Calling all TNs
Comments
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laurajane- how sweet of you to send me cyber soup!! I hope you've kept some for yourself- I want you healed as well. Hugs right back at ya!
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Phone posting!
LJ - I would say it is the Avastin. I had a wicked migraine that started the day after my first treatment, and the only thing that broke it was prescription Fioricet. Don't be afraid to ask your doctor for something! I still have head issues from the Avastin, and we are lowering my dose. Have you noticed any changes, or at least no new FC? Oh I hope so!
Jenn - it is good to hear from you. I hope you are feeling better and ready to fight. I really hope Navelbine is your cancer's kryptonite!
Lisa - rant away! We are good for that :-). I'm so sorry you have to be here.
My dog, a little doxie, has been unusually cuddly with me since my diagnosis. He was always more attached to DH, "my" baby girl doxie passed last April. But he just wants to be with me now. I often wonder if it is because we are now kindred spirits - feeling old, sick, and tired.
I'm gonna post pictures next week of my shoes, I'm inspired! -
Suze- how do I post photos?
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Hi ladies, I've been off the boards for a couple of weeks and wow this thread has really been busy.
LauraJane - sorry to hear of you recent developments. I'm sending you good vibes for the latest treatment to kick your cancer in the @ss!
Suze - glad to hear your headaches have subsided and that your brain scan was clear.
Welcome new ladies.
I've scanned the posts on this thread but think I'll need to go back and read in more detail when I'm more "with it." I'm pretty tired because we returned late last night from a holiday in Boston and a cruise to Bermuda, which departed from Boston. Luckily we missed Hurricane Irene and were out at sea when it hit land.
I wish everyone health and happiness this Labour Day long weekend!
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LJ- I PMed you about the pictures. Send them to my email and I'll post them for you here. Do you have an online website you upload pictures to? You have to have one (Snapfish, PhotoBucket, etc.) in order to put pics in BC.org because you need the URL (web address) that is *specific* to that one picture.
Or, you can just send them to me and I'll do it for you. I maintain an online album specifically for the pics I put up here in BC.org.
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Morning everyone, yes his eyes really are blue. I know yoy here allthe horror stories about dogs but if you know there character then you can tell if something is not right. I've always owned big dogs, mainly german shephers. right now i have gunnar , and a german shepherd and a terrier/beagle. It's the little chap that causes all the problems.
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Jenn: I'm sorry you have been in the hospital, hope you are feeling better now.
Laura: Wish we could take a computer class together. I am not even very good at posting links.
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Jenn3: Sorry to hear you havne't been doing well. Just know that we are all thinking of you here and we are wishing you well!
Laurajane: We wear the same size shoes-well at least in the pointy ones, lol! Everything else I am anywhere from a size 9 1/2 on up. I love that you have retained such a openness into adulthood. It isn't easy to do! I think because you have followed an artistic path that it allows you to hang on to this! BTW: It makes sense that Avistan would give you headaches since it's job is angiogenisis-stopping the blood flow to the cancer-but man, that just sucks with the SE's.
BTW: The inspections went well and we are moving forward purchasing a house-our new yard is 45' wide by 182' long and I can't wait to get my hands in the soil and plant a garden and vegis and fruit.
Tiff: Hoping you are feeling a bit better and that LJ's soup does the job!
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I love all of the dog stories and the pictures-I never could figure out how to post here but my cats are glued to my side since my diagnosis.
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Thanks MBJ! LJ's soup must have done the trick- I am feeling better! Hope you are feeling better too after your accident!
The kids are starting to bug us for a new dog. Our sweet golden retreiver passed away June 2010. It is kind of nice not having any pet responsibilities, but I miss the companionship of a pet. Any suggestions on a medium sized, not too hairy dog that's good with kids?
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Hey everyone...just wanted to share a story with you that a friend of mine (that I haven't seen for a long time told me at a wedding last night).
FIFTEEN YEARS ago she was diagnosed with stage 4 triple negative breast cancer...not a typo..FIFTEEN YEARS AGO....She had 4 AC's 3 times per week...had a unilateral masectomy.....at her one year check up they told her that they honestly did not expect her to live more than 3 months...her lymph nodes were filled with cancer at diagnosis (not sure where her mets were).
They didn't call her tn back then..she was called estrogen negative...
Anyway...FIFTEEN YEARS AGO......she was probably around early 40's when diagnosed...she is perfectly absolutely fine now...
