The dumbest things people have said to you/about you

NativeMainer

When I did the counseling for BRCA testing I learned that pancreatic cancer is associated with BRCA 1 & 2 mutations.  Colon cancer MAY be associated, but since there is also a genetic form of colon cancer it gets more confusing there.  There are several BRCA mutations that have been indentified but they don't know exactly what they do as far as risk for bc goes.  It's a complex and complicated world when it comes to the genetics of cancer.  Someday we'll get it all figured out, I hope. 

sas-schatzi

NM hey girl-------glad you fielded that because I could not have given the good info you have, What i can add is that the expected areas for mets from breast are colon. bone, brain, liver, lung. What Nm said about colon then breastI don't have a clue. Have learned they have a oncotype dx score for colon ca. Waiting for CEA test to be back on Mon-tues.  off to church down to last minute---sas

badboobee

Wonder if there is a connection between breast cancer and colon cancer gene mutations? My BRCA 1 and 2 are negative for mutation. I am on Xeloda and it is used to treat colon cancer and metastatic breast cancer.

annettek

it is all insane i think or at least it makes me insane...it would seem that so much is supposition- i knew that but after getting bc and talking with you all it really hits home...the only good news is that there are so many researchers working on personalized medicine based on OUR genetic makeup...in the meantime, i guess we have to stick with our gut instincts and follow them...

sas-schatzi

Well that I was thinking about in church tonight-------why can we do all the things in the world that have been done, and we can't fix cancer. So, I suppose if we get started on that-cluck'em. What we need is a Danny Thomas that started St jude's hospital for children. For the youngers that don't know that story. Danny Thomas as he told the story was down and out practically penniless. He prayed to St Jude Patron Saint of Hopeless cases. He promised to start a hospital for children in return for a change in his life. His life turned around and when able started the hospital. That hospital is responsible for many of the changes in care for kids with terminal illness----and it's free to them. One man made a change through his beliefs.

The problem with genetics--the genome has been mapped ----what our illustrious government allowed to happen is to allow patenting of genes. That's why the cost of being tested is so high. Cluck'em. The mapping was paid for with taxpayer money. Fatcats are getting rich beyond our dreams on research we payed for. It's sick and sordid .  And much of the research is being done at our universities. --well going to find something to laugh at.

Anonymous

I went to my cousin's baby shower tonight. I am so upset that I am ready to spit bullets. This woman comes up to me who knew I went through chemo asks me why I am not wearing my hoop earrings and my bright red lipstick and my scarves. She said I looked really good. I just looked at her. She barely knows me and sees me twice a year. I said... sorry to disappoint you but my hair grew back. She didn't know what to say and walked away. Didn't speak to me again. What an idiot!

sas-schatzi

Veggy---maybe she didn't know. In the late 50'smore ponytail and single wrap , like in Grease--- to the late 70's peasant look, scarves were a real fashion statement, with earrings appropriate to head wrap. When I got BC and bald, I had all my old scarves. Thank god because they don't make them big enough now to do the wraps we did then. If she didn't know maybe she truly was offering you a compliment.  I still love that look--particularly the peasant look with the head wrap , Loop earrings, bloosey shirt held in and slightly pulled over a contrasting belt , with the mid calf flaired skirt, with boots.  When I got my free scarves from the local chapter-one person brought in the other three office gals----they asked where I had learned how to do all the wraps I was doing----"the sixties" flower child-----I even did it into the eighties---didn't care if it was out of style. Now I'm doing it as the mood strikes me because I just like the look.   ----------------WEll I did miss the line that says she knew. But somethings amiss you must have looked great in your wraps-----what can I say-----sorry---or hey not everyone can carry the look as good as you did. --------don't know-------duh

The typical head wrap that volunteers make -turbins-turned off center with another scarf pulled through the center part and tucked----goes right back to the thirties and forties. I saw too many people with them straight on their heads--------no creativity. I'll probably get lamblasted for that, but that also can be done really creatively.

Yeah the reason for being bald ----sucks big time. The apparatus has been around for several thousand years in many ways.        Well go to the bonfire and through in your anger about it and through me in too if you feel so inclined.

3jaysmom

i thought we all needed this.. especially you,VEGGY... she knew !! WHAT a jerk!! my hairs not lookin so good, so i agree with you.. and cluck her!!!!3jays

3jaysmom

this is for you, VEGGY!! im sensitive, my hairs NOT coming back very well, and in the top of the front!!  so, under the bus with the lot of them!!!   saying night. im out...    3jays

Anonymous

Thank you 3jays for putting the bus there twice. Its therapeutic.

My hair came back but I hate it. It was very curly before. Now it's kinda, sorta wavy sometimes. It has no personality. I wish I knew how to wear the scarves besides just tying them behind the head.Sas I wish you could have taught me how to tie them.

I don't mind and even laugh when my close friends mention my baldness and that look. Its when people i barely know try to joke about it that hurts. Plus a lot at the shower had that condescending tone in their voice when they asked, "How are you?" Lately I have gotten to the point that I just want to forget the whole thing. 

