Starting Chemo April 2009

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  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited August 2011

    Hi all, my goodness! It sounds like it has been quite traumatic there! I hope you are all staying safe and dry.

    Lena - I am sorry that you have had burning from the rads and I hope that now you can begin to rest and heal. It is just never ending isn't it? I am thinking about you.

    We are more or less out of boxes and the kids start their new schools this week - they are very brave, the way they cope with all the transitions. I only wish I coped as well as they do : - )

    Sending you all hugs and take good care, Judy x

  • hrf
    hrf Member Posts: 3,225
    edited August 2011

    Judy, how old are your kids? I agree about them adapting easier than we do although we worry about them more. Have they made new friends already?

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited August 2011

    Power still out but no other damage. Whew. Posting from phone. Lena please check in....I heard it is bad up there.

  • Lena
    Lena Member Posts: 1,036
    edited August 2011

    It's not bad here at all, Amy. It's windy and rainy, yes, but so far, no trees down near me and no power outages. It's just like a bad windy rainstorm, nothing more -- truth be told, that's about what I expected. My Pack Rat and his cousins, being in a more rural area, have some downed trees and power issues (but they have generators) -- he called me about half an hour ago. Anyway, we expected this too, so while we're glad it's supposed to be sunny and in the 70s TOMORROW, it hasn't been the horrid disaster for us as it has been for millions of others.

    Glad your weather is good Betsy, that you're getting to enjoy SOME summer. :-)

    Helen -- so you didn't get the hurricane -- does this mean your weekend weather is GOOD? :-)

    Geri -- I'm just too tired to go out and wash my car in the downpour. My chest also still hurts too much! 

    Yeah Judy, I'm definitely sleeping a lot (and eating very weird; my body is craving the weirdest combinations of late) -- maybe that's the healing process. Sure wish it would hurry up. I wanted my Pack Rat to be able to jump my bones Friday night but I had to jump his bones instead so there wouldn't be any chest contact -- I'm also back to not being able to give big hugs anymore (like for almost a month after my BMX) due to painful chest issues. 

    :::::sigh:::::

    Hope you're all OK. 

  • hrf
    hrf Member Posts: 3,225
    edited August 2011

    Weather here this weekend was lovely. Last night I went to an outdoor concert. The London Symphony Orchestra playing Beethoven's 9th and it was amazing. I'm not much of a classical music person but enjoyed it immensely during a perfect summer night.



    Glad to hear everyone is safe

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited August 2011

    Hi all, glad to hear that you are all ok and safe. Lena, I am pleased that the storm didn't affect you too badly and that you are sleeping alot, rest is good Smile.

    Helen, my kids are 15, 13 and 9 - I am so proud of them all! They have each met a couple of class mates so they will know some faces when they start school.

    Titan - how long to go until the wedding?

    Hugs to you all, I will come by again soon, Judy x

  • BetsyBuzz
    BetsyBuzz Member Posts: 592
    edited August 2011

    Hi all,

    I too am glad to hear everyone is safe. Geri, I'm counting you in...I hope everything is well for you and your family.   

    Helen -ONLY TWO DAYS TO GO!  I bet you are excited!

    Lena- I still don't do bear hugs...it will get better. Aah...yes I recall the burnt body sex. We still have a modified version as pressure on my chest still causes pain. Where there is a will there is a way,TG!

    Judy- it sounds like progress, out of boxes. Kids are always so resilient. Its one of those attributes I wish we could retain as we age but unfortunately it doesn't seem to be the case. Hugs back to you.

    Titan-MOTB (B=Bride or Buck...take your pickSmile )...I can't recall, did you end up with a sexy dress?

    Betsy

  • inthemoment
    inthemoment Member Posts: 538
    edited September 2011

    Just passing through, hoping to rest up on this 3 day weekend.  I had no real damage from the hurrican, but many of our patients had awful damage to their homes.  Some in upstate New York will have no power for months, and others have lost their only access road.  Very sad. I have added this to my list "Something else to be grateful for."

     I hope everyone has a peaceful holiday weekend.  Not sure if Helen or Judy have anything similar to Labor Day, but enjoy anyway!

