March 2009 Rads Group?

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  • BooBee
    BooBee Member Posts: 860
    edited August 2009

    My two girls and Ed.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Hey TorchSong..awesome news about your new sweetie!  My breast also feels different - rubbery and stiff is a good description. 

    I am scheduled for my first post treatment mammo in Sept, roughly around the time I had the mammo that found the lump.  Sept was my regular mammo month.  My medical onc was the one who advised me to schedule my mammo.

    Good for you Mary...good luck.

    Blue..cool "pic". 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Renee...awesome news.  Your girls are gorgeous and Ed is very handsome...what a great smile.

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  • SusieMTN
    SusieMTN Member Posts: 795
    edited August 2009

    Hi girls!  Well, surgery was yesterday to close my wound and do the biopsy,  I take the dressings off tomorrow, so we shall see what kind of job they did! WOW, I can't believe how sore my throat is from the tube they put down your throat!  Who knew!

     TorchSong - I had my first mamo about 6 months after my surgery for MRM. Worst part ALWAYS is the waiting, geeeez don't like that so much!

    I am trying to get my sea legs on this whole end of treatment thing, step by step, little by little I suppose!

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  • BooBee
    BooBee Member Posts: 860
    edited August 2009

    Get well Susie.

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  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited August 2009

    Susie- I got a really bad sore throat every time I did IVF surgery.  They never figured out what it was but it went away :)  Fingers crossed for you (and all of us!)

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  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited August 2009

    I been thinking about changing this song, Casey Jones Grateful Dead for the Tamoxifen train...

    Riding that train,  tamoxifen,
    Casey jones i'm ready, watch me sweat.
    I want no Trouble ahead, keep my trouble's behind,
    And you know that notion just crossed my mind.

    This old engine makes it on time,
    Take it in the morning bout a quarter to nine,
    Helena says in Oz it's seventeen to,
    At a quarter to ten you know its workin again.

    Trouble ahead, get out of bed,
    My ONCs advice and from all that I've read 

    Switchmans sleeping, train hundred and two is
    On the right track and headed for you.

    Tamoxifen train, high with my friends,
    Casey jones is ready, watch your speed.
    Trouble ahead, trouble behind,
    And you know that notion just crossed my mind.

    Trouble with you is the trouble with me,
    Got 5 more years and then we'll see.
    Come post on the thread, until this crap ends,

    We'll party and scream until sweat up streams...

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  • kristifromsandiego
    kristifromsandiego Member Posts: 271
    edited August 2009

    Torchsong glad to see that you are a "taken" woman again.  I am very happy for you.  And Renee you will have to tell us all the proposal details, he is quite a hunk.  Suzie, I hope you are feeling better, I also have gotten sore throats every time I have been under.

     I have a question.  I am healing from my 2nd mastectomy, nearly 3 weeks ago.  I will only take a few fills till I match my other one.  My plastic surgeon really wants to take extra skin from my back and put it on my radiated breast.  He thinks it will be good for the healing of the breast and that I will not have to worry about it.  He says if I don't I might have to do it in an couple years because the skin is not strong enough to last forever.  Has anyone experienced this?  I just hate to have to heal from both boobs and my back.  Plus I am a bit worried, what my back will look like when it heals.  It is being planned for November.  Thanks for the advice.   

    Kristi

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  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited August 2009

    oh yeah, kristi is right, we want proposal details!!!!  kristi, there is a lot of discussion on this recon after rads stuff on the reconstruction boards.  of course i am really interested, and really ticked off my surgeon downplayed the problems of recon after RADS.  the general consenses I think (just think, 'cause I really don't know) is that everyone ends up happy with the back muscle thing.    I think this is the operation where they can take someo flab with them when they do it?  I don't know if you have flab... but it does sound like the recovery is a bitch. Like you say, not being able to rest on your back or your front. But don't take my word for it- I could have a lot of this wrong.  its worth checking with the recon girls.  In fact, you might get a bunch of help online and in person on the vegas thread, they are mostly recon gals:

     1st Ta Ta Sisterhood Reunion in Vegas

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  • BooBee
    BooBee Member Posts: 860
    edited September 2009

    Kristi...I had a lumpectomy.  I do however, have lots of excess fat (fluber) I would be happy to donate to the cause.   Where can I send it?

