**NEW** Starting Chemo March 2009
Comments
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Chris: They went the same speed as they did the first time and the nurse was sitting next to me the whole time (my chemobuddy, the nurse and I were playing a trivia game) so I was converged on by 4-5 nurses and drs with-in seconds. I think the severe allergies are not that common. There were 5 of us women in a row getting taxol and I was the only one who did that. I just don't want you to worry, they watch you like a hawk and get it under control fast. It was just scary while it was happening. I was dumb like Krista ( after doing this crap for this long I think we just keep on trucking when we can) and went from chemo straight to my daughters softball game. I was shaking and weak but I was fine. Last night and today I was wired big time.
Crusader: After my scare yesterday the Dr said he was putting my on taxatore next week, so of course the first thing I did when I got home was go to the that page on this site. What I read freaked me out and I asked my self why do I do this. Then I remember...... I go into it knowing the worst that can happen, knowing what will be done to fix the worst and knowing I will get through it. The women who have been through it are our best resources. They are much more informative on our side effects then the Drs and I feel much more supportive (though I like my onco). I don't feel alone in this battle when I come in here. Tell your friend this crap is scary but the friends she meets will help her through this.
I hope everyone has a wonderful SE free weekend.
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Soooo very sorry for those of you have problems outside of BC. AND, I really hate to hear of the horrendous SEs some of you have had to endure.
Crusader... tell your friend to keep looking around the site. It has been a life saver for so many of us!
Other than NYDeb and myself... any baseball fans out there? Family and I are off to see the Texas Rangers play tomorrow!
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Kimmom: Thanks for the encouragment. I guess I will deal with whatever happens. Keeping my fingers crossed. I hope the Taxotere treats you better.
Chris
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Hi Ladies! I've had 4 doses of taxotere with minimal SE. I have some constipation, and muscle cramps, and fatigue, but that is it! they do watch you and I think the decadron, masks the SE.I would rather go without sleep for a couple of nights than be sick! It is doable, if I can do so can you!!!!!
Janet! Ilive in Nashua, 50 miles north of Boston, my husband went to Dartmouth in the 70's and we just love that area. It is about 11/2 hrs from here. In fact I get my Tx at Dartmouth Hitchcock, affiliated with the Hospital in Hanover. Small world.
Hope you all have a restful and SE free weekend! Dawn
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mom of boys.....I am a die hard Yankee fan...I even have the baseball package on directv for the past 8 years. Drives my husband crazy! He thinks the games last too long. My parents are living with me and my dad is a huge Yankee fan, too. And I have my older brother here for a bit and yep, another big Yankee fan....I even flew out to Seattle in 2000 to watch the playoffs.
Have fun at the game tomorrow!
Diane
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Hi,
Another Yankee fan here . I have not been to the new ballpark but will get there soon. The Yankees just won in the bottom of the ninth.
MOB . hope you enjoy your Rangers game tomorrow.
Kim- I do hope you do better withTaxotere.
Yes it is too bad that so many have had such a bad time with their treatments.
Remember the light at the end of the tunnel is nearing for all of us.
Hugs to All,
Have a great weekend all,
Francine
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Since the Rangers have not historically done well, excluding of course the HR derby... a lot of fans here have a secondary team they root for. My oldest son is a HUGE Yankees fan. He and I went almost five years ago to a Yankees game. He even wore one of his Yankee t-shirts to a Rangers game. The Yankees/Rangers game I went to a couple of years ago seemed as though there were more Yankees fans in attendance than the Rangers... OR, maybe the Yankee fans were just louder!
Like Dawn, I had some SEs from taxotere but it was very doable IMHO.
~Jan~
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"" Jan,(MOB), no more hunks or Margeritas.
Hope you enjoy (ed) your game.
Francine
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Francine - That makes no sense that your friend was freaked out by these boards. It's like anything - you have to read through and digest the information, take some with a grain of salt, and forrm your own opinion, but my gosh, I have used the information and collective experience here in so many ways. I knew what to expect from surgery before surgery. I sanity checked the chemo regimen I was planning. I found all sorts of women describing how they were dealing with exactly what I was about to go through, so I knew just what to expect, and in general everything has been exactly as I thought it would, but only because I had this resource to *know* what to expect. The moral support has been incomparable. I can't imagine why someone would prefer to walk this path blind, without the guidance and moral support we are all finding and providing. Then again, I'm proactive and an information seeker, and I think most people in this type of forum share that trait, so maybe your friend just isn't like that, and would prefer to be led by her doctors. I can't imagine. Okay, I'm done.