  • hrf
    hrf Member Posts: 3,225
    edited September 2011

    Yes, it's the Labour Day weekend here too. We spell Labour with a "u". It's the official end of summer as the kids go back to school on Tuesday. For the first time in my life, I'm not part of it (excluding when I was off for bc tx)  I have been officially retired for 2 days now. It just feels like I'm on a long weekend so far but I already feel less stress and pressure. I think after a couple of weeks when it sinks in that I don't have to go back, it will feel more real. The Toronto International Film Festival starts second week of September and I have a few tickets. Don't know any of the movies but Brad Pitt, George Clooney -- all the big stars will be here in town although I doubt if I'll see anyone "big". Weather here is very hot again -- tomorrow will once again be at least 90 F and will feel hotter with the humidex. Probably when it's snowing, I'll be wishing for these hot days again. Hope everyone has a great long weekend. 

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited September 2011

    Enjoy the long weekend everyone! Unfortunately, we don't have Labour Day here, so it is a regular week for us.

    Helen, glad you are enjoying your retirement so far - you deserve it! Geri, good news that you didn't have any major damage from the hurricaine, but terrible for your patients, very sad indeed.

    Thinking of you all, hugs to everyone, Judy x

  • BetsyBuzz
    BetsyBuzz Member Posts: 592
    edited September 2011

    Hi all,

    We are having nice (warm 90 degree) weather here too. The only problem is there are fires on Mt. Hood and all the smoke is being blown from the Columbia Gorge to Portland. It's sort of smelly outside so we can't enjoy it. It's pretty hazy.

    Watching the Oregon vs LSU game now. The Ducks just need to settle down then we can kick some LSU butts. Titan...I'm missing you these days. I know you are busy but you need to give us an update.

    Amy....is your daughter getting married soon too?

    Helen...I'm sure it's an adjustment, I'm hoping pleasant, that you are not heading back to school this year. Just remember, reduced stress=healthy body. Focus on that!

    Hugs to all.

    Betsy 

      

  • hrf
    hrf Member Posts: 3,225
    edited September 2011

    Betsy, sorry to hear about the fires there. Mother Nature is definitely mad at us, isn't she? Right now I feel like I'm on holiday time so I haven't quite adapted to the reduced stress, starting with not getting 150 emails a day, each of which need to be answered immediately. That alone will make a huge difference. Right now, I'm in the middle of cooking a broccoli soup and don't care about what time I go to sleep and I don't have a list of errands that must be done tomorrow. My main reason for retiring is to reduce stress, have time to exercise and to cook healthy food for myself. Broccoli soup is delish. Titan, where are you?

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited September 2011

    Helen, so far it sounds perfect!

    Betsy, sorry to hear about the fires there. Stay safe.

    Titan, hope you are busy with the wedding plans and we would love to hear an update when you have the time.

    Hope everyone is doing well and has a great long weekend, hugs to you all, Judy x

  • hrf
    hrf Member Posts: 3,225
    edited September 2011

    Judy, tell us what you've been doing. Will you try to go back to work? Are you seeing friends? Have you found new oncologist? Is your family adapting to new surroundings?

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited September 2011

    My husband's daughter is getting married on 10/1.  We are doing the wedding, so it is mostly like being mother of the bride.  You might remember my daughter got married last year, so I have gotten pretty good at this role (lol). 

    All the logistical stuff is just about done. There is some unpleasantness on the groom's side (his parents are going through a VERY ugly divorce RIGHT NOW and at this point his mom and grandparents might not attend the wedding) and it is causing some upset.  I find myself taking a very strong peacemaker role - I guess after what i've been through with bc, I feel that people need to overlook almost anything in order to stay connected and keep the family bond. Funny how this experience has really changed me in that way.
    We met with the bride/groom a few nights ago and laid out our thoughts (encouraging reconciliation with his mom and inviting her to the wedding). The groom (our son in law to be) was very respectful and listened but I don't think he will change his mind. He blames her for the divorce and her subsequent terrible behavior (which HAS been terrible, no question) and is very angry. I keep thinking that in a few years most of this will be forgotten but if she is not welcome at her son's wedding, THAT will never go away. But we have done our part - now he has to decide what to do and live with it.

