CALLING ALL STAGE I SISTERS

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  • SAB
    SAB Member Posts: 1,498
    edited September 2011

    Beanpole, sounds like good news so far.  Here's my prayer for no surprises!

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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2011
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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2011

    To All New Sisters who joined the group when i was away    (((((Hugs))))

    Sheila

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  • jo1955
    jo1955 Member Posts: 8,543
    edited September 2011

    Sheila - That banner is beautiful.  So glad you are back.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2011

    (((JO)))

    (((Annette)))

    (((All)))

    Glad to be back and I lost 4 pounds in 3 weeks, now thats what I call a bonus vacation.

    And I ate too.SurprisedWink

    (((((((((♥HUGS♥)))))))))

    Smile

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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2011

    Nice to be on my own computer Jo.

    ducky+Femara= Happy ???????????????Wink

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  • Valjean
    Valjean Member Posts: 1,898
    edited September 2011

    WELCOME HOME, SHEILA !!!!!!!!!!!!!!!

    I missed ya! ♥

    ((big hugs))

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  • jo1955
    jo1955 Member Posts: 8,543
    edited September 2011

    YOUR INVITED:

    What:  Texas Get Together

    When:  Saturday, October 1st

    Where:  San Antonio - meeting place will be announced later

    ChrissyB will be in SA and will join us.

    Anyone interested in attending, please PM either myself or SherryC by the 15th,  If you need hotel reservations and would like some help with that, please PM Sagina - she lives in SA and has so graciously volunteered to be our tour guide. 

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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2011

    It's very humid today. AC is on.

    OK coming home back was long but everything was on schedule. I didnt have to go through any XRay machine or anything else. Just the regular alarm door.

    I have pictures mostly scenery not myself I will post them on FB soon.

    Time with Christine and Jo in Hawaii was priceless. I was happy really happy felt better lost 4 pounds.Cool

    Every time I was in the ocean I thought of you and wished all the good things for all of us. I love the ocean as someone said it speaks to me in a way that I feel very calm and relax.

    I said this so many times if I was younger I would move there.

    People think it's expensive but if you know what you are spending on it's not any more than NY.

    Rents are lower. They moved to another APT in the same complex first floor with a good size Lanai and the pool is right in the front.......

    OOOOOH I missed my time in the pool I made couple of friends there and we had pool time every afternoon.

    Waikiki has its own beauty it's alive I liked going there by myself look at the stores music on the sidewalk just breathtaking.

    Well I did everything I could and I left there with good and happy memories.

    My FSIL is wonderful i love him so down the earth both of them they are so happy.

    I write about the Macademia Farm tour another time. It was the highlight of my trip surrounded with avocado guava and other fruit trees.

    To be continued.............

    Hugs to all♥

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  • jo1955
    jo1955 Member Posts: 8,543
    edited September 2011

    Sheila - Can't wait for the next chapter.  So glad you had a wonderful time.  I have never been to Hawaii - only seen pictures and it looks beautiul.

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  • zumbagirl
    zumbagirl Member Posts: 308
    edited September 2011

    Hi,

    Just found this thread. I was wondering why, some of us at stage 1 grade 2 , have chemo, and some do not. I often question, as I struggle through all the side effects of chemo, if I made the right choice taking it all on.

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  • kira1234
    kira1234 Member Posts: 3,091
    edited September 2011

    zumbagirl, I think anyone who is HER2+ is always given chemo. I'm sure you have done the right thing getting chemo.

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  • TinaT
    TinaT Member Posts: 2,300
    edited September 2011

    zumbagirl- Hi, it is all rather confusing!  Here's a link to one of the informational pages here on BCO.org:

    http://www.breastcancer.org/symptoms/diagnosis/

    You can read more about HER2 status, etc. 

     ----------------------------------

    kira1234- We have the exact same "Diagnosis" info.  I think I may have noticed that before, but it just caught my attention again.  I had DCIS in addition to ILC so had BXM.

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  • maryclaire
    maryclaire Member Posts: 9
    edited September 2011

    Hi...I, too am HER2 Positive  and ER+ and PR+ and am waiting for addn'l results to find out IF I am in need of Chemo.  I had a BMX 3 weeks ago and have just been healing and waiting.  I think waiting for addn'l results is the hardest part (so far).   My Surgeon made me feel like Herceptin was absolute, but my Onco wanted more testing before he decided on what course of action to take.  I may be too optimestic hoping for no chemo and will have far to fall if it doesn't turn out that way.  What kind of chemo are you on and for how long?  Wishing you luck and all good things to come.

