HER2 Positive-anyone 10 years out?

Jennt28

Great to see more women more years out and doing well :-) Sharon you certainly "sound" great!



Jenn

Jennt28

Great to see more women more years out and doing well :-) Sharon you certainly "sound" great!



Jenn

mmm5

HI To everyone as well.

I am also at 4 1/2 years now and just went through a recent scare but all turned out to be NORMAL once again. It sure is good to be amongst good company with all of these HER2 survivors. 

mmm5

HI To everyone as well.

I am also at 4 1/2 years now and just went through a recent scare but all turned out to be NORMAL once again. It sure is good to be amongst good company with all of these HER2 survivors. 

LisaH

Count me in! 10 years this month.  I don't hang around the board often, but drop by once in a while to post.   A lot has happened in 10 years, aside from the life we all know.  My sister had babies (twins) born, a baby die, and then a fourth child (healthy), my Father was diagnosed with prostate cancer (now 4 years NED), lost my Mother, watched my children move from elementary school, to middle school, high school and now college.  My daughter was in kindergarten when I was diagnosed.  She's now in the 10th grade.  My son was a third grader and now is a freshman (Knob) at The Citadel. 

Time marches on....I'm still marching to the beat.  Keep marching girls!!!!! 

lago

Look at you LisaH! Congratulations! Now for another 10 and more

JulieLynn

Congrats LisaH - *happy dance*  That is awesome!!!

KakaCathFreeSpirit

Thanks LisaH, and so from me too, your an inspiration for me, as is for many, Yay you have been living life in all its wonder and glory, you keep going girl.....and Thanks again, your post mean more than you know, and Im still marching on too....Cyber Hugs to you... 

dventi

Hi Ladies.. just finished chemo 6 x TCH, now onto continued Herceptin for 1 year in a few weeks.

Were you able to work during HER2 infusions (every 3 weeks). Im hoping the side effects are not as severe as the TCH.

Thanks and Hugs to all of you!.

JRyan

Hi dventi. I have been on just herceptin for a couple months now. SE's are pretty minimal. I have been working fulltime through this so far.

Good luck to you!

lago

dventi 2 year survivor here. Finished Herceptin Sept 2011. Minor stiffness but that's it… some of that stiffness was from anastrozole because I still have it. You should have no problems getting back to your normal routine once your chemo SE fade away.

Jennt28

I'm not finished the 3 weekly Herceptin until next March and have been working full-time. The infusion does seem to tire me so I always schedule it for after work on a Friday and I'm pretty much straight into bed when I get home. Then I'm fine the next day.



The noticeable SEs for me: runny nose, it aggravates my mild peripheral neuropathy in my fingers for a couple of days and my eyes get a bit itchy.



Jenn

dventi

jryan, lago, Jennt28.. Thanks for info!!

lago - 2 year out! great news.... so happy to hear..Question is anastrozole endrocrine therapy? Im scheduled for Femara in about 2 weeks --How long do you have to take anastrozole?

lago

dventi Yes Anstrozole is generic Arimidex, an aromatase inhibitors (endocrine therapy). I call it ESD (Estrogen Sucking Drug). I think I have my BS calling it that now too as of this Monday. Femara is also an ESD. The plan right now is 5 years. There are studies that seem to point to 10 years but still waiting for more results. I'm not sure if that applies to all Hormone positive women. I know I read something that said 10 years is not beneficial for luminal B tumors… but larger studies need to be done.

Jennifer404

Lago- I forget are we luminal b?

Soccermom4force

7 years 10 months 3 weeks...

lago

Yay Soccermom4force!

sheila888

7 years 6 months 3 weeks    

septembersong

Yay to Soccermom4force and sheila888! Seven years and counting is awesome. So glad to hear your great news.

Ann

sherry67

Woundernful news for you girls congrats to both of you...

JRyan

All of you ladies are inspiration to me! Thank you for being here, sharing your stories, and offering support to others!

lago

Way to go Sheila!!!

Denise-G

Soccermom and Sheila - thank you for the hope and congratulations!

sheila888

TO ALL MY SISTERS♥

Bold

Hello Sistahs!! I am coming up on my 4 year anniversary. It is hard to believe so much time has gone by.. My breast is still sore. HA

I guess it will be forever and thats ok as long as forever is a long time. I think I will breath even easier after the five year mark. Life is good!!

Rock on

Aussie-Sharon

Awesome Bold:) Rock on most definately...

LeeA

Thanks to everyone for this wonderful thread!  Just diagnosed and I'm sure I'll return to this thread often for inspiration!

Aussie-Sharon

Hi Lee, will be sending you my love across the seas...I don't post often but all the best. Sharon x

septembersong

Yes, please come back often. Many HER2-Pos women don't post past treatment, and I suspect it's because they're out there, living their lives.

All the best to you.

Ann

LeeA

Thank you, Aussie-Sharon and September Song.  I'm keeping this thread in the back of my mind - especially going into surgery tomorrow.  Best wishes to you both and all the great people at this site who have made this very tense past week so much easier to endure!