Calling all TNs

mitymuffin

Suze, Excellent news!

LJ,  I'm glad you got started on the new stuff and I'm hoping it kicks a** fast.

Good wishes to all for a nice Labor Day weekend (with no thoughts of FC.)

Susan

Suze35

Had a great date night with DH - dinner, martini, movie. Woke up to a wicked let-down migraine, but with my new best friend Fioricet, have it under control, thankfully!



LJ - a Blahnik girl, huh? Those shoes sound divine! My fav is Louboutin, I have a fancy for Mary Janes, lol. I think meeting up in our dinner shoes sounds heavenly! My DH has another name for shoes like that, lol, but I like your definition too :-). I am so glad you got fast-tracked on the Avastin, and I am keeping you in my thoughts that it works fast. The rainbow sounds like a wonderful sight.




MBJ - I've been good since my diagnosis - no new shoes. But I told DH after my PET in a few weeks, I will be doing a little retail therapy, heh.



Lynniea - good luck with your rads! It really is downhill from here :-). Don't forget to use some sort of cream every day, it really helps!



Titan - you know me, queen of false alarms, lol. As long as they stay that way, I'm happy :-). I can only imagine how hectic things must be for you! But exciting too.



Heidi - I'm glad to hear your back is doing better. This cancer crap really does a number on our joints and ones, it sucks. Have a great weekend, and enjoy your visit with the future in-laws!



~~~~~



Heading to Washongton DC this weekend with the family, so I'll be away for a bit. Have a great holiday everyone!

christina1961

YAY!!!, Suze!!! So glad for the good news!

Wink

Was diagnosed July 2008, two months after my 50th birthday.  BiMX Aug 18, 2008 followed by four dose dense Cytoxin/Taxotere every three weeks.  Started the bisphosphonate trial - ibandronate- in Dec 2008; stopped a year later due to leg pain. Neg bone scan one month after I stopped the trial. Started reconstruction July 2009 with tissue expanders, and exchange Oct 2009.  Can't decided (even now) if I want nipples or just tattoos, so I still have the last bit of recon to do.  See Onc every six months, although it's been over a year as I got a big case of MCB (major cancer burnout).

This past July was my three year cancerversary....so far, all is well!

Summer38

Suze - Great news!

LJ - I have a good feeling about this too! Bring on the rainbows

Heidi - Glad you're feeling better.

Have to run and buy some shoes - my feet are feeling neglected

Kymn

Sending more double rainbows your way LJ, so glad your medical team got you going right away

Great news suze what a wonderful way to start off the long weekend

have a great one girls full of cancer free thoughts

Hugs Kymn

TifJ

Wink- thanks for posting! It's so encouraging to hear the stories of those past the 3 year mark!! So glad you are well!!

Titan

Kymn..your pic is beautiful...I have a memory of when I was going through treatment and there was a double rainbow "touching down" in my front lawn..it was raining but I ran out there to find that dang pot of gold..my husband was directing me on where to look for it...dang but it was gone b-4 I got there...it was a cool experience.

This may be weird but do you guys do stuff like that?  I just loved the Wizard of Oz when I was a kid...read all the books...I tried and tried to go the Land of Oz ..would spin myself around..never got there though...

I dunno....I think Laura Jane has the gift of "just believing"...when did we get all caught up in adulthood..and forget the joys of being a child?

Lynn18

Wink:  Hello!  I second what TifJ said--very encouraging to hear from those of you that are years out from dx.

Suze:  Yeah for clear scans!  

For some reason my computer is not showing the double rainbow pic.  I saw one last summer in the mountains and it was beautiful.

I would love to see a pic of those shoes, Laura Jane and Suze?

Titan:  I also loved the Wizard of Oz books.  Quite different from the movie! 

Anonymous

After treatment we were sailing on the Chesapeake. Suddenly, we were surrounded by dolphins, which are supposedly good luck to sailors. I took it as a good omen, and I found it comforting. Now, if there'd also been a rainbow.... wow, might have been cured!

BernieEllen

Thanks to all for the best wishes.  Went back to work yesterday and really enjoyed it.  So pleased to hear the good news from everyone.

lots of love

Bernie

bak94

