Calling all TNs
Comments
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Dear tnbcRuth - thanks for the info on Lyrica for neuropathy. I shall look into it if things get worse. Titan - I am praying that everything turns out well for your son, sorry you had to go through it. Sometimes I feel that I get sicker when I go to ER.
Ladies, I just want to give you all my good news. My PetScan was normal, clean and no metastases. There was only one little thing - they call it enhancement in the R. Breast which doctors think is no big deal. I also have a clean MRI of both breasts, which does not mention the enhancement in the R. Breast. The surgeon said the MRI takes prescedence over the PetScan as related to the breast. Anyway, I am still gonna do a mammogram and ultrasound just to make sure, the enhancement is nothing. The surgeon said, it is not a mass, just an enhancement. The next MRI is in 6 months.
The doctor's office called me. Maria said that your results are out, but please hold on for the doctor. I started crying so loudly, just couldn't control myself. I thought that within the next few minutes, my destiny will be decided whether I will spend my next several years being sick, taking in more chemo and face death, or not. My God, the emotions were too much. The doctor said to stop crying as there was nothing to cry about, the petscan was clean. I did not hear him and continued to cry louder. Why do we have to go through such crap? They don't plan to give me a petscan as part of my ongoing checkups, but only when there is pain or something developed then only will they check. It is not easy to hear bad news.
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Lovelyface: Sooo happy for you!!
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Lovelyface: Such good news!!!! Hugs!
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Lovelyface - great news!!
MBJ - I hope they can figure out what is going on
. Feel better!!
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lovelyface, great news!! So happy for you!
MBJ I hope you feel better soon.
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MBJ, Hope everything turns out ok with your tests.
Great news, Lovelyface!
Thanks for posting video, Heidi - that looks like such fun!
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MBJ- sorry to hear you're not feeling well. If I may ask-what is Addison's disease?
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Lovely face so happy for you, the crying can be so overwhelming,sometimes I dont think we know how much this has affected us then it just comes pouring out.
Rella I love gyros lol
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Testing
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Yay, you got it posted! Love the shirt.
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Riley thanks for the info. I just have to get an avatar now.........:) I wanted this to be it but according to the lady I have to resize it. I like it when the link does it for you...:)
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It works with most image files, sizes up or down, you can crop at the same time, works with pics online as well as ones on your computer and it's free!!!
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I am evidently having a pity-party today..................anyone want to join? Last night I got sick to my stomach and I have been that way all day. It is weird it is like I am sick to my stomach in my chest too. I am so ticked at the way my feelings just get pushed aside by the medical field. It is either it is not the chemo, oh it is the chemo, or it is the accumulation of the chemo. Then this is my favorite.........DO YOU HAVE A FEVER.................Well that is not high enough to worry about. GRRR
I am sure that if I were to have my period it might be now.........I hate this. I would rather have my period so I could get some relief. I thought one good thing that could come from chemo would be chemopause, but was I wrong (for me). Cramps, sore boob, irritability but no period to take any of it away. I have not had a period since April. A little spotting when I had my surgery. Does it get better. Then I am still scared to death to start the Taxol. I just don't understand if they have Taxol in a purer form that does not cause allergic reactions why we can't have it. I am told it is just not protocol. Read from the other forum that it is to expensive. Well, my goodness how could it cost more that all the premeds you get to keep you from having a reaction. I feel this crap has messed with my heart, but the oncologist does not, his PA does not so if I want to have it checked I need to see my cardiologist. I feel since they are giving me a poison that could cause damage to my heart they should check it. They said they were not going to give me enough to do any damage, but I already have heart issues. I just feel that I should not have to go pay yet another doctor. I probably will though, as I truly feel this is killing me. I feel like what do I have to have a heart attack before someone listens. I know I have to be my own health advocate, but I needed to vent just the same. Everything is worse I think when you are sick to your stomach
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Stupidboob- so sorry you are feeling bad. Feelings can be so extreme during tx time, I hope you feel better soon.. Ginger tea, might be worth a try.....ginger is supposed to help with nausea, and hot tea itself is soothing. ((((HUGS)))). Maybe you will have to try another doctor (MO)?
