MIDDLE-AGED WOMEN 40-60ish

Tomboy

but, elimar, do you have some of the stuff they use on the outside? that stuff feels really thick.(edited to say 'slippery!') i always worry about the allergic reaction,too, and also if they will find a vein easily...

lovewins

elimar...thanks for making me laugh. 

 

elimar86861

No, I don't have my own US gel supply.  I wasn't even thinking of the TVUS, which I have had twice (uterine monitoring while on Tamox.)   I was just thinking how smooth and glidey it feels when I had US on a breast.  I even liked that feeling when I got US for a thyroid nodule.  I think it might just be more relaxing and comforting than sensual.  I usually get these US done in a dimly lit room too.  When you think of how loud, jarring, rattle-y and pinchy many of the scans are, getting a US done is so peaceful by comparison.

Tomboy

true!

Footballnut

good morning! Just catching up on the thread with a smile and laffs

Hubby and I went to Barrie Ontario over the weekend to see races at Barrie speedway. Very cool! There was a cancer car there. I spoke with the driver - he was very cool!! The weather was beautiful - so nice to be outside!

Last week was a great week for me - my SEs seemed to be over and here we are on Monday - time to get my bloodwork and see my onc. I usually do this on tues but since tomorrow is canada day they pushed me back to today

The SEs with my last round of FEC were the worst. Dry mouth, the roof of my mouth felt like sandpaper, food tasted like cardboard and all of my tummy troubles for the first 8-10 days.

I am just dreading starting taxotere this wed. A friend of mine told me that a year later she still has trouble with energy and feels tired! Others have breezed through it. I think that herceptin will be started as well. I was told by others that herceptin was nothing with no SEs

I'll be talking with my mo about all of this today then get prepared for returning to the chair this wed at 9. My hubby's cousin will be with me on wed. It will feel strange not having my hubby there. 😒

I hope that I'll be able to continue my exercises!!! I know that this sounds stupid but I am very concerned about gaining weight. I've been trying to knock off a few pounds in prep for this

I hope that everyone has a great day!!

heartnsoul76

SNS, I know what you mean about that lovely rush the CT scan dye causes, but not only did my technologist blow the surprise for me by telling me it would happen, she further went on to describe it as a feeling of having to pee.  So that's what I was anticipating and even though it doesn't feel a thing like that to me, subsequent CT scans have also been ruined by her visual!

FBN - you are just way out and about during chemo!  Good for you!  Hopefully, that bodes well for the taxotere coming up and you'll be one of the ones that breezes through it.

MameMe

FBN, TOO cute! Thanks for sharing!

Tomboy

MameMe, love your,"there's gotta be a pony etc'....funny and apt!

Whoa, Miss FBN! you DO get around! i for one think you are gonna do the next phase just fine!

barbe1958

I, too, was warned about the "having to pee" feeling so never found it sensual. I have a CT booked for Thursday and I'm going to think better thoughts this time....

Dianarose

just popping in for a min to say hi. I haven't been here in so long. Been sick for months. Docs kept relating it to my cancer,  but for months I have had a either a food or water borne bacteria. Just about did me in. I basically with help from my daughter and dr Google figured it out. Finally did a culture to get me on the right antibiotic am doing so much better.  On the down side, hubby and I are having issues. He is so insecure he has put tracking devices on my car twice, threw out one of my shirts because he thought it showed skin, has a actual list of things I can and can not do. Are you f'n kidding. Not working for me!

Hope everyone is doing fine and welcome to all the new ladies. Sorry you are here.

staynsane

Barbe, I guess it's probably more pc for a technician to say that CT dye will give you a "have to pee" feeling, rather than a somewhat  erotic interlude...there I go again, but honestly, it's probably a good thing that I don't have access to using CT dye at home!

elimar86861

Barbe,  Maybe we should all start bringing mood music and candles to our CTs.  Ahahaha!