Had a scare today. Have you ever heard that some dogs are sensitive to finding cancer in humans? Really, this was on the news several years ago and has always been on my mind. Well, today my chihuahua was laying on me and suddenly hopped up and started sniffing my left breast, right where my tumor was/is. Then he starting scratching at it feverishly! My heart dropped! Did he smell cancer, is the treatment not working? Not necessarily, he managed to find an ice cream stick that was in my bra!? I was eating an ice cream bar, but do not remember doing anything with the stick, guess it must have just fallen down my bra when I was finished! WTF? WHat a relief!

bak94

Yes, the shoes sound beautiful! I love shoes, but if they hurt my feet they wind up way back in the closet never to be worn again, then I wear the practical, kinda ugly ones day after day:( I am a bit of a clutz, so I am jealous about the strappy high heels, I have never been able to wear them. Red twizzler shoes sound so cute!

Titan, that does sound like a cool experience!

mccrimmon324

Bak94 - The popcicle stick made me laugh.  Glad that's all it was.  I have a friend who's boss has colon cancer, I think, twice and both times his dog found it.  The second time he walked into his dr's and said my cancers back my dog found it.  The dr called him crazy but did the testing anyway and sure enough it was back, he got treatment and is fine now. 

I laugh whenever my husband tells me this story.  Back in his early 20's he got really drunk one night, got home and made himself a balonie and cheese sandwich, which he doesn't remember doing however he woke up with it stuck to his face and his dog trying to eat it.  LOL

lisaorock

Hi Ladies,

I'm new to this thread but not tot he boards. I started on the Nov. 2010 chemo thread.  I was 44 years old and diagnosed on Oct.5 2010.  My head was spinning. I saw my BS the next morning.  I have a stronng family history on my father's side. My father had it,grandfather,great-aunts on my father's side, and my aunt (father's sister). My BS ordered a genetic test immediately.  I had a lumpectomy on my right side.  My tumor was 1.2 cm. Found out I was BRACCA 2 positive. I then had my right breast removed and started breast recon. with tissue expanders. I saw my onc. I then found out I was triple negative.  My cell proliferation rate was 90%, pretty high.  He wanted to start me on chemo ASAP. That is why I did not have double mx right away. They wanted to deal with the affected breast first. I had 8 rounds of chemo, 4 dd ac, and 4 rounds of taxol.  I got terrible headaches after my first round of taxol. My onc. was so worried he ordered a head CT. All clear! He then ordered and performed a Lumbar Puncture to check for infection.  Nothing there either.They then loaded me up on pain meds to get through the rest of chemo. A month after chemo, in April I had my left breas,startes recon, and a hysterctomy all at the same time since I was BRACCA 2 positive!  I just had my tissue exchange surgery on Aug 1. I now have silicone implants.  I have to wait until Nov. for nipple recon. and areola tattoo.  That's where I am today.  I had my last visit at onc in June and was declared NED. I have to go back every three months for three years for blood work.  They do tumor marker tests also.  My next appointment is next Thurs, Sept. 8 (my mom's birthday).  I'm already a nervous wreck.  My hair is just long enough to look loke a "normal" short haircut.  I have no energy even though I try to exercise every day.  My energy is not even close to where it was pre dx.  I just joined a support group with women dealing with all different breast or ovarian cancer. It seems to help a little bit.  My husband has been by my side the entire time.  I am so blessed with a wonderful family and friends. I just feel lke there is a constant black cloud following me.  I try not to live in fear every day but I can't help being scared it will come back. I want to watch my two children, Kyle 13, and Kristin 11 grow up!

 I know I am ranting:( Thanks for listening!

Take Care,

Lisa

ksmatthews

Lisa welcome to our thread.  Sorry you are here.  Sounds like you have really been through alot, but congrats on the NED!

We are all a strong group of woman!

TifJ

lisaorock- Welcome to the thread! I hear you on the energy. I am 8 months PFC and still feel sluggish and unmotivated. I need to get off my butt and at least walk! I could stand to lose 15 pounds! I too worry all the time about every ache and pain, but I think most of us do. I consider worry to be one of the worst side effects from cancer. It's bad enough we had to go through it, now we must worry about it for the rest of our lives. Don't mean to be a downer today- have a cold and feeling crappy!!