    Yesterday DH and I drove down to Annapolis to see the University of Delaware ('our' team) play Navy.  It was a gorgeous day and so inspiring to see the cadets all march in with the band, the F18 flyover, all the patriotic stuff. The game wasn't so good for us - we got beat badly. But if you have to lose, Navy is a good team to lose to.  It was an absolutely wonderful super fun day!

    Now it's off to the gym to work off those delicious chocolate-covered strawberries I made (and ate!). YUM!

    Whether it's a long weekend or a short one where you are- enjoy!

    Amy

  • hrf
    hrf Member Posts: 3,225
    edited September 2011

    Amy, the family situation is very unfortunate. I think you are right in the approach you are taking but in the end all you can do is try to be a peace maker. Having gone through bc does make one approach problems differently. Weddings - whether big or small - should be happy and joyous events. I do hope the situation improves for you and the family.

  • Titan
    Titan Member Posts: 2,956
    edited September 2011

    Hi Everyone!  The weather has been crazy hasn't it?  We felt it in Ohio also..my desk chair (with me in it) started shaking...I thought maybe I was having a seizure until a co-worker walked by and said did you feel that?  Immediately we started surfing the net...glad everyone is ok...and then the hurricane..the only thing we got from that was some wind..but not damaging winds...it was actually nice to not have the AC on for a couple of days...Betsy..Oregon sounds perfect...we had tons of high 80's and 90's this summer..it has been truly hot and humid.

    Amy..our daughter's are getting married the same day..October 1st!  Sorry you are having family issues..we have a couple of issues too but I think everything will work out...My daughter's fiance's family just doesn't realize what kind of wedding we are planning...it's not extravagant but it will be a nice wedding with a party center, dj, dinner...drinks..that kind of  thing..I think they were expecting cake and mints in the church basement...

    Hey Betsy...I'm the MOTB..both bride and a buck..since my son is going to OSU this fall...we were at a wedding last night and after a few glasses of wine I was doing the OHIO with the rest of them..proud to be a Buckeye Mom now...

    I think I'm going to rest a little now..nights like that..dancing and drinking don't happen that often but when they do I really enjoy them..if you know what I mean.

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited September 2011

    Hi Everyone, hope you are all well and enjoyed the long weekend. So, we are doing ok here, the kids are settling into school, there are regular ups and downs, but that is to be expected. I am finding the whole transition exhausting, I cannot remember feeling this tired for a very long time. I hope to look for work, but not just yet. My husband is very busy in his new job, he is a department head in a school and has alot of teaching hours and is working around the clock. I have spent some time this week looking into doctors and have received a couple of recommendations for Oncologists which I will follow through. I am going to see my new family doctor on Sunday as I will need a referral for the Oncologist. It is a strange feeling doing this in another country with all my BC history being in the US. Although it is still a major part of my life, and I have daily reminders of it, I feel detached in a sort of weird way as I have nothing around me here to remind me of the time that I had BC. That is quite a good thing for me, as you will remember, associations are a big thing with me.

    Anyway, enough about me! Helen, I hope you are enjoying your leisurely days. Amy, I am sorry that there are family issues around the wedding, but it sounds like you are dealing with it really well. You can only do what you can do. Family occasions often bring up difficult family situations, but try and focus on the joy and celebration of it all! As long as the bride and groom have a wonderful day, that is what is really important. Please post pictures when you can afterwards. It sounds like you have made a great effort to make the peace.

    Titan, it seems like so long ago that you told us your daughter was getting married, and now it is right around the corner! I hope that it is a wonderful day for all of you and would love to see pictures too.

    Congratulations to you all!

    Hope everyone is doing ok, I will come by again soon, hugs to you all from across the ocean, Judy xxx

  • BetsyBuzz
    BetsyBuzz Member Posts: 592
    edited September 2011

    Hi all,

    I decided not to write until after my tests were done (no results...more may be coming). Anywoo...today I went in for my annual bone density test. I GREW AN INCH!!! Yahoo... But before there is dancing in the streets...the tech said they got a digital machine which probably accounted for the diff.