MBJ- (((hugs))) to you too. Cancer sucks! Feel better soon.
Lovelyface--so wonderful to hear positive results, you (we all) deserve it.
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Lovelyface-great news!!
Husker-I thought I would put my 2 cents in about the port. I finished chemo on March 25th and had my port out April19th. All my doctors were good with it and told me it was up to me. My TE's made it stick out so much that I bumped it on everything. Was going to have it removed with my exchange surgery, but decided I didn't want to wait that long. Had it taken out in the BS office.
Stupidboob- sorry you are feeling bad, will be thinking about you!
MBJ- feel better soon!
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Ditto..MJB..that you are feeling better soon!
Stupid Boob..love your t-shirt..it pretty well sums up what we are all feeling doesn't it
My son is having surgery on his finger tomorrow..The PS doesn't think that there is any nerve or tendon damage but he wants to be sure..so here we go...My boy is a pretty strong kid...he will be fine...He is just very lucky that he didn't lose the finger.
It is his "bird" finger...so hopefully he will be well enough to use it when needed..otherwise his momma will have to fill in for him...
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Titan: Sending out prayers for your son. I wish him an easy and quick recovery (is there such a thing?).
Heidi: Magical - absolutely magical. Where is this taking place? It is just so vast and beautifully serene looking. I almost felt as though I was there (wish I was). Thanks so much for sharing and thank hubby for the video, not something I have ever seen before.
Linda
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Titan, hope surgery goes well for your son.
All who commented...thanks for your input on the port. RO wants it left in until rads are done at least. I see BS in November, so think I will schedule a removal then. I don't bump it, but it does ache off and on. And there is kind of a chronic light bruise/discoloration around the incision.
Maria_Malta, I have had some bladder issues since chemo. More than just the sneezing/coughing that can cause a trickle (sorry if too much information!) When the "urge" comes, I can barely make it. So saw gyno yesterday to check a fibroid I've had for several years and ask about the bladder issue. He said chemo aggrevated the bladder and should "recover" eventually. But he also gave me a list of things to avoid. Evidently diet can be a big trigger for overactive bladder issues. Big thing is to increase water (have we heard that before?!) and decrease caffeine, alcohol, citrus, cantaloupe, spicy food, tomatoes, etc. So it's not that citrus is a problem, UNLESS you have bladder issues. It may aggrevate.
Stupidboob, sorry you are down today. It is no fun to be sick. It makes everything seem worse. ACK.
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Lovelyface....so very happy for your good news...time to move on (again)...we all seem to have these stumbling blocks..then we pick up ourselves up and go on don't we?
Filling out the forms for my son's surger today I had to put that I have/had BC...I still wonder what that has to do with his FINGER..but whatever...then there were living with cancer magazines all around the waiting room...so I sat and read a little bit...used to be I read everything I could read about cancer..now I think I would rather read some Cosmo..like 100 ways to please your boyfriend in bed..ha ha..
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Titan... boy, do I hear you. Remember when we first got pregnant? Never noticed an expectant mother or baby carriages... suddenly *everyone* (or so it seemed) was pregnant. Same with cancer. There's just no escaping it.... it has so many "forms"....magazines, TV, commercials, frickin' October....etc.
Tell your son to "read between the lines" until his bird finger is all better!
LRM- Sassafras River, MD (about an hour from me). We sail there also. Though I love the ocean, it's nice to get out on fresh water from time to time.
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Had my 2nd cataract surgery today. Seems odd to say, but it's nice to have a surgery, that improves something! Had my chemo markers drawn yesterday. It should be back, by tomorrow, but I think I'll wait until Monday to call. I have a few things planned for the weekend.
