Calling all TNs

LoveMyVizsla

I had another low fever last night. I'm planning on going on a photographers trip with some friends Monday through Wednesday. I'm not driving, but I'm wondering if I should be going. :-/ I should feel better in two days, right? Ugh

Cocker_Spaniel

LoveMyVizsla sorry to hear about the low fever but can you leave it as an open ended trip and decide the night before as to whether you feel ok to go?

LoveMyVizsla

Yes, Cocker, that's what I'm going to do. It's a 6 hour drive, one way to our destination. I opted out of driving so I can sleep if I need to.

Cathytoo

ajb_12345

Milwamama, I too am looking forward to Summerfest! Always go at least one day, and it looks like it will be a good year, many bands I like!

I have finished my clinical trial of everolimus/cisplatin. This treatment was so much easier on me than the TAC treatment I started with. My energy was much better and my hair started growing back. I was able to get my first hair cut, and now have a short pixie, and get many complements on it. So nice to go out in public without a head cover of some sort.

This week I have imaging scheduled and cardiac clearance (stress test) to get done before surgery. Having left mastectomy plus tissue expander May 19th. Dr's told me about a clinical trial I can do after surgery if I have PCR, to get radiation or not. There is some thought now that radiation, after successful neoadjuvant chemotherapy (PCR) and mastectomy, is over treatment. Now another decision to make after we get the pathology results from surgery.

BanR

I dedicate this to all of us here!!

Cocker_Spaniel

That is really beautiful Ban, thank you. Hope you are keeping well and enjoying life.

Lou53

Hi all,

Can you tell me how long you left your port in after chemo? I would love to get this thing out but I don't know what a "proper" waiting period would be.

Luvmydobies

Hey guys, I cancelled my appointment for the bump I mentioned last week. It doesn't really look like I have one now, so I'm hoping it's just irritation from harsh wiping. I assume if it were an abscess or other type of infection it would be worse by now. I have to see my doc next month anyway for my asthma check so she can take a look then if need be.

Lou, they removed my port three weeks after finishing chemo. Everyone is different though. I'm a little over three years out from diagnoses.

I haven't had time to catch up much here due to being really busy at the dobie rescue. We've got some dogs in lately that are in pretty bad shape. It's a shame what some people do to these animals! Anyway, hope everyone is doing well here. XOXOXO!!

NavyMom

Lou: My port came out 3 1/2 months after my last treatment. It happened at the same time I was under anesthesia for exchange from tissue expanders to implants.

BanR

I am doing good Cocker.. Hope it stays that way! Spring Spring all around!

Lou..my port is still there. I get it flushed once every1/2 mths

It took some effort to get the port in since my surgeon said, i got thin veins and he had to pierce a few to get the right one. I felt extreme discomfort and pain post port insertion too....I will just let it be for some time more..i hope it never gets used. Also not at all in a mood to get admitted, get anesthesia and get the procedure done..let it be how it is for now!

Cocker_Spaniel

Lou I kept my port in for a few months after chemo and used to go every month to have it flushed. I loved it, so much better than needles every time for hidden veins. But it blew a fuse and so out it went but I wished it didn't have to be. Also unlike poor BanR who unfortunately had trouble, I didn't have any soreness except it was a little bit uncomfortable as that was the side I lie on at night. If I could have I would have kept it in for a lot longer.

LUV I used to read about the poor animals on facebook and was so happy when they went to a new home but I can't watch the sickening things they have to go through anymore. I hope there is a God and those cruel, inhuman sicko's don't get anywhere near heaven when its their turn to leave this world because they don't deserve it.

Valstim52

I'm keeping my port for now. Don't want to go through having it put in again in a year or two in case of recurrence. My chances are high being IBC and stage III. I hardly know its there. I'm still very new to all of this and may feel differently in a year.

StefLove

I had my port taken out about a month after chemo ended, when I went in for my 2nd lumpectomy. I couldn't wait to get that damn thing out.

