Calling all TNs

Cathytoo

Teka...thanks so much for your very encouraging post.

Rhiannon426

Hi I was diagnosed with TN BC May of 2015 just before my 43rd birthday. I had a bi-lateral mastectomy in April and started chemo the Friday after Mother's Day AC-T. My first ct scan was great but my last one they found a sub 4 mm pulmonary nodule. Dr says not to worry and she will schedule a ct scan for 3 months from now. How do you not worry

HausFrauMi

congrats Teka!!!!!! Yes there is always a bright side

Valstim52

Rhianna426

I think when it's so small, they tell us not to worry because due to age, illnesses etc, lots of us have lung abnormalities after some time. If you trust your MO, I would say try not to worry, easier said than done.

I can speak on it a little as when first dx'd I had a pet scan and it didn't show anything in my lung, but then I was hospitalized after my first chemo, and had a chest xray and it showed a small lung nodule. My Mo, then scanned me again 3 months later and it showed no change. So she told me not to worry.

After the 2nd scan, she did tell me if she had thought it was a met, she would have tried to biopsy it, but she see's a lot of these in people my age And my Pet Scan was clear and so was my ct.

Meadow

Teka, so glad to celebrate with you!

ScotBird, I too have made changes to my diet, trying to lose some weight. The Spouse is always crazy disciplined when it comes to dieting....we have been eating low carb, no sugar, no breads, no pasta...(unhappy face). On the up side, I have lost 12 pounds, would like to lose another 8 but I will have to exercise (bigger unhappy face). I feel really good, tons of energy, and really do not miss the sugar. Pasta, that is another story!

Rhiannon426

Thank you Valstim52, I needed to hear that from someone who has been through the ringer like me. I am trying not to worry but I have my moments. I have to try to take it one day at a time. I have my 44th birthday to look forward to so I will try to tuck this away until I have to go for the next scan. In fact I am going to plan a big celebration since last year I was too sick from AC chemo to even get a cake. This year I'm going to order a big cake! I feel better thank you.

Meadow

Rhiannon, sorry I missed your post above somehow. Happy Birthday coming up! I celebrated what I knew was a bonus birthday after treatment. ..I feel they all are bonuses now. Keep us posted on your scan and hugs to you.

sylviaexmouthuk

Hello Rhiannon426

I was glad to see you had taken my advice and joined this thread. There are a lot of wonderful ladies on this thread and I knew you would get a response.

I hope all turns out well for you. Try not to worry too much.

Best wishes

Sylvia

sylviaexmouthuk

Hello Meadow,

I am just popping in to say congratulations on losing that weight.

It is important to keep the weight down.

I am counting the days until I reach 11 years since diagnosis, not long now for June 20th.

Wishing you all the very best.

Sylvia

simplelife4real

Hi All,

I just wanted to pop in to report that I got the "all clear" from my BS and MO last week during my checkups with each of them. I'm 2.75 years out from diagnosis. Life is good!

Valstim52

Rhiannon426, that's why I love this thread. You find all kinds of 'similarities" and you are right one day at a time. I"m trying to get where you are one year out, and then each year from there. Going into surgery 5/24 then rads. So eat a big piece of cake for me.

Meadow, congrats on the weight loss. I'm on the same 'eating plan" and have had some success.

Simplelife4 hooray for good news. And to all you other ladies

Kayrem

Hi Rhiannon - I had a couple of those small cysts in my lungs, plus a few in my liver (to boot!) at diagnosis. They told me not to panic (famous last words...). For the first year I insisted they do MRI's on my liver every 3 months (unbelievably those same were the ones I was the most worried about). I had a Pet Scan done around 2 years post diagnosis for hip pain. Nothing ever changed on the MRI's or the scans (from the original scans).

I know exactly how you feel. Ten months prior to my diagnosis I buried my dad who died from lung cancer. He had nodules detected also. I was asthmatic and I thought for sure I was a goner. But you can have nodules that are totally unrelated to cancer (apparently both in your lungs and liver).

Take a deep breath. You do need to follow up with this stuff for your peace of mind. There was nothing they could have said at diagnosis that would have made me not insist on doing a follow up. I thought they were being a bit noncholant about my life. I will be honest, I took lorazepam occasionally, saw a therapist and exercised like a maniac. I got through it and so will you! Happy 44th Birthday - you will have many more!