In the onco waiting room, an older man said to an older woman - well I'm 83. She said- 83 isn't like it use to be - I said, it's the new 40.
Wishing everyone a "good" day... -
Heidi- Very peaceful looking...
Titan- He'll be back in action in no time. Kids bounce back so fast it seems.
Lovelyface- HAPPY. HAPPY.
MBJ- All will be well. Could it be just exhaustion? Us post TX chicks have a lot to worry about balancing Dr. appts and our already busy lives.
I guess I can join the I HATE PINK CREW TOO. I am tired of cancer already. I didn't over annouce my DX so I really don't have to deal with constant bombardment of questions, well wishes and all that other stuff that goes along with it.
HAPPY WEEKEND LADIES AND STAY COOL.
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Huskerkkc: thanks for useful info. No I haven't had bladder issues so far I'm glad to say, so can carry on with oranges and lemons which I love... (lemon very good anti-cancer food apparently...although I take this with a pinch of salt).
Today I had my 7th chemo treatment (3rd Taxotere after 4 FEC), and as usual am on a high from the dexa, which I take for 3 days..I'm like a hyperactive 6 year old.. talk nineteen to the dozen, cook, garden and unfortunately sleep very little, but at least am in a good mood...by Sunday a fternoon effect starts to wear off and I get increasingly moody and tired, and by Monday morning I'm exhausted for the following 3 days roughly, with a horrible cardboard tasting mouth...but I've got only ONE left, and it feels great...
Titan, no question tantric sex MUCH more interesting to read about than articles on bc...probably much better for us as well!!!
So for all of you who seem to be having a rough ride at the moment, there usually is light at the end of the tunnel; it's just it takes a bit of time to see it...
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Titan- hope your son's surgery goes well! I imagine that after surgery his finger will be in some kind of splint so he will be "flipping the bird" for quite a while!
Happy Friday! Wishing for some cooler weather and rain!!
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Titan: Glad to see you are in better spirits and I so agree with you on the available reading material--I sure don't want to read about cancer anymore! Hope your son's surgery is a success.
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Titan - so glad to hear there wasn't more damage to your son's finger! It seems so trivial - just a finger - but it really isn't. My thoughts are with him, and you. And as for reading material, I like my ROs policy - the only magazines they keep around are gossip rags. Very escapist! Now Im sure my DH wouldn't mind a little reading about tantric sex, lol.
OBXK - ahhhh, to one day be 83 lol. I definitely don't feel my 41 years! Well, at least not mentally!
Stupidboob - LOVE the t-shirt!!
Hanging in there, avoiding this heat. I will have an xray on my shoulder next week, though it feels a smidge better, and I found a small pimple-like bump on my scar line, but I think it is just a stitch.
Has anyone had a stitch pop up? The spot is very small, maybe 1-2 mm, a little painful like a zit, and right next to the scar line, a place my BS went into a second time. I'm not overly concerned, but just curious... -
suze35-I had a stitch pop out out my port placement. It didn't hurt but was a never healing tiny scab, then one day I scratched and this really long thread just kept coming out. I was completely freaked. Had an onco appt that day so his nurse snipped and its fine.
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Hi everyone..thanks for the good wishes for my son..He had his surgery today...poor kid..he is on percoset..Yikes!..but it does seem to help with the pain...long day..he is sleeping now though I have a feeling it maybe a long night..I'm not used to being "on call" 24/7...trying to decide if I should wake him up and give him more meds or just let him sleep...maybe I will just put some meds next to his bed..of course I have to cover them so the cats won't get in to them...OMG..this isn't easy! He still may have to have plastic surgery but we won't know for awhile.
His surgeon is HOT..ha ha..a little short..but still hot..
Hope everyone has a great weekend...my dd and I are going to the bridal store to see about exchanging her wedding dress..she has lost enough weight to go down 3 sizes...I think it may be a battle getting the store to do this..
Oh well..I think to myself..I have battled breast cancer..I can battle some snotty sales person at a bridal store...
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