Dianarose,  If it isn't cancer, it's the rest of life, eh?  Thank goodness you figured out the problem.  Who said Dr., Google never saved a life?  (I know it is not really Dr. Google, but it does go to show that only WE can pursue our health in a sustained way at the top priority level.  Everyone else is just hired help.)  The other news...well, you wrote it so it would not be realistic not to get a comment or two.  Here goes:  No relationship, no person, is perfect, but this is beyond quirky.  Insecure = one thing, tracking devices = whole 'nother level.  I know the whole story is more than the few lines you have written, and that you fell in love with the guy for other qualities so I hope there is a way to bring him around to a more stable frame of mind.  Would he do individual counseling or couples counseling?  Is he so bad that you need to leave?  What comes next, D?

barbe1958

Dianarose, I dated and lived with a guy like that. He would be in another city for business but constantly call, making sure I was at home and not out (before cell phones). He would even make meals and freeze them and then check when he came home to see I'd eaten them!! I got out but it was even hard to leave. It changed my love for him and made me see it wasn't love he felt for me but ownership. Is this the guy you just married (forgive me if I'm wrong or confused). Did you live together first? Thank God, I had lived with this guy first even though he wanted to marry first. And they say "women change"....HAH!!!! We get it. You are in a very frightening and frustrating position. Please keep us posted.

barbe1958

SnS, I'm sure you can buy CT scan dye at the corner downtown!!! hehehehehe 

elimar86861

Open PM to hannahg:

You don't know us. WE are ALL inspiring.

You have made the worst possible entrance onto a respected resource for women with cancer.Take your unsolicited advice and go away.

Dianarose

He is not  the man I married in February.  He is 13 yrs older and very controlling. I think it was there and I just didn't see it. After being single for many yrs I refuse to be controlled. I went shopping with my friend and must have texted me 50 times. When I got home he was bullshit that I was gone more than 2 hrs. Said he could not be alone that long. I had a girl trip planned in October to Florida.  All of us are in the same cancer boat. He said I can't go. Watch me!  Not spending the rest of my life like this. I filed for divorce.  I feel good about my decision. Freedom! I love to read and he hates it. If I was reading in bed he would sit on the side of the bed pissed off. OMG they all say they love you for you and then want to change you I have been through too much to want that. Taking my little sister for a second opinion on her latest mammogram. The tech told her that her lump and dense tissue was due to her losing some weight. Has anyone ever heard that before.

Momine

Eli, Tig is cool though.

lbrewer

there is a genetic condition called hereditary non-polyposis colon cancer that many doctors are not aware of.  There is a strong link to breast cancer as well as colon cancer. Many women think that since there family only has bc, they don't need colonoscopies but the bc may be caused by the gene that causes colon cancer. All the males in my family died of colon cancer but no one ever told me that my genetic defect could also cause bc

luvmygoats

Couldn't agree more Eli. Someone who opens multiple posts in a few minutes to promote something always gets my goat.

Agree with everyone's CT observations. I, too, got the "warm feeling like need to pee" explanation. I had a female tech too. Just for your information bone scan injections cause no such warm feelings neither do nuclear cardiac scans well at least the stress test ones don't.

OK Eli are the 2 soccer balls in the heading resembling 2 boobs or am I just seeing something that's not there?

Dianarose - missed hearing from you. I'm sorry new hubby has gone off the deep end so to speak. Just praying that you stay safe and keep your options open to do that. Has he ever been married or deeply involved? Very glad your "bacteria" situation has improved. Feeling like the proverbial doo-doo (and bet that is literal as well as figuratively) while going thru this couldn't have been easy.  (((HUGS))) sweetie.

Sounds like you are covering it well with little sis. Not heard of that situation but then I prob. wouldn't have. Have her check out options for dense breasts. I might see where losing a ton of weight might make them denser but a lump (?). Hope she has other pics to compare.

Hmm - Eli - noted she has deleted all posts now. Some kind of promotion for comidienne?

Lbrewer - not sure when that connection was noted. But do know it is one of the questions asked now. Maybe when you had your initial dx it was not yet realized the interconnection.

MameMe

Hi to Dianarose, I notice a similarity between docs who assume most every new symptom a cancer pt gets is cancer related, and spouses who set agendas for their partners. Both characters lack listening skills and respect for their pt/partner. Both invoke a sort of privilege through power. NICE work taking care of yourself, but wish you did not have to persist so strongly to do that. Welcome back.

Dianarose

luvmygoats-I was deep in the doo doo alright to the point where I had severe dehydration. I was putting on mascara when I realized I couldn't see what I was doing. Then the room started spinning and I was seeing double and tripple vision. I was hitting the floor fast. I thought my sugar was low so I managed to get a sugar tablet in my mouth. My son knows how to ck my sugar and it was 144 so I spit that out. The doc at the ER wanted nothing to do with me. Suggested brain mets. What an ass. My urine looked like mud.  Since I have been on the antibiotics my sugar levels have been normal. Imagine that. All this has been going on for 3 months and everything was overlooked. Need to have one doctor  who knows nothing about my cancer so they are open minded.