Keep the bus rolling!!

Anonymous

3jaysmom, i so totally relate, my hair is not coming back too hot either  

badboobee: when I filled out the 10-page questionnaire ...for BRAC screening, one of the questions was whether there was colon cancer in the family.  I thought that was relevant info

Every insensitive jerk out there, UNDER THAT BUS !!!

annettek

OK- to take care of anything we might have missed....calls for a DOUBLE BUS

barbe1958

Annette, I LOVE seeing you...but I must admit, I miss the leaping goat!

annettek

Ah, th egoat will be back, poor little thing was tired so I gave him a rest for the weekend:)

Anonymous

Hello Annettek, I'm so sorry to hear about your son and you having to deal with the beast, that's a really tough load to bear. 

How about we both sport our dancing shoes, I'll bring the castagnettes, and jump on that bus !   

annettek

thanks Luan- I think we all need to dance a little bit more in our lives...(I think you were respodning to my post on the oz thread,,,"

Alyad

I have often asked myself if I would have bmx if I had BRCA genes. i was dx at 35. at the time my insurance would not pay for the BRCA test. My paternal gma has bilateral bc in her 70's. My dad's first cousin had bc at 47, her daughter at 50. My dad's great aunt died of BC in the 1950's or 60's. another of his cousins died of cancer, tho I am not sure if it was bc or something else. Something's going on here! 

My insurance changed and I had the BRCA test, I would have had an ooph if I had it. But mine was normal- not even an unknown variant- so whatever is going on genetically on my dad's side of the family is something else. I participated in a study that is trying to find other causes of genetic bc- women who are dx under 40 (even if you are older now)  - check out link below. I gave a blood sample and so did both my parents.They send you  postage paid kits to send back.

http://www.siteman.wustl.edu/ContentPage.aspx?id=3792

3jaysmom

Alyad.. almost every woman in my maternal side has had bc... my nephew had testicular ( which IS related to bc in men) and my brca; and my siters showed...NADA    wierd, hu? one dr. had an opinion of enviromental.. all of us grew up on the shores of lake Cachiauate.. (ya had to be there) it had a brewery that dumped all their waste into the lake we swam in, all of us... who knows??? all i know, is, my body let the little buggers in!!!     3jays

Anonymous

For all the stupid people who say stupid things....

pil

recently, .... a woman told me Cancer does not hurt.  Oh REALLY!!!  Okay honey let me transfer my pain and feeling to your titty.  LOL  AND, just today someone told me oh I am sorry to hear about your diagnoses my mother died of cancer 7 years ago.        WHAT!  LOL   Can you imagine if I was a blithering crybaby what that last statement would have done to me.    

riley702

veggy - Hahahaha!! That's fabulous. Which movie/show is that from? It looks so familiar...

Sandeeonherown

pil- good thing you are a toughie! People just don't think when they say things....I know I am guilty of it too in other circumstances....old open mouth insert foot syndrome!

pil

I know. I am pretty tough. I just hate getting all mushy. It takes too much time and energy so I try and avoid it.

Valgal

Hi everyone...I have a new one. I'm at the health club and even though I'm overweight this REALLY overweight woman is sitting down to blow dry her hair. I am standing next to her and lift my arm (that is paining and sore and I guess I moaned a little... so she says "Oh, are you O.K. and I said "Yea, I'm just sore from swimming... I had a lymph node removed and my arm is sore." she immediately says "oh, cancer?" So stupid me admits that I have it. SO THEN she starts telling me about everyone she knows who died that had it and how young they were !

Good thing its been a while since surgery or I would have been crying ...instead I said "Well you know obesity has been noted as a major risk for contracting it. HeHEHE that shut her up fast ! LOL UNDER THE BUS WITH YOU LADY! What is wrong with these people!

3jaysmom

that GREAT veggy, i nominate it for all stupid people!!! sorry we're still finding them, almost everywhere we go.. just goes to show ya.. there really is no cure for stupid!!! m   3jays

slg2130

Valgal - that's a great one!!

I received a letter from the hospital radiology department telling me that my mammogram was normal and come back in a year...two weeks after my bilateral mastectomy.  Wonder which patient that letter was meant for, because it sure as hell wasn't meant for me!! 

sas-schatzi

SLG2139---------that is almost identical what happened to me. sure glad I was going for and elective. I'm still here. wouldn't have been if I had paid attention to them.

Angelice

love the bus ..and your bus veggy was awsome lol

barbe1958

Good one Valgal!! You done good!!  Bet she googled "obesity and breast cancer" when she got home! hehehehehehehee

lisa-e

Personally, valgal, I think your response to the young woman in the gym was rude.  Yes, her comment about the people she knew who died from cancer was dumb and unhelpful, but I also think you didn't have to call attention to the fact she was obese.  I am sure she is aware of the fact, but I do think she should be able to go to the gym without hearing about it.