March 2009 Rads Group?

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  • nelia48
    nelia48 Member Posts: 539
    edited April 2009

    Martha, so glad you are going hatless!!!!  I know what you mean about the "loving me" without it.  I feel so free.  Like a new person.  I'll never wear it again.  I feel like I have a happier face than I've had in years.

    I have my treatment at 1:00 in the afternoon, so I don't use any creams, etc., in the morning.  I take my shower, wash carefully, and get ready to go.  After the treatment, I come home and use the My Girls Radiation cream.  I try to sit uncovered for a while until this goes in and then reapply again.  I do this several times.  Later, I will use the A&D or Aquaphor.  This stays greasy, but it keeps the scar line from drying up and then cracking open again when I move or bend.  I did sleep better last night, but when I got up, it was agony as each little crusty thing broke open when I moved.  I hope the Dr. is there today so I can get something better to use.

  • TorchSong
    TorchSong Member Posts: 348
    edited April 2009

    Nelia, the ME I meant who rocked was Melissa Etheridge (reference to Rachel's post, above)...I'm pretty proud of myself for making it through this, but I wouldn't say I rock! LOL

    And I'm inching closer to gong hatless--I do at home, and I've switched to ball caps most of the time (except for church and professional meetings...). Maybe in a month or so I'll be hatless--still pretty chilly here!

    Hugs to all!

  • nelia48
    nelia48 Member Posts: 539
    edited April 2009

    Go for it, Martha!!!!  I remember I was at the Cancer Center talking about hating the hats, and the receptionist asked me how long my hair was, and I just whipped off the hat for her to see.  Everyone ewwwed and aaahhhhed over how I looked, and I havent put it back on since.  It was a very freeing moment for me.  Took me by surprise, as a matter of fact.  I realized at that moment that I had let myself go, no make up, etc.  I've started using a little makeup again, and caring about myself has helped my whole outlook!

  • CindaD
    CindaD Member Posts: 120
    edited April 2009

    Torchsong, I'm also getting closer to going completely hatless, I've been that way all along at home (unless my head got cold),  I was a scarf person, had a lot bright colors, now I'm wearing only baseball hats....... my hair is coming in completey gray, I'm going to find out how long my hair has to be to color it.....but hey a gray hair day is still better than a NO hair day!  My hair is so soft and silky in the back, like a very short buzz cut!

    BTW, I'm starting to hate rads and am taking next week off from work just to regroup!  I'm sick of using all of my energy up at work and have nothing left for home!  I hope the sun shines next week!

    Nelia, great to hear you're doing better.  Welcome to our New Yorker, I forgot your name and I'm to lazy to look you up because then I'd have to retype this!  Your posts crack me up!  I love your staging categories, what would stage 1 be?

  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited April 2009

    My routine: Doc has forbidden anything that has Vit A, C or E and after my freakout, nothing but the Boiron Calendula she recommended... but she allows my pure aloe vera.

    My one-wired sports bras are cotton, and while i have Pam Anderson's boob that gives me the best look to match my droopy boob, so until the skin gets raw, I'll wear them.  I also wear a piece of cotton I cut from a soft t shirt across and under my boobs to collect boob sweat.

    As soon as they let me get dressed, I put on the Boiron cream or lotion (they give us the ointment but its gross and they said it doesn't work better than the others but that's what they have to give out).

    Slather slather slather of course.  Up to the armpit and under the boobs- and I was warned that the first place to get rashy was towards my collar bone, so up there too. My nipples have always been standing on end noticably, my gal pals in high school used to call it "weather report"... and I have been feeling the burn there so I try to concentrate the gunk there.  The aureola is also raised a bit.

    The rest of the day, any time I think about it I either slather on more of the Calendula alternating with the aloe- which I have to keep in the fridge.

    I shower before each treatment, and as long as I am awake 4 hours before the treatment, I get one more slather in, then wash off the residue before treatment.

    Today will be day 7, I have Pam Anderson's puffy boob, and it's red but currently not feeling any burning.  I wish I could try the Burts Bees and stuff Torch Song is using with such great results.  I also have the My Girls Radiation Cream and its really lovely but I have to admit that within 24 hours of using it I get a big reaction to the radiation, although I have zero way to know if that's the cause- I have to eliminate it just in case.  

