HER2 Positive-anyone 10 years out?

MinusTwo

Margun - I answered on another thread that I believe you should call your doc. You have not entered your diagnosis & treatment and made it public - and that would help.

I'm only 7 years out but doing great.

Margun

I was diagnosed January 2019 with triple positive ductal grade 3 1.5 Cm tumor no positive nodes. Chimio ac &taxol then goldilocks mastectomy. Since October 2019 on Letrozole. After bc my wbc and rbc was always borderline low but the latest was even lower than the normal range 4 wbc and 3.88rbc. Someone told me that letrozole can reduce wbc. I prefer that from recurrence but it is not still a good sign I think. My doc appointment is in 8 days. I hope by then I hear your opinions. Thanks

bcbarbie10

Dropping by to say I will be 10 years out in March!

Hang in there, ladies, we got this!

To God be the glory

Ksamuels6721

💪🏽❤️🙌🏼U just made my day

Cowgirl13

13 years out in May!

SpecialK

cowgirl and bcbarbie - yay!

slousha

I'm joining! Completed active treatment in November 2010, when my first granddaughter was born. So we celebrate together.

All the best to all ladies, stay brave, take advantage of every day!

Usha

Kattis894

I use to love these posts so hopefully I can give back with some hope to those in treatment at this time. I am still cancer free. Considering the large beast I had to deal with I am so content and happy I am still going strong with no recurrences so far.

septembersong

I'm now 14 years out from a diagnosis of HER2+ BC. Healthy, happy, and grateful for the life I'm able to live. Sending empathy and encouragement to anyone dealing with this difficult diagnosis.

lkc

17 years ! living life large after a stage 3C ER/PR neg/HER pos Dx. Blessed!

lkc

17 years ! living life large after a stage 3C ER/PR neg/HER pos Dx. Blessed!

artierae

I am presently age 79, with triple positive, stage 4 MBC...began first chemo treatments in 2011, double mastectomy plus removal of 13 lymph nodes, had reconstruction in 2012...Right now I'm on ENHERTU for HER 2+...no longer responsive to estrogen blockers...Oncologist said HER 2 is likely what has been driving new lesions. Have had gamma knife for brain mets (6 different times)...and stereotactic radio surgery for various lesions throughout my body.

Herceptin caused near heart failure, I was unable to breathe when infused only once with Perjeta so that was immediately stopped... Kadcyla caused near liver failure...Finding a drug that works to control new lesions without causing organ failure has been a very challenging issue. I'm currently on ENHERTU for the past 12 weeks...downside to that drug is lung damage. Side effects usually don't usually happen early on...generally it takes many rounds of treatment before I become severely reactive. I'm hoping I can remain tolerant of this drug. I notice way more side effects from this treatment than with all other HER 2 drugs...digestive problems, poor appetite...feeling tired....Still, I'm still here!

mistyeyes

Artierae - You have gone through a lot. There are so many studies going on, I hope they find a medication that can help you. This is such a problem when the treatment you get for your cancer is hurting your health in other ways. I hope you can continue with the enhertu without any serious side effects and you can get some help with the side effects that you are having.

Denny123

I don't know when I posted last here. I am at 20 years and 7 months of Stage 4 MBC de novo. Fun times...

mistyeyes

denny123- My heart cries for you. 20 years old is so young to face all of this, but it certainly is not a fair disease. I hope you handle the treatments well, tell your doctor about any side effects from the treatments-they can help with a lot of them. A lot of people here can also help because they have experienced it and share what helped them. You might want to check out some of the other topics, they also have some that are for stage 4 only.

Also, here is a great place to vent...about anything!

Denny123

Misty-oops, I guess that I mislead you! I am a survivor of 20 years and 7 months of MBC de novo. I am 73.

Thanks for your concern, but I am doing well, considering.

mistyeyes

denny123 - sometimes when I read late at night, my brain doesn't always process things right (LOL). When I reread your post it is really quite clear.

I am glad you are doing well.

ruthbru

One of my best friends was diagnosed in 2016 with HER2 Positive BC. She is still going strong; in fact, she just got back from a hiking trip to Iceland.

cathleenc

Celebrating 10 years with a recently clear PET that says "no evidence of metastatic disease" - WOOHOO!!! It's so surreal because I am also BALD AGAIN due to Alopecia Arreata! At least when I was going through chemo, I had a reason for being bald..., it currently seems to be a side effect of the COVID vaccinations. Since I had the shots, I am obviously a believer of the vaccine so please don't be offended by the correlation. It's just dumb-founding!!!

mistyeyes

I was diagnosed in 2016 and am doing great.

Denny123

Thanks Mistyeyes! I am also guilty of mis-reading. Good luck to you!

mender

Hi., I have a question. I’m new here.

II finished Herceptine June 7 th

I was diagnosed 11/20, surgery 5/21.

What would be my anniversary date to figure out my survival years.

Thanks very much

mistyeyes

Mender - I am never sure how to do the dates either. If I go to the date I was diagnosed in Nov 2016 - it puts me at 5 years, so I like that date.

Melbo

I just asked my surgeon this at my check up this week and was told they count from the date of the surgery. Of course I see my medical oncologist in a few weeks and I suspect she might say from the date of the final treatment of herceptin/Perjeta — but who knows.

SpecialK

I have always used the surgery date because that is the date of the removal of all known cancer.