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  • zumbagirl
    zumbagirl Member Posts: 308
    edited September 2011

    Maryclaire,

    I am on TCH Tacotere, Carboplatin, and Herceptin. I really hope you don't have to do the chemo, but if you do we are on here, in full support of each other. I just had chemo number 5 of 6. I am almost done with it, and I can't wait, to get it out of my system. I will have radiation, 4 weeks after my last chemo, which is on Sept 21, and I will continue with weekly herceptins until June 2012.

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  • zumbagirl
    zumbagirl Member Posts: 308
    edited September 2011

    I should have proof read before submitting. Taxotere, not tacotere (which sounds like a food) LOL

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  • maryclaire
    maryclaire Member Posts: 9
    edited September 2011
    How are the side effects??  Herceptin for a year...Frown  From everything I've read it's given IV, every 3 weeks for a year.  Is this what you are having.  how are the side effects different between herceptin and the other chemo you are on?
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  • zumbagirl
    zumbagirl Member Posts: 308
    edited September 2011

    I get my herceptin every week, and my chemo every three weeks. I only feel tired from the herceptin the day of treatment. I have the most side effects from the taxotere. Every one is different, but for me, the tax is yucky. I get a coated tongue, and food tastes blah, the first week after, and my finger nail beds are very sore. I also have extreme fatigue the first weekend after tax, but if you walk daily or try to keep some what active, I think that helps alot with the tireness. :O)

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited September 2011

    Sheila welcome home.  I have been to Hawaii once and loved it there. Don't know that I will every be able to afford to go again. Expense plain trip from Texas

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  • mimi1964
    mimi1964 Member Posts: 2,163
    edited September 2011

    Glad that you are back Sheila and loved reading about your trip. 

    Jo I really wish I could make it to the get together in SA in Oct. but not having a job that will kind of put traveling plans on the back burner for a while.  I hope all the do get to go have a blessed time.   Take lots of pictures and keep us all posted on your fun. 

    Welcome aboard zumbagirl!  Hope all goes well with your treatments. 

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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2011

    Hi maryclaire...Herceptin is not a chemo but a maintenance drug.

    I had no SE from it and got it weekly for 1 year through IV.

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  • maryclaire
    maryclaire Member Posts: 9
    edited September 2011

    Thanks...I'm not exactly sure of all the lingo yet.  Did you have to take any other drugs while taking herceptin??  This is the part I'm terriffied of.  I guess I've read and heard too many sad and scary stories.  I have always been healthy and very active, so this sceond stage is soooo scary.  Maybe when i know exactly what I have in store I'll be a little more able to cope.  Hope so.

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  • TinaT
    TinaT Member Posts: 2,300
    edited September 2011
    maryclaire:  I found everything so much easier to deal with once my "plan" was in place.  You're thrown into a whole new world and you have to crash course to educate yourself and make really big life-altering decisions.  It's perfectly normal to feel like things are out of your control and that's stressful.  But, there's lots of help out there and you're not doing it alone!!!  Once you have a better idea of your treatment plan, the timeline, have met all your doctors, etc. it should get a bit easier.  Best wishes!!!
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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2011

    maryclaire.....I took Femara for 5 years.

    Once your treatment is underway things gets easier mentally.

    Please dont take everything you read in heart.

    Herceptin was the easiest part of my treatment like i said before I walked back and forth to the treatment and hair starts growing.

    What is it you read that it's sad & scary????

    Maybe we can clarify some of your worries.

    Yes it's only 20% of us gets HER+ there are some sisters here also took Herceptin.

    Please post

    (((HUGS)))

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2011

    Hi Seyla888!  Jealous of your trip to Hawaii.  Mmmm, macadamia nuts!  Avocados galore!  Did you bring back a coconut shell bra or a carved tiki for me?

    Hope all the Stage I's are having a fun/relaxing Labor Day Weekend!

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited September 2011

    Seyla...................So glad you had a great trip.........................yes I am still taking the Femara..............just a couple things...................I find (although I always had fluid buildup in my feet at times)...........it seems to be never ending now................I also put on weight, without even changing the diet....................I am very concerned about the weight......can't afford that......haven't had the cholesterol, sugar, or LDL checked, so will have to do that too................I do have aches and pains at times, but had some before.........just a bit worse.............so far not one hot flash, but I better shut my "pie hole", or that will be next.

    Glad your back...................................hugs.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2011

    Hi Elimar...I just posted pictures on FB.

    They are too big and dont know how to re-size it in order to post it here.

    Hi ducky....good GirlSmile Try not to think Femara is behind all your other symptoms. Weight gain yes. Dont let it go too high it's difficult to loose it.

    HUGS♥

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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2011

     A picture from Hawaii

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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2011

    Coffee Beans

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  • TinaT
    TinaT Member Posts: 2,300
    edited September 2011
    seyla888 - Thanks for sharing your flowers with us...those are gorgeous!!!!!!!!
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