    OK off to the treatment or I will be late, more later and many many hugs.

    Oh and CindaD, my colorist is amazing and works one day in Philly each week and I think his family is out by you in York.  Would you like me to see if he can give you a consultation on the color?  Seriously, he is qualified.

    And Torch Song, today is my colorist's bday, my cousin's bday, Passover and your birthday.  I had to cancel going to Passover at my cousin's, its a long drive and I can't be sure I am up to it- but I feel better to know that I can celebrate a little with you today :) 

    OK OK gotta bolt or I will be late for Camp Nukemboobie

  • BooBee
    BooBee Member Posts: 860
    edited April 2009

    Martha,

    Happy Birthday to you, happy birthday to you, happy birthday dear Maaaarthaaaaaaa,Surprised happy birthday to youuuuuuuuuuuuuuuuu!!!!!!!Laughing

    I got you all beat.  I've gone bald 90% of the time and I love it.

    Camp Nukemboobie.....that's a good one.

  • FLMel
    FLMel Member Posts: 40
    edited April 2009

    I'm nearing the end (7 more to go) but I'm miserable. If I had known how bad it would be, I'm not sure I would have done it. I can't lift my arm up. I can't sleep. I'm working but just barely since I can't wear a bra without feeling like I'm dying. Survivors I talked to made it seem like rads were a walk in the park. Am I just being a whiner?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2009

    Camp Nukemboob...just love it! Way to go RachelBC.  I've been using the "My Girl's Radiation Cream" and so far so good.  Today will be rad #16 of 30 and I have not had any boob issues (god I hope I haven't just jinxed it!).  Felt like I hit the fatigue wall really hard this morning for a couple of hours and then poof..the fatigue vanished...go figure. 

    FLMel...no you are not being a whiner.  I guess compared to chemo, radiation "can be" much easier.  Keep in mind we all experience the SE's differently and to different degrees - from few to no SE's to full blown SE's.   The thing to keep upper most in your mind is that you need to be extra loving to yourself...rest when you need to...take care of yourself.

  • Mary22
    Mary22 Member Posts: 779
    edited April 2009

    Happy Birthday Martha!

    I have 5 more Rads tx, I can not wait for this to be over. I am very grateful that I did not have to have Chemo.

    God Bless. Mary

  • jessee54
    jessee54 Member Posts: 112
    edited April 2009

    Hey, HAPPY BIRTHDAY, Martha!!!!!!!  You will have many many many more, I'm sure!!!!!!

    Rachel, thanks for the uplifting support you give. I had to laugh out loud at the Anna Nicole remark, couldn't hold it in any more... (I think I'm already Anna Niclolish, just the boob size, not the sexy).

    I had tx #21 today, out of 25 whole breasts. The skin underneath is really starting to sting, but no breakdown yet. My rad onc prescribed some lotion w/lanocaine to numb the pain. She also gave me a script for silver sulfadianzine, in case I get a breakdown w/open skin before I see her next Wed., but she emphasized NOT to use it unless the skin opened up. So she's going to finish up the last 4 whole breasts tx's, not skip to the boosts, since she feels my skin is holding up way better than she expected.  Then on to the 8 boosts.

    Nelia, have you gotten a script yet? I think their neglect of this is INEXCUSABLE!!   Big hugs... 

    The rest of my boob areas, including scars, are doing well, although pink. The scars are actually un-affected, and almost completely faded, which is a mystery to me, since most of you seem to be breaking down around the incision. Go figure!

    Rachel, I just wear a sport bra, a very supportive one, and keep it off while I'm at home, most of the time. I just wear a comfy t-shirt around the house. I like the idea of a cloth underneath, I bet that would feel good.

    They gave me some gauze strips today that have a layer of Aquafor on them, so you can stick them under your boobs during the day, or you can add some lotion onto them and put them on at night.

