Calling all TNs

Angelice

quick hello .. i  like the tops

Anonymous

My son and a friend who had DCIS are appalled at the thought of me wearing that shirt to Relay....

tnbcRuth

Heidi-how about the one that says 'yes they're fake, the real ones tried to kill me'...i think you could get away with that anywhere.  i'm a great little cusser, but save those special words for close friends and family, lol!  But now I am second guessing your choice....we freaking DO need a cure....this has been a nightmare and before i went thru it, i had no idea.  Whichever you choose, post a pic for us

Babs37

Hi everybody.... Welcome all newbies.

Had a bit of a scare 2 days ago when I went to the doctor for the final exams to be accepted in the metformin trial. 2 weeks ago I did an xray of my lungs and it came back with something. They didn't know if it was scar tissue of my surgery they saw or a lung nodule. So had to take another xray. And you know how it is, they told me not to panic but immediately, my mind went to lung nodule, PET scan and stage IV!!!! I spent the day crying monday. Yesterday, they called to say it was NOTHING!!! Just some scar tissus from the mastectomy. OMG...... I felt like a 2000 pound rock has been lifted of my shoulders. And I got my BRCA test results and it's negative. So good news. Have a great day everyone. 

SunnyCoconut

Yay for all the good test results!!!!  I love hearing that stuff!

Luah

Babs37: What a relief!!  I can imagine how scared you were. 

Joinsing: Here in Canada and elsewhere in the world, FEC-D is very commonly used.  My onc considered AC-T (more common in US) to be equivalent, though no studies have compared the two head to head, unfortunately.  They are both effective, third-generation chemo regimes, so you'd probably do well with either. However, the E in FEC is considered less toxic to the heart than A in AC, so that can be a consideration.

I chose AC because it could be given dose dense, and intuitively that seemed better to me for a fast growing cancer like mine, though I can cite no evidence. There are studies showing biweekly AC is more effective than triweekly AC - however, nothing comparing biweekly AC to triweekly FEC. For the same reason, I decided on 12 weekly taxols, rather than triweekly taxotere (D). The weekly taxol was very easy to tolerate, though it meant more chemo visits. There is also some evidence that taxotere can result in permanent hair loss in a very small proportion of women (though I didn't know that at the time). Finally, dose dense AC is a pretty intense schedule and requires neulasta shots which can be an additional expense and, for some women, results in bone pain, though I suffered no SEs.  

These are some issues you may want to raise with your onc and see what he/she says. One other thing, if I were doing AC-T now, would be to get an onc's view on doing the taxol first... there is a very recent sudy showing that schedule to be more effective. 

MBJ

Just stopping by to say nothing serious with the Dr appointments--they just all piled up in one week so I can get it over with--thankfully no tests!  I am fine, just super busy!  Will have a breather come Friday, I hope.

Love, love, love the first T-Shirt. that pretty much sums up my feelings about it.  Thanks for sharing that.

Sugar:  Such a relief!  I just love good news.

MBJ

Babs:  I just knew you were going to get a clean bill of health.  Congratulations!!

gillyone

page 199!!!! The race to be first on page 200 begins.

Teka

If officials at any relay find a shirt to be offensive the wearer is asked to cover or turn shirt wrong side out.

Fighter_34

Yeah Babs and Sugar!!! Babs congrats on getting in a clinical study not very many for us.

Weather is rather chilly here (Washington, D.C.) ladies bring sweaters.

Hello newbies!

Fighter_34

Please check this out ladies food for thought.

http://strittermed.org/breast_equity/2010/12/10/conventional-oncologists-finally-prove-what-alternative-oncologists-have-known-for-years/

tnbcRuth

Am I 200???

Babs37

Am I????

Lynn18

Heidi:  Your friend and her son haven't been through triple negative breast cancer, otherwise maybe they would understand the sentiment.

Lynn18

Ok, I really wanted to be 200.

Suze35

Fighter - thanks for the article. I'm a big believer in the insulin/diet connection, especially in my case. I was on and off Atkins for two years prior to my dx, and I'm sure I messed with my blood sugars a lot. I'm doing a low-fat, anti-inflammatory diet now, almost vegetarian. I am going to ask my doctor about Metformin on Friday. It is not an expensive drug to buy if insurance doesnt cover it, and she is willing to try unconventional things with me. But if not, exercise and diet can be very effective at keeping blood sugars stable and low.

Kymn

Good Morning ladies,

Beets wow you are a trooper its amazing to me what you have been through I feel awful complaing about 6 treatments shame on me. I have been reading up on the PARP inhibitiors and they all seemed so excited that this could be the big thing for us TN sisiters, I am feeling a bit disapointed that it didnt work for you. Sure hope you are done and can now move on with the rest of your long happy life.

MBJ no worries about just reading up girl, look forward to hearing from you when your up to it, rest well ...hugs

Bernie Ellen my guess would be the same as the other ladies suggested and that chemo would be the route you will be on it really is the best chance for us TN sisters to zap and kill this beast so it never returns. I have been through one round and it wasnt as bad as I thought it would be. 4 or 5 days of couch time then it just lifts and your back at life till the next round.

Tracie I am ordering those shirts too funny

JoinSing welcome I am doing FEC-D ( the D is same as T)  I wasnt given an option my Onc said if your going to do it lets hit it with all we got and that was that. I am sure there must be a thread for both of them for you too have a read through. Good luck with your decision. sorry you have to make it .

Ok ladies I am at work so better run hope you all have a fab day

Hugs Kymn

Anonymous

Is it me?

Anonymous

Guess not...

Anonymous

Babs--- been there, done that wrt lung nodule.

Anonymous

tnbcruth- I still have my real ones, so I'd be lying...

Anonymous

Fighter- I wasn't *really* going to wear it...

Anonymous

 Cherry Blossom Update:

OK, seriously now... looks like the DC trip is a bust for most of us. Sugar is going to have a good time with her sister both there and in Baltimore, and Fighter and I have the ability to make it a day trip. LJ is still trying to get things worked out but now I've had a reschedule in my Naturalist class calling for a field trip that Sunday.

I'm still holding the rooms, but at this point it seems silly to continue to do so.

Always next year, I guess. Sorry about that...

Anonymous

BTW, check out NBCC (National Breast Cancer Coalition's) website. They may be on to something other than.... merchandising.

Anonymous

La de dah...

Anonymous

Ho hum tee dee...

Anonymous

Frick it... I give up.... no 200 for me...

mommafluff61

Anybody else experience headaches during radiation?

Finished chemo March 3, 2011. 12 of 35 radiation treatments will be completed today.

The back of my head just aches...

Teka

No headaches.