    I also went in today for a transvaginal ultrasound. I had some bloody discharge a month ago so my GYN said she needed more info before recommending a biopsy.  Since I'm on tamoxifin apparently bleeding is not a good thing. Anyway, bless my GYN....as I've heard the biopsy is not a pleasant test. So now it's the waiting game. I'll keep you posted.

    Helen...sounds like you are easing into your new normal. I love broccoli...Smile 

    Titan and Amy - both MOTB's (Amy you count as you are a step-mom). Sorry to hear things are not well with the IL family. So my question to both of you, is your dress cute, sexy, fun, or old lady MOTB? I'm hoping fun and sexy. Amy you've worked so hard on your body...show it off.  Titan I know you've been running too.  

    Judy- give yourself a break. You've moved a long distance, everything is new...no wonder you are feeling out of sorts. Hang in there...you will get back into a normal rhythm.

    Titan-UO dropped out of the top ten...sad but based on their play not unexpected.

    Hugs to all!

    Betsy

  • hrf
    hrf Member Posts: 3,225
    edited September 2011

    I'll only ever be MOTG....2 down and 1 more to go - soon I hope. I agree, Betsy, something cute - not old lady - is the way to go. Unfortunately I had to do old lady for last year's wedding - body is not what it used to be since 2 bouts of bc. Kinda depressing.

    Betsy, let me know if you want the recipe for the broccoli soup.

    Lena, are you starting to recover from the rads? 

    So far I am enjoying this no stress life although it still feels only temporary to me. Hope everyone is doing well. 

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited September 2011

    Ok ladies - i THINK this link will show you my dress.

    Click for: My dress

    That isn't me in the picture, lol.  It is sleeveless but is shown with that scarf thing, which I probably will not wear/use.  It fit me very well (size 10!!) and I think is flattering. I mean, for me, anyway.  I am happy with it.

    Funny thing - when I was in the dressing room trying it on, I couldn't zip it. I asked a woman (about my age) who was shopping with her daughter (20 or so) if she would zip it for me. I asked her how she thought it looked. i said I wanted to look really good and healthy b/c after you've had cancer people always look to see if you look healthy. She said that she was just dx with bc and that she just started chemo and was waiting for her hair to fall out. Her son was getting married  in a few weeks & she was going to have to wear a wig to his wedding! She had a great attitude.   I was able to encourage her and tell her about this website. I hope she comes on for support.  It sure is awful how prevalent breast cancer is!

  • inthemoment
    inthemoment Member Posts: 538
    edited September 2011

    Love, love, love the dress Amy!!!

  • hrf
    hrf Member Posts: 3,225
    edited September 2011

    The dress is stunning, Amy. You will look very glamorous. 

  • Lena
    Lena Member Posts: 1,036
    edited September 2011

    Crappity crap, I just spent 45 minutes here typing a post, went back to look at the picture of Amy's GORGEOUS dress one last time, then because I forgot to copy the post-in-progress, I lost it. GRRR

    Amy -- so now you know I love the dress, and I'm the kind of person who totally HATES maybe 90-95% of all formalwear, too (which is yet another reason why I've always gone out of my way to avoid formal social occasions). Well, this is one of the rare exceptions; obviously I think this dress is totally gorgeous! But, that "scarfy thing" which you said you probably wouldn't wear is, in my opinion, SPECIFICALLY what MAKES the dress so beautiful; so I would definitely wear it if I had a dress like it. Summing up my opinion on the business with your soon-to-be son-in-law, also being one whose observations, however initially childlike/immature, resulted in blaming my mother for my parents' divorce, I would probably feel angry too. I don't know, and don't have to know, THEIR specific situation, but I grew up intimately acquainted, from a very young age, with ugly family stuff. And oh yeah, come to think of it -- way back when, I didn't even TELL my mother or anyone else in my family that I was getting married and I sure as hell didn't invite any of them to the wedding. Oh, I hope the lady who helped you zip your dress when you tried it on, who just started chemo, will have the ENERGY to attend her son's wedding!

    Judy -- it's good to hear your settling into your new home is progressing slowly but surely. I'm sure you'll find an oncologist soon enough.

    Helen -- it's so NICE to be rid of job-related stress, isn't it?