    I shower in the morning as well, then lotion up, wait for it to dry or soak in a bit, dress, and go about my day. I don't have tx till 2:30 pm, then I lotion up again after tx, then at night I do the real greasy stuff (olive oil, and lately the Aquafor, since it started stinging), throw on an old t or sweatshirt, and go to bed. 

    Bluedasher, the nurse told me the reason for washing off the lotions, or not using them up to 4 hours before tx is because they can actually amplify the rad treatment, especially the oils, they can make it burn more if you leave it on during treatment. 

    Best, Jessee 

  • kristifromsandiego
    kristifromsandiego Member Posts: 271
    edited April 2009

    Martha- Happy Birthday.  Feel like I should send you a gift, feel like we have talked on a few different threads for months....well hard to believe it has been months, your diagnosis date and mine are very very close together.  I have just finished radiation #12 and am only a little red, kind of underneath my arm pit nearly on my back.  On Friday I will be half way, they say I will only do 28 sessions, no boost.  I haven't been as good about putting on the cream.  I try to put it on right after radiation, then once more sometime during the day, and then once at night.  My stuff is not that oily in fact it reacts just like moisturizer.  Hope it is doing what it is suppose to do. (sample for the raditation people)

    I am getting really tired, I feel like I need a nap every afternoon, I usually push myself through it but today I had to lie down for an hour.  I could have stayed there for 3 hours but told myself to get up because I was worried that I would not sleep at night.  Also, didn't have much of an appetite.  I actually felt kind of sick to my stomach, I think I was just wiped out.  I do not sleep well at night, because of hot flashes.....sorry about all the whining, kind of had a tough day.  Kind of unusual for me since chemo ended I have been on kind of a high.

    Renee, I cannot believe that both you and Martha have hair.  When did you stop chemo?  My last chemo was on February 23 and I don't have any yet, just like a babies bottom....I can hardly wait.  Stay happy.   Kristi

    Also, are you guys having any "other" test to confirm they got it all or that it has not reappeared.  I have not talked to my oncologist about this but I want to find out.  Thank you.

  • BooBee
    BooBee Member Posts: 860
    edited April 2009

    Kristi....My last chemo was February 25th.  I did 6 T/C but I don't know if that makes a difference.

    It's so odd how different everyones skin react to radiation.  I tan easy and the rad onco said that it should make it easier.  Those of you that are having difficulties, do you burn easy?

    I also need to keep my mouth shut.  Just when I think everything is easy something goes wrong.

    Kristi....I'm glad you brought up the subject of surveillance after all the treatments are over.  I'm told that I need to practice the two week rule.  That is, if we have any pain that last two weeks we should call the onco.  I was shocked.  No scans other that a mamo.  What have the rest of you been told?

  • karen43
    karen43 Member Posts: 24
    edited April 2009

    Nancy...I hope you're doing well since finishing tx.  I am very tired and sore.  Have underarm issues and using silvadene cream. It's getting better..slowly.

    I can't believe it but I cried my last day of tx.  I was fine until the rad tech presented me with a guardian angel pin and gave me a hug.  That was the kick starter.  Then the rad onco & his nurse started in about the letdown feelings some people have when finishing rads and how it was all perfectly normal & that I had done everything I could possibly do to treat this cancer.  Then I started bawling.  I felt so ridiculous!  Of course they scheduled me a flurry of upcoming dr. appts (which makes me feel better, I guess) & the nurse is suppose to call & check on me next week.  Otherwise they said it's usually 4-6 mos. before they'll do more mammos.  So, I guess I'm back on the waiting train.

  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited April 2009

    I can't take credit for "Camp Nukemboobie", I read that somewhere, can't remember where though... that's another SE for me, I can't remember stuff, search for vocabulary words, I get in the elevator to go down to the lobby and push the button for the floor I am already on... have to keep checking the fridge to see if I put the cat in there... I am SURE it's the stress and fear and fatigue and not the treatments themselves, unless they have been missing my boob and radiating my brains instead.  