Dawn - That's cool. I was at Dartmouth from 81-85 and I just loved it there - a wonderful school, and such a beautiful part of the country (albeit way too cold for a Florida girl like me, lol).
I had my transfusion today, so my fingers are crossed that it will help my energy level, which has unfortunately been pretty low lately. I've got a crazy busy day planned tomorrow. Have to load my SUV with a dining room set that I'm loaning my dad, go to three hours of dance practice, drive an hour and a half to dad with the furniture, unload & visit, drive back, then go salsa dancing at an event that's been on my calendar for a long time that I don't want to miss. I'm stupid for agreeing to bring my dad the stupid furniture on this particular day, but I find myself still trying to do everything all of the time, including favors for people that don't have a clue how hard it is for me to help them out. It's my fault they don't have a clue, because I put on such a good act about how well I'm coping with everything, that they believe me. Woops!
One issue I'm having is that my feet aren't recovering from dancing like normal, and it's pissing me off more than anything else I've had to contend with. I dance in 3" heels, so my feet get the shit beat out of them, but generally some really good lotion with a pair of socks over night does the trick. I'm finding that the skin doesn't heal as quickly, I get blisters when I never ever used to, and if I'm out, my feel just plain hurt from being in my dance shoes. Now *that's* a problem. And I haven't even started Taxol yet, which I'm expecting to really do a number on me between possible neuropathy and nail issues. Hmmm. Francine - maybe your friend is right. Maybe I'd be better off not knowing how much that's gonna suck. Lol. Okay, it's not funny.
Boy, that was one long vent this evening, wasn't it? Wow, and I even had a massage this evening, which was fabulous.
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Janet--I had my second Taxol today...absolutely no SEs (didn't take the Decadron prior to tx--just got whatever they gave me in the pre-meds). I went back to my office after the tx, then home for a nap. Obviously I'm buzzed right now, but feelin' no pain! Hope it goes well for you, too. Take care. Helen
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Good Morning Everyone! Been up since 2:30a and not sleepy yet. Had my final round of AC on Friday, go back for lab counts on the 26th and then it will be almost time for Taxol. I was wired at first after my tx, had a splitting headache and couldn't stop talking (my hubby was so nice to point that one out
). Then I started coming down, took some pills to relax and thought I was in for a good long sleep ... HAH ... 3 hours of interrupted sleep!Been trying to read the posts - Michelle - We can pick our friends, but family is forever. From personal experience, I can't say that too much will change. Just continue to do your best and seek encouragement, comfort and help from all who offer.
To all on Taxotere or Taxol - Is there anyone who gets a shorter tx? The posts I've been reading so far seem to have almost day long infusions. Just curious as my onc is saying it should take me no more than two hours to complete the process. But she will be sitting by my side the entire time to watch for any SEs and make the necessary changes ... meaning I get sent to the hospital (her words, not mine).
Crusader1 - As they say, 'this too will pass'. As for significant others ... my hubby is not the most sensitive man in the world, but I knew that when I married him. So when he does go above and beyond I truly apprecite the effort. Throughout our marriage I've never had to cook unless I wanted to, I never wash clothes, dishes or clean up unless I wanted to and I don't drive unless I want to, he picks out the most thoughtful cards, tries to cook my favorite meals, makes sure I'm not disturbed when I'm not up to visitors or phone calls and makes sure I'm looking my best before I walk out the door, link check, make-up check, pantyline check, etc (I sometimes wonder why he feels he's not the sensitive type, then he'll do something or open his mouth and out come some eloquent words that remind me ... overall I think I did pretty good (
). I'm not sure about nioxin, but there are more 'natural' products out there to use. The important thing is to stimulate the scalp anytime you're trying to encourage growth. A gentle massage. Try it with your head hanging off the bed or sitting up with your head lowered between legs, this encourages the circulation ... lift your head up slowly or you'll have the pleasure of your head spinning. As for your friend's comments ... it's all about perception. If she came onto to the board and only absorbed the 'horror' stories, she may have got what she was looking for to support her reason for not joining a support group. My hubby had attempted to discourage me from joining a support group by telling me he talked with some of his female co-workers who had been in 'those' groups and all they talked about was who had just died, who's cancer had metasticized and who was just given a 'death' sentence. Well I'm truly glad he told me that as I did not choose to be a part of THAT support group! I chose this group and TNBC where I can get good information, knowledge applied to life experiences, the ups and downs of this journey, the funny stories, beautiful pictures, support, encouragement and comraderie ... all without stressing about getting to a meeting! I'm sure if your friend continues to look she will eventually find what's right for her at the right time.Dawnmrn1 - Love the picture!
