Calling all TNs

MBJ

Here is one more article on low body temp:  http://www.mall-net.com/mcs/coldbody.html

Suze35

MBJ - Now that is right up my alley. My gut tells me insulin control is key for us...I hope so, because I'm doing everything I can to keep mine steady and balanced. My best friend's son has juvenile diabetes, and she has been able to cut his insulin needs in half with diet alone, so she's really helping me with mine. And it certainly makes sense about temperature. Dr. Block talks about blood viscosity in his book, and that is just one connection I can see, I'm sure there are plenty. TN cancers, like immune disorders, are so complex, that I think to just improve our chances, we have to look at the whole body and see what is going on. And sadly, even that isn't enough sometimes.

MBJ

Suze:  I think it's all related!  I am not willing to give up or give in to BC.

riley702

joinsing, if it matters, I did Taxotere first, A/C second. And it was all prior to surgery (and I chose MX).

Hope you feel better, MBJ.

MBJ

riley:  thank you--I am fine, just frustrated is all.

Angelice

hello ladies , hope your all doing well ,,, i just wanted to ask if i may .. has any one else got the sorest feet, burning and bruised , under my  feet, i may sleep or sit ofr a while when i stand ouch so sore i feel like an old lady trying to find my balance the pain to go then im fine and sore legs ?

BernieEllen

Hi to everyone, saw the oncologist today, starting chemo in two weeks.  Wouldn't give me all the information bacause i went to the appointment on my own.  Have to go back monday with hubby.  She did say that because i'm Bipolar i could enter severe manic states.  Anybody have anymore info on this, please

Teka

April Fools' Day 2010 was my 1st chemo treatment.   Lovelyface, now with time I no longer look on-line for the do's and don'ts of BC treatment.   I am slowly coming back to a somewhat normal life.  

jenn3

Angelice - I can't remember, are you on Taxol or Taxotere?  While on Taxol, my feet became very sensitive, it seemed that my nerve endings were very angry.  I only had a few pair of shoes that felt good and wore soft socks as well.  It could be neuropathy........talk to your onc to see if he can give you something for the pain or make suggestions.  I hope you feel better soon.

TifJ

Had my three month post chemo follow-up yesterday. So far so good. I may have a small tear in my deltoid muscle of my left arm. My brother asked me "aren't you worried you may have to have surgery to fix it"? I have been worried for weeks that my arm pain may be bone mets- so I said, "hey it's not cancer! I can handle a small surgery!

Best wishes to everyone just starting and those in the midst!!

Teka

Angelice,

I still have Neuropathy, but never had any bruising.

cc4npg

Angelice:  Could be a couple things going on with the feet.  Maybe it's not related to the chemo.. hard to tell really.  Neuropathy can be characterized by numbness, tingling, pins and needles, so it could be that.  But burning or bruising... sounds like it might be something else perhaps.  I have had burning and bruising, but it wasn't from chemo.  I have a neuroma in one foot and plantar fasciitis dx in both and wear orthotics.  It was very painful when dx and took quite a while to fix.   There are several things it could be.. might want to ask the doc about it.

MBJ

Angelice:  I developed something called plantar fascia after chemo in my right foot.  So painful to walk!  I think chemo destroys the collagen in the body (face included) and this could be the cause.  I also had neuropathy but in my hands, not my feet.  My Onc told me that any injury or pain prior to chemo gets magnified by chemo.  I would tell your dr. so he can help you or send you to a specialist.  I now have to wear orthotics in my shoes, too.

Angelice

hi ladies thanks for the replys.  i saw my onc other day he mentioned about the orthotics , i wanted to ask if i was the only one feeling this, and if it was chemo related , the onc said it was not chemo related, although i spoke to a nurse when i was at rads , she said was chemo related nerve endings of the feet ..  so im confused might try the orthotics

jenn i was on taxol till feb 4th now started  rads 

 thanks again ladies

Anonymous

IMO, most oncs will give you the "not chemo related" line unless it is a clearly documented SE. And even then there is disagreement and confusion. Just another annoying aspect of this roller-coaster ride.