    I should have added that I drink at least 1.5 liters of water and walk the mile to treatment and back each day, plus a big walk on the weekends.  I think it's fair to point out that some of the tiredness (fatigue) can be attributed to dehydration- I learned that when I lived in Arizona.  Water is good for your skin anyway, to combat normal dehydration, so it all makes sense that radiating your body is dehydrating, and drinking water should help with the tiredness.  I have noticed each time I am really unusually tired I am also getting sticky mouth/cotton mouth.  The exercise must be helpful as well, you know, getting the endorphins going.  

    My fatigue comes and goes too day by, and so far is my fault because I stay up too late and then my kid is up at 7.  That tires me on a normal day so I am just a stooge for continuing my bad habits now.

     Yes, I have met some women who had barely any side effects- so that's something to aim for and NO you are not a whiner if you are having side effects.  

    There is NO one on here that qualifies as a whiner. Especially if you are having skin problems- they HURT!  

    I am emotional today, I don't know if its the fatigue or time of month or because I had to cancel going to my family's Passover.  

    My experience at the radiation center is actually pleasant but just about every time I get the urge to climb off the table and RUN! 

    ---- I tried to post this earlier but learned that I had already posted the limit of posts per 24 hours- oops.

    It gave me a moment to re-read some stuff- and FLMel, could I trouble you to ask what your regimen was for creams lotions and potions?

    --- Now I have read the entire September RADS current thread about Hormone Therapy.  I had a bad day today too, could be a number of things, but tonights object of obsession became Hormone Therapy.  But now I feel better because at the end of the 18 pages- more like the 17th page I think, someone said something about how scary it is reading all these terrible things and the gals pointed out in response that people tend to only post when they are suffering.  I get that.  So then looking back at the people and pages I read, it was really not so many people or problems.  And now that I think that when someone doesn't post it's because they are too busy enjoying their life as pretty normal.  I get that too.

    I learned soemthing else on the HT thread, I am going to add my radiation details to my sig line like:

    "36D, Prone, 5 wks plus a week of boosts, (kind of machine), BoIron Calendula + Organic Aloe Vera, swelling and redness"

    So if we all did that we'd be able to easily see what's working for whom.  

    Man, it's late... goodnight gals and thank you again

  • kristifromsandiego
    kristifromsandiego Member Posts: 271
    edited April 2009

    Karen, your email nearly made me start crying by just reading it.  I have been so "up" since chemo was over and I understand that when radiation is done, then I can see that their might be a let down.  You said it so well. I have become quite good friends with my rad techs

    Renee, I also cannot believe that when this is over then we are done, no ex rays, no pet scan, no MRI, no blood tests, just done done done.  It does not seem right.  It is all a bit confusing.

    Rachel, thank's for your thoughts, I am pretty good about the exercise but hate to drink. After poring so much liquid in me during chemo, I have grown to hate water.  I will try a bit more tomorrow.  I also think I over did.  I am doing it again tomorrow however, going to radiation, exercising the dog, then going to the Padre game.  Oh my gosh, I am already tired.  

    Stay happy everyone, I wish I was going snowboarding with my daughter...oh to be young.  Kristi

  • nelia48
    nelia48 Member Posts: 539
    edited April 2009

    It was so good to come here today and read everyone's happenings yesterday.  I was just too down to post last night.  I did my rads treatment yesterday.  She told me it was the last whole chest one and today the boosters start.  I questioned that, as I thought I was already into the boosters -- that's what they told me Friday.  Oh well!   5 more treatments and it's all done.  I did see the Dr.  and I demanded something better than the aquaphor.  He wrote a prescription for the silver sulfadia. ...  whatever it is.  So I slathered that on when I got home.  I'm assuming this will get worse before it gets better, as the burns are delayed by a few days.  Maybe it's just that we've been through so much before getting to this point, but this has all taken me by surprise, believe me.  I've been such a stoic, almost nonemotional, through the chemo and surgery, etc.  My attitude has been good, outlook good, etc.  But through this radiation, I feel like I've had darker thoughts, worrying about the future, all the "what if's" have flooded in, I lay awake at night wondering if I'll make it, etc.  And on top of that, my ribs are killing me, and I feel like I have a thousand sharp knives in my chest.