Kimmom - I agree with your comment regarding staying and checking out both boards. I already know once I'm done with the Taxol I'll be doing eight weeks of daily rads and I plan to read any information I can that pertians to whatever I'm going thru, but this will always be my home.
I have to admit your Taxol and a few posted by others have me a little nervous, so I do hope everyone's next tx are better.
Question - Why is all the weight going to our stomach????
Everyone - Have a wonderful day!
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Hello All! I'm way behind again. My kids were in a show that was four performances, and I had to not only see them, I chose to volunteer for all of them, lol. My in-laws came up from FL to see the show, my sister and her boyfriend came down from North Jersey and stayed for days, etc. I entertained everyone on Friday the 8th, then Saturday we went to a Phillies game and Sunday we did the Komen Walk. Monday the 11th was my last chemo(!) so I ran errands and did stuff until I crashed on Wednesday morning.
I missed the thread about reconstruction. I chose to have a bilateral mx even without the gene test just because I didn't want to take any chances, I hated my breasts anyway (overly sensitive) and I wanted them to look the same after reconstruction. I had the TRAM, even though I have a c-section scar. The PS sliced me about 1/2 above that scar. The new scar is still very purple (gets more purple as I gain weight), and my body looks weird. But I'm glad I got the TRAM.
I still have a lot more reading to do, of course, but I just want to say that I don't care where we stay together as long as we do. Moving forums is fine, staying here is fine.
One more thing to add: my marriage is failing, and other than the kids, I don't think I care much. Maybe this has brought to the surface all of the long term problems, or maybe this would've happened anyway. I don't know if it's his fault or my fault, and that doesn't matter to me. I just know I'd rather spend the rest of my life alone than with him. Financially, though, we can't afford to do anything right now. I don't know how to act around him. It's very uncomfortable. I do have to say, this has nothing to do with how he's treated me during all this. He was wonderful after my surgery, and he's made attempts to help me during chemo. He's done some dumb things, but I guess most guys do. I'm going to be seen as a total witch for this, but the people who know us well will understand. I hope.
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Hi All,
Just wanted to say hello and hope you all have a nice weekend. I love the baseball posts! I'm not really a baseball fan, but I love watching football and am a die-hard EAGLES fan!!!
Just wanted to add some funnies I got a kick out of!!
Sometimes I wonder... 'Why is that frisbee getting bigger?' and then it hits me....
A friend will stop you from overreacting... A best friend will walk beside you giggling, 'Someone's going to get it..'
My best to you all,
Beth
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Patti, we should've arranged to meet at the walk last Sunday! I did the 5K also, which meant my mom and my 6-year-old also did it. That was the big accomplishment. When we were walking back to the car after it was all over, my mom fell flat on the Parkway. Thank goodness she was okay, it looked bad! She only scraped up her hand. That worried her because she types for a living and thought her hand might swell too much. I joked about that, said something about how it could've been so much worse but all she would worry about would be work, and some stranger piped up, "Yeah, I bet she (meaning me) would trade places with you (meaning my mom) in a heartbeat and just have a hurt hand." I was so flabbergasted, I couldn't close my mouth for several seconds. So finally, someone has said something incredibly stupid in my midst. At the Komen Walk, of all places! Luckily my mom didn't hear the woman, otherwise I would've opened my mouth.
Do you have pictures, Patti? I put mine on facebook because I can't figure out how to post pictures here.
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Diane & Francine : Yankees fans eh? I knew I liked you guys. OMG , did you see that game last night? Fun to see some excitement out of those young players.
MOB : I have never been to a major league game. Have to put that on my life list for next summer. Have fun.
Hard to imagine anyone not appreciating the knowledge that can be gained from these boards. I had read about others having a reaction to Taxotere. So, when it happened to me I was calm and knew to ask for help quickly.
I think sometimes this whole BC thing is so difficult for our DH/significant other. Men just want to fix things, wish they could. We were hiking through the woods yesterday, my DH stopped , hugged me and said " how lucky am I to have married my best friend". He made my whole day.
Hope everyone has a great weekend.
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Bethr! Another diehard EAGLES fan! That is my great passion.
