Can we have a forum for "older" people with bc?

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  • cassiecanada
    cassiecanada Member Posts: 166
    edited October 2019
    Mac5- Very sorry to hear that the cancer
    is back- very shocking for you- It is
    something that sadly, all of us are aware
    can happen- the fear and uncertainty
    is a constant to varying degrees-
    almost like a waiting game as we all
    are dealing with percentages
    versus “ cure”- to which we know there
    isnt one- Having said that, I hope
    that the followups from your first encounter have given you a headstart
    in this new fight- head off the beast, so
    to speak- keep us posted-
    we are thinking of you
  • carolehalston
    carolehalston Member Posts: 6,887
    edited October 2019

    I forgot to share that dh and I went for a long leaf peeping drive yesterday. Some of the forest scenes are quite lovely with a lot of vibrant yellows and oranges and occasional reds. We drove on some unfamiliar unpaved roads where the forest on each side was quite close. Surprisingly, we didn't see a single deer or bear. The tree population is divided between deciduous and evergreen.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019
  • Yogatyme
    Yogatyme Member Posts: 2,349
    edited October 2019

    Illinois-LOVE your post!!

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    Compassion is the basis of all truthful relationship: it means being present with love--for ourselves and for all life, including animals, fish, birds, and trees. Compassion is bringing our deepest truth into our actions, no matter how much the world seems to resist, because that is ultimately what we have to give this world and one another. -Ram Dass

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    So much cooler today -- maybe 73 or so. I've saved some things I might have done much sooner but I just couldn't see going out for periods ( I'm much more slower and careful out of doors now ) and traversing hot parking lots. While heat doesn't always get to me the lack of any breeze as well as high humidity just made these things I'll do seem tedious and pretty un-desirable.

    So here's to far better temps with it sounds like, rain coming slightly before or on the week-end. Sure can use that. We are thin on the lawn now and dusty and dirty everywhere. My can is icky -- but I may wait to wash just before the rain to avoid dirty rivulets and other indicators that I tried to let the rain do it. The car wash is $6.00 so is not a bad investment. I just hope any settled dirt and dust can stay that way for awhile.

    Leaves are finding their way to the ground here and it is evident that work will have to begin for mulching before they get too deep. Maybe we will try to wait for the rain in hopes of not creating our personal dust bowl.

    Think of all of you and wishing you well.

  • carolehalston
    carolehalston Member Posts: 6,887
    edited October 2019

    Good morning, all. Hope you have a good Thursday. Had to think a moment to make sure I have the right day.

  • Del13
    Del13 Member Posts: 198
    edited October 2019

    Day # 9 after chemo, feel better today, stomach is still sore, feels like I have been doing sit-ups, my marble size turmor is half the size no longer round, chemo is working, stopped by the beauty shop all going well, so blessed,my working family is the best!! Love them,, y’all have a blessed day!! Hugs we got this!!

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited October 2019

    Wow, Maggie, your neoadjuvant chemo is working fast! Hope you get to PCR ("pathological complete response") soon.

    Jackie, it's all the way up to 65 now--5 degrees higher than predicted. So the green 'maters remain on the vine. Lake Shore Drive was closed from downtown to its north end all the way up here, due to severe viaduct flooding. (Several cars were submerged).

    Had only 4 hrs. sleep last night--went to bed at 3, after taking my CBD & melatonin at 2, and 2 drops of CBN-blend sleep tincture at bedside. Tossed and turned for THREE hours--without earplugs, Bob's snoring (and now coughing--he refuses to see a colleague or Urgent Care, and had pneumonia in the past) kept me awake. But with earplugs, my "pulsatile tinnitus" (which I get only when lying down) was driving me nuts. Sounds like someone repeatedly sticking a shovel into cat litter, or marching on crunchy snow. My BP (I test it daily) was high normal. Then I got a nasty throat tickle, so I gave in and took cough medicine, and when I got back to bed loosened the earplugs a little. Just as I was about to drift off at 6:30...Bob's alarm went off. Finally fell asleep and had four hours of decent dreaming...but was awakened by both Heidi wanting to knead my chest and then horrible R foot (mainly toe) cramps. Vowing to nap later, I stumbled downstairs, back sore...to discover that the only night meds I'd taken were the CBD oil and melatonin (which I take first so they'll kick in while I put my night and morning pills in their respective shot glasses). D'OH! No Xanax, Baclofen nor Zyrtec last night. Must have gotten distracted by hungry kitties before I could down my night pillls. No wonder I couldn't sleep and my back was sore! I'd also laid off the Lasix the last few days, so that (and lack of the potassium I occasionally take the night before) may have contributed to the pulsing. Gotta see an ENT about that--or maybe have Bob listen to my carotids in case he hears a "bruit" that warrants cardiological investigation.