    Wow!  I sound like the winning whiner of all times, don't I?????  I will be the happiest person on the face of this earth when I'm DONE next week.  At this point, it will be a miracle if I don't quit, believe me!

  • TorchSong
    TorchSong Member Posts: 348
    edited April 2009

    Nelia, you are not whining--you have every right to hurt! What you are delaing with is very difficult and painful. Good for you for demanding your anc give you something stronger. Sometimes the meds do take a while to kick in (I remember dealing with that when I had thrush during chemo--the medication tasted horrible and didn't kick in for a week!!).

    Hang in there, you are almost done--the treatment finish line is in sight!

     I was fitted for my compression sleeve (also a glove and a gauntlet) today. They'll take a few weeks to come in, but I'm in the mild early stages of LE, so there's not as much urgency. I'm getting one plain sleeve and one purple one (with matching gauntlet)--since short-sleeve weather is coming up, I thought I might as wekk have a fun one!

    And on a side topic...why do companies name colors after food? The color choices for the sleeve were blueberry, plum, pistacio, chocolate...not blue, purple, green and brown. Guess which color was called by a color name? Pink! yep, bc ribbon pink. 

    Hope everyone had a great day!

    Martha

  • sama710
    sama710 Member Posts: 28
    edited April 2009

    I've completed 11 of 33 and just a bit of pink in the lower part of my chest.  That really surprised the radiation oncologist -- she assumed i'd be burned by now!   I'm using "Burn Spray" from Rebecca's Apothecary here in town: http://www.rebeccasherbs.com/contact.html    It's just aloe oil and lavender and is very cooling and seems to be protecting my skin.  I also put pure Vitamin E oil on the port scar (it's in the field of radiation) and the mastectomy scar.  Before bed I use LOTS of lotion that has aloe and calendula in it.  

    For itching, I'm using a homeopathic product called Florasone Cream from Boericke & Tafel.  If that stops working, I've got some cortisone cream as a backup.  

    I also have mild lymphedema in my right arm and chest.  Manual Lymph Massage (MLD) has been EXTREMELY helpful in keeping that under control.  I would encourage anyone who has even mild swelling to get a compression sleeve and gauntlet or glove, as well as MLD as much as possible. There is some evidence that if they catch the lymphedema early, there is a much greater chance that you won't have (or won't have as many) long-term problems.  

    Martha, I went with "cranberry"!   sama 

  • CindaD
    CindaD Member Posts: 120
    edited April 2009

    Hi Everyone, I asked my onc about followup after rads, and he said see ya in 6 mo, unless you have problems before that!  Well, I have to see him in 3mo because I'm in that bisphosphonate trial.  But....no tests or scans!  I see my surgeon 6 wks after rads for a checkup and that's when I'll get my first mamm since this all started.  We'll have to learn to live without putting cancer on the front burner, I think it will be difficult at first because this is all we have thought about for the last 8-9months!  I'm looking forward to getting my life back, but a little apprehensive about starting tamoxifen.....I'm going to give myself a 3 week break between rads and tamox.  I'm now researching supplements/vitamins/herbal remedies that will be useful at this stage!  Always something to learn!

    I hope everyone has an enjoyable Easter Weekend!

    Cinda

  • Mary22
    Mary22 Member Posts: 779
    edited April 2009

    Cinda, I started Tamoxifen while I was still going thru rads Tx. Both the rads onc and the med onc knew and neither said not to.Good Luck to you.

     I feel that maybe my rads tx must not be working, because after 29 TX and only 4 more to go, I only got a little pink around my scar from lumpectomy. I was lucky enough not have to go thru chemo, not sure if that makes a difference. I hope the new cream works for you Nelia. I too think about the what if's too often. Every time my right breast (the good one) gets a little pain I worry that it is bc.

    I hope everyone has a great weekend and a Happy Easter!

    Mary

  • NancySchoen
    NancySchoen Member Posts: 32
    edited April 2009

    Karen... Yes, today was my last day too. I was very excited. I brought in a big basket of fruit and cookies which everyone loved. They gave me a certificate with all their signatures for finishing treatment. At the cancer center they have  a large bell to ring  3 times when you are done with treatment. I had a last massage too which was nice.  My DH and I went to an art supply store to get some things for an art class that I was to start tonight. 