Suze35

Met with my onc today and got the full path report. Not good. My breast tumor was 6.5 x 2 x 3 cm, I had 5 lymph nodes > 0.2 cm, extra nodal extension, and metastasis to the axilla tissue. This was after 5 months of chemo. I am going to get a PET on Monday, followed by rads. If my PET is clear, I will be doing a clinical study at Dana Farber, two arms - one is Avastin with metronomic chemo, the other is exercise/diet. If I get the exercise and diet arm, my mom offered to pay for my doctor to replicate the Avastin arm, which my doctor is willing to do, but I will cross that bridge down the road.



I'm not Stage IV yet. My doctor has a patient with my stats 5 years out. I am trying to have hope. I know I wont give up until the fat lady sings.



Best to all.

tracie23

Suze35, You are in my prayers... I love your attitude!!!

Teka

What a dear mom.

Suze35

Teka - I am blessed.

Babs37

Suze35- ..... (((HUGS)))

MonikaV

Suze35: ((((HUGS)))) I love your positive attitude, Never give up hope. I will be sending healing thoughts your way.

Anonymous

Suze-well, that sucks. But, you've got a good attitude and, as we all agree, that fat lady ain't singing yet. Kudos to you for viewing the glass as half full; it will certainly make your day to day life easier to bear and we all know statistics aren't people... they're just numbers. There are plenty of gals in here defying those pesky numbers.

Titan

Suze..hugs to you..and you do have a wonderful mom...this certainly isn't over until the fat lady sings...and well..I'm a little chubby but you are never going to hear me sing! 

And about attitude..I KNOW that a good attitude may not help physically..but is sure as hell helps mentally...

Good to talk to you Lovelyface..missed you but know that sometimes we all need a break..

Angelice..I had burning in the pads of my feet when I walked or jogged...and yeah..after sitting down for awhile standing up and walking was a challenge...I though it was the taxol because the AC didn't do that to me..I virtually had no se's from AC..the taxol was a little harder on me due to the muscle aches and pains...but 2 years out and all those se's are virtually gone.

Teka

BernieEllen,

Doctor is showing good judgement having husband come to appointments.   My husband goes to all appointments, and doctor is always checking with him on my BC care at home.   Chemo is a downer.

BernieEllen

Thanks Teka, i think it's all just starting to hit home. 

Angelice

Hieditoo  i agree gets frustrating when  get told its not chemo related blood noses, sore feet, colds turn in to pnemonia hmmm ...and many other things 

Titan i hope it goes soon  im just 1 month off chemo   

Suze35 (hugs) sending you angel hugs

alamik

Angelice~~ I just finished phase one of my chemo plan. It was taxol carbo, and avastin. At times, the bottoms of my feet got very red and extremely sensitive with an odd burning sensation. At times they were so sensitive that I could barely walk on them and I could even feel the small gaps in the tile on the kitchen floor. How crazy is that? After discussing this with my Onc, we did agree that it was probably a side effect from the chemo, although we couldn't narrow it down to which drug was causing it. It was just odd because it would occur randomly and last for a few days and then just clear right up, only to happen again a week or so later. I also have fibro and some neuropathy and I know that chemo can intensify pre-existing issues, but this foot thing was not anything else I had ever felt from those other issues. It was just odd. Also at times I had some skin peeling as well. The doctor ruled out hand and feet syndrome. It was just some freaky thing all on it's own. I hope you feeel better soon!!

cc4npg

Suze35:  Wow I hate hearing the news.  The lymph nodes are there to catch the toxins and things before they get to the rest of our body.  I think some lymph nodes may do more of a job than others.  This would make perfect sense when we hear that someone had no lymph involvement yet not even a year out they are dx with mets.  Maybe your nodes caught these evil cells completely and that's why the cancer is there.  It sounds like they definitely did their job for you!  Will pray for a clear PET!  Can't add much more... we don't have an expiration date that docs can read. 

MBJ

((((Suze)))):  Big hugs to you!!!  I am so sorry to hear your news but I believe a great attitude will only help you to survive BC.  Your mom sounds amazing!  There are so many other chemo combos you can try--I agree--it ain't over yet.  Never give up--we will all be here for you!!!

Sugar77

Suze - hoping your PET scan is clear.  Angelisa makes a really good point about what the lymph nodes do.