    Geri -- We here in southwestern NH had no Irene damage at all either -- it was just a nasty windier than usual, heavier rain than usual, storm. The last three days it resumed raining every day again -- remnants of Lee? Well, it was just rainy; normal rainy, not big bad rainy-windy like Irene. Today's partly cloudy but hopefully clearing up..weekend will be nice though (sunny 70s).  Oh wait Geri, I almost forgot -- I have some more TMI for you. My hair is finally just long enough to start getting in the way when I have my Pack Rat for dessert.  ;-)

    Betsy -- good to hear you were happy with the bone density test result, for whatever reason! :-) Oh, so you're having the dildo-cam too, huh? LOL! Seriously, you're right, bloody vaginal discharges while taking Tamoxifen are NOT good. From the standpoint of "tell the doctor right away to be tested and treated as soon as possible," (which I no longer subscribe to; more momentarily) you did the smart thing telling your doctor and being tested. Have you gotten the results yet?

    All right...update time. It's mixed, both good and bad.

    The Good: Yes, I'm making noticeable progress in my recovery from the rads. I feel like a moulting snake (every time I think I'm done peeling, hours later I'm peeling AGAIN) but I don't consider that unbearable. The painful red is gone, and the broken blister-scabs are mostly healed. I can give my Pack Rat real hugs again, and it feels wonderful for him to jump my bones again; we finally did the him-on-top thing for the first time since just before my BMX. ;-) I also have to say I'm getting a little more energy, albeit not as much and not as quickly as I'd like. Then again, there might be a reason for that (more momentarily, in the Bad News section). But still, I have more energy now than I did when I was at the height of the rads fatigue. I have yet to clean the house, but I'm back to cooking dinners again and I only "need" to lie on the couch for an hour or two during the day (instead of half my waking hours). Oh, and I also finally started paying actual attention to my plants again: both the Colei on the porch and container garden on the deck -- let's see, I think it was Saturday (the only day of the Labor Day weekend which didn't rain -- when I got back to serious plant care. So here's how my plants are faring: Despite my basic neglect all summer, not only did almost all the plants survive, but I have a whole bunch of baby tomatoes (they're still green, I'm waiting for them to get ripe) and more flowers so will have a real bumper crop of grape tomatoes. There's also three baby canteloupes, numerous baby cucumbers and the scallions and some of the carrots were ready for harvesting...so I harvested them, and for the first time ever, got to eat food I had grown myself. When my Pack Rat came over Tuesday night I made olive-oil sauteed potatoes with chopped scallions in them to go with the chicken.  There weren't many carrots so we just munched on them. The lettuce didn't make it... well actually it did -- beautifully, but that was shortly after I came home from the 9 days in the hospital whomped from trying to recover from kidney failure at the same time rads fatigue began to hit. So I didn't have the energy to harvest it when I should have, so it got bug-eaten and wilted. The whole summer, as I said, I neglected my plants terribly, only watering them just in time to stave off death; none of the daily TLC I originally gave them. This past Saturday, now that I was finally well enough to resume taking care of the plants -- after harvesting the scallions and "ready" carrots, plus picking the last of the zinnias to put in vases in the house and on the porch, I reworked the soil and added fertilizer to the buckets in which I had grown the scallions and zinnias and transplanted the carrots still too small to harvest to those buckets. Then I then pulled up the mostly dead lettuce, reworked and refertilized the soil in the lettuce container and the original carrots container -- and planted new lettuce seeds in both. It's a crapshoot but believe it or not, there's actually a chance I'll have lettuce, maybe even around the time the cucumbers and tomatoes are ready.

    Also on the good news front, or perhaps, more accurately, "interesting" news: My Pack Rat's boss has been a medieval warrior in the SCA for YEARS now. Finally, at long last, they're going to knight him -- this weekend at their festival of John Barleycorn. Me and my Pack Rat are going. I have a skirt and blouse with sandals outfit which, while it doesn't really look medieval, at least doesn't loudly scream "Modern!" If could have afforded it, I'd have bought some real garb (I saw some online), even if it would have "only" been a medieval peasant woman outfit. My Pack Rat once attended an SCA event (to see his boss fight) so he has a  "just good enough" monk costume. I can't help but find it hysterical -- HIM as a MONK when I know so much better! ;-) I guess I'll have to behave myself. LOL Anyhoo, today is the day (as soon as I finish this post and eat breakfast) I'm going to try to clean the house for the first time since just before my BMX -- so I come home to a clean house from a weekend away -- then off to my Pack Rat's nest, from where we begin the journey to North Salem, NY.