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  • kristifromsandiego
    kristifromsandiego Member Posts: 271
    edited August 2009

    Renee, I'll take the excess flab,I have none on my back, maybe a bit on my stomach but that is all stretched out from having kids.

    Rachel, I am going to check on the other site, thanks.  My PS didn't say anything about muscle, just skin.  I can see we are going to have to have a more detailed conversation.

    Thanks guys. Kristi

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  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited September 2009

    kristi- also check out the NOLA thread, lots of gals there going for specialized recon

    so I was just checking in to say that I can't deny any more that the bad rad boob is swollen again, and after working out I got a rash that's really annoying under the bad rad boob- and not on the other side.  :::sigh::: Otherwise, it feels AOK.  Still looks pretty strange. 

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  • SusieMTN
    SusieMTN Member Posts: 795
    edited September 2009

    Hi girls!  FYI, I have been a bit occupied we had a fire close to where we live and for days we were living under a possible evacuation.  We were indeed evacuated for 28 hours but all is well now! Just a pain as I had far tooooo many irreplaceables!  

    Well, healing everywhere but the large area, for some bizarre reason the surgeon (who was not my original one surgeon) left it loosely stitched????? the small area is healing well.  Now I am getting paranoid thinking they really know the large area is a return to cancer!  FYI, when he looked at it right before surgery he said it was cause by radiation.  I hope this is just post cancer fear stuff and not a recurrence!  I will find out on Tuesday the result of biopy of both areas (the wire guided on remaining boob and the biopsy of big hole!  Trying to stay busy (something I am quite good at, I am a real busy bee catching up on all I didn't do while under treatment!)  

    Thanks ladies, nice to know I can come here and voice my worries!  Thanks Rachel and Renee I will "be well" hopefully on Tuesday, if I am I may go for a celebratory Margarita, my sister makes THE BEST MARGARITA'S - unbeliveable especially since we are not drinkers! Who knew! 

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  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited September 2009

    oh and renee- I LOVED the proposal details!!!

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  • SusieMTN
    SusieMTN Member Posts: 795
    edited September 2009
    Laughing  Good News!!!   My biopsy's came back and there is no evidence of cancer in either area's.  So I am a happy camper.  Now just need to heal!
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  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited September 2009

    YAAAAAY YAAAAAY YAAAAAAY!!!!!!!! YAY SUSIE!!!!! YAY!!!!

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  • TorchSong
    TorchSong Member Posts: 348
    edited September 2009

    Wow Susie, great news all around! WHOOOT!

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  • TorchSong
    TorchSong Member Posts: 348
    edited September 2009

    Hey all--the new pic is me this last weekend. A friend was playing at a local coffeehouse and I went out for the night. That's me on the right, my friend Rick on the left...;-)

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  • Mary22
    Mary22 Member Posts: 779
    edited September 2009

    Good news Susie!!!!!

    Nice pics Torchsong.

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  • BooBee
    BooBee Member Posts: 860
    edited September 2009

    congrats Susie.....You look great Martha....A big hello to everyone.

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  • TorchSong
    TorchSong Member Posts: 348
    edited September 2009

    Hi all--

    Today's my cancerversary...rememebering how scared I was, and feeling a bit that way again...my first post-treatment mammo is the 21st. I'm nervous about it. I thought I wouldn't be, after all, they've been treating me to get rid f cancer, how could they find any--but I can't shake the fear that they might.

