Starting Chemo April 2009
Comments
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Titan - How wonderful! A wedding to plan for and to look forward to - next grand kids, how exciting!!! How old is your DD? No matter her age, she will always be your baby.
Compared to a year ago...I feel much older and wish my body was healthier. It's still day to day for me. Seems like one day up, one day down. But I do think it's improved since December, for which I am truly thankful. But this year I'm not planning on chemo and rads...so I guess it is a major improvement from last year.
I guess we are now expecting a Artic cold blast next week. So all the early blooming flowers and plants are going to get a major shock next week. They are predicting 2-5 inches of snow on Tuesday. But here, we view weather forecasters as lier's...they are never right, so we'll see. But as a precaution, I am going to winterize my tender plants tomorrow. Plus all my newbies...new purchases from nerd night, are going into my garage. So just a warning... a winter storm is moving east starting this week. So you mid and east coasters, plan on more winter weather next weekend depending on how it tracks.
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My daughter is 21..will be 22 in August..but she is a junior in college so I don't think the wedding will be for awhile...maybe 2 years? I asked my dh...should we announce the engagement now? Or wait until 6 months before the wedding? I'm going to have to get organized...luckily, my dd is very organized...she is getting her degree in event planning/hospitality management so maybe we will have an inside track.
Know about those up and down days...I find the busier I am the happier I am...I don't like being alone or not having much to do,
Please..Ohio doesn't need any more snow...we still have piles of it laying around!
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Titan - Mazal Tov! to you and all your family!!!! So wonderful to have something to celebrate!!!!
I will have a glass of wine in your honor! Sun is shining here today and I am feeling a bit brighter! Hope I can pass that feeling around!
Betsy, stay warm and snug if you can : )
Hugs to all, love Judy xxx
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Titan - I will add my congratulations to everyone else's. It's so nice that we can all be happy for you and share in good news. When one of us hurts, we all hurt....and when one of us has something so exciting happen, we all get joy from that too! What a group...so lucky to have each other.
Geri
ps - Lena, where are you? Leave your sims for a bit and come talk to us!
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I am curious where all the other ladies are that signed up for this thread..It would really be nice to here from them too! Just to hear that they are Ok,...and their success stories...tulipbebe came on here once when I shouted out to her,,,here's a SHOUT OUT to all the rest!
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Titan - congrats on your dd's engagement - that's exciting and wonderful news and will certainly keep you busy in the coming months!! Geri is right - when one of us hurts, we all hurt and when there is something to celebrate, we are right there with you!
Doing a little better with the hives - found a topical treatment, a steroid cream that my dh happened to have left over that seems to be helping some - and the derm gave me samples of yesterday. He said it can take weeks for the ingredient, whatever that was, in the filler of the tamox pills, to leave my system. I see the onc this week to see what they and I want to do about preventative meds.
My mother is moving down by us this week, we helped pack up her house and the pod she rented this weekend. She lives about 3 hours north of us, and since my dad passed away almost three years ago, she's been trying to sell the house and move back to our area, where three of her four kids live. She'll be staying with us for a few days before she closes on the new house she bought, which will be 10 minutes away vs. the three hour trek. I used to like the trek up to her house, only because the service plazas had Starbucks in them. But since their contract was up and they put Dunkin Donuts there, I couldn't care less about the trip! Yes, I am a Starbucks fanatic. Busy weekend, moving her in, then flying to Vegas on Sunday for a 3 day work convention / classes, then back here, then my dear friends from England come in the following Saturday and we leave for the Keys for a week. I am so looking forward to that! We've been saving and planning for this trip and have prepaid all of the hotels / b&b's, so we can just relax and have fun. Fun is important, especially to us.
Found out yesterday that my husband's boss' wife was just dx with breast cancer. She is seeing my surgeon and will have a double mast. soon. I haven't spoken with her yet, but will soon. I swear this crap just doesn't stop!
Helen, hope you are doing okay - chin up, sister. I know it's been a tough road for you and know what we are all here for you.
Ladies, hope you are all doing well, enjoying the little bit of spring weather we've been getting. Hugs to you all.
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You are one busy girl Chelev and it all sounds like fun! Glad your hives are clearing up...I had those several years ago...I think it was strawberries that did me in...I used to carry around a bottle of Benydryl and take a swig from it whenever they started to break out....it really was Benydryl inside the bottle I promise!