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LJ - I've been in and out of the hospital with "unexplained" fever. The fever starts low for about a day and has gone as high as 103.5, then settles down around 101 for a while before going away. Each visit they ran test after test, but couldn't find the source of infection. This time they decided to take my port out, as it was the only thing they could think of that would cause fever like this. I had the port removed Thurs, came home that same day and (knock on wood) so far, so good. I seemed to do well with chemo (Navelbine), but really don't know if I have SE's from chemo or what I dealt with was from the fever. I'll keep y'all posted.
Titan - thanks for the upbeat story of a TN survivor - it's always good to hear.
I feel terrible that I haven't been here to support you while I've been feeling so bad, yet you continue to send me well wishes. Thank you. Hopefully I can stay out of the hospital for a while. Although I now know where the good views are on the hem-onc floor...........:)
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Jenn: I hope that does the trick!!!
Fifteen years!!!??? Hallelujah!!!
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Thanks for the great story about your friend--15yrs is exciting! Any idea how they treated her--which meds for chemo?
Maggie
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Mags..she had AC..that's all...taxol wasn't in the picture then....when she was telling me her story I just burst into tears and thanked her for sharing with me...
At our table at the wedding reception there were 3 of us that have/had BC...a table of 8, 4 of them men...my other non-cancer friend was probably freaking
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Since my diagnosis everyone I talk to says my friend just had or my sister just had...it amazes me how many women have or are being diagnosed with BC. I will find out my chemo plan on Tuesday. Excited to move on but nervous as well. Mind wanders to will I get sick--gain weight--lose weight--and even to what I call the "dark side" of will I survive...
Your friend's story makes me believe that anything is possible
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Titan thank you so much for the awesome story! One day that will be us telling our story!
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POSTING PICTURES:
1. Upload your picture, in JPEG format (most pics are either jpeg or giff files by default) from your computer's hard drive to an online photo storage site such as Snapfish, PhotoBucket, Phanfare, etc.
2. Locate the URL (web address i.e. www.myimage.com) for the image. Somewhere on your online photosite there is a place to find this, and locating it is the key to your success for posting the photo in BC.org. Sometimes it's located directly under the displayed photo. Sometimes you might have to right click on the image itself and highlight the properties function. You may be able to verify you have the right URL if you see the name you assigned your picture in this image URL.
3. Copy/Paste this image URL into BC.org by clicking on the "tree" icon in the "Post a Reply" window and then pasting it into the Image section.
4. Then click "Insert" (located In the lower left corner of the above referenced window). Your image should now appear in the body of your message (where you are reading this note).
Anyone still having difficulty posting photos can PM me and I'll try to walk you through it further.
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My cats are also glued to my side. I have three wonderful feline companions who really seem to sense that I am going through a challenging time. What a great comfort they are. I do not have to answer any questions or make any excuses for not being my normal self!
Sher
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My bichon-poodle Brandie was my little buddy when I was going through treatment. It was like he knew. He was always snuggled up with me and provided the best company, which I will never forget. He also used to steal my wigs....and I'll never forget that either...lol
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Jenn3, I hope you continue fever free, and I hope you feel better each day. Infection on top of SE's is "too much sugar for a dime". No fair.
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My dear, kind adult daughter has lent me her sweet cat until Christmas when my chemo will be about over. She wants me to feel less lonely. My dear MIL and FIL will be with me until mid Sept and then my DH will come for my chemo weekend (Th-S) the next day and then every 3 weeks. Having DD cat will help me. The support from all of you helps, too. I'm on day 11 of my #1 T/C of 6. Best.
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Without going into details (I hate to ruin our current upbeat tone), please say a prayer for the family of a dear TN friend that has passed.
I am getting my new rescue dog tomorrow (I'm a foster) and its a JackRussell/Lhasa being treated for heartworms before his adoption....so we'll be chillin' on the sofa for the next 2 weeks. Send him some prayers too
:)
Love you all!
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Heidi's instructions worked! Here's Eddie!
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Oh Ruth, sorry to hear the news. My prayers go out to you, your friend and her family.
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I too am sorry to hear the news about your friend Ruth!..wasn't she your bestie from grade school?
And..I have a cat named Eddie...I'll try to get his pic here sometime..he kinda looks like Heidi's Butt...her cat..I mean...
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Eddie is adorable! BernieEllen, love your pic too! Looks like my house, dogs everywhere!
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