  • Del13
    Del13 Member Posts: 198
    edited October 2019

    ChiSandy, I know that sounds crazy, but if it hadn’t been for the marble tumor, I would have never scheduled a mammogram or ultrasound, I have very dense breast, the other mass I have feels like it always has, I was shocked when the radiologist said he needed to biopsy it,both breast feel the same, so I’m thankful for the marble, and it’s fading,,

  • MCBaker
    MCBaker Member Posts: 1,555
    edited October 2019


    "...to discover that the only night meds I'd taken were the CBD oil and melatonin (which I take first so they'll kick in while I put my night and morning pills in their respective shot glasses). D'OH! No Xanax, Baclofen nor Zyrtec last night. Must have gotten distracted by hungry kitties before I could down my night pillls."

    Sandy, been there, dun' that. Not fun. But where would we be if it weren't for modern medicine? Oh......

  • Del13
    Del13 Member Posts: 198
    edited October 2019
  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    "A life of spirit, regardless of what path you choose,

    begins with a person's acceptance

    that they are part of something

    larger than themselves."

    ~ Mark Nepo

  • LoveDals
    LoveDals Member Posts: 6
    edited October 2019

    good morning all....2.5 weeks post BMX and I am feeling really good except for the invisible needles that continually assault my chest. Doctor says it I normal and take ibuprofen regularly, while promising it will subside. Final pathology came in. No surprises on the left - Paget's and DCIS. And, drum roll please, negative lymph nodes. Right side was harboring LCIS but it too is now gone. So here I am, boobless and yet surprisingly OK with that. Ready to add so physical activity to my life but still way too hot here to be outside.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    LoveDals -- Good for you. When we do what we can to eliminate disease and get a good path report on it, we have hope and satisfaction that we have done what we needed to attain previous wellness. Nice to see as well that we are us rather than our body parts. Good for you and continued successful healing and wellness. Yay !!


  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    Life is an exercise in the development of feeling. When we repress feelings, we become sour and judgmental. When we live awash in great feeling over small things, we become jaded long before we have even begun to enjoy. When feelings are in balance they sweeten long days and great distances with gratitude and hope. -Joan Chittister, Seeing with Our Souls

  • Betrayal
    Betrayal Member Posts: 1,374
    edited October 2019

    LoveDals:

    Glad to to hear your recovery is going well.

  • carolehalston
    carolehalston Member Posts: 6,887
    edited October 2019

    LoveDals, after my bilateral mx with immediate reconstruction, I had strange sensations that eventually went away. One was feeling warmth or cold when I swallowed a hot drink or a cold one. I could actually feel the liquid going down my upper chest. I also felt very tight in my chest thanks to the reconstruction. All of this went away or the awareness went away. I remember how I was focused on my bodily sensations. It took about a year to return to "normal."

    One great opportunity that bc.org offers is the opportunity to visit and communicate with other women going through the same stages. Every day I posted on a discussion forum with women who had the same surgery and reconstruction. Other people, even our family members, can't empathize, as much as they might wish to be supportive and understanding. Good luck to you and we are here to listen and never judge.

    Yesterday DH and I played our last round of golf this year in MN with four other die-hard couples. According to Weather Bug it was 45 degrees feeling like 39. It was COLD! Because of the course layout, it was easy to stop after 12 holes. We all had beverages in the club house and then went to dinner at a casual restaurant that serves Mexican food and pizzas.

    Today is cold and gloomy. Tomorrow might be the same. Then we have a break on Mon., Tues., and Wed. That will work out great for packing up and leaving on Wed. October weather has not made us sorry to leave. It's supposed to snow next Friday. BRRRR....

  • mac5
    mac5 Member Posts: 135
    edited October 2019

    Thank you. I’m trying to be focused on fighting back.

    Hugs to all

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    However much or little you have,
    "Thank You" is always a more powerful prayer than, "I need more."
    - Jonathan Lockwood Huie

    Whoever does not regard what he has
    as most ample wealth, is unhappy,
    though he be master of the world.
    - Epictetus

    God gave you a gift of 86,400 seconds today.
    Have you used one to say "thank you?"
    - William Arthur Ward

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    Well, well. Started the morning by letting out a couple of our cats that like early morning. Just starting to rain so they had to stay in. It seems to have quit for now but overcast so very likely to get some more. I didn't get around to washing my car and still may do it so that I don't end up with Mudmobile. There was a good rain, but not pounding so it wouldn't have taken much of my cars dirt away.

    Cooler of course, too which is welcome after the late heat wave which only let up a couple of days ago. So for now -- all good.

    Hope you all are enjoying cooler and more pleasant weather for Fall.


  • Del13
    Del13 Member Posts: 198
    edited October 2019

    Mac5 so sorry you have to deal with this again, hugs,

  • carolehalston
    carolehalston Member Posts: 6,887
    edited October 2019

    We accomplished one of our list of "winter-izing" chores today: draining the water out of the ice maker in the refrigerator. It didn't take long. DH knows the process well. While we were dealing with the inside of the refrigerator, we cleaned all the shelves and drawers. I also took inventory of the freezer.

    DH accomplished another task on his own. Returning the bikes to the rack on the back of the camper and covering them securely.