Its good to be busy isn't it?
I was at a basketball game last night..the gym was packed..while waiting for the game to start I looked around and wondered how many of the women had breast cancer at one time or another......like if they had short hair..did they actually want it that way or did they have no choice? I did see a lady at the onc's office a couple of weeks ago..she was waiting to go into radiation and I think she had a wig on......because it looked just like the one I had only a little darker...I was going to say something to her but I decided it would probably be best to just say nothing at all....you never know how people will react....
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Hi all
Chelev - you sound wonderfully busy! Enjoy all your plans over the next couple of weeks! We look forward to hearing all about it.
Titan - LOL! You can tell us...Benadryl???
Unfortunately, BC is just everywhere - I remember sitting at my Onc's office during chemo and seeing how many women were passing through. It is frightening!
Last night, my daughter had to create her own society for a school assignment, and she wanted a society with a cure for cancer...bless them, it affects all of us.
Hugs to all and enjoy the sunny weather!
Judy xxx
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Yes..it really was Benadryl! It made the hives go away....
I would like to join your daughter's society!
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OMG Girls - You keep me hoppin', I can't keep up. YIPEE, my house is close to back together. Have walls with paint again, carpet has been ordered, just waiting for installation. The hardwood refinishing will have to wait for Spring Break so that I can take my kids to my parents, and my husband can live out of the basement - LOL!
TITAN - WOOHOO on the wedding, how exciting. My son has his first high school soccer scrimmage today, where has the time gone, bet you're asking yourself the same thing with a wedding in the future.
GERI - How are you feeling, friends forever we are all, and always here to lend an ear and a shoulder to lean on.
BETSY - Adios to that infection I'm hoping. SPRING - I can't wait, I'm sick of the cold.
CHELEV - Get better girlfriend, no more hives - YA HEAR?? How nice to have your Mom moving near.
TAMMI - Nice to see you popping in.
JUDY - I love ya - always know I'll see your face and positive notes here. As soon as Spring kicks in full force we need to plan lunch.
HELEN - How are you doing? Hope Spring is coming your way up there too, warmer weather seems to make things a little easier.
AMY - Hey there, how are you feeling?
Love to ya'all. HUGS, Dawn
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What a good busy group recently! Chelev, your vacation sounds so great...went to Key West a few years ago and had the best time! Sing with the parrotheads at Margarhitaville! Post pictures on your return, so we can all enjoy the trip. Great that your mom will be close by. My dd moved closer to me in September and although I probably don't see her any more often than when she was an hour away, it is so nice to know she is closer if I need her.
Dawn - good to "see" you, and you are right, we are a band of soldiers and "forever friends"...brought together by this miserable disease, but staying together out of care, concern and sisterhood...we are fortunate to have found each other through this site.
I agree with Titan - it would be good to hear from some who had started on this thread with us - I think of many of them often.
LENA - where are ya girl??
Judy - are you feeling a little better? My mood has improved somewhat because we've had a string of beautiful days - I always do better with sunshine!
Tomorrow is one year since the mastectomy - wow, such a long trip since then, but as the sisters before us told me - it's doable...not pleasant, but doable. My leaky TE and mastectomy on the other side is scheduled for March 31st, so March will always be a month I do without. However, April and spring follow
Hope everyone is doing well
Geri
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Dawn..so good to hear from you! You were my first friend on here...I remember (what I can anyway) of us being so dang NEW to this crap..and here we are now...
Love that soccer! How is your son doing..Hoping to hear about him! "They" called my son "FIFA" . I miss soccer so much...I think he is playing college intramurals this spring but he would hate it if we came to a game.."it's just intramural's Mom"..but we threaten him with our appearance anyway...
Today was the day I first saw my BS...he said that he thought my tumor was probably a fibrodema or a rare type of cancer..thinking back now..he probably knew exactly what it was but wanted me to chill for awhile..this Sat. was my biopsy...then next Wed was when I found out the fricking "news" then I had the lumpectomy on Friday..thank God they moved quickly...my BS has always been very kind to me...He is a very busy man but has rearranged his schedule to get me in and out quickly..one of his nurses told me that he never has done that before..that he likes me..well thank God for that....I think he probably knew that I would probably have gone over the edge...He graduated from high school with my DH and sometimes we see him around...life in a small town!