    OK, and now for the Bad News...(Note: I have an oncologist appointment on Wednesday of next week.)

    1.  In spite of the rads, I have a major crop of skin mets on my abdomen and chest, a couple of them are on the irradiated area.  When I found them (a few days prior to my last RO visit), I was really upset feeling that I'd ruined my entire summer with rads SEs ALL FOR NOTHING. Remember, I did the rads because my onc and BS had told me if I had rads, it would postpone new skin mets for a few MONTHS?! And here I am finding them in the treated area TOO? They all started showing up about a week to week and a half after I stopped rads, so the RO has seen them. She (and my Pack Rat, who came with me for that appointment) STILL think it was good I did the rads, because if I hadn't, there'd be a lot more of them and they'd be BIG, too (they're smallish bumpy nodules). Hmmmm OK, if they say so. "Regular" oncologist gets to see them on Wednesday.

    2.  I really do think that by now, there WILL be enough evidence to point a finger and announce "this is what caused that ureter blockage" back in July, and the evidence WILL be of peritoneal and/or retroperitoneal mets which closed up/blocked my ureters (the stents are working fine though). Now why do I think that? Because for the last three weeks I've started to get what I very strongly suspect is ascites -- my abdomen has been swelling up quite a lot even though I'm definitely not overeating (in fact, I have once again lost a noticeable amount of my appetite -- not all but a lot). I'm back to wearing my fat jeans even though I only weigh 120 pounds -- I can still put the skinny jeans ON and button them, but they're uncomfortable to wear. My fat jeans are actually still a little loose, but for now they're the best alternative (and I'm so glad the skirt I'm wearing as "garb" has an elastic waistline). My silly Pack Rat is telling me my "fatness" is just a matter of loss of muscle tone since I stopped regularly exercising -- no more daily walks, not even the "short" ones --  when the fatigue hit bad, and when I'm fully healed from rads, have all my energy back and start exercising again, it'll go away. BUT....

    Peritoneal and retroperitoneal mets ARE a common cause of ascites, especially if cancer gets into the lymphatics (which mine did, as evidenced by the skin mets), AND, while at the time my scans didn't show definite evidence of it, I was told that just the fact of my being a metastatic BC patient meant we couldn't just rule out the POSSIBILITY. And now you're all probably going to ask me why I didn't call my oncologist about this a couple weeks ago when it started (which was just after I saw the RO) and am waiting to show/tell her about it at our regularly scheduled appointment on Wednesday. It's because a biopsy to confirm it and the draining of the fluid are done by a procedure called paracentesis, which involves a great big needle in the stomach. Supposedly it's done under a local, but you already know my history concerning locals for invasive procedures such as biopsies or catheterizations -- they're not nearly enough for me so it hurts like freakin hell. While draining will get rid of the fluid, ultimately the root cause (in my case, the likely peritoneal or retroperitoneal mets) has to be treated also, otherwise it'll just come back and come back. I'm supposed to be starting Faslodex soon, so that would be the "treat the cause" part of it, I'm still almost POSITIVE I'm going to get that horrible needle and the longer I can put it off, the better. See, the ascites is UGLY (makes me look fat like I did before I went on the diet) but it doesn't HURT. I'm not so sure I'll be able to say the paracentesis won't hurt! So THAT is why I haven't called the oncologist or tried to see her sooner. I'm sick of procedures that are more painful than the reasons why I need the procedure in the first place. Ummm hmmm...I wonder if there's a chance a diuretic (take a pill, no needle) will get rid of it.

    OK, well, that's all the news that's (un)fit to print from around here. Hope you all enjoy your weekends! 