I will be 5 years post diagnosis in June.Take care

Cathytoo

Rhiannon426....I had a CT scan before I began treatment and they found a 8mm lesion on the head of my pancreas. Initially, I was terrified. My cousin died from pancreatic cancer, so it was very a very scary discovery for me. Since then I've seen a pancreatic specialist who told me these are incidental findings and usually benign. I'm having having my last chemo infusion in a few days and then will have a MRI to have a better look at the lesion. I'm praying it will show no change. If this is the case, the doctor will take another look in two years. I have friends who found lesions on vital organs as incidental findings. None of them have had any changes in many years. We're going through enough right now to be thinking of more bad news. If the doctor says "don't worry".... try to put the whole thing out of your mind and move forward. Of course, I know that's easier said than done

Rhiannon426

Thank you Kayrem, and Cathytoo, reading all these responses from women who have gone through similar experiences helps me to keep perspective. I will seek a second opinion. I wish you both well and thank you for your message

Rhiannon426

Thank you Meadow I agree every birthday is a bonus. My husband and I will celebrate our 23rd wedding anniversary, that is a wonderful bonus. I will definit Let everyone here know what the doctors tell me when I ask and get my second opinion. Hugs to you as well :

Teka

Thank You!!

Meadow

Thanks Sylvia, for the encouragement. It helps stay motivated. I am thrilled for your 11 year anniversary coming up.....Praises and thankfulness!

Val, keep up the good work!

Simple, always so glad you are doing well.

Rhiannon, just so glad you are here.

To all our friends, hoping tomorrow is a great day for you.

Cocker_Spaniel

Teka great to see you posting and to hear your great news. Onwards and upwards now girl. Carry on living and make the most of every day. My day will come this November for five years so hoping I make it and yes, always look on the bright side, there is a lot of living for us to go through yet.

HausFrau I was awake when they took out my port and never felt a thing. So hope all goes well for you.

ScotBird so good to hear you are at the end of chemo. In your pocket with big hugs that all goes well for your surgery. Radiation was literally a walk in the park for me. No side effects whatsoever so hopefully it will be easy on you too.

Welcome Topper. I had a right sided mastectomy with the same as you 4 nodes so they took them all. Big hugs that all goes well.

Big call out to Linda who I haven't heard from for so long. Getting withdrawal effects Linda so let us know how you are. xxx

NavyMom

YAY TEKA!!

HausFrauMi

I am currently on the steroid ravenous eat everything in sight and bloat up diet plan. oh well. 7 more weekly taxol tx. The steroids didn't bother me on the biweekly AC. Plus to stop the itchy eyelids I take extra on chemo day. Not going to get any better any time soon! Ugh. Thank goodness for stretchy pants and oversized shirts and no expectations to look fabulous while on chemo!

PurpleMinion

Haus, when I had weekly taxol I didn't have steroids other than the premeds (which is already too much), are they making you take the pills or is it just with the infusion? I am still on a binge from last week's steroids, MUST STOP WITH THE ICE CREAM!

megomendy

Teka, How did the 3D mammo compare to the regular one? I'm getting my first 3D one in June.

Cocker_Spaniel

HausFrauMi I was given steroids for three days on each of my chemo infusions and was like you, very hungry. I would even wake in the night and want eggs, bacon, hash browns, and sausages. My old feller was on cooking duties and I would ask him at 3pm if the evening dinner was ready. I ate like a horse but did not put on any weight, probably cause I also felt stressed but I did enjoy the, not feeling sick part of chemo.

PeggySull

Megpmendi,

The 3D feels the same as the regular. Insurance doesn't usually cover it but mine was $40 so I said go ahead. As there were never any lumps but 4 striated lesions, I think the 3D picked up these lesions and the other may not have. If so, it saved my life.

Hugs,

Peggy

LoveMyVizsla

I had steroids with AC chemo, but only with the first dose of taxol. They dropped it when I didn't have an allergic reaction.

Have any of you NOT had the 6 week rad course? I'm going to ask about hypo fractionated whole breast irradiation and accelerated partial breast irradiation, but I'm betting my rad onc says no because Of the triple negative factor.

ALHusband

Rhiannon I know it probably doesn't quell your anxiety much...but I personally have had an 8 mm nodule for years! It never grows...it never does anything but sit there and show up on scans and x rays.

Shopgal2

Luvmyvizsla I asked my ro also about the shortened protocol and she also said no due to tn

Valstim52

Shopgal2, my MO said the same thing due to TN

LoveMyVizsla

I knew that was going to be the answer.

BanR

Whatever has gone wrong again....cycles going on and on since the past 20 days! Probably it is hormonal damage due to chemo. Cant be corrected with hormonal supplements since progesterone intake might trigger another cancer. Lets see what the gynaec has to say..appointment on Monday. I hope it is nothing else..or nothing serious.