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Dawn - so good to hear from you and glad all is getting sorted at home : ) I would like to get together during the Spring : )
Geri - thanks for your concern, I am doing a little better this week, the sunshine and warm weather def helps! I hope the rest of this month goes smoothly for you and you can start to move on with your life.
Titan - of course I believe you, I am only kidding! I have signed you up for the society : )
Lena - where are you?
Helen - how are you doing?
Chelev and Betsy - sending hugs to you both!
Hope everyone is doing ok, sorry if I forgot anyone, but am a bit rushed today.
Hugs to all, Judy x
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Judy..sure you do! It was kinda weird carrying this bottle around!
How are you doing anyway....your stomach issues...are they getting better...It seems with me that every day I feel better,,,now that spring has come to Ohio..at least for the past few days my dh and I are getting out and walkin and getting some sun..feels so good! And the trees are getting buds on them,.I think i'm much more appreciative of these things now...and on..to plan the wedding...I'm so excited..except for the mother dresses..ewww..they are just plain ugly...My future SIL mom and I talked tonight...we decided that ugly is not for us,..we are going to get something FUN!
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Good for you Titan! Hope we get to see some photos!
I am doing ok, my stomach is getting better, but I still have bad days and when I do, my sense of smell is heightened, but I am aware of it, so just try and cope with it. I still don't eat everything I used to, but that doesn't mean that I am losing weight : )
I am actually a little anxious today, I have had a slight discharge down below over the past couple of weeks, nothing much and not all the time, but I am convinced that I have cervical or uterine cancer! I am in a bit of a state today, and going to see the OB/GYN tomorrow. I hate having to go to docs and then wait for results, too many reminders there .....
Every time, I feel the slightest thing is wrong, I think that I have cancer! It is not a good way to live.
Hope everyone is doing ok today.
Hugs to all and thanks for listening, Judy x
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Judy, I am sure we all wish we could take your anxiety away, but it is a fact of lfe (life as it now is), that we will all worry more, imagine the worst and need time and distance before we can have confidence in our bodies again.
When I find myself thinking about the "what ifs" I try to think of the way I felt before I knew I had breast cancer and that I don't want to have gone through all this just to live in fear. If I have to deal with something else down the line, I will, but for now I want to give myself a break.
Hopefully your appointment will go well and you will leave relieved. I will think of you tomorrow....sending (((hugs)))
Geri
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Good advice Geri....and most of the time I follow that advice...I HOPE, HOPE, HOPE, BELIEVE, BELIEVE, BELIEVE..that all of us will be ok..that several years down the road we will still be OK...you have to believe that...and if not...well...like you said...we can't go through all this and live in fear..it may be at the back of our minds..but I really feel that it gets better with time.
I guess, Judy,,,if you would have had that discharge a year or so ago...you wouldn't really think anything of it..just an infection..or what not...believe it or not...we still can get colds, flu, vaginal infections..maybe you have been having too much sex...! Ha ha...I hope that is what it is!
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Judy, I hope you are feeling better. I understand your anxiety. I think we are all the same now. Every ache or pain or symptom of anything unusual and we start to think. Please let us know what the doctor says. ... thinking about you
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Hey ladies...my drug is finally here from India. I called my bs today, because 2 days after I finished with the antibiotic my breast started swelling again. Damn thing...I'm thinking it just doesn't like being smaller that my healthy boob. Sort of has a mind of it's own. I'm bringing my dh next week to my appointment. I'm really tired of dealing with this, especially since I don't seem to be making any progress.
Judy - my sense of smell is still very hightened too. But fortunately, my heartburn is very, very rare these days. Hope your appt. goes well tomorrow.
Chelev - how are your hives doing? Hope they are gone.
Geez Titan...too much sex...flasks of booze...YOU are feeling better! Glad to hear it.
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Hi all, thanks so much for your encouragement and support as always, I am leaving shortly for the appt and am hoping and believing that everything will be ok!
I would like to think that it is all the sex, but hmmmmm, not sure about that one
I will let you know how it goes.
Betsy, sorry that you are still having trouble, I really hope you get it sorted.