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited September 2011

    Lena - So glad to hear from you. Thank you for your comment re the dress. Here is what happened.  When I tried the dress on, there was no scarf with it.  So when i went to purchase it, there was no price tag on it either. So when the lady went to get another dress to scan the price tag from, we noticed the scarf on it, so she took it off that dress & gave it to me with my dress. So I didn't even realize the scarf was part of the look.  Now that I see it online, I can agree with your point. I will try it on again WITH the scarf and practice draping it around and looking elegant (hopefully, instead of ridiculous).

    I have to say - your posts are the only ones I need to keep Google open to use while I read, to understand the terms. I had to google SCA and ascite this time.  Your news does sound like a mixed bag, but I think overall more good than bad.  The stories of your gardening are SO inspiring. We have an acre and the only things we can manage are a few tomato and pepper plants, and that little patch is TOTALLY overgrown with weeds by mid summer. I would love to try more but lack the perserverance. And my husband is great at beginning the garden (in May) but after that, not so much....

    It's funny, as this family situation has unfolded, I hear from more and more people who didn't include immediate family at their weddings. Sort of like breast cancer -  I didn't know anyone who had it before I got it, and now it seems like everyone has been through it.  Same with the weddings - maybe it's not as big a deal as I thought. If they don't come, well then, we'll just have a wonderful day anyway,and maybe even a better one with them not there!

    Judy - interesting comment about having no reminders of bc where you live now. I can imagine that would be somewhat disorienting. I know there are times for me, when it is hard to reconcile where I am now with what I went through. I can only guess at what it would be like in a completely different country!   One thing to consider re your fatigue - maybe ask for a thyroid test at your next blood work. Did you have rads? I can't remember, sorry. But I recently learned that thyroid damage is VERY common through radiation, and very under tested.  I asked for it, and my results DID come back low. GP wants to retest in six weeks and if still low, maybe we will supplement.  I'm not tired, but it may be why the weight isn't coming off even though I am working out so hard.  But for you, maybe there is a physical reason for some of the fatigue - might be good to check.

    Ok back to work. Wedding is 3 weeks from tomorrow. Titan - are all your details in order? Ours are almost all done. OH - bride texted me today saying "Where and when do I get my marriage license?"  i wanted to write back "Look it up."  But I found the info and sent it to her. You can do it all online now - I remember when you had to go to the courthouse. Times have changed!

    Love to all - enjoy the weekend. Maybe (for us east coasters) the sun will shine!

  • Titan
    Titan Member Posts: 2,956
    edited September 2011

    Amy..no marriage licensce yet...my dd says that they have 3 weeks so whatever...I guess I don't need to worry about it...and here in Ohio you still have to go to the courthouse...with a certified copy of birth certificate and soc. card.

    I think we have things ready to go...lots of meetings with everyone involved in the next couple of weeks...

    Lena..your life is interesting to say the least...I bet you are never bored are you? I still think you could/should write a book...I always read every bit of your posts...and my attention span is very, very short.

    Judy..good for you in your new place..no memories of BC there....you left the BC in the United States.....you still have us though...! 

  • hrf
    hrf Member Posts: 3,225
    edited September 2011

    Lena, no doubt, your posts are incredibly well written - you have a gift in your use of language. Sorry you are having more issues, but still seems there is significant amount of positives. I do hope you can feel the love we are sending to you (((hugs))). Weddings can be so much fun despite family issues - wishing both of you the best as you get down to the final few weeks. Weather here is beautiful today - sunny and nicely warm but not hot. I found out that the first movie I see next week at tiff is staring Clive Owen and I do believe there is a strong chance he will be there. Everyone says he's hunky.....will let you know.

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited September 2011

    Gorgeous dress Amy! You are going to look great! Betsy, please keep us posted on the test results.

    Very late here, must get to bed now, hugs to you all and enjoy the rest of the weekend, Judy x

  • inthemoment
    inthemoment Member Posts: 538
    edited September 2011

    Feeling very sad today - 9/11 has gotten to me

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited September 2011

    I know what you mean Geri, it has gotten to me too this year, not sure why especially this year. Sometimes, I want to try and make sense of why bad things happen to people and I just can't.

    I hope you are feeling better today and sending you all hugs as always, Judy x

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