Titan

Welcome Lisa!  Sounds like you are "normal" to me!     I would like to give up those every 3 months visits to the onc also but it doesn't look like it is going to happen in the near future.

My cat has been trying to "suck my breath" out lately when I'm sleeping...I was freaking out about this until my DH said that the cat has been doing the same thing to him.

The things we worry about.

I'm still laughing about the popsicle stick in your bra Bak...only on here would a popsicle stick stuck in your bra is considered a normal thing... 

bak94

McCrimmon, your friends dog trying to eat the sandwich made me laugh! Years ago in my party days I had some people over to my condo (warning, this is a gross story!) I have an African Grey Parrot and had her out of the cage to visit with my company. Well, I drank a bit too much and fell asleep/passed out what ever you want to call it with her on my shoulder. My friends needed to leave and couldn't get her back to her cage, I think she was wanting to protect me. Well, when I woke up the next day it wasn't pretty! Lots of green slimy bird poop in my hair, as she had decided to sleep right on top of my head! Thank goodness it all landed in my hair and not my face!

Titan, animals are sensitive to things! I bet they know more than what we give them credit for! Maybe you both snore and your cat wanted to know what was going on in there.

Welcome Lisa! Rant all you want to here. Appointments certainly are nerve racking!

Tif, it does take awhile to get over that sluggishness, I know from the last time I went though this. Finally the checked my thyroid levels and they were way off. Started to feel better within weeks of starting medicine. I am just getting over a cold, they still did chemo on me yesterday and put me on an antibiotic. They gave me the 5 day stuff where you take 2 pills on the first day and I swear I feel better today after taking the first dose yesterday.

I finally fell asleep at 8 am this morning and slept until one. The decadron keeps me up the first night after chemo. I think the crash comes Sunday or Monday.

bak94

McCrimmon, your friends dog trying to eat the sandwich made me laugh! Years ago in my party days I had some people over to my condo (warning, this is a gross story!) I have an African Grey Parrot and had her out of the cage to visit with my company. Well, I drank a bit too much and fell asleep/passed out what ever you want to call it with her on my shoulder. My friends needed to leave and couldn't get her back to her cage, I think she was wanting to protect me. Well, when I woke up the next day it wasn't pretty! Lots of green slimy bird poop in my hair, as she had decided to sleep right on top of my head! Thank goodness it all landed in my hair and not my face!

Titan, animals are sensitive to things! I bet they know more than what we give them credit for! Maybe you both snore and your cat wanted to know what was going on in there.

Welcome Lisa! Rant all you want to here. Appointments certainly are nerve racking!

Tif, it does take awhile to get over that sluggishness, I know from the last time I went though this. Finally the checked my thyroid levels and they were way off. Started to feel better within weeks of starting medicine. I am just getting over a cold, they still did chemo on me yesterday and put me on an antibiotic. They gave me the 5 day stuff where you take 2 pills on the first day and I swear I feel better today after taking the first dose yesterday.

I finally fell asleep at 8 am this morning and slept until one. The decadron keeps me up the first night after chemo. I think the crash comes Sunday or Monday.

laurajane

I love all of you and hope your week-end is great!

laurajane

Thank-you all for all of your sweet and thoughtful well wishes.

Titan, Titan, Titan- Thanks again for starting this thread.  

riley702

I woke up at the bottom of a "cuddle puddle" this morning with my 2 kittens (4½ mos. old). Lucy has "mommy issues" and likes to suck on my earlobes. It's just every once in a while when I'm laying down now. So Lucy is wrapped around my neck like a scarf sucking on an earlobe, and Lovey comes bouncing up, all "What's going on? Can I join in, too?" She rolled around on me and Lucy before ending up half on top of Lucy and half on top of me, licking whoever she could reach, just purring her head off. Lucy stopped, looked at her, and then resumed sucking my earlobe. It was so funny!

BernieEllen