Michelle
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MichelleinSJ My heart goes out to you (((((hugs)))). I found that after 14years of marriage, I was unhappy (I think he was in denial though); we tried 2 years of marriage counseling, which did "buy us some more time" although it was temporary. We were indcredibly mismatched and he developed other interests that totally occupied al of his time and resources (financailly). When both kids were finished with college, I acknowledged that if I was spending my life alone, it would be legally alone as well. So after 33 years of marriage, I filed for divorce. I think sometimes a marriage/relationship just wears out...it's hard for everyone and some won't understand. The best advice I can give you is to make a solemn commitment that you will Not drag your kids into taking sides on anything--and that is VERY hard to do. It's so easy to make an off the cuff comment about their dad--or he about you. They'll be hurt --mine were adults when it happened, but you'll be so glad later if you can keep them out of it...they'll draw their own conclusions and they are usualy good ones. I'll be thinking about you. (((((more hugs))))). Take care. Helen
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I'm so happy for those of you finishing up your chemo. BUT........ it certainly depresses me, knowing I've still got such a long time to go... 4 more Taxol/Herceptin, then AC for 4 bi-weekly tx. So it will be August before I'm done ......... booooohooooooo.
But then I think ...... I'm already finished with my radiation YAYAYAY and it was a breeze .... just twice daily for 5 days.
Had my follow-up echocardiogram last Tuesday right after chemo. All looks good. Saw Pulmonologist the last 2 Fridays ..... all does NOT look good. Only 63% lung capacity with 43% oxygen transfer. No wonder I feel short of breath. Of course, 2 new meds, bringing my total daily meds up to about a zillion.
I'm tired of all this shit. Why me?????
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MichelleinSJ - Fantastic!!! Fly Eagles Fly...
bwbly - I know just how you feel. My last chemo is July 10th. Then 6 weeks of RADS. The chemo treatments are kicking my butt!!! I'm hanging in there. You hang in there too! This will end!!!
Beth
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Ladies! This too shall pass, I finish June 23rd, 5 more weeks, then 6 weeks of rads. But who is counting, I figure by October I'll have hair and be thru TX! Yahooo!!!! I consider my cancer like a pregnancy, 9 months of wonder! My best to all! Dawn
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MichelleinSJ - So sorry about your marriage difficulties. That would have been great to meet you at the walk. Did you climb the steps of the museum for the survivor picture. I stayed at the bottom with my group because, our 18 year old girls wanted to try to get at the head of the line for the walk so they could possibly run it, but it was it little to crowded for them. That was fine with me as I tend to be more of an observer with anything new. The event was great and we will probably continue to participate. I'm not very good with the digital pictures, my BF did take some of us as a group after the race, the avatar picture is my husband, me, and my daughter. I'll check out your facbook.
LUV2Sing - My treatments did get shorter each time. I think if there are no SE's during infusion, the next time they drip it faster (or so it seems at my facility). 1 of 4 we were there all day, go home 5:00, 4 of 4 we were home by 2:00 total time in the Chemo room was from about 10:30 to 1:00. My husband was surprised since he went to the 1st & last, friends went for 2 & 3.
I have already signed up on the June rads board that is just beginning and have skimmed through the April & May board. I read the possible SE's but keep in mind we are all individuals and will have our own issues through each step. But I do like the knowledge.
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Hi All,
Michelle my heart goes out to you also. I do hope you come up with a solution that is good both for you and your three children. I was divorced when my son was five. Alone for seven years and now I am married almost 19 years to a man who can be moody and difficult at times.. Sometimes I do wonder why I stay and at other times things are so good between us. He has been good to me through all these months but I do feel a change in his feelings toward me. I know he loves me as he always has but something just does not feel the same. FYI to post pictures on here this is what I have to do. I must first go out of AOL and into internet explorer. Then I go to Photobucket . com. Then I get the pictures on to Photobucket and finally on to this board. Once you figure it out it can be done.
Luv To Sing- Just loved all of your comments.. Your husband definitely sounds like a prince and a real keeper.
Janet- Your comments about the baord were so similar to mine. I knew just what to expect with my surgeries , chemo etc. .If I did not like what someone said I ignored it for what I had gained.
Well the Yankees are in extra innings.
Easy SE's to all.No rads for me but I am soon to schedule a breast reconstruction via lat flap surgery
MOB - Hope you enjoyed your ball game . Did the Rangers win?How are you feeling?