Mameme-just don't get why some people need to have the power and control over another human being.

barbe1958

Dianarose, good for you for starting the exit plan. What will you do for living arrangements?? Sounds like you are in "fight" mode and not "flight" mode, so stay healthy and take care of you! Don't give in or you condone his behaviour!! It took me months to figure out what this guy was doing to me - cutting me off slowly from the world, really.

luvmygoats

Dianarose - what's the saying "when you hear hoofbeats think horses not zebras". ER docs are just different. Patch 'em up, send 'em on, next patient. Sounds like you need a terrific primary care doc. Dizziness has soooo many other causes beyond mets; he just didn't look. Unfortunately I don't think you can get a doc who will not or should not know about you CA. But you can train him/her from day one that even though you know you are stage IV you are also smart enough to know that other things beyond CA happen - treatable things. And if you go to a new primary (or if you don't have one now) that's just about how I would put it. Straightforward statement. I've said this b4 maybe not here but surely on other threads that I often write out in advance and practice things that are difficult. Words/phrases will come easier - not that you can't/won't be emotional - but your basic tx plan will come thru stronger. That's the most time a doc will ever spend with you so make the most of it. Nothing wrong with telling doc what has pi**ed you off about your care and you've got legit reason. Medicine should be a partnership - not a parent/child relationship. Good docs take suggestions with grace and know when to say yes let's try that or conversely no I truly think this is the way to go and will tell you why.

Eph3_12

Dianarose, Oh darlin'-what a pisser!  Glad you are making the moves necessary for your safety!

 

On a completely different note:  Go Deandre!!!!!!!

Dianarose

barb-the house is mine. I sent him packing. One thing I have learned is to keep my house in my name only.My mortgage is low and I get my disability so I will be fine. He tries to buy me, but I am not for sale. Money doesn't mean that much to give up who I am. I am however going to ask the court that he keep me on his health insurance for as long as the law allows .

barbe1958

Good for you Dianarose!!!!! 

Tomboy

Dianarose! sorry it ended (is ending badly) but glad you are ok! and smart! (keeping your house in yr name, keeping his medical!) . ok you guys, i am having a bit of a problem here. they are watching me closely for some abberational things . is aberational a word?  anyway, i did write about it under the heading  'local recurrence'.  if any of you are interested, or could help enlighten me as to what might be going on, i am kinda stupid as far as figuring out how to copy and paste the same thing here. could you please click on my name and read there about what is happening? thanks, then maybe i can relax..

linda505

Hi Kathec - I went and read your post and I can understand your frustration and fear.  Who gets the MRI results?  Your MO or BS or both?  I would definitely place a call and request an appt to discuss the discrepancies in the report as it relates to things you know are there that weren't mentioned and also why the labeling on the wrist band, but I think that could have just been a clerical thing.

Treatment #4 in the books for me - two more to go. MO reduced my taxotere since my liver enzymes are still going up - my alk phos was almost 400 - the upper limit of normal on that test is 140 - the other two were also above normal.  He is sure that it is the chemo causing this.  I told him that if they continue to rise after this reduction that we may call it quits after this one - he says he agrees to an extent as he feels that the most important things I can do is the surgery, which I have done, and the herceptin. He also is skipping the neulasta shot this go around as my WBC's got very high with the last one and really didn't ever come down to normal so he isn't sure I need it - he said if I start to go low that he will give me a few neupogen shots to boost me back up.  In the meantime he wants me to watch my temperature closely.  

elimar86861

kathec, I know you want to hear about how everything you described can be from a non-cancer source and it probably can be, but rather than guesses you really need to get the answers from the doc's office.  You should have explained to you everything that showed up on the MRI, even if benign.  What are the lumps you feel?  Why are they there?  How will they be monitored?  Even why your bracelet used the "recurring" label. 

elimar86861

linda505,  It was very hard for me to take the chemo as "insurance" against maybe having some cancer cells in circulation.  If you have done 4 treatments, the major damage to any remaining cancer(*) has already been done.  With Herceptin and (insert your choice here) an anti-hormonal waiting in the wings, I thing you have got it covered pretty good.

D-rose,  Glad to hear that you have an exit strategy and do not have to live like that.  Please be careful that his jealous insecurities don't take any additional weird, creepy turns.

(*)  The kind of cancer that would respond to it, I mean.