      Around 1:30 I was so fatigued I had to take a nap. I woke a few hours later and still felt terrible. I could not get up the energy to go to my art class.  I had this feeling of a huge let down. I know exactly how you felt. It all came crashing in on me.

    I go back to the doctor in 6 weeks. I start the arimidex in a week.  They do not recommend a mammogram until 6 months after radiation so I have that scheduled. I have break down too but under my breast. I was given special sterile spray and gel bandages that I wear in my bra. It seems to be working.

    I guess I thought when I was done tx it would all feel so great but instead it feels scary. It is good that we are able to tell each other how we feel. It helps to know we are not alone in our feelings. Have a wonderful Easter weekend. Nancy

  • kristifromsandiego
    kristifromsandiego Member Posts: 271
    edited April 2009

    Since you guys are a bit further on than I am what do you think Tamoxifen or Arimidex.  I am suppose to start Tamoxifen when I am done with rads, I am wondering why one vs the other.

     Everyone hair growing back?

    Kristi

  • BooBee
    BooBee Member Posts: 860
    edited April 2009

    Nelia...You're not whining but even if you are, don't you think you're entitled to vent?  That's what we're here for.

    I'm usually a trooper until the trauma is over then I have a big melt down.  I'm trying to prepare myself for this but I never know when it's going to happen.  When it does you'll here all about it.

    Take care and congrats to all that have finished,

    Renee

  • nelia48
    nelia48 Member Posts: 539
    edited April 2009

    Kristi, my hair is growing back!  I'm hatless now.  About the Arimidex vs. Tamoxofin --- all I know is that Arimidex is only for women who have been through menopause and Tamoxofin can be taken by all women.  I'm on the Arimidex and have been taking it since I finished chemo in December.

    Renee, I'm like you.  I'm usually a trooper, too, through traumas and then fall apart later.  But this radiation took me by surprise.  I was such a trooper through chemo, etc.  And I thought I would march right through this, too.  But NOOOOOO. . .!!!!!!  For some reason I feel more worried about this than I did the chemo.  This I can see, and touch, and feel!  I showed it to one of the other patients I was sitting with yesterday and she just shouted, "OH GOOD LORD, YOU SHOULD JUST SUE THIS PLACE FOR DOING THAT!"  I had to laugh in a way!!!  I'm sure everyone heard her!  Maybe I'm an idiot for going back for these last few treatments.  I don't know.  I just don't want it to come back and always live with that feeling of "if only I had done the last 4."

  • bluedasher
    bluedasher Member Posts: 1,203
    edited April 2009

    My routine is to shower when I get up and then put on aloe vera gel (Fruit of the Earth) and Eucerin Daily Replenishing lotion. Around noon I get my radiation treatment (they didn't tell me to wash off the lotions so I don't - everything seems to be absorbed by then anyway). When I get home, I put on the same things again. Before bed I apply the aloe vera gel and Aquafor (or sometimes the Daily Replenishing lotion because I don't feel like using the greasy Aquafor). Sometimes I forget one of the applications but since they said to apply 2 or 3 times a day I don't worry about it.

    I'm fair skinned and don't tan (but haven't had that much problem with sun burn over the years - usually happened once a summer when I was a kid) and large breasted. I was a bit worried having heard that large breasted women are more likely to have problems with rads.

    I've had 17 tx and so far it is going pretty well. Last week I got a big pimple in the radiation area (not near my scar) but that is healing and doesn't hurt anymore. The rad onc says it happens due to rads some times. Other than that, the breast is pink and a bit swollen. It is also tender (and hurts if someone hugs me on that side). Sometimes I get some twinges in the scar area - I guess that may be just part of the normal nerve healing. The rad onc said that goes on for about a year after surgery.

    I had TCH chemo between surgery and rads so I started rads about 6 months after surgery. Parts of the scar are starting to fade away.

  • jessee54
    jessee54 Member Posts: 112
    edited April 2009

    Hi guys,

    I wanted to pop in and wish everyone a Happy Easter/Passover/Spring.  I am hosting my family at my house (about 16 of us), so I've been kinda busy!