Chelev - how are you doing?
Thanks to you all for being the most wonderful ladies and more importantly, good friends!
Hugs to all, Judy x
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ok..Judy..what's the news?
Betsy...glad you got your drugs! Can't compare to benadryl and sex though...watching Judge Judy right now...could that be OUR Judy?
Off to a basketball game soon! I hope we win...will check back on here later tonight
My DS is coming home from school to attend the game..he called to tell me he is also bringing his laundry....what a sweet son! He is leaving tomorrow afternoon so you know I will be a busy mommy tomorrow ..which is also one year from the day I had the BIOPSY! Yikes! I remember them telling me it was a solid tumor....not good news
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Judy - how did your appointment go...been thinking about you
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Hi, all. Hives are MUCH better, I finally found something that has dried them up - Olux foam, which is a steroidal foam (I know, I was ON steroids for 14 days, but it didn't do a thing). almost no itching anymore, thank the lord!
Saw the onc on Thursday and we are going to restart the tamox, but make sure they do not fill it with the same manufacturer as the 90 day supply we suspect caused the allergy. everything else was good, weight is finally under control, no pains or weird other things happening, and no suspiscious anythings. I will start on the new tamox script next week after I get back from a business trip and I will let them know immediately if something flares up or doesn't.
Hope everyone else is doing okay - Judy, your appointment go okay? Hugs to you all - enjoy your weekend!
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Ohh...Judy sweetie..where are you..hopefully you are out having fun,.drinking benadryl and having S**E***X***
THINKING OF YOU! And worried too...
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Chelev..benadryl works everytime,.,,plus it makes you hyper,...which will drive your family nuts!
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Judy, we are anxiously waiting to hear from you. Hope you are out celebrating.
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Um hi everyone...yeah, I'm spending "too much" time with the simmies again, but if that's what it takes to avoid myself, so much the better. ;-)
huh...did someone say s**e**x** ?! Nope, I'm not doing any of that, no Pack Rat around here, no idea when he'll be back yet, or when his Nest in the North will be Sewer Rat ready....
Titan -- Here's a message from me to your newly engaged daughter: "Don't say you weren't warned." LOL.
Chelev -- Glad the hive situation is improving! I hope you get along with your mother if she's moving that close to you! (If my mother, presently 1200 miles away, moved that close to me, I'd take up residence in my car, drive out west and hide in the desert for good!)
Judy -- Hope all's well "down there." I hate going to doctors too. Before BC I never went to a doctor unless I KNEW had something wrong with me (inexplicable bad pain, paralysis, inability to breathe, then finally the "rock" in my right breast, you got the picture). Now when there's stuff wrong with me though, I think "I don't WANNA know what it is because I already have ENOUGH wrong with me, thank you!" But I do have an oncologist appointment Monday. I'll have to ask, him, "Just curious, but, since you took me off the Tamoxifen which was controlling my cancer, are you going to put me on something else to control my cancer, that doesn't risk blood clots? Or NOW do you think you might want me to have a mastectomy and rads? And did you figure out what to do with the blood clot yet?" Oh, idea. Maybe I'll just park myself at the puter and play sims till I die and screw this doctor stuff entirely. ;-) LOL
Geri -- How goes it?
Helen -- Are you feeling any better or are you still with me in the Depressed and I-Feel-Ugly Club?
~Lena.
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Hi Lena, I'm still in the Depressed and I Feel Ugly Club. I definitely find all this too much to cope with.
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Can I join the I-Feel-Ugly club? I hate my hair...I'm fat, my boob is flaming again, it hurts...and I'm sick of all of this But at least I have a boob..painful as it is I guess it's still better than the option. Today is my one year mark from surgery. I thought I'd feel ok by now....but no. I am not the poster child for rads, that's for sure.
Judy - I hope everything is ok...you need to check in.
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Welcome to the club, Betsy. I am fat and have no boobs...... I still can't get over that. I wonder if I made a mistake....it was my second bc, I'm BRCA2+....everyone pushed me to do it but maybe I should just have done a lumpectomy again. My hair is not growing back and I have developed diabetes as a result of the chemo. I feel old and sick. I've lost career options and relationships in addition to my confidence and my self image. I assume it's just a matter of time until the next issue.
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