    One thing I do like (in an odd way) about the mammos and ultrasounds here in Canada--they don't just take the films and say the doc will get back to you if there's anything wrong--they read them right away and if they decide they want to do something else--ultrasound, whatever--they just do it then. No horrible waiting--or not as much, anyway. On the other hand, it means I want someone there with me even for a mammo, because I don't know how it will go...

    How is everyone doing? We seem to be quiet!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    Hey Martha..my first post-treatment mammo is Sept 15th...can't say I am nervous...well not yet anyway.  I suspect that we might always have that niggling of fear, although I hope that as the years go by with NED that the "niggling of fear" lessens.

    I know that my doctor is on top of this stuff and calls me right away.  When I was first diagnosed he even called me on his day off to check in and to see how I was doing.

    My prayers are with you.

    Carol 

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  • BooBee
    BooBee Member Posts: 860
    edited September 2009

    I had my mamo on Friday and all is well.

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  • Mary22
    Mary22 Member Posts: 779
    edited September 2009

    This is the anniversary of what finally sent me to the doctor and he said Oh I see you just turned 41 and have not had your mammo!!!!!!

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  • TorchSong
    TorchSong Member Posts: 348
    edited September 2009

    I had my mammo on Monday. No official results (I'm seeing my medical onc tomorrow and he may have more details) but the tech just sent me on my way, so I'm guessing everything looked OK to her! Which isn't completely reassuring, but better than nothing.

    It hurt. I took a couple Tylenol beforehand, but it still hurt. On the cancer side, the breast is really dense now (because of teh radiation) and still tender. On the other side, when the skin was pulled when she compressed it, it pulled at the port site (which is still healling). So ow on both sides...

    I'm guessing, as I said, that everything is OK. 

    How's everyone else doing?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    Doing ok here.  Had my mammo on Sept 15th and while it was definitely uncomfortable, it didn't hurt thank heaven.  

    Last Sept when I had my regular mammo that found the lump, I remember that they called me back within about 4 days to come in for an additional mammo because they did not like what they saw.

    I am guessing that all is fine this time around since there has not been a call back.  Go to see my onc on Sept 30.

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  • TorchSong
    TorchSong Member Posts: 348
    edited September 2009

    Saw my medical onc this morning. He said my mammo was fine! Yay!!

    Also started me on Dixarit (clonadine) for the hot flashes/night sweats. It's a blood pressure drug, essentially. He thinks I'm probably going into menopause, pushed there by the chemo. Otherwise, all looks good!

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  • SusieMTN
    SusieMTN Member Posts: 795
    edited October 2009

    Hi girls, well looks like the third time was the charm, had to go back in and have my incision re-sutured.  But I am healing nicely.  Still have some red irratated skin from Radiation from May.  I will be seeing the Plastic surgeon in Feb to start the reconstruction phase.  Doing great!

    Big news was we got VIP tickets to "The Ellen Degeneras Show" and we had so much fun!  Danced our little butts off!  Wow you really get the gifts on her show, Orek Vac, New Balance shoes......

    All the old posters have vanished?  

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  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited October 2009

    Not vanished :)  Mammo was Sep 21 and I was freaked fo sho and everything was fine.  I started Tamox shortly before that and so far so good :)

    Good to see folks checkin in :)

    Hugs 

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  • SusieMTN
    SusieMTN Member Posts: 795
    edited October 2009

    Yea!!!  Rachel is back! The first Mammo after treatment is a (as my older sister says) a "Bitch Willy"!  (she is so funny with her "sayings") .  I freaked out because they found something not normal (fibroadenoma) which I had them remove. 

    My incision started leaking again, unbelievable!  I turned over on that side, trying to get comfy, eventually turned and felt something wet, yuck bunch of blood all over bedding.  So trotted off to the surgery clinic and saw a nice "young" surgical Resident who "packed" my incision, Oh joy what fun that was!  That was the only save young and cute!  His cute-ness put me on antibiotics.  All I want is to have no other issues but seeing the Oncologist!  Goooosh!  One of these days!  Good news in all pathology reports are not showing any evidence of cancer!  

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