Hugs to All..
Francine
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Michelle! I'm sorry to hear about your marriage, life can be so complicated at times. I was married and divorced at an early age, then met my husband and had our daughter. He is a good man, can be difficult at times, but so can I! Good luck!
Enjoy your ballgames! crusader1 I agree this board has been great, take away from it what you need! Dawn
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Thanks to all for the ecouragement. I am tired and am using the nurses computer in my mom's room so this is short and sweet. My actual taxol infusion was 1 1/2 hours not counting the 30 minutes for the premeds, the onc nurses told me it would only be an hour next week since i didn't have a reaction during the infusion. I finally told my brother off like you wouldn't believe, i am sure it won't change things, but it made me feel better to get a bunch of things off of my chest, my onc stated different pian meds and i am feeling much better, getting used to it, but i am not returning to work until tuesday so i can make sure i am not too impaired to my job. My mom is starting to make a turnaround, she isnt qite as confused and has finally broke her fever, I am so glad, I have been really scared for her, she has been through so much and is way to young to die, she is only 61 years old. she is cussing and cracking all the nurses up with her warped humor right now, it helps them feel better too. they check on her often just so they can get a laugh i think.
Gotta go,mom is yelling for a pepsi RIGHT NOW, glad she is drinking and can verbalize what she wants, even if she is a tad impatient.
Love you all and will post more later, Michelle
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Dawn...I have always thought of my cancer just like you said, 9 months from the time you are diagnosed, surgery, chemo and/or rads, til it is done, just like a pregnancy!
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WOOOO HOOOOO!!! The Texas Rangers won! I realize it's only May, but we're doing well. Thanks Francine for posting their logo. I'm surprised your Yankee computer would allow you to post such an item. Also... a BIG BOOO and HISSSSS to you Eagles fans. I'm also a Dallas Cowboys fan from way back as well.
MichelleinSJ... My heart also goes out to you. Hang in there and know you are in my thoughts.
bwbly... Thought you'd like to know I got my first tat! Granted it is three tiny dots for my upcoming rads, BUT hey I have a tat. I'm no longer a boring accountant!!!
marshall2000... Continue to have your mom in my prayers. I did have to smile, though, at your phrase "tad impatient"!
Dawn... So often your posts are upbeat and what I need to hear. Just wanted you to know...
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MichelleinSJ - When I first received my diagnosis we were already going thru some issues in our home and there were times I felt maybe we should go our separate ways. It was a male friend who suggested I should not be so quick to end things. He explained what I already knew, but I was just tired of the constant disagreement about finances and family ... this diagnosis just made me not want to waste my time bickering over trivial things that occured in the past. I've never liked re-hashing old problems or mistakes to make a point. I feel you should learn from those things, move on and try not to repeat them. If you truly feel your marriage is not worth saving ... meaning if this new twist wasn't there, would you still feel the same way? Have you both talked about what you feel is not right or what's making you uncomfortable? I don't want to pry ... but at least write a list of the good and bad things in your marriage. This will help you to better focus on what may be the real source of your irritation. After reading the list, if you have more bad than good ... you'll make the best decision for you, your sanity and your family. It doesn't matter what others may think or say about you ... they don't have to live your life.
Thanks to all
For the advice and nice comments. My onc suggested I start having a small drink prior to tx to relax me more and my hubby is more than happy to help fill the prescription (LOL)! I couldn't respond to all the posts I've read but you are all in my thoughts and I wish you sweet dreams.
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omg, my eyebrows are falling out.
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Hi all,
Reeney77 - So sorry to hear that!!! My eyebrows are still intact! But, I've got three treatments left so I'm just waiting....
MOB - Cowboys huh? My nephew is a Dallas fan as well. Last season a bunch of my family, nephew included, went to the 2nd Dallas/Philly game. He had his T.O. (81) jersey on of all things. I told him he was so lucky the Eagles won that game because the fans can be soooo bad... But in the end, blood is thicker than green and we would have been right there for him. Oh, but that was a nice game to watch!!!
I keep reading all the references to pregnancy and want to propose new reference... REBIRTH!!!!
Ours!!!
Thanks to you all ladies... This post has carried me through so much and I know it will continue to do so!!!
Have a great day!
Beth
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reeney77! Me too! Thank god for eyebrow pencils! My lashes are thinning too, but mascara works wonders!
bethr I love rebirth! We will be starting over, with new hair, and new attitudes! Great Call! Dawn
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