And almost exactly a year to the day of starting chemo (I started May 15th), I finally got my period back. Never EVER thought I'd be so happy to get cramps and start bleeding! Makes me feel more 'normal'. But now I have to start buying tampons again...ugh!

Happy belated mothers day to all of the moms out there!

littleblueflowers

I got my port out 6 days (yikes!) After my last chemo. I was scared that my body wouldn't be up to it, but my onc said there was no reason to keep it, so out it came! Other than a gnarly scar, I had no issues

Lou53

Thanks, Ladies for the responses. My Oncologist and I agreed on waiting until I am done with radiation before having it removed which is 5 more weeks. I just pray I won't need it ever again

Shopgal2

Lou I finished chemo dec 9th and had my port out dec 21. I also wanted that damn thing out. I wanted it out before I started rads on Jan 13th. Like you I also pray I will never need it again.

HausFrauMi

My surgeon will take out my port when I have my lump/lift/reduction in August after I finish chemo and before radiation. I didn't want to be awake for that so glad it's an option! The guy that put it in was like we just take you back to a room and remove it ummmm No not gonna happen!

Topperfan5

I am 48, right radical mastectomy with lymph nodes removed. Lump 2.5 cm. 4/13 lymph nodes cancerous. Left simple mastectomy. Triple negative . Start AC once a week every other week May 25th for 8 treatments and then radiation 5 times a week for 6 weeks.

PurpleMinion

welcome Topperfan! I hope you will find lots of good info and I know you will find good company here. You can go into settings and your profile to make your diagnosis and treatments "public" so people can see that, it often helps keep it straight about what conversations are about etc. there are threads for chemo that can be really helpful, consider joining the May 2016 Chemo group. And again, welcome

PurpleMinion

Topper: https://community.breastcancer.org/forum/69/topics...

placid44

Hi Topper,

Will you also have taxol chemo? I don't know your situation or doctor's recs, but taxol is often used for triple negative, in addition to AC (not at the same time). It has improved outcomes versus when they gave AC only. Just curious

Meadow

Welcome Topper!

Valstim52

Welcome Topperfan.

blamoms

Welcome Topper. There is lots of good info on this website.If you have any questions just ask.

ScotBird

Hi Topper and so sorry you have had to join us, but this is a great place to get information, advice and opinions or just to vent your feelings. Sending you lots of love at this difficult time. XX

I have hit a milestone today - had my final chemotherapy infusion (3rd docetaxl after 3 x FEC) and I am very relieved and happy to have got through it. This week I also got a date for my surgery R lumpectomy and reduction and lift (both) which is June 9th. Then 4 weeks later I'm having rads for 20 treatments so will be finishing treatment at the end of July. And hopefully get get back to "normal" again! X

Meadow

Congratulations Scotbird, so happy for you! How are you feeling?

weimlover

I believe we are very similar. I have bilateral triple negative breast cancer age 39, my mom has the brca gene for breast and ovarian and both my aunts (her sisters) died of ovarian cancer before age of 50. I feel less alon

ScotBird

WendyElaine welcome too. It looks as though you have been diagnosed at an early stage and that you are getting the treatment you need which is good news.

Meadow I feel great today but have had a pattern of Taxol side effects being difficult around days 5-10 after treatment so I have my sister coming to help us all out next week. Now that I'm through the chemo I'm also planning some lifestyle changes to cut sugar, fat and alcohol from my diet and to exercise regularly at the highest intensity possible to try to delay or prevent any recurrence. I was very well and fit and healthy before the Dx and I still got bc but I want to do everything I possibly can to stop it from coming back, even though it's a crap shoot, I believe you can influence the odds even if only slightly! HUGS. X

Teka

Hi,

Monday was my 1st 3D mammogram.

I've now had 6 *NED* yearly mammograms since last TNBC treatment during March 2011.

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Always look on the bright side......at least you don't have poo on your head.