    Had tx #23 today. Two more whole breast, then on to the 8 boosts. The past week my breasts have gone through a bit of a transformation. They are reddish tan, almost the color of native American skin. Well, I always tanned, never burned, so I guess this makes sense. I have some stinging underneath at the crease, and some tiny open blisters. It's not really too painful, unless my boobs change position, like when I lie down, or wash underneath. The lanocaine must be working. They are both swollen and tender tho.

    Blue- parts of my scars are fading away too. I have 4. One original lumpectomy scar, one SNB, one for some hyperplasia (benign) that was removed and one on the other breast where I had a tiny DCIS. That scar is along the areola, so it's hard to see anyway.  (This was all done at once!)

    Well, gotta finish scrubbing the kitchen. I'm tired, sleepy, but I want to make this Easter nice, as it's really the end of treatment party I never had.

    Love and hugs,

    Jessee 

  • Mary22
    Mary22 Member Posts: 779
    edited April 2009

    My end of treatment party will be on tax day, that is the my last treatment!!!!!! I will mail out my state and local taxes( I owe) but I get a refund from the fed taxes. It is not much , but enough for a nice dinner and a trip to Michigan this summer.

    I hope everyone has A GREAT WEEKEND!

     God Bless Mary

  • TorchSong
    TorchSong Member Posts: 348
    edited April 2009

    I'm planning on a party in June or so, to thank all the people who helped me--brought a meal or drove me to treatment or lent me movies or whatever. I'll be done with treatment May 1, but I want to be sure I'm not tired, since I hear that fague is cumulative.

    Sun is shining here, but it's chilly--so no yard work just yet.  Besides, I do have a big sermon due tomorrow! Wink

    Have a great weekend, everyone!

    Martha

  • nelia48
    nelia48 Member Posts: 539
    edited April 2009

    Not sure I'll be up to having a party right away either.  Great idea, though, and I think I'll have one later one, too.  I'm getting more and more tired.  I also noticed that I have burns above my collar bone and on my neck.  I asked the radiology techs if they had done treatments there, and they said no, that the radiation was spilling over and collecting in places.  That worries me.  What's going on inside that we can't see?????  I'm still nursing terrible burns here.  Skin is turning leathery and dark -- some places it's black and coming off. 

    Would love to hear your sermon, Martha, as I don't think I'll be going out tomorrow!

  • Eldub
    Eldub Member Posts: 276
    edited April 2009

    I haven't checked in before - but I'm a part of this group, too!  Monday will be #28 for me - the last whole breast radiation treatment (yoohoo!), then on to 5 boosts.  (I had a lumpectomy.)  I'm looking forward to reaching the end of this process.  My skin is doing okay - pretty red at this point, tender, and ITCHY!!!!!  But no blisters, so I'm counting my blessings there (and keeping my fingers and toes crossed).  I'm very fair skinned, sunburn easily, etc, so was pretty apprehensive about how my skin would react to rads.  And I did need to change what I was doing lotion-wise (the Aquaphor and Biafine the Rad nurse put me on did nada for me - I was lobster red by #16).  Aloe Vera and Calendula based lotions have worked a lot better (and gotten the ok from the rad doc).  The hardest thing, besides the ITCHING, has been protecting the radiated area while still playing with, holding, rocking, carrying, wrestling with, and otherwise mothering my 2 and a half year old son.  I'm really looking forward to not having to be so careful...though I realize it will be a few weeks, and maybe months, before we're there.

    I've also been considering whether I may end up going back for a mastectomy at some point after all.  But that's another story, and another decision to be made.  And I've told myself I'll wait a year before doing anything, to give my tissue time to heal from rads.  For now, suffice it to say that I only found out my DCIS was ER/PR negative (and assumed to be Her2 neg, though not yet tested), when I was mid-way through rads.  Recurrence risk is higher - and Tamox won't help - so I likely would have chosen mastectomy instead of lumpectomy had I known this earlier (my biopsy was botched and the sample contaminated, so the hormone receptor testing on it came out wrong). 

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