last visit with the ONC I asked for a requisition for some blood work that the Naturopath had requested.  Well that set him off big time - he told me that everything that could be done for me was done and that if the cancer were to reoccur it would be too late and then he promptly slammed the door leaving my husband & I stunned.   At first I was devastated, but I disliked him so much that I used his words as incentive to exercise daily, use food as medicine and not dwell on his words and make each and everyday count.    

Bak94 - Thank you for the education, I love that you love your animals so much.  We have 3 dogs and I find them to be a constant source of entertainment. 

Titan - Thank you for starting this thread (I think that is what it is called).

LJ - Hugs

To all of you wonderful ladies, I hope you all have a great weekend.    

Teka

Hi,

OK, I've a question for BC patients who are for BC follow-up testing being ordered or requested from a source other than MO.   Would results be sent to MO?      

Teka

bak94,

I've seen double but never a triple yoke egg.

LRM216

Teka:

Whenever I see my Primary Care doc, gyno or breast surgeon (she does all my breast MRIs, mammos and US of breasts), I just always ask that my onc be copied on everything.  I guess if I had to see anyone else, I would just do the same.

Teka

LRM216,

I also keep my MO in the loop.

ksmatthews

Ka-Cey if my dr acted like that and then slammed the door and walked out, that would be my LAST visit with he/she.  That is totally rude and uncalled for.  My dr, nurses, tech's have all been so sweet and kind to me.  We r on a first name basis lol.  I wouldnt dare want to see anyone else.

Pray for a lady in my town, she told me yesterday that she had just been diagnosed with DCIS this week.  So sad!

OBXK

Ka- cey - I am floored that you were treated so badly. Even if he should disagree with your going to a Naturopath; he should have respected your decision. I hope you can educate him, on the errors of his ways, on your way out.

Anonymous

I've seen a triple yolk egg. I also stopped eating the eggs my hens lay when I cracked one into the frying pan and it was fertilized. Gross.

I've added photos to the Iceland album. It's from today's glacier walk and waterfalls visit. I'm quite pleased that I got through it... figured my knee would give out or my joints start to ache. But I made it through! Guess I'm finally moving beyond most of the post chemo related aches and pains.

The trek on the glacier was quite interesting. There were a lot of holes and crevasses that you could have slid down into if you weren't paying attention and listening to your guide. Luckily, we did both!

http://albums.phanfare.com/isolated/yYYtMLGp/1/5310685

 

I don't have any of the places identified.... the names up here (not to mention the spellings) are enough to make your head spin!

OBXK

Heidi - stunning photos! Thanks for sharing. Glad your bones are cooperating!

OBXK

DH and I just watched "Five" on Lifetime. I think we went through a half a box of tissues.

Swanny

I was wondering about that "Five" movie.  Is it one 2 hour movie with 3 different stories or is it a series of 3 different shows?  I couldn't figure it out from their schedule and I haven't had time to watch it yet. 

bak94

Gross Heidi! We don't have any roosters thank goodness! You never know though, one could escape and and have a fling!

jazz3000

Swanny it's five different short stories and hopefully you  catch between tonight and tomorrow. It's just starting here.

Bak hoping your feeling well and sad to hear about your hen as I hate it when my pets and animals die. More especially when I feel like I missed something that might have caused them to suffer. Are you other hens laying eggs with pink ribbons on them? They must go for a lot of money? That's gotta be so hard on the hen.

Looks like you might be a little cold there Heidi. Sweeeeet trip.

Anonymous

jazz- Actually, Iceland, being an island, is warmed by the Gulf Stream, so it's not as cold as one might expect.

However, the weather changes like crazy, and while we were on the glacier we had wind, rain, sleet and hail, in addition to sunny skies. Luckily, the majority of it was the latter because it IS cold when the wind/sleet whips up.

I was wearing hiking boots 2 sizes too big for me (they were my sons) and I had big woolen socks and foot warmers in them. Even so, I had to be careful not to slip despite the crampons. No crevasse entry for moi!

mccrimmon324

Heidi. That sounds amazing. Iceland has always been on my husbands top ten places he'd like to visit. I think I'd love to go hiking on a glacier.

Paintingmywaythru

Heidi, I love going to Iceland..have been twice. Stayed in rooms above the bookstore in Reykeavick ( bad spelling)...loved going to the glaciers  and hot springs and looking at all that lunar landscape. Would like to do the perimeter and see Northern Iceland. Don't you love that they leave their babies outside in carriages when they shop...how ncie to feel so safe. Your pics are great. Drank lots of kefir while I was there.

Suze35....hope things go better at DF. I switched to MGH becuase of my troubles with Mt. Auburn and I am feeling much better about my care. I know that although they might be frustrating you will advocate all you can for yourself.

LJ...hugs and missing you here. Big hugs.

Titan those pics were amazing....my daughter recently gave me the CD's to copy from her wedding in July...will have to psot a pic.

Must get ready for an open house now. HAve to take the kitty with me....2 1/2 hours and a cat in the car...husband is workin today...already at work so I must do my thing to get all ready...looks good as we have been working like crazy to get it ready....this on top  of rads andchemo so I must have some energy. Here is the link:

http://www.seetheproperty.com/presentation_v2/presentation.php?order_id=86306&mode=branded&ws=1&from=http%3A//vifp.com/order_info_finished_components.php%3Forder_id%3D86306

Here's hoping that we have good karma today and someone falls in love with our house.

Hope everyone has a lovely Sunday.

PS: Love the chicken stories...we used to have 4 bantams for our children but the fox came....

ksmatthews

Beautiful pictures of Iceland!  Love the waterfalls!