Hi everyone, hope things are good for you all.  Love the dog stories.  We have a pitbull/rottweiler 16 months old - gentlest dog i'v ever known but occasionally he just sits and stares at me, really stares as if he's trying to make his mind up about something.  Then he gets on my lap (all 6stone of him) and snuggles into me like a baby.  He's done this since i had the surgery.  His name is Gunnar - it's Teutonic - meaning - Bold Warrior.  If i tell him off for anything he looks as if he's going to cry.

BernieEllen

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laurajane

Suze- Beyond happy about your scans. Love, love, love Louboutin. So comfy with that hidden platform in front. LOL on DH difinition. I've had migrains for 3 days now, Oxy doesn't touch it. I hope it is from the Avastin. The only thing that helps is a little toke of smoke. I then sleep like a baby.

Wink- Happy anniversary! I love hearing about anniversaries. Fills my heart with hope.

Summer- NY? My favorite place to buy shoes is Bergdorf Goodmans they have a huge selection for my huge feet size 10 1/2 or 11's.

Kymn- Thank-you for sharing your rainbows 

Titan- Funny shortly before my mom passed a couple of yrs ago I asked her if she ever really felt like a grown up because I still feel like I'm in my twenties. Except when I look in the mirrorLOL. She said she didn't think I would ever really grow up in this lifetime. LOL. I remember so often people have said to me "Grow -up". You make it sound like it's a good thing that mabe I haven't. Thank-you

Lynn- I wish I could figure out how to post photos. I took a photo of me wearing these shoes the first night I got them. My byfriend was laughing at me because I love them so much. Heidi tried to explain it to me last year but I couldn't figure it out. If anyone can tell me an easy way of doing it I'd sure appreciate it.

Heidi- How cool to see Dolphins in their natural habitat where they should be. That is Awesom!

Bak- I'm still laughing my petunias off on that one.

Thanks for sharing all of the funny stories ladies.

Lisarock- You have been through a lot. So happy you are dancing with NEDS! YEAH!!! I don't think there is any such thing as ranting to much. Rant on girlfriend and we will listen.

TifJ I hope you feel better soon. Summer colds are the worst. I'm sending you a cyber pot of homemade chicken noodle soup and a hug. Hope it heals you.

laurajane

Bernie- How cute! Are his eyes really blue? or is it the camera shot. I've always been terrified of Pit bulls but he looks so sweet and cuddly. My dog is half chow half shepard. He has been sleeping next to my bed every night since right before I was diagnosed. I believe dogs can tell too! he used to always sleep with my son before that. It's comforting to me. He also thinks he is this little puppy still and likes to cuddle. I've never been able to keep him off the couch. He jumps up on it as soon as I walk out of the room I'll turn around and tell him "Off" He jumps down and then right back up. It's been going on now for alomost 9 years.LOL

jenn3

Titan -  Looking back at my last post I realized that from that time to now I've been in the hospital 3 times.  Thank you for taking the time to check on me.  (((Hugs))) Jenn

sylviaexmouthuk

Hello everyone

I just wanted to wish all of you a very happy Labour Day weekend from all of us over here on the TNBC UK thread. I have been reading a lot of your posts and want to send all our support going through challenging times with your breast cancer. I do admire all you courageous American and Canadian ladies. I do admire the fact that you can still have fun and laughter in your life at a difficult time. I have enjoyed reading about some of your love affairs with shoes. I thought the rainbow photograph was absolutely stunning and I could not believe the bright blue eyes of Bernie's beautiful dog. As a London born girl, not used to animals, and having read about the dangers of pit-bulls and rottweilers I am sure I am going to see those beautiful penetrating eyes in my sleep tonight!

I am sure that dogs can feel when there is something wrong with their owner and will want to be close to them. I think that the theory that dogs can sense cancerous tumours is being taken seriously here, according to some newspaper articles.

Best wishes

Sylvia

laurajane

Jenn- How is this chemo? I hope the SE's are not too bad. I'm praying this works for you. Why were you in the hospital 3 times? Are you ok now? I'm so saddened you are going through all of this. I'm praying this chemo kick your FC out the door.