    Today has been more cheerful for periods of time when the sun peeked out.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    A smile is the light in your window that tells others that there is a caring, sharing person inside. -Denis Waitley

    Every time you smile at someone, it is an action of love, a gift to that person, a beautiful thing. -Mother Teresa

    One word or a pleasing smile is often enough to raise up a saddened and wounded soul. -Therese of Lisieux

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited October 2019

    Mary, so sorry that you're back on the bc rollercoaster again. Hope it's easier this time around.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    Life is made up of a series of challenges designed to bring us to fullness of growth. Meeting them with hope in the future is the real test of the spiritual person.
    image
    Joan Chittister

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    Sandy, I like your new avatar. Great picture as seems to me the darker frames are really becoming.

    Had to re-schedule my Ortho appt. in Indiana. Actually works out well for me as I have a Pet Scan tomorrow ( 7 a.m. ). This is for the lung nodule. Instructions on eating -- no starches for 24 hrs. previous to test. I don't see the Pulmonologist until Nov. 14th. but I will get a CD of the results to take with me. That's a long wait, but I do have someone who can look at the CD beforehand if I wish. We will see how I feel when its done and I can resume a less strict diet. Sure glad it is only for 24 hours. I've given up almost ALL deserts since my arm strictly because cooking is a real chore so that has sooo paid off in caloric/wt. department. Apparently I didn't realize how much what seemed like little treats WERE not. I'm amazed.

    Glad for your sun Carole making things more cheerful. Our cheer for the day is that we turned on the furnace. Seems odd, but after so much humid hot weather our thermostat was showing 70 this morning, and while had it come a bit more slowly, we likely would have adjusted -- we felt chilled a bit too much. I'm glad because while I'm always it seems warmer than dh, I was chilled too.

    Hope you are all going to have a wonderful day.

  • Wren44
    Wren44 Member Posts: 8,585
    edited October 2019

    We added a blanket last night and it made for cozy sleeping. Even DH kept the covers up around his neck. Very windy and gloomy yesterday. It wasn't colder than it has been, but sure felt that way.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    Give yourself the gift of forgiving others,
    not because THEY deserve it,
    but because YOU deserve the serenity and joy
    that comes from releasing resentment and anger.
    Unconditional forgiveness is the path to your own inner peace.
    - Jonathan Lockwood Huie

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2019

    Nice day though really cool this morning. Had to wear a jacket ( had to be there at 7 a.m. ) going to hospital for my Pet Scan. Glad I had it too. It was an interesting procedure. Mine lasted about 18 minutes. Still, though it took place at the hospital it was an outside Lab. So, I was wheeled a long way ( in wheel chair ) through a lot of hallways and then outside. Put on a lift -- and then a big medal door was opened. After a couple of questions I had some blood drawn and my blood sugar was checked. Then the radioactive iodine in sugar water was injected.

    Then had to wait 45 mins. for the iodine to go where it was needed. Finally taken into the opposite end of the trailer where a ? CT type bed and tube awaited. I was allowed rather than the customary arching my arms over my head, to let my arms lay by my side as much as my broken left arm could. Then I had the mummy-Velcro wrap pulled up on each side of my arms.

    Not so good for me as I have some claustrophobia, but with my eyes closed through most of the entire time I was able to stay quiet. The major difference was that I had no idea ( other than feeling the bed move ) exactly when the procedure started as no one told me it was time, and un-like CT's there was no one asking you to do anything -- hold your breath or when to breathe again. No sound until at last I heard someone by my side said I was done. It was not so bad though I was really happy to get out of the Velcro. The man pulled it slowly and gently to keep my arm free of intense pulling. That was nice. I'm still considering whether to go over to Dr. B's and have him give his opinion of what the 'disc' might say.

    I was not able to keep my appt. in Evansville yesterday that in some ways was likely a blessing since eating on the day I go there is VERY hit and miss and I had to have a no starch diet 24 hrs. before the scan. I also would likely have been exhausted this morning somewhat. The V.A. has been providing transportation, but suddenly told me I no longer qualified. Hmmm. say what. Called my satellite ofc. and they insisted the DAV vans went to Evansville while when I called that office ( at least twice or three times ) I was told they didn't. I called satellite office back and told them they would have to find me a local Dr. or a ride -- their choice since it is out of the question that I drive myself. Dh, though he would, just won't admit to the difficulties he would face -- getting lost is just one part. I've watched him have some issues lately with directions. Then he has a habit of getting sleepy at the WRONG times which means a dive of the interstate for coffee and I would be biting my fingernails about that and getting there on time. I love dh dearly but I see things he isn't willing to concede which stress me to the max.

    So, DAV finally came through. I was told there were some loud voices ( I wasn't there ) in the satellite ofc. going on during the conversations with the DAV office. I still don't know if it is routine for them to go to Indiana, but for now ( I think this won't be the last trip there I will have to make ) there is a ride so I will have another appt. on this coming Tues.

    Okay, sorry my story was so long today.

    Hope you are all fine an enjoying Fall weather. We